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Now to had to that, I'm in my wheelchair everytime I go out! My mom always think about getting it when we're going somewhere, I bought my very own wheelchair and I'm getting a second one ( less expensive, but more practical for traveling) and now my mom is excited about all the wheelchair things I show her, like the additional wheel for going on all terrain or the cup holder ! There's no taboo anymore about it. It just took a little time to adjust!

I've finally talked to my mom about getting a wheelchair. I feel... Relieved. Like, she didn't make fun of me! She didn't laugh or tell me it was ridiculous. Of course, she didn't agree outright, and there was a lot of silence, but at least the idea is here. I'm happy.

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It was covid lmao I'm getting better I guess, but fuck life cause that wasn't cool. I'm bedridden and ALWAYS wear a mask any time I actually go outside. My family gave it to me cause they forgot that it still existed lmaoooo but at least I don't wanna die anymore

#tw covid #covid pandemic #coronavirus #bedridden

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It's getting really bad guys. I got sick with some random virus, and everything hurts so bad I just want it to stop. I said I'll be qtrong, but what's the point if my day is spent suffering? I can't eat, I can barely drink, I'm too scared to sleep and see tomorrow got worse. I can't even go to the hospital, just the idea of it is terrifying. I'm scared of meds, but I'm scared of pain.

I'm terrified at the thought of death, but at my worst, I pray that this is the end. I don't want it to end. I love living. Why?

#vent tw #vent #vent post #tw #tw sui ideation #tw hospital #tw health #illness tw #tw illness #chronically ill #anxiety #sui ideation

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Forgot I had that. I'm tired. My quality of life is bad rn, even if I still have fun. I can't eat anything anymore except chips. I gotta wait 5 month before seeing a specialist. I hate healthcare professionals. I'm tired of hurting.

#spoonie #vent tw #vent #irritable bowel disease #maybe #gluten intolerance #idk #pots #disabled #disability #chronically ill #tired

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Hey! Just to say, I gained back the weight I lost ( which is like, super weird to see my body change YET AGAIN ) And even though I'm feeling weak and I'm still not taken seriously by doctors, I guess I'm good. Just trying to find a way to get over my phobia of medication, vaccins ( I AM NOT ANTI-VAX!!!! I AM JUST TERRIFIED OF MEDICAL THINGS ) and to be honest, it's more a fear of suffering and being sick ( from the medication ) but once i get that under control!!!!! It's over for y'all!!!!! I'll be rolling on everyone's feet.

#tw weight #weight #anxiety #tw weight gain #phobia #medical phobia #tell me if there's other tag to tw the weight talk

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Ughhhh I lost weight again...

I'm at 51,9 kg ( a bit more than 112 lbs) and I decided that if I ever weight less than 50 kg ( 110 lbs) I'm going to the hospital... Whatam I gonna do?

#weight #tw hospital #tw weight #pots #posturaltachycardiasyndrome #postural orthostatic tachycardia syndrome #eating with pots is... bleh #anxiety

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(Via @friendlyneighbourhoodpapergay )

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“if you can’t brush your teeth that’s fine uwu one step at a time” posts are supportive and that’s great but I’m about to have a 4.4k$ dental bill because I wasn’t taking care of my teeth when I was super depressed so uhh brush your fuckin teeth

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One more doctor who doesn't take me seriously and even stops me from making exams. I'm so tired. I don't even know if it's worth it anymore to try and get diagnosed.

#ableism #tw ableism #doctors are so useless sometimes i swear #chronically ill #chronic illness #disability #actually disabled #disabled #I just want to live

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^ From a therapist-friend, in case any in-therapy-friends ever worry about this. 

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I'm still waiting to get helps for my disabilities. I sent my file in December, maybe even November, and I know they got it ( I got a letter, and a call from a very cool and understanding person asking for more precisions about my daily life ) and since then, nothing. They said on the government website that demands could take around 4 month to be accepted and all, and I know I'm already lucky to be able to have help, but it's so hard to wait!

#disability #disabilities #disabled #actually disabled #chronic illness #chronically ill #pots #postural orthostatic tachycardia syndrome #ibs #irritable bowel disease #maybe #anxiety #panic disorder #gad #generalized anxiety disorder #yeah i'm putting everything why not #also hoping to get a wheelchair #at least for my bad days #and a bit of money too cause i can't work #but no worries my parents are there for me

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Me: *tries to find a comfortable position*

Body: I’m sorry ma’am, we have a 5 hour wait for the comfortable positions, but I can give you some nausea while you wait!

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Also I've been trying to call the university for hours to ask for adaptations and they NEVER ANSWER FKZKJDKDK

#disabilties #disability #disabled #chronically ill #chronic illness #spoonie

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Still here, still not standing up for more than 10 minutes and walking for more than an hour (on the good days and with fatigue and nausea for the whole day afterwards) still waiting for mobility aids ~✨✨✨

#POTS #postural orthostatic tachycardia syndrome #orthostatic hypotension #dysautonomia #mobility aid #wheelchair #cane user #walking cane #walking stick #chronically disabled #disabilties #disability #disabled #chronically ill #chronic illness #spoonie

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I think my body is telling me that it can't do my flexibility exercices like before. Well I say FUCK YOU and I keep on doing the splits.

Self care? Idk that srry I'm too stubborn

#chronically ill #chronic illness #disabled #disability #disabilities #possible pots #pots #orthostatic hypotension #postural orthostatic tachycardia syndrome #possible chronic fatigue #chronic fatigue syndrome #anxiety

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Almost a year self-harm free! My best tips is drawing on yourself when you feel like cutting. Really saved me a bunch of times.

#sh #tw self harm #tw sh #self harm #self-harm #self harrrm #addiction #self harm free #gettinghealthy #getting better #yay for me

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You can have good days without being a faker and bad days without being a failure. Don't judge yourself for your ups and downs.