imagirlwithamedicalgreyzone

[imagirlwithamedicalgreyzone]

More hugs!

the person reading this is going to survive the rough patch they’re going through

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This is one of my favorite things

canon: they died

fanfic: fUCK YOU

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Reblog if you support people of all genders and sexualities 🌈🏳️‍🌈❤️💛💚💙💜🏳️‍🌈🌈

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if you don’t support any one of the groups below you can just block me now

Aces

Aros

Bi people (EVEN. IF. THEYRE. DATING. THE. OPPOSITE. SEX. WHY IS THAT SO HARD???)

Pan people

Non-binary people

Poly or polyamorous people

People who ID as queer

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Trafficking is very real. Human organs for sale are still quite popular even in America.

reblog and stay safe! 

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6/4/18 Post

Hey I’m back!!

I so sorry for not posting when I said I would, I’m figuring out that I just need to promise to post whenever I can. So that’s what I’m gonna promise to do :) I hope that doesn’t offend anyone it’s still gonna be at least once a month, but I can’t seem to keep myself to a set schedule and I’m sorry.

So now that I’m done with that I’ll catch you guys up and then I’ll share some things that I’ve been figuring out :) and FYI you all are amazing and so FUCKING badass!

So catch up time; finally figured out what’s going on with this cancer thing (yay!). So basically I do have cancer and it’s doing nothing right now it’s just kinda sitting in my thyroid which is a bit of a mind fuck but idk. But for right now it’s thyroid ultrasounds every six months and taking it as it comes :) and I’m doing really good.

Also started this new medicine that’s meant to help me with my pain and AVM in my left forearm. It’s a blood pressure medicine so I have to acclimate my body to it and that’s been a F’d up process to say the least. So to start me on it the doctors had me doing a half dose of what the intended dose is, which I acclimated too fine. I got a little dizzy for one day and that was it.

But with the full dose, let me tell ya it through my body for a LOOP. It basically raised my pain, I was dizzy and my brain fog was awful for days. and I am just now coming off of it on day 8 of this medicine. It’s worth it but OMG I’m having a hard time reminding myself of that ughh.

But yeah, I’m coming cruising back to natural :)

And on to the life lessons I’ve been learning: So first life lesson I’ve been learning and sorta the hardest and I hope me telling you this and my experience with it will help one of you. But anyways, I’ve been learning that it’s ok to except defeat and come back and kick it’s ass in a different way. Meaning if your body isn’t working with you, let it. But only for a minute/hour/day/week until you have a plan to come back and work around it and kick it’s ass. Because I know we all can do that <3 we are all beautiful badasses <3

Second life lesson is always remember to do the stuff you love. And I think that one’s pretty self explanatory. Always always make time for a little self love’n. Wether it be watching some Netflix with a carton of your favorite ice cream or drinking some awesome tea outside while listening to your favorite playlist. Or doing your preferred form of art <3

#iactuallyposted #I actually posted again #actuallydisabled #actuallymentallyill #spoonie #spoon theory #lifelessons #blogpost #medical blog #selflove #love you 3000 #badasses #myfollowersarebadass

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How to Build a Chronic Pain First Aid Kit

Disclaimers: This is what’s in my kit, what I need for my condition. You need to do what’s right for you.

I have severe fibromyalgia, asthma, autism, vision impairment, anxiety, OCD, depression, BPD. The first three are what the kit is for.

Now, I’ve done this before but now that I’m flying out of the country soon, I had to rework my kit. It showed me that my flare box (which lives at home) and my backpack kit need to be the same thing because I can’t be swapping items all the time. If I have a meltdown or flare outside, it does me no good if my best products are in my home-flare box.

When I go out it fits in my little backpack alongside water, umbrella, wheelchair gloves, wallet, and emergency external battery for my phone.

At home the kit lives in my walker alongside emergency food and water, flare medications, ereader, 7 day pill wallet, and noise cancelling headphones.

I used to prep for “pack enough to get me home safely.” Now its, “Pack so I can stay out longer and enjoy myself more.”

Okay let’s get started.

What You’ll Need

1. Small travel cosmetics bag

I say ‘travel’ because they’re more compact with more storage space. (Available on eBay, most drug stores/chemists) 

This is mine, I got it on eBay for $10. It folds out, has lots of compartments, and a handle on the other side.

2. Invisible hair elastics (the kind for tiny braids) for packing/containing

3. Tiny sauce portion cups (or zip lock sandwich bags)

What to Pack

Here’s what’s in mine that helps me: 

(from top to bottom) 

Instant heat pack (has a little chemical compartment in the centre that bursts under pressure and turns it hot.) 

Physio band for stretching aching joints - this is especially helpful if you have to be sitting for long periods, wheelchair, planes, class etc. Use invisible hair elastic to keep it rolled up

Disposable vomit bag 

Baby wipes - sweating, vomit

Compression gloves for when my joints start to ache and my hands tremble

Tissues

Bandaids (learning to push a wheelchair will shred your fingers when you’re starting out) 

Roll on oil for headaches and anxiety

Spare batteries for TENS machine

TENS machine - gently shocks my muscles to make my back let go of my ribcage

Deep Heat for aching legs

Anti inflammatory gel for shoulders and hands

Emergency medication - nausea, pain, nerve blockers, migraines

Mars Bar for low blood sugar

Squishy stim toy for meltdowns and anxiety

Ear plugs (set) for serious sensory overload - don’t use dirty ear plugs, you can get infections. I have noise cancelling headphones as well but they aren’t as good as ear plugs in emergencies. 

Listerine breath strips - in case I puke, also some meds taste vile. 

Inhalers (steroid and ventolin) 

All packed up, this is what my kit looks like: 

I would be really grateful if people could reblog this to help other spoonies. If you have other ideas, I would love to hear them! 

Please reblog with your condition and what helps you. Spoonies need to look out for each other.

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[imagirlwithamedicalgreyzone]

this blog (and any blog it is seen on is) a safe place for:

-LGBTQIA people

-people questioning their identity

-people of color

-disabled people

-trauma victims

-abuse victims

-all body shapes and sizes

-people struggling to stay strong

you are welcome here. you are loved.

[imagirlwithamedicalgreyzone]

An Apology Post

SOOOO I am super sorry for not posting for so long and I am so sorry again for not posting. I know I keep promising to post stuff and I don’t so I think I’m just gonna go to a either once every two weeks or a once a month schedule. 

But anyways I am doing well, I still hanging in here and a better post will be coming in a few days. 

Love Ya’ll! Grey

#medical blog #medical #actuallydisabled #actuallymentallyill #I actually posted again #blogpost #new one coming soon #love

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ATTENTION ALL GIRLS AND LADIES: if you walk from home, school, office or anywhere and you are alone and you come across a little boy crying holding a piece of paper with an address on it, DO NOT TAKE HIM THERE! take him straight to the police station for this is the new 'gang' way of rape. The incident is getting worse. Warn your families. Reblog this so this message can get accross to everyone.

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Just an experiment. Reblog if you actually give a fuck about male victims of domestic violence and rape.

Of fucking course

What sick bastard doesn’t

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Hey if you’re schizophrenic/psychotic I just want you to know that you’re a wonderful person and that you deserve so much better than the demonization, marginalization and stigmatization you face in this society.

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This user loves deaf Hawkeye

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I think 6/21/19 Post

Hey All! I’m really sorry for not posting for a while. I’ve been doing a lot of personal journey stuff along with just trying to figure out how to live life with my extra stuff. 

So as a apology I’m gonna share what I’ve been learning in hopes of helping someone else. 

So I’ll divide it into two things:

1. Rewriting the playbook is ok, a couple of weeks ago I was having a bit of a breakdown about not being to function like everyone else. And I was talking to my mom whom a lot of my advice slash ideas come from. And she brought up the idea of when you have a disability that affects your way of life it changes it and sometimes it is hard to except that. And sometimes you just need to rewrite your playbook so you can figure out how to work around your disability and live with it instead of functioning in spite of. SO I started a journal project, I took one of my random journals laying around (I have many tehee) and started writing the lessons I learned about what I could and couldn’t do and numbering them and just continually doing so. I keep the journal with me 24/7 and it just is stuff I learn that I can and can’t do and it doesn’t have to do with my disability and my anxiety it is just life lessons I learn about myself. 

So I hope this helps someone :) <3

2. You are not broken because you are different, even if you are different and can’t do stuff it does not mean you are broken, deficient, or less then. You are ABSOLUTELY equal to everyone else. YOU have a seat at the table (of life). Just because you have trouble with some things and can’t do others means that you are human and you are equal your playbook is just a little different <3

Sooo I hope that helps someone and I promise that this time I’ll be posting every Friday now. 

Hope you are having a great day/Summer if you are there yet/if that applies to you!

Grey

#medical blog #actuallydisabled #actuallymentallyill #I actually posted again #selflove #love #lifestyle