Everything okay?
If you or someone you know is struggling with an eating disorder, you are not alone.
If you are in the United States, please try:
National Eating Disorders Association (support, resources, treatment options)
If you are outside the United States, visit IASP to find help lines related to eating disorders for your country.
For self-help courses on body image and general peer support, please try Koko.
If you need some inspiration and comfort on your dashboard, follow Post It Forward on Tumblr.
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happy disability pride month to those with conditions no one talks about, online or in general:
multiple sclerosis (me lol)
marfans
cerebral palsy
bells palsy
hidradenitis suppurativa
cauda equina syndrome
mixed connective tissue disorder
hyperadrenergic pots
non hypermobile eds types
stickler syndrome
mitochondrial disease
cystic fibrosis
sickle cell disease
myasthenia gravis
post-cholecystectomy syndrome
SWAN (syndromes without a name)
...just to name a few. i see you and you deserve awareness and understanding.
this list is non exhaustive, rb with other conditions you want to see represented!!
[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]
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WOE!! PINKIE UPON YE!!!
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steve: this definitely isn't what i imagined when you said you "performed magic in the bedroom"
eddie, all dressed up and ready to perform his magic show:
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i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.
fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.
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So my joints hate my (yay hypermobility!) So I just spent 2 hours creating an embroidery design that I'm gonna slap on some fabric, to make into cushions, to prop my joints up while I sleep so I don't dislocate anything!
Still gotta test it out and everything, but once I do, I'm planning on putting it up on my Ko-Fi if you guys wanna stitch out some OUCH things on your own
Ko-Fi
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So I've seen a lot of talk about pain scales. How there should be a special one for chronic pain patients or people who say they're 11 out of 10, etc.
The thing with pain scales though, they are supposed to be about the bodies reaction to pain. A pain scale is supposed to be about how to appropriately treat a patient. So if a person is a 10 from something you'd be a 6, their pain still needs to be treated in accordance to how it feels for the patient (in a perfect world). Your 5 may be another person's 9 but that's beyond the point. 10 is still the peak for the worst pain possible you can handle. Pain where you black out and can't speak. Where you go into shock. Where you can't do anything but lay there locked in agony. That is the peak for anyone period because that's where the body taps out. There shouldn't be extra numbers for chronic pain patients or anything. It defeats the purpose of pain scales. A good pain scale is about physical reactions with the body.
No pain scale is perfect but doctors need some way to gauge how to treat a patient. This one is the one I prefer the most because it is about the body's physical reaction to pain and the treatment for it.
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If anyone is interested in a reference for Thabo! 🌈🎧🫧🌟🩵
He uses a lot of different braces : wrist brace, ankle brace, neck brace, KT tape for shoulders, Forearm crutches, Rollator, etc, all to help him with his EDS.
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Every fucking bus stop should have a bench and I'm reblogging this for every minute I have to stand by disabled ass at this bus stop
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PSA
-OCD is not a synonym for neat or preoccupied with tidiness. Obsessive-Compulsive Disorder is all about distressing intrusive thoughts and rituals (compulsions) used to combat those thoughts.
-Intrusive thoughts are not synonymous with silly things I want to do. They're deeply upsetting, often taboo mental apparitions. Letting them win is the last thing anyone wants, and nobody is immoral for having them. (See 'impulsive thoughts' if you need a term.)
-Anorexic is not a synonym for thin or emaciated. The majority of anorexic people have OSFED atypical anorexia – that is, their BMI is above 18.5. You cannot judge the severity of someone's illness by their appearance. (If you're worried about someone, look out more for rapid weight loss than thinness, even when it's occurring in someone in a larger body. 10kg in 10 weeks is never a good thing.)
-Eating disorders are not synonymous with just anorexia and bulimia. Anorexia is an ED, but it's nowhere near the most common. Bulimia is an ED, but again, not the most common. Together, they do not constitute the most common. The most common ED is binge-eating disorder, and the second most common is atypical anorexia, which is one of many, many OSFED categories. Those living with ARFID, pica, night-eating syndrome, rumination disorder, subthreshold BN, subthreshold BED, and orthorexia all deserve dignity, compassion, and acknowledgement. Remember: EDs are not necessarily thin, and never glamorous.
-Schizophrenic is not a synonym of all over the place, abnormal, unpredictable, dangerous, or crazy. Nor is schizoid or schizotypal. Folks with schizophrenia spectrum disorders live with hallucinations, delusions, disorganised thoughts/behaviour, and/or catatonia. They are far more likely to be victims of violence than perpetrators, and go to huge lengths to act okay even when distressed by symptoms.
-Schizophrenic is also not a synonym of multiple personalities/volatile. For the disorder involving having different facets of personality that are generally unaware of each other, see Dissociative Identity Disorder, and even then, don't assume it's a) dramatic as it is in the movies; b) evil; or c) trivial. DID is a trauma disorder.
-Delusional is not a synonym of wrong. Nor is it the same as this politician/friend is saying something I do not like/that is potentially dangerous. Delusions are false, fixed beliefs held despite evidence. And generally, folks with delusions don't tend to proselytise them. I know that certain politicians have beliefs that seem to persist in the face of evidence, but nevertheless, we don't need to stigmatise mental illness further to call out poor political/social behaviour. If you need a word for the pundit spewing potentially dangerous content, use 'dangerous' or 'wrong', but don't call them delusional.
-Bipolar is not a synonym of all over the place or fluctuating results. Bipolar disorder involves mood states that, even in the rapid cycling form, tend to last at least 3-4 days (mania) and weeks (depression). If you need a word for the weather, use 'British' instead.
-Psychotic is not a synonym of evil. Psychosis is losing touch with reality, whether it be through hallucinations or delusions. It doesn't make a person bad or violent. It's just a neurological phenomenon that may be distressing. It's also relatively common: 6-15% of people will hallucinate in their lifetime.
-ADHD is not a synonym of just quirky/scattered/forgetful/unfocussed/lazy/careless. ADHD is fundamentally a disorder of being able to choose where to direct attention, rather than of just I can't focus. If someone can't tune out the noise of the crowd, but can't prevent themself focussing on something trivial because their brain is wired that way, it's not laziness or just being quirky/scattered.
-Autistic meltdown is not a synonym of temper tantrum.
-Borderline is not a synonym of harridan.
-Narcissist is not a synonym of abuser.
-Mentally ill is not a synonym of volatile or bad person. This doesn't mean we have to make something artificially positive out of mental disorders. If there is good to be found in certain disorders, great; if there is nothing positive about living with certain others, that doesn't make you any less real or resilient than anyone else. It's okay to have complex feelings about your own disorders. It's okay to feel exhausted or frustrated by a disorder. But never should anyone have to face stigma.
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corset has become one of those things where I wonder why I feel so bleughhh and then I realize I'm not wearing it or haven't laced it up, stupid,
and then I do and instantly have blood in my brain again and start zooming around my house faster and thinking clearer. it's interesting how so much of this illness is purely mechanical. squeeze one part of your body to move fluids to another part of your body. apply pressure to an area that is sore and hurting and it feels better. idiot. moron
one of the lectures about POTS/EDS at the Dysautonomia Conference I think in 2022 ended with the presenter recommending corseting (she phrased it as "abdominal compression" because corset scary) by using waist trainer wraps for patients to immediately get some relief and restore homeostatic fluid dispersal to the parts of the body that need it. compression garments are recommended in the scientific literature for tons of stuff that doctors don't communicate to patients, including autism. not necessarily a corset corset with steel boning that looks like a fetish club item, but just general physical mechanical support for all these patients whose problems are either rooted in or comorbid with tissue laxity and bad orthostasis. if it's loose, add reinforcement. very simple mechanical principle we all understand intrinsically but somehow don't think of applying to our daily EDC of shit to handle our problems.
I have a friend with Problems Syndrome who describes the sensation of something being pulled downward uncomfortably from their chest and throat when they aren't tensing their abdominal muscles constantly. I do that too, it all has to be held in, held still, tensed and gripped or you feel like your body is collapsing like one of those string toys
anyway this is not to say "get a corset", because it's not the right thing for everyone obviously. also it's a lot of trouble to buy them and try them and break them in and not everyone wants to look like an extra from Sweeney Todd every day. I have that option because I'm a goth that works from home. I'm just blogging, don't take this as medical advice or even casual advice. I was just inspired to jot down my thoughts after thinking "why do I feel so shitty" today, lacing up the corset I had loosened earlier, and immediately regaining about 15% of my function.
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your honor i love her
ID in alt text!
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trans eddie buying a glow in the dark strap and turning out the lights so he can start swinging it around and make lightsaber noises
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PSA About Ibuprofen: Please Read
i know it's become a joke on this website to talk about taking ibuprofen over the smallest inconveniences, and i just wanted to say while it's not bad to take ibuprofen, please be careful with it. it is in a class of drug called non-steroidal anti inflammatory drugs, which all carry a risk of stomach bleeding, ulceration, and damage:
i was put in the emergency room for a bleeding stomach ulcer and have life-long stomach problems due to another drug in this class called Naproxen. most people don't seem to know about this very real potential danger that comes with using this medication regularly.
every time you take ibuprofen, please make sure you eat a heavy snack or light meal before you take it. i'm serious. this may sound like an over-cautious measure, but you do not want to ruin your stomach over a very middling pain/fever relief drug.
if you find that you regularly take ibuprofen, i highly recommend seeking professional help (if possible) for your pain, as it is NOT normal to have to take ibuprofen regularly, nor is it good for your stomach or other organs for that matter. if you can't seek medical help, i highly advise you to reduce how much you take ibuprofen and see if it is safe for you to substitute some of that with acetamenophin/tylenol. tylenol IS hard on the liver, so not everyone can take this, but it is NOT an NSAID, which means it does not carry the risk of stomach bleeding.
i know we like to joke on here but this can really hurt you if you're not careful. please ALWAYS read the labels for EVERY medication you take, even seemingly "Safe" ones like ibuprofen and tylenol. they are NOT "safe", especially when taken in ways they are not even intended to be taken. thank you for your time.
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