chronic-pain-ptsd-crps

chronic-pain-ptsd-crps

Life With Pain 馃帡

I've been living with #PTSD for a long time and then was diagnosed with #CRPS and #fibromyalgia . Living with chronic pain and #allodynia sucks the life from within you around you and in you. Pain has become part of my life my world but I will not let this beat me or take my dreams or goals I will make new ones ! 漏

Explore Tagged Posts
Last Seen Blogs
Statistics

We looked inside some of the posts by chronic-pain-ptsd-crps and here's what we found interesting.

Inside last 20 posts
Time between posts
14 hours
Number of posts by type
Photo
0
Video
0
Audio
0
Text
20
Chat
0
Answer
0
Link
0
Quote
0
Fun Fact

If you dial 1-866-584-6757, you can leave an audio post for your followers.

chronic-pain-ptsd-crps8 hours agoText

During a conversation on our morning walk with the group 锟糏 got accidentally tapped on the arm today- the intent Was as a kind of gesture锟 BUT started a flare I started to cry and could not respond to her words she took it the wrong way I wasn鈥檛 being rude I was trying to focus on breathing to try not get my pain levels any higher . Now I sit in the courtyard ALONE trying not to cry as I know it will flare my pain After trying to explain to her it wasn鈥檛 personal 锟糹t鈥檚 extremely hard starting new group therapies when you鈥檙e living with ALLODYNIA 锟& CRPS .

Chronic pain problems 鈥

0 notes 路 See All
chronic-pain-ptsd-crps2 days agoText

Shoulder arm hand pain is really bad tonight deep intense pain with deep pulsating aches and it鈥檚 turning up the heat been in bed for hours pain just getting worse and won鈥檛 let me sleep then my opposite side starts it鈥檚 my hand working up to forearm different pain this is more crps tingling zapping really sharp pins and needles on bloody fire and I have to get up by 6am how the hell am I gonna manage that when it鈥檚 11:11 pm already now #fml

Chronic pain problems 鈥

1 notes 路 See All
chronic-pain-ptsd-crps5 days agoText

There鈥檚 no justice for the innocent !!!!

[another one bites the dust 70 drafts left to make sense of ]

So I rang the ombudsman couple of days ago weeks ago and today again as I forgot some stuff as you do with debilitating brain fog anyway Let鈥檚 see if anything happens he was abit rude and abrupt to me today saying he鈥檚 not an advocate for me , clearly no empathy just how hard these calls are when you suffer with bipolar and certain ptsd triggers.

I have wanted to call for over 2 years so even though it was a win in doing so it actually caused a breakdown which lead to a flare which then meant cancelling my support coordinator meeting 馃槧 for me brain fog / memory always leaves me delayed in response and Hours later I start thinking why the Fffkk didn鈥檛 I say this or that 馃槨 what I should have said was 鈥淚 thought you were meant to make sure laws aren鈥檛 broken 鈥硷笍 鈥

so insurance companies can get issued with conciliation outcome certificates and get away with not complying 4,3 and 2 years later and still nothing even after COUNTLESS LETTERS from all my medical team , and all the phone calls from my lawyer and everyone forever getting hand balled from one person to the next 鉃杦hat happened to the 21 day compliance law ??? Guess they are above the law 鈥渄epends what their reasoning is 鈥 ACCS said there is not a justified explanation they must comply Guess with all the social media videos I actually or should I say foolishly thought they would be my advocate and proactive and that the law means something clearly not !!!! ( not for us victims anyway) I鈥檓 too mentally unstable atm too brain fogged forgetful I can鈥檛 concentrate or articulate what I鈥檓 trying to say ( clearly evident ) I struggle to retain information and the anxiety and painic just to deal with phone calls is enough to send me over . I constantly forget the point I鈥檓 trying to make and often find myself going in circles Then forgetting the point altogether But one thing I am totally sure of is that I AM sick and tired of being treated like my life means nothing and it doesn鈥檛 matter And the laws that are to my benefit don鈥檛 apply total BS !!!! .

They get away with blue murder and I am merely but just another statistic total BS !!! Why have laws ????if they can get away with not following them ?????? PLEASE EXPLAIN ?????!!!!!!!

They have gotten away with it for so long as I have no spoons left Just the tasks of daily living Drains me takes my spoons away I can鈥檛 even remember the last time I had my hair washed Let alone all the other stuff paperwork ect You have to stay on top of that I can鈥檛 deal with them directly they had me All suicidal last year Heck I鈥檒l Have my meds in my hand and I can鈥檛 even remember if I鈥檝e taken them or not and due To my mental health issues and being constantly in pain I haven鈥檛 been the best nor nicest person to be around yes I admit it I can be a real biatch when my pain is above baseline All this 鉃朼ctually helps them to get away with it because they can .And then they try to blame you and twist the truthTo avoid giving you what you鈥檙e legally entitled to We get treated worse than criminals the system needs to change And we as injured workers we need somebody that can advocate for us锟硷考 I don鈥檛 want more people that are Switzerland !!!!!!! We need another system/agency that can advocate for us other than our lawyers we need someone to bridge the gap ; someone who actually wants to listen ,has time to listen ,someone that can make them Accountable refer to your lawyer as required I thought calling you #The ombudsman was the answer clearly I was wrong! In manic mode I made it my mission to try and get justice,To face my demons and what I had been avoiding for years After what they did to me last time I was clearly wrong We will see apparently they have a week to respond to him but I鈥檓 not gonna hold my breath As for the a ACCS they were more empathetic and couldn鈥檛 believe that it hadn鈥檛 been followed thru And are working with my lawyer to make that happen …..living with CRPS leads to many other issues with my mental health we need more help and we need more support sometimes it feels like we have just left out to dry and no one cares no one even wants to listen until you start screaming锟 you feel like you can never catch a break or it鈥檚 a rare moment Where you have the energy or an opportunity to fight I鈥檒l be an advocate for myself and everyone else when I can make phone calls an anxiety in itself and speaking to lawyers and people is a trigger for my PTSD Iyes I suffer with an anxiety and panic disorder I鈥檓 bipolar with PTSD sometimes it almost feels like you鈥檙e being discriminated By the ignorance of what you鈥檙e going through and the stigma attached to mental health锟 And if they know they can take advantage of that / you they most definitely will, they will have you drown in order to free their wallet WorkSafe don鈥檛 help they just refer you back to the enemy and you back in the same position where to began.The whole system should not be run by private insurance companies it should be run by the government it Shouldnt have anything to do with profit-making companies it should be about justice and helping families / people find their way back to society to some normalcy and giving people the best chance to beat what ever they need to fight to try get back as much of their lives as possible How does creating another war coinciding with everything they are already going through help them / us move forward it It doesn鈥檛 and it costs more money in the Longrun it doesn鈥檛 make sense people die from this kind of mismanagement it鈥檚 disgusting锟!!!!!

We all choose life and want the Opportunity To be able to get back into our circle I would hate to know what the stats are for suicides due to their mis management 鉃 anyway rant over锟 I hope the class action takes off and we get justice for ALL THE VICTIMS in my life time 馃 as well as all the ones that have lost their lives to this I hope Siri and I make sense Peace 鉁岋笍

Chronic pain problems 鈥

0 notes 路 See All
chronic-pain-ptsd-crps7 days agoText

Last night I learnt just how ignorant our doctors and medical system in the ED are to #CRPS #Alloydnia 馃挃

Chronic pain problems 鈥

2 notes 路 See All
chronic-pain-ptsd-crps8 days agoText

#CRPS #Flare 馃敟

As I鈥檓 waiting in the ED I鈥檓 having a Major Flare ; It鈥檚 an electrical war going on in my body and I feel like I鈥檓 on fire; yet to the naked eye there are no flames to be seen. Allodynia on high alert 馃毃 swollen ; skin is blotchy red stiff and on fire馃敟its stinging ,sharp shooting pins and needles; tremors ; shakes as well as this internal shaking that has no end ; twitches ;spasms; pains that are impossible to describe, I would give no justice in finding the right descriptive words that someone that doesn鈥檛 experience CRPS could understand or even comprehend the aches are deep right down to the bone and take over the core of your body you have no control all you can do is try to breathe through the pain锟 , All the descriptive words you have seen or heard to describe CRPS you name it im feeling it.

Had a fall , pain has been thru the roof sitting on an 8 surrounded by #corona virus 馃 people coughing left right and centre making me feel even more nervous did I meantion I have #PTSD and hospitals are a #trigger !!!

Chronic pain problems 鈥

0 notes 路 See All
chronic-pain-ptsd-crps8 days agoText

When the day starts bad it usually ends in tragedy for me.

Chronic pain problems 鈥

0 notes 路 See All
chronic-pain-ptsd-crps10 days agoText

5:25am still awake what chance do I have at a normal life if I don鈥檛 have a proper sleep routine if I鈥檓 still awake when the rest of the world sleeps ; when even pain meds aren鈥檛 enough to help you sleep fml why is pain so draining of spoons and makes you even more exhausted than you are to begin with. =

Chronic pain problems 鈥

3 notes 路 See All
chronic-pain-ptsd-crps12 days agoText

Great there鈥檚 no vitamin C left from the very beginning this has been part of the management for my crps especially prior needles blood work any procedures ect !!! To help stop the spread 馃挜 but it鈥檚 also helped with pain as I have noticed the difference without it

Chronic pain problems 鈥

2 notes 路 See All
chronic-pain-ptsd-crps12 days agoText

Had to Cut my support coordinator appointment short today. I just Couldn鈥檛 think or focus with pain raging in the background. 馃敟馃敟馃敟. Everything she was saying was just going way over my head. 馃し鈥嶁檧锔忦煠封嶁檧锔忦煠封嶁檧锔 I just couldn鈥檛 listen, or even understand the logistics of what was going on 鉃 it鈥檚 clear to me now why my partner is my power of attorney. Peopling is so hard when you鈥檙e in a pain flare. Since CRPS I find it extremely difficult to focus on more than one thing at a time ! And to think I was the queen of multitasking before!

Chronic pain problems 鈥

1 notes 路 See All
Next Page