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just-tourettic · 3 years
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I really hate that tourettes is tied to every other emotion in my body. Like, for example, stress and anxiety. I have C-PTSD and most of it is from my family, so being around them makes me very anxious and makes my tics worse. For background I have adult onset tourettes syndrome (so it didnt appear noticeably until after 18 yrs). Most of my family at this point thinks I got it from head trauma during a work accident (which did happen, but not why I have tourettes). Why do they think this? Because none of them understand it and all I ever get is "well you never did that when you were younger" or "I've never seen you do that before." I have a chewable necklace that they've openly made fun of (calling me a baby, mocking me, etc.). Why do I have it? Because I'd rather gnaw on it than my own hands! I have scars from my tourettes! On my arms and hands, my face, the back of my neck. My tourettes is so bad I had to quit my job because every other day I'd have a tic attack from stress. And yes, I had them at work, on the floor, in front of customers. And all I get from my family is mocking and laughter? Like what the hell man... I just want to be able to be myself without this stupid crap from them... it isnt my fault...
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just-tourettic · 3 years
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One of the worst things about my tourettes, I think, is how because of it there are things and emotions I cant hide. Like when I'm dealing with my C-PTSD. It's already hard, I'm already struggling with the nightmares and the panic and the flashbacks... but what's worse is that, even when I want to, I cant hide those things from people. Tourettes works in tandem with stress and anxiety, so the worse those things get for me, the worse my tics become. Like last night for example... I woke my fiancee up multiple times, hitting myself or the wall or even suppressing some of my louder (screaming and squealing) tics. I think that's one of the things I hate the most...
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just-tourettic · 3 years
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I’ve developed a tic from a popular TicToker who also has Tourette's that consists of me saying “A beetroot” in a quiet British accent. When I say it I either say it once or I say the whole thing: “A beetroot. A beetroot. A f*cking beetroot.” However, sometimes if I only say it once, someone in my house will respond with “A what?” and trigger the whole thing from the beginning. I’d find this rude if I wasn’t close with them. But since I am I usually find it pretty freaking funny.
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just-tourettic · 3 years
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It's funny how tourettes works. I got a pin of one of my comfort characters (Killua Zoldyk from the anime Hunter x Hunter) and now I have a whole set of new tics. The most reoccurring one is shouting Kilua in Gon's voice. Second most common is saying "Baka" the way Killua does. And the third most common is saying "Bungee gum" in Hisoka's Japanese voice. Its hilarious until I'm yelling "Killua!" in the middle of a fairly busy, quiet store.
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just-tourettic · 3 years
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I make a lot of jokes and poke fun at myself for my tics. It's part of how I deal with a lot of my problems, and it makes other people around me more comfortable. But something I wish everyone understood is that, even if you cant see the struggle, even if you never see me have a tic attack, tourettes is super hard to deal with sometimes. Its ugly, even when you dont get to see me melt down. Sometimes, weeks after, you can tell that I've had an attack. One of my tics that comes out when I'm particularly stressed is scratching. Hard, repetitive scratching at my body. It leaves scratches, bruises, and gashes usually on my face and neck. I have scars on my arms from it. And its embarrassing. I hate going out in public and ticking, it makes my agoraphobia so much worse. I hate being stared at for my tics. Its embarrassing shouting in quiet places because I can't help it or I got nervous. Its embarrassing having to wear gauze wraps on my arms to keep me from scratching sometimes, its embarrassing having to explain to people what's going on. And I know that I dont owe anyone an explanation, but I get real bad anxiety. "What if they think my boyfriend did this? What if they hate him?" When in reality he tries so hard to help keep me from hurting myself. This is not something to glorify. I have so many other harmful tics and so does most every other person with tourettes, tic disorders, or tics from other things. We make jokes because it makes things easier on us. But that's the end of the reason, at least for me... Please be understanding of the people around you, and dont make jokes unless you know the person is okay with it and in a good headspace. It makes it so much easier for everyone.
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just-tourettic · 3 years
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Theres a lot going on lately in the ASD comunity about self diagnosing and people against it because they think medical diagnosis is the only way to go. But what a lot of people dont seem to understand is that, a good majority of the time, even medical "professionals" don't know what they're doing. I've been self diagnosed for a few months now, and recently was sent in by my psychologist to get evaluated for it along with some other suspected disorders. Not once did she bring up any of the things I was there for. And when I asked about them she told me that she would not diagnose me with autism nor would she refer me out to someone who could because I'm an adult and, even though she can see I dont have "traditional" autism, I'm clearly on the spectrum. But, she didnt see the benefit of diagnosing me, so she wouldnt. She also told me that she "was not inclined" to talk to me about or diagnose me with the other things I was deliberately sent there for. Yes, sometimes it can be dangerous to self diagnose, but if I hadnt I wouldn't have gone in for treatment. I now know that I am autistic, however the woman that I went to wouldn't diagnose me because there was "no benefit." This can be just as damaging as a false self diagnosis. Sometimes the people who self diagnose try to get a medical diagnosis and end up in the exact same situation as me, or very similar. Its okay to self diagnose if you feel (and have done enough research) that it's true. You're valid.
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just-tourettic · 4 years
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My managers are work call me their bobblehead and honestly I think it's kind of nice.
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just-tourettic · 4 years
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You know, I really love when people who dont understand my tourettes or any other type of physical and/or mental disorder try to relate to what I'm going through by pretending to have a disorder that doesnt make you do anything close to similar. Doesnt that just feel amazing? I think so.
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just-tourettic · 4 years
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I had a Tic Attack at work and some woman asked what I was doing so I told her I was breakdancing.
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just-tourettic · 4 years
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Why is it that I just... cant do it? I want to clean my house, I need to clean my house. I remind myself constantly that, hey, I need to be cleaning. I have time. But if I'm not in the mood to clean it just... hurts. Its depressing and its painful and I'll break down into anxiety or panic attacks, because I'm just not in the mood. But I know I can clean, I've done it before. And I'll have panic attacks when I dont clean. Why?? And it's like this with a lot of things. Come on brain, just let me do the thing.
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just-tourettic · 4 years
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Before they told me it was tourettes I just thought it was really intense cold chills.
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