inpainbutvibing

[inpainbutvibing]

i don’t know how many “just breathe through it”s i got left in me man

#spoonie thoughts #dysautonomia

[inpainbutvibing]

I need my body to stop finding new ways to attack itself

#yeah!!! #like stop hitting yourself buddy we’re on the same fucking team

[inpainbutvibing]

hey does anyone know of any discord server/online community space for chronically ill/disabled people? i just want to talk to someone who understands

#chronic illness #disability #dysautonomia #spoonie thoughts #spoonie

[inpainbutvibing]

If anyone's looking for really gentle or disability friendly exercise...

Doctor Jo on YouTube is a physical therapist who offers lots of therapeutic stretching and exercise videos for specific conditions and pain relief. [x]

Leap Services is a Canadian physical therapy group that has a YouTube playlist of gentle exercise routines. All of these exercises are done in a chair (except for one which is done on the floor) and are intentionally adaptable to different bodies and needs. [x]

Yoga with Zelinda on YouTube has yoga that's adapted to a large number of conditions, for instance, providing a playlist of routines that don't require kneeling and another of chair yoga. She also offers yoga for specific health challenges, like fibromyalgia and mobility issues. There's a playlist of yoga routines for people with bigger bodies as well. [x]

Santosha Spirit on YouTube has yoga routines for people with chronic fatigue, chronic pain, POTS, and EDS. [x]

Yoga with Shaunneka on YouTube has a playlist of slow seated yoga, including chair yoga, as well as a playlist of gentle yoga. [x]

Qinergy on YouTube has tai chi sets broken down into easy tutorials. There is a seated version of her shibashi set. [x]

Perth Tai Chi Academy on YouTube is similar to Qinergy. It provides a seated version of daoyin yangshen qigong. [x]

[inpainbutvibing]

This flare-up’s taking its sweet time stg

[inpainbutvibing]

Sorry, I haven’t done my work, yeah, I’m in spoon jail. Yeah, I was in really bad spoon debt, and I stopped paying my spoon taxes. Yeah, I can’t do anything until I gather enough spoons to pay my spoon bail.

[inpainbutvibing]

yeah yeah the guilt and the self-hatred and the sadness of being chronically ill but can we talk abt the "burning car scene from good omens" chronic illness experience?

like i'll stand up and notice my vision is graying out and sounds are sounding weird but my internal monologue is just "you are my body. i've had you from new. you are not going to pass out. don't even think of it" while i continue to try to operate my limbs like everything is normal

#me on the way to the pharmacy to get my meds #you are my body and we are GETTING there

[inpainbutvibing]

you may think your only options are

but in fact you can

[inpainbutvibing]

Dysautonomia is kicking my ASS today

#will i ever get out of bed

[inpainbutvibing]

Me: [dazed, shaky, struggling to stand, downing a fist full of salt like Popeye with his spinach]

Me: [undergoing magical warrior esque transformation]

Me: All right, now I am ready to fuck shit up

Me: [completes one task]

[inpainbutvibing]

anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me

[inpainbutvibing]

Dysautonomia is so wild.

You'll just be vibing and chilling, and your nervous system will go, "Hey, can't help but notice you ate a little more food than usual; we're gonna have to shut everything else down and direct all the blood in your body to your stomach," and suddenly you're lying on the floor with your legs elevated and a heart rate of 140 because your body doesn't body so good.

[inpainbutvibing]

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!

[inpainbutvibing]

it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)

every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat

sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive

this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions

[inpainbutvibing]

When will people realise that Chronically ill people cannot predict how they will feel in the next few minutes, hours, days or months. I could wake up feeling fine and then feel like I’ve been hit by a truck within the hour. There are no warning signs.

[inpainbutvibing]

I like this a lot.

[inpainbutvibing]

“migraine with aura” sounds so cool . like some sort of ability. but it is in fact not cool at all