myownjadedpieceofmind

[myownjadedpieceofmind]

Start this with a cute picture of my dog, Gus (*edited because auto correct changed his name to god and even though he's close to, his name is gus. *) because he's the best comfort a girl could have as she recovers from brain surgery.

And...yeah..here we are, 6 days post op. I'm absolutely shocked by the way I feel, I expected to feel like dying every day. Sure, my neck muscles hurt, and so does my head, internally. But, I'm focusing on healing, and trying not to stress myself out about anything at all. Including my finances. That may lead to a really big issue later on, but for now the lights are on, the water is running, and I still have food. I can't really ask for much else.

The incision site looks wild. I have a hard time believing that I actually did the thing, you know? The scariest thing I've ever even thought about, and I actually went through it instead of running from it. Both of my arms are bruised like crazy, and even at nearly a week later, the iv sites haven't faded much. The doctors and nurses all commented on how my veins twist and turn all over, making them more difficult to access. When the iv tech learned that I have Ehlers Danlos, he took a deep sigh and told me he would try his best not to hurt me.

I took a 15 minute car ride to go get some prescriptions and figure out within the first 3 minutes that I have no business in a vehicle yet. Along with the fact that my body goes into trembles when I'm in severe pain, every single bump or turn sent shocks through me.

Ice packs have become my new best friend. Same with the silent feature on my phone. Don't get me as one of those ring tone girls- I use the vibrate notification. But I found that I'm such a light sleeper that I get disturbed easily right now. I've had to learn to prioritize my health over everything and somehow not feel bad when I ignore phone calls.

I've had absolute strangers drop off a gift card for groceries; someone I made jewelry for dropped off some homemade freezer dinners to make life more simple; the things I never would expect from people that barely know me. The kindness of strangers surprises me every time, especially when the people who know me best haven't really been showing it.

Which brings alot of feelings to the surface, and I'd rather not deal with those feelings quite yet. I'm still just trying to process the last month of my life, and I'm not equipped to really dig through the years of emotional crap I boxed up.

#chiari malformation #decompression surgery #cool scar bro #my brain #progress #disabled artist #not so invisible now #invisible disability #artists on tumblr #recovery #tw medical #tw surgery

[myownjadedpieceofmind]

Almost everything else is down...will tumblr make a comeback

[myownjadedpieceofmind]

I could use some help during the time I'm going through recovery from brain surgery. I know it's hard to just "donate" money to someone, but...perhaps if you bought a piece of jewelry, you'd be receiving something at the same time as you would be helping me pay my bills.

I have all of these, and more, on my website. I also have a whole bunch of stones, including uranium glass, that i would be happy to wrap up for you.

A gofundme has been set up, along with an Amazon wishlist including some of my favorite comfort foods.

I'm scared, but hopeful, that this surgery will make my life a little more livable. I need to make some accessibility modifications to the bathroom, but my goal is to make sure my bills are paid for the time I'm recovering from this surgery. It's going to be a while before I can get my hips replaced, but at least the pressure in my head will get better.

#chiari malformation #artists on tumblr #handmade jewelry #copper wire #disabled artist #wearable art #one of a kind #wire wrapped #kansas artist #jaded ink designs #support artists #help me heal #recovery #need help #craniectomy #laminectomy #decompression surgery

[myownjadedpieceofmind]

“Oh boo hoo you shouldn’t ask your friends for favors we’re all adults”

I just spent three hours pulling up carpet and staples for a friend’s home renovation and we all did nothing but chat and joke and have wonderful conversation the whole time.

Helping somebody move or renovate or giving them a ride to the airport is functionally the same as going mini-golfing or playing a board game: it’s an activity that you do that is made more fun by having good company, and which provides something to talk about when the conversation lulls.

[myownjadedpieceofmind]

Brain surgery.

Yup. 30 days from today.

#brain stuff #surgery #decompression surgery #chiari malformation #disabled artist #need help

[myownjadedpieceofmind]

I kinda wish I'd never started down this black hole of health problems.

I'm in need of a full hip replacement in my right hip.... my left one needs replaced as well, just not as urgently as my right.

hip dysplasia, pelvic and femoral antiversion, osteoarthritis, and detached labrum is the final words on the right hip. I have no cartilage left in the right side, so when I walk, the joint is all bone on bone.

It's adding to the increasing pain in my back and my knees. Things just keep getting worse.

Meanwhile, a good friend of mine followed all of my suggestions and helpful hints when applying for disability, and was approved. She applied in February. I applied 3 years ago. Somehow, I could guide her through the process so she would be approved within a matter of months and Im still waiting another 2 months for the hearing to decide my case.

I'm beyond depressed. Christmas is never a happy time for me, but it's even less so since I've not been able to physically work a job that pays any decent amount. My artwork sales have been pretty slow, to the point that I can't afford to keep the website open. Every month it's a struggle to just be alive. It's exhausting.

#chronic illness #disabled #my hip is trashed #my hips dont lie #they just cry #need some help #why does it have to be like this #health issues #ehlers danlos syndrome #hip dysplasia #femoral antiversion #bendy bones

[myownjadedpieceofmind]

I took a chance on myself and entered this little fashion design competition. The goal is to create a runway fashion made of only construction materials. I spent hours digitally building my shopping list after designing the basic for the dress.

I need a digital tablet. This is the first time in my life I've ever said that and meant it. My drawing skills are not what they used to be, so my preliminary sketches look juvenile. However, I was accepted- so I can't complain. I just need to fill out the paperwork and then get started putting this thing together.

Probably going to be one of my favorite projects I've ever worked on. 🥰

[myownjadedpieceofmind]

I have united health care, community plan, because that's what the state medicaid program is....

It's awful. I'm constantly between the pharmacy having to send back prescriptions to the mobility company working to get grants to pay for my mobility aids.

I'm disabled, with permanent handicap parking permits and over 6 documented health issues that are listed in the social security blue book of qualifying disabilities ...and im still not approved for social security payments after 3 years. I also cannot see any specialist out of state, which has delayed my treatment at the mayo clinic and the chiari institute. I have chronic migraines, and instead of paying for 1 injection a month to control my headaches, my insurance wants me to take 6 pills a day- 4 of an anti epileptic and 2 of a anti convulsant. So... thats 180 pills a month rather than 1 injection.

The worst part is, there is only 2 to choose from, and I don't know enough about insurance to understand which one to switch to.

UnitedHealthcare, the largest health insurance company in the US, is allegedly using a deeply flawed AI algorithm to override doctors' judgments and wrongfully deny critical health coverage to elderly patients. This has resulted in patients being kicked out of rehabilitation programs and care facilities far too early, forcing them to drain their life savings to obtain needed care that should be covered under their government-funded Medicare Advantage Plan.

It's not just flawed, it's flawed in UnitedHealthcare's favor.

That's not a flaw... that's fraud.

[myownjadedpieceofmind]

It's my 6 year anniversary on Tumblr 🥳

6years this go around anyway. I can't remember how many years @searchingforapieceofmind-blog was going before I lost my password. Suppose I could look but we all know I'm too lazy for that. (That's a lie, I'm not lazy. I'm just not really wanting to re-live parts of my life through my blog.

Anyway- happy anniversary to me.

That means it's coming up on my 6 year meth-free date. I'm having a struggle with the whole "label" thing, just because of the fact that I'm a person with chronic debilitating illnesses. I'm on medications that some people mught choose to abuse. Anyway-things have changed alot in 6 years. If you've stuck around, thank you...and, I'm sorry? 🤣 joking, but, I used to be alot more tease and nudity. Now I'm too poor to afford self care, let alone maintenance other than doctors appointments. This is what middle age is? Who knows.

If you've just started following me- hey! Welcome to the blog of an AuDHD 44 year old artist and Jade of many trades, I reside in north central kansas with my 43 year old partner and my nearly 20 year old son. My 22 year old daughter is a cosmetologist and lives about an hour and 15 minutes away. Life's been a real struggle over the last few years, and the struggle hasn't gotten any easier. Hopefully by this time next year, I won't feel like that.

#6 year tumblrversary #tumblr milestone

[myownjadedpieceofmind]

A moment of "I feel cute" coupled with decent lighting from the kitchen window left for decent photos.

I think I found a reason not to cut the long part of my hair off. I haven't found any reason not to keep shaving my undercut, so it stays. Will be better when it comes time for them to cut a hole in my head- less traumatic if I'm not having my head shaved atop having my brain cauterized.

I know yall are Christmas shopping, so I'd like to offer up a suggestion- support your friends businesses this year. They need your help. So many of the small businesses and artists or creators that I know have been struggling to afford day to day life and are likely not going to have a holiday at all thanks to the economy.

Instead of supporting the businesses that don't care about their business ethics or their employees- spend your money purchasing gifts that come from the people you know and help them have a Christmas too.

Make sure you check out my store to see all the available stock! Remember : all pieces are one of a kind and made from recycled and repurposed copper wire and gemstones. Once a piece is sold, there will not be another made the same.

#handmade jewelry #artists on tumblr #my face #might not cut my hair #but i need to dye it #shop small this christmas #support your friends business #buy from makers and creators #christmas cheer

[myownjadedpieceofmind]

New Found Glory - Dressed To Kill

[myownjadedpieceofmind]

I feel this in my entire being.

So tired 💤

[myownjadedpieceofmind]

Life has been "life"ing.

I've been wrapping to keep my sanity...would be cool if it could help me pay some bills right now. Do you see something you like?? Let me know. I'd love to send it out to you.

I've got an appointment 3 hours away from home tomorrow with a cardiopulmonologist. Things could be better, but I suppose they could be worse too. Disability hearing isn't scheduled til January and I really don't have the ability to do anything else about it.

So I do what I can, and that's concentrate on wrapping patterns into wires, spelling out positive intentions and affirmations as I carefully wind them around personally selected gemstones. Maybe one of them will be just the thing you are looking for.

#handmade jewelry #artists on tumblr #copper wire #disabled artist #wearable art #one of a kind #wire wrapped #kansas artist #jaded ink designs #metaphysical #cold connection #gemstones #crystals #witchcore #intentionalwrapping #positive intentions #follow your dreams #go where the love is #positive vibes

[myownjadedpieceofmind]

I'm $300 from my goal.

Which means I've gotten $1100 of the $1400 I need for the dental appointment tomorrow morning. This whole thing has been so very stressful, without the consideration of having to ask for more help than i should have to.

Please, I know it's not a good time for anyone, but if you were ever interested in my work, or if you can spare even $5, I would appreciate the help. I really don't want to have to cancel my appointment and start this whole mess all over again.

Cashapp: $6od3ss

Venmo : jaded-ink

Shop my website: www.jadedinkdesigns.com

Commission a piece by messaging me: [email protected]

#artists on tumblr #s.o.s. #life just keeps happening #if you can help #sometimes you just need some help #it is what it is #my dental nightmare #luxury bones

[myownjadedpieceofmind]

Here's the deal...

I know I keep yelling my problems out into the void, praying that somehow, my voice is heard. It's not like I expect any single person to answer, but, it would be nice if someone had some kind of idea on how to turn this around....I'm trying to earn my way. I am doing all the legal hustles i can do. I've been trying to sell my belongings, priced my art cheaper than I really should just trying to move it...I physically cannot donate plasma because of my multiple disabilities and the incredibly low bmi.

On Monday, I go to get my bottom denture made, and on Thursday I have surgery scheduled to remove the rest of the broken teeth I do have. It's going to cost $1500, and since I work less than 16 hours on a paycheck, you can imagine how hard this is hitting me. I have hit the 3 year mark on waiting for approval for disability payments. There isn't much else I can live without, and i don't want to negotiate living without teeth.

I applied for care credit, but since my current income is almost nothing and my credit score isn't over 600, well.... I'd have better chances getting a title loan on my 1996 truck, even though it's engine is in dire need of replacing.

Ask yourself this... if you were without income because you couldn't work due to your failing health, while dealing with health problems and getting no assistance or benefits.... how long would you last? I don't just mean financially.. I mean mentally, as well.

#life stuff #any kind of help #s.o.s #disabled artist #my life #why is it like this #always a problem #never understand #what am i doing

[myownjadedpieceofmind]

Staff of confidence: blue topaz and quartz

Elven IV: lemon quartz

Arwen: blue flash labradorite

All searching for new homes! Not yet on my website. Contact me to purchase, or to request a quote on a custom piece designed just for you!

#handmade jewelry #artists on tumblr #copper wire #disabled artist #wearable art #one of a kind #wire wrapped #metaphysical #kansas artist #jaded ink designs #buy my stuff #custom designed #witchcore #elven aesthetic #wire wrap artist #recycled copper #natural gemstones

[myownjadedpieceofmind]

Try this again.

Except, without all the fluff, since tumblr wants to eat my words as I post them.

My website: www.jadedinkdesigns.com

Go, please. Shop. Buy something, or get on my holiday commission list before it closes.

I'm in need of some groceries, and supplies for an upcoming vendor event, and in a week and a half, I'm having dental work done. The only way I know how to do it is by reminding people of the things I do.

I have afterpay on my site now, to make affording my work a little easier as well.

If you can share this, I would appreciate it. If you want to help a disabled artist with some living expenses, even just a little gas money or something-cashapp $6od3ss;venmo: jaded-ink or even Amazon gift card money- I'm not kidding when I tell you I would be grateful for any sort of support.

#artists on tumblr #jaded ink designs #disabled artist #handmade jewelry #one of a kind #wearable art #wire wrapped #kansas artist #copper wire #support artists #buy my art #need help #support please #share this #holiday commissions open #help my business #handcrafted jewelry