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rainbowchihuahuabunny · 11 months

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That chronic illness feel when you are in so much pain but you don't have the spoons to get up and get your pain medicine so you just lie there. In pain.

#chronic illness #chronic pain #chronic fatigue #chronically ill #ehlers danlos syndrome #pots #potsie #fibromyalgia #spoonie humour #spoonies #spoons #spoonie #spoon theory #spoonie pain #low spoons #gastroparesis #fibrosucks

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chronically-izzzzle · 2 years

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stars-and-branches · 1 year

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spencerrscardigans · 27 days

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there was something that got brought up in therapy that my therapist just didn’t seem to get so i wanted to talk about this here to see if other people, like chronically ill people have or do feel this way.

i hate being told i’m strong/resilient.

for my entire life i’ve had people tell me that i’m strong, that im resilient, that im so mature for my age.

me and my therapist (i no longer see her as she wasn’t over all the greatest) were talking about my life and how i’ve had to deal with a lot of things that most people my age don’t, and i was talking about how unfair it feels, and she was trying to find some positives in my experience, and used the example that it has made me resilient.

for one, my home life was very unstable when i was young, my parents divorced and my dad was very emotionally and verbally abusive (im out of the situation now) and because of this i was more “mature” for my age because of the fact that i had dealt with difficult situations from a young age and was forced to grow up way earlier than i should.

i’ve also been told this by doctors and therapists and teachers in regards to me dealing with health issues.

because of the fact that i have had to completely reevaluate my life and deal with very debilitating illnesses, my priorities and concerns are a lot different than other people my age, and when i was talking with my occupational therapist about ways to help manage my life while dealing with my illnesses, she told me that she feels like she’s talking to an adult and that i’m the most mature person of my age that she’s met.

when people tell me these things, like in the context when my therapist was trying to make me see the positives of this, they mean well, and really it should be taken as a compliment, but i personally have a very difficult time seeing this as a good thing.

the way i see it, i shouldn’t have to be strong. i was a child, i practically still am, i shouldn’t have to be so strong and resilient. the reason i am so “strong and resilient” is because ive been forcefully dealt frankly a very unfair hand in life, and i have a hard time seeing anything positive in it because of this.

yes, being mature, being resilient is helpful, but reason i am these things was unfair.

i so wish that i had the opportunity to learn and become mature and resilient from normal life things, i wish i became this way the “normal” way. the way most people do.

having chronic illnesses, and also being neurodivergent, i already have such a high wall/divide built up between me and other people my age, i feel like such an outsider, and i just want to be normal.

i’ve had such a hard time making and keeping friendships because of this as well, i’ve lost so much because of it that i have a really hard time being grateful.

when i tried explaining this to my therapist she didn’t really know what to say besides the whole “well just try to look for the positives”, and obviously since she has not had to deal with these things she doesn’t understand so i thought i’d post this here because it’s really been on my mind lately and im hoping that maybe im not completely alone in feeling this way.

#chronic illness #chronic pain #chronically ill #fibrosucks #rant post #sorry for the rant #invisible illness #relateable #long post #disabilties #disability #disabled #pots syndrome #ehlers danlos syndrome

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myalgicencephalomyelitiscfstom · 4 months

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#fibromyalgia #fibrosucks #fibrofighter #fibro #FMS

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thatfibrolife · 2 years

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The transition from abled to disabled, from skinny to fat, from mobile to immobile, from pretty to pity from health to pain from youth to fatigue from normal to...

Being a healthy-ish, beautiful teenager and then having your entire body change due to chronic illness is really difficult. And we don't talk about it enough.

#fibromyalgia #chronic illness #chronic pain #spoonie #fibrofighter #fibro #fibro flare #disability #fibrosucks #disabled

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mikehawk111 · 7 months

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Controversial post for people without Fibro:

Fibromyalgia is a neurodivergence because of Fibro fog. Our brains do not work the same as our neurotypical peers at all, and that’s not even mentioning how most of us have at least anxiety and depression along side it.

#mental health #fibromyalgia #fibro fog #fibrosucks #fibro flare #fibrofighter #neurodivergent #neurospicy #chronically disabled #chronically ill #chronic fatigue

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renee-writer · 9 months

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#fibro issues #fibrosucks

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sunshine-tattoo · 1 month

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This cannabis ointment is fucking magic.

I put some on my legs and I literally have no pain there now.

Like, fibro Never has 0 pain. It's the pi of illnesses: low but endless.

Yet now my legs feel... good?

Is this how able bodied people feel all time?!

#fibromyalgia #fibrosucks

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artbyleoniejonk · 1 year

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Me too little guy, me too 🥹

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rainbowchihuahuabunny · 1 year

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I'm reaching out to my fellow spoonies and chronically ill friends. I'm looking for a wheelchair, maybe one of y'all has one you don't need anymore because you got a new one or a motorized one. I just need a manual one, currently my shoulders are still good enough to self propel. I'm totally willing to pay for it but I don't have much because I'm unemployed because of my health issues. Please message me if you have one or know somewhere I can get one