#invisibledisease

[rosyryleigh]

Say it louder for the people in the back! A new sticker available in the shop ❤️

#disabled #disabilties #disability #invisible disability #invisibledisease #autistic adult #autistic culture #autism #autistic spectrum #undiagnosed adhd #my adhd #adhd stuff #adhd thoughts #mentally unstable #mental problems #mental heath issues #mental health #therapy #therapist #sticker art #stickers #sticker shop #book stickers #vinyl stickers #cute stickers #etsylove #etsyshop #ghost #social work

[gbuda73]

20 things only people with MS or other chronic illness would understand

1. My hair hurts

2. My brain feels numb

3. The air blowing on my hurts

4. Hugs hurt

5. I can't remember how to get home

6. I can't remember what I was doing

7. Just the smallest fever makes me feel like I got hit by a truck

8. I'm to tired to eat

9. Baths/showers exhaust me

10. It hurts to move

11. I need to sit down and cook dinner

12. I feel like I'm thinking in slow motion

13. My teeth break of no reason

14. I feel so guilty about stuff I can't do

15. I fear my daughter will be sick too

16. Most doctors don't really get it

17. Sweeping the floor makes me feel sick and dizzy

18. I tripped over nothing

19. I hope this place doesn't have stairs

20. I hope I don't pee in my pants

I'm sure there's so many others.. you are not alone we understand

#invisibledisabilities #invisibledisease #budas warriors #mental health #awareness #multiple sclerosis #advocacy #chronic pain #advocate #spoonie

[colitisandme]

World IBD day 🌏

I am one of the millions of warriors living with IBD. There’s numerous symptoms and when I say it’s life changing it absolutely is. Imagine having to scrutinise what you eat, drink, your own symptoms, what medications you take, the sleep quality you have, what your bowel movements are like, pain management and monitoring, if you are bleeding, if you are constipated, exhausted, the constant weight changes, the look out for infections, changes in symptoms, immune system responses, the memorising of toilet stops on a journey/ day out, the constant battles with our drs, in some countries the battles and fear over insurance issues, care costs, medication costs, the fear of accidents, the surgeries, causing some to require intervention and colostomy bags. The anxiety inducing emergency and regular hospital admissions and the constant fear that it could unmanageable. This disease kills. This disease alters lives, this disease is maddening, scary, fear inducing, causes anxiety, depression and loneliness. And yet this is happening to millions of us. Invisible but devastating. I am one of them.Today we raise awareness and stand together. Warriors always. I have met the most incredible, kind, selfless, brave, warm, compassionate beautiful people on this journey to understand my form of colitis, and IBD as a whole and they continue to fight battles of gargantuan scale. So never judge someone. You never know what a person is going through underneath the surface. Be kind always and use today to find out a bit more. Much love and light to you all.

#world IBD day #chronic illness #invisible illness warrior #invisibledisease

[marinelp]

Nail art warriors for Maria 🧡 • 🇫🇷 Ce post spécial est dédié à notre Nail Art Warrior aka Maria de @so_nailicious 🧡💙 Comme certaines d'entre vous le savent peut-être, Maria est atteinte de la SEP (sclérose en plaques) et la maladie lui a, entre autres, fait perdre sa capacité à réaliser de magnifiques manucures. Maria, avec cette collab, nous tenons à te dire de continuer à te battre telle la véritable guerrière que tu es ! • 🇬🇧 This special post is dedicated to our Nail Art Warrior aka Maria from @so_nailicious 🧡💙 As some of you may know, Maria has been diagnosed with MS (multiple sclerosis) and the disease took away her ability to paint beautiful nail art designs, among others. Maria, with this collab, we want to tell you to keep fighting like the warrior you are! • Thank you Magda @redheadnails for organizing this collaboration. All of our creations can be found under #nailartwarriorsforMaria 💪 • Girls involved in this collage: @aleksandras_bunte_welt @geolena_koski @gotnail @jemima.nails @lochnailsmonster @kathagraphie @nailistayco @marinelp91 @lacktraviata @mission_polishable @paulinaspassions @hefersanja @zephyronica @nailart.by.nici @bentesorberg @nailartfan95 @coffeeandnailpolish @mettedamgaardpedersen @rums2016 @dc_nailsart @katieabheda @barbouilleuse @crenailit @megans_manicures @ledanails82 • #ms #msawareness #mswarrior #mswarriors #spreadingorange #invisibledisease #endms #multiplesclerosis #thisisms #spreadingorange #msawareness #nailsforthecause #nailscommunity #nailart #stampingnailart https://www.instagram.com/p/CoK0k9Mtf6i/?igshid=NGJjMDIxMWI=

#nailartwarriorsformaria #ms #msawareness #mswarrior #mswarriors #spreadingorange #invisibledisease #endms #multiplesclerosis #thisisms #nailsforthecause #nailscommunity #nailart #stampingnailart

[lymefordummies]

#lyme disease #lymewarrior #babesia #relapsingfever #invisibledisease #findacure #afforablehealthcareforall #bartonella #chronic lyme disease #checkforticks #coinfection

[wiseoldowl72]

Infusion done. No side effects. Migraine day anyway. Can see it in my eyes. I saved my @radiocomusic "City Grown Willow" tee for support. . . #lifeonosage #family #migraine #invisibledisease #infusion #vyepti #radiocomusic (at North Kansas City Hospital) https://www.instagram.com/p/CjbLC9eOtu4/?igshid=NGJjMDIxMWI=

#lifeonosage #family #migraine #invisibledisease #infusion #vyepti #radiocomusic

[living-with-arthritis]

#rheumatoidarthritis #rheumatoidarthritiswarrior #rheumatoidarthritisawareness #rheumatoiddisease #rheumatoiddiseaseawareness #rheumatoiddiseasewarrior #arthritis #arthritisawareness #arthritiswarrior #chronicpain #chronicpainawareness #chronicpainwarrior #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #invisibledisease #invisiblediseaseawareness #invisiblediseasewarrior 💜💙 https://www.instagram.com/p/CeTmMnKr-3X/?igshid=NGJjMDIxMWI=

#rheumatoidarthritis #rheumatoidarthritiswarrior #rheumatoidarthritisawareness #rheumatoiddisease #rheumatoiddiseaseawareness #rheumatoiddiseasewarrior #arthritis #arthritisawareness #arthritiswarrior #chronicpain #chronicpainawareness #chronicpainwarrior #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #invisibledisease #invisiblediseaseawareness #invisiblediseasewarrior

[sniiboo]

Today is rare disease day let your loved ones with a rare disease know they are loved. In medical school doctors are told "When you hear hoof beats think horses not zebras." This means to think of a more likely cause over something thought of as farfetched or rare. This makes it quite hard for anyone with one of these diseases to be heard and taken seriously as they are often shoved aside as hypochondriacs. I remember always being called one by everyone including friends and family. I remember starting to believe them. I remember being afraid of stairs for a long time because I fell down them, I remember these incidents leading to me being called clumsy. I remember being in physiotherapy in grade 1, I remember wearing high tops shoes because my ankles were "weak" and gave out. I remember my parents thinking I faked stomach aches because I liked the taste of Pepto. I remember still falling down stairs as a teenager and being told I was doing it for attention. I dont need to remember the stigma and comments like being called lazy because I still face them.. but mostly I remember the struggle to find out what was wrong with me and the relief of finding out I wasnt crazy because Not everyone gets to win the battle of seeking answers. . . . . . #eds #ehlersdanlos #ehlersdanlosfighter #edswarrior #ehlersdanlostype3 #edsdiagnosisstruggle #raredisease #rarediseaseday #rarediseaseawareness #edstype3 #invisibleillness #spreadawareness #invisibledisease #hypermobility #hypermobilitysyndrome #hypermobilityspectrumdisorder #hypermobileehlersdanlossyndrome https://www.instagram.com/p/CpOvh_5D1XH/?igshid=NGJjMDIxMWI=

#eds #ehlersdanlos #ehlersdanlosfighter #edswarrior #ehlersdanlostype3 #edsdiagnosisstruggle #raredisease #rarediseaseday #rarediseaseawareness #edstype3 #invisibleillness #spreadawareness #invisibledisease #hypermobility #hypermobilitysyndrome #hypermobilityspectrumdisorder #hypermobileehlersdanlossyndrome

[handmadebycatkin]

Some days it's all well and good until you need to leave the house... #spooniewarrior #spoonie #spoonies #spooniehumor #spoonieawareness #spoonielife #spooniememes #spooniememe #spooniecommunity #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chroniccondition #chronicdisease #autoimmunedisease #autoimmune #autoimmunewarrior #invisibledisability #invisibleillness #invisibleillnessawareness #invisibledisease #fatigue #chronicfatigue #chronicfatigueawareness #chronicillnesswarrior #handmadebycatkin (at Ngunnawal Country) https://www.instagram.com/p/CdN-U5qBGA3/?igshid=NGJjMDIxMWI=

#spooniewarrior #spoonie #spoonies #spooniehumor #spoonieawareness #spoonielife #spooniememes #spooniememe #spooniecommunity #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chroniccondition #chronicdisease #autoimmunedisease #autoimmune #autoimmunewarrior #invisibledisability #invisibleillness #invisibleillnessawareness #invisibledisease #fatigue #chronicfatigue #chronicfatigueawareness #handmadebycatkin

[chandra-heylinzprey]

It's been 10 years since I started my MS injectable treatment. But I'm diagnosed since I was 13.

I took thousands of injections, I had and have so many side effects, depression being the most significant one.

I'm "excited" to see what this disease has for me anymore...

Please...release me from this pain...don't know how much more I can stand.

PS: these are not ALL the injections that I "gathered"...

#multiple sclerosis #ms #injectables #multiplesclerosislife #multiplesclerosisliving #mswarrior #invisibledisease #chronicillnes #chronicpain #spasticity #msfighter #mssucks #depression #suicidesurvivor #suicidal #ineedmorerest #letusrest #always tired #injectablemedication #interferon #betaferon #copaxone

[anaunicornzebra]

It amazes me that still even in the year 2020 that we have to speak on what not to say to someone who is living with mental health illness. Yet I realize that these are generational issues that has been past on for damn near centuries! To someone like me living with a mental health illness like bipolar disorder/depression, hearing these statements can be absolutely triggering more than you know. The elders in the community have to understand that mental illness is not something to keep quiet about anymore. It is not something that can be prayed away. Hearing those words actually trigger people! You don't know what the person is struggling with even with their spirituality to even say "pray it away!" I've heard that "well, if you just change your attitude" spill too and it is very disappointing to someone like me because you feel like being judged. "It's all in your head" is saying to someone like me that "I don't believe you period!" Saying things like this only makes the person not want to be around you any more than they have to be. This could literally push someone over the edge by making these kind of hurtful statements. Be mindful to what you say to your loved ones especially with times like this with a pandemic and police brutality. So much social injustice going on can also trigger a person deeply. So take this tip from me... be mindful of your words and want to educate yourself when it comes to mental health and illness! You could be saving a life! Keep fighting!!

Ana 🦓💪🏾♿❤

#ehlers danlos syndrome #zebrastrong #blog post #self care #self aware #self love #invisibledisease #mixedgirlmagic #invisibledisabilities #my life #mental health #education #rapid cycling bipolar #bipolar disorder #borderline personality disorder #schizophrenic disorder #schizoaffective #lifeonwheels

[livinglife-ibdstyle]

Bad days vs Good days:

One moment you are like this, all day!! With everything thrown at you: Pain, Nausea, Vomiting, Dysmotility, Joint Pain, Headaches, Fatigue, to the point you have to find the one spot that is like "awwwwhh" you don't want to move.

Then "BINGO" the next is like...

Ah, the sick life. Like drawing numbers when playing bingo but bingo equals those good days.

Welcome to #MySoCalledLife ;)

xoxo

SR

#ibd #mysocalledlife #crohns #ibdstrong #livinglifeibdstyle #ostomystrong #ostomy #sicklife #invisibledisease #inflammatoryboweldisease #inflammatory bowel disease #crohn's disease #scars #ulcerative colitis #good days #bad days #pain #nausea #vomiting #dysmotility

[gbuda73]

So, I was just thinking. Could the reason some people don't understand invisible illness be because they can't face the reality of people who really don't want help but desperately need it?

I believe people are frightened by the truth that lies behind so many of us with invisibleillness's. They think mental health means your insane instead of trying to understand how compassion and understanding would help that person to a great extent.

I'm saddened not by my illness's, but by most healthy humans. All of the judgments and lack of support.

They want to be noted in society as caring yet run in the opposite direction when someone need the slightest of help.

So....I set my boundaries and reset my mind to only me and only my free will.

No longer will you sadden me, control me out of fear, or use me as your human nature statement.

I am my own. My own strength is my own being and my deepest of love.

I welcome you to my world of unforgiving truth and human kindness for all. Please leave your judgments and egos at the door.

Come in my world to understand we are all different, yet all human. We all connect on many higher levels, and then we may be aware to exist.

The world of judgment is free, no right or wrongs. Just love understanding and the free will for all who are human.

#poets corner #poetsandwriters #invisibledisabilities #invisibledisease #mental health #poetic #free will #human #human rights #love #unity #disabilties

[elvensworld]

I don’t usually talk about this, but fibromyalgia is an invisible disability. What people don’t see if how hour to hour, day to day can change so quickly that sufferers like myself have to take things moment by moment. Some days I can figure skate and take on the whole world. Days like today, I am sitting on the couch, not doing much of anything, and have taken some Delta 8 THC gummies to calm down the pain and symptoms. In the past (2016-2017) I was completely disabled and unable to even walk, but taught myself to walk again and even relearned to figure skate. Things get better. 

For those that suffer, keep your heads up. For those who don’t suffer, don’t judge us, just be there for us when we need it. 

#fibromyalgia #fibromyalgiasufferer #fibromyalgia sufferer #invisibledisease #invisibledisabilities #invisible #invisible disease #invisible disability #disease #diseases #disabilties #disability #actually disabled

[daydweam]

Now that I have hit a milestone for this blog I really would like to open up about my personal life. I just wanna make sure that its received well... or received at all PFF! I am disabled despite presenting able bodied. I had to drop out of school, endure medical malpractice, discrimination, and for a long time it felt hopeless. I have had a brain bleed, been in more than one coma, suffered a severe overdose, undergone brutal spinal and brain surgeries....if I kept going I am unsure anyone would believe me. It is so beyond what I can fit in a concise paragraph. My entire nervous system is working against me.

I live in chronic debilitating pain that has controled my life for nearly this entire decade. I lost my ability to do everything I enjoyed, and began fighting to just live. Being gaslit about my own pain, conditions and concerns was just the cherry on top. This blog is cutesy and seems like nothing but lately its been really nice to see alll the reblogs and likes of the same art or food I would post. Just feeling like I have a community of people trying to enjoy these little things like me is a great feeling. SO SORRY FOR THE LONG POST, but I thought maybe I should share. Of course this hasnt named any conditions or details. If anyone is interested feel free to dm or send an ask ����

I have been dealing with the worst depression and dissociative episodes of my life as of late. Its hard to even remember what I ate for lunch a lot of the time. I also unfortunately live with PTSD and OCD. My psychologist is referring me to a psychiatrist thank God....but this blog has given me a creative outlet I wouldnt have otherwise. I danced for 10 years and I adored all of the arts. I excelled at them and always felt fulfilled by what I could create. Its hard to be so limited. Being able to express myself this way has been so helpful. If you are interested my other blog @stale-cupcake is much more personal and a real reflection of how I feel right now. AHHH i dunno how to end this....but if you actually read to the end I am so honored you did I am really happy each time I open this app because of you. 💖

#me #personal #spoonie #eds #invisibledisease #invisible illness

[lymefordummies]

First post 9/13/2022

Reading books written by “Lymies” made me realize that other people feel just as lonely as me. I was recently diagnosed with Lyme Disease. I already have some familiarity because my mom is currently in remission after fighting Lyme & Babesia for 5 years. My Mom was diagnosed with Lyme in 2016. Just hearing the word disease convinced me she was dying. The people around us treated this diagnosis in a completely different way. My mom finally had an answer after diving head first into a giant wall. Her "support system" acted like this was just something to bounce back from. People acted like this new diagnosis was because she had new symptoms. The TRUTH of it all is my mom was diagnosed with Lyme after years of being told she was depressed, had fibromyalgia, wasn’t exercising enough or stressed. The fact that she couldn’t get out of bed, felt “bruising from the inside” & had a daily combination of headaches & nausea was somehow her fault. She took medication to meditation & for every person who claimed that this would heal her another 10 said she was wasting her time/ money. Her friends assumed she would take pills daily & “back to her old self.” Old self? By the time she was diagnosed with Lyme it was chronic; her old self (pre-diagnosis and treatment) could have been 48 or even 8 years old. She hasn’t felt like “her old self” in God knows how long; while the rest of us saw nothing. This wall my mom saw as something to get over. Getting over this wall will make her healthy; mind, body and Spirit, right? For the first few months I prayed nightly “Please God my mom is so young, please let her live a long rest of her life pain free. Please let her get to enjoy the life she worked so hard for. Please don’t let me lose my Mom.” I didn’t look up anything online that wasn’t on WebMD. I didn’t bother to ask her Dr. questions. I didn’t bother to read the few books written by celebrities I was all too excited to hand over to her. I heard what she said “I can’t focus, I’m over stimulated, I’m tired, I’m hurting” But I didn’t listen. I said I would help her over this wall but the invisibility of this disease made it extremely easy to forget about. As frustrated as I was with the other people in her life “not believing her”, over time I found myself worried only when the disease showed rashes . Somewhere during year 2 or 3 I stopped praying. I felt pissed for a while, embarrassed I was praying to no one. To no surprise the passing of time slowly alleviated the pain into non-existence. It wasn’t until she got pneumonia that I started praying again. “Please God don’t let me lose my mother, take away her pain so she can enjoy her life & I’ll do anything I swear.” “God please take it away from my Mom and give it to me.” I wasn’t at all prepared to take on Lyme disease in my own body but I would do ANYTHING to save my mother’s life. At least that’s what I said. I was pissed that no one was listening last time so I guess a big part of me thought I was praying upon deaf ears. It’s actually really funny to me when I think hard about it.Now here I am. Officially a Lymie. And FUCK I didn’t realize how hard my mom was and still is fighting. I didn’t (& couldn’t) understand the extent of her suffering. She was physically disabled, she was emotionally drained, she was so tired and she was alone. Now I know the heart break and complete slap in the face my Mom experienced and because of her I am now determined to not let anyone face this alone.

My medical history is a story for another day. My brain feels fried. But I'll end by saying 2 things. Lymies I see you, you're not alone and just because Lyme is invisible doesn't mean you are. And I love you mama. Very very much.

#lyme disease #lymewarrior #babesia #invisibledisease #findacure #afforablehealthcareforall #bartonella #relapsingfever #coinfection #chronic lyme disease