It is so so awful to be in a state where if I get tired enough I get sad. And I very easily get too tired. And then I'm just like "why am I sad. I have not been disappointed enough to be this sad." and the answer is that it's the chronic fatigue going haywire.
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You will not be able to fully understand or relate to people with differing disabilities. Being disabled yourself does not give you immunity to having biases, ableist ideas, or misunderstandings about people with different disabilities. We all have unique struggles and things that help/hurt us, and it's both beautiful and frustrating. It's what makes our community strong but it also can lead to infighting and miscommunication. Be aware of other disabilities, listen to people outside your specific condition. Don't talk over others and if you do apologize and learn from it. Don't assume because YOU haven't encountered something that it means anyone talking about it is lying or exaggerating. We can still have each other's backs without having the same experiences. We can do this. Take my hand.
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Poll conceptualized while spending 75 minutes inside an fMRI machine for a research study I'm taking part in.
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i am in so much pain.
this is the part of being disabled that sucks.
i took my meds. i tried to stretch. i tried to rest. i got water. i got food, went to the bathroom, got in comfy clothes, cuddled my cat.
i did everything right.
i am still in pain.
i am always in pain.
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