cbspoons

[cbspoons]

When someone tells me that the correct term is “differently abled”...

#chronic illness #spoonie #disability #disabled

[cbspoons]

i need everyone to understand people who experience chronic pain often will save energy by not making any expressions or moving at all when we are in pain - to others it may look like we arent feeling anything or even that we are ignoring you, but really we are in agony. sometimes i feel like i cannot even turn my head, or speak, or think. sometimes i can handle scrolling mindlessly through social media, other times all i can do is stare into space and breathe. i dont scream, or cry, or scrunch my face up.

im in pain every second of every day. severe pain. sometimes it is worse than other times. a lot of the time i am even smiling, or laughing, or maybe doing some light activity with my hands. im still in pain.

there is no way to visibly tell if someone is in pain, or how bad their pain is. it doesnt mean its not real. you want to know how you can tell how bad our pain is?

ask us. and listen.

#chronic illness #spoonie #disability #disabled

[cbspoons]

When I’m very prone to injury...

#chronic illness #spoonie #disability #disabled

[cbspoons]

#chronic illness #spoonie #disability #disabled

[cbspoons]

Just Chronic Fatigue Things

feeling so tired you might pass out

never feeling like you’ve slept - ever

forgetting what you’re going to say 100 times a day

being too tired to sleep

sleeping for 4/8/12 hours and feeling just as tired

needing a nap after being away for 3 hours

muscle aches

waking up feeling like you have the flu

waking up feeling like you’ve been hit by a freight train

your legs not wanting to work after walking up a small hill or the stairs

nausea

sensory overload, e.g. loud cafés, pubs or anywhere making you feel dizzy

anxiety

being too tired to remember the symptoms of your own illness

#chronic illness #spoonie #disability #disabled

[cbspoons]

When I realized I was not ever going to have a “normal” life...

#chronic illness #spoonie #disability #disabled

[cbspoons]

Chronic pain problems •

#spoonie #disability #disabled #chronic illness #chronic pain #chronic problems

[cbspoons]

#spoonie #disability #disabled #chronic illness #chronic pain #chronic problems

[cbspoons]

shout out to disabled people who;

are grieving because of their disability

are angry because of their disability

are exhausted because of their disability

are scared because of their disability

and shout out to people with disabilities in general.

#spoonie #disability #disabled #chronic illness #chronic pain #chronic problems

[cbspoons]

[cbspoons]

#spoonie #disability #disabled #chronic illness #chronic pain #chronic problems

[cbspoons]

#chronic illness #spoonie #disability #disabled

[cbspoons]

Hearing “you’re too young to be that sick” for the millionth time...

#chronic illness #spoonie #disability #disabled

[cbspoons]

[cbspoons]

#chronic illness #spoonie #disability #disabled

[cbspoons]

Dear Chronically Ill,  You won’t get better, but you will get better AT being sick. You will raise your baseline slowly with healthy habits. You will get ahead of what you need, you will learn your body, and you will laser focus your priorities until you can manage.  Hang in there, Your Future Self

#chronic illness #spoonie #disability #disabled

[cbspoons]

Trying to explain the chronic part of chronic illness to people...

“Wait, so you’re sick…and you aren’t dying….but you aren’t getting better either?  Huh?”

#chronic illness #spoonie #disability #disabled