neoninpieces

[neoninpieces]

Host: experiences trauma Brain:

#meme house

[neoninpieces]

hi sorry if this is outside your area of expertise but in non-DID/OSDD dissociative amnesia does headaches or other pain occur?

Absolutely.

Childhood trauma and dissociation in tertiary care patients with migraine and tension type headache: A controlled study - ScienceDirect

Pain-determined Dissociation Episodes | Pain Medicine | Oxford Academic (oup.com)

Trauma (instituteforchronicpain.org)

More sources:

Myofascial Pain Syndrome - Healing and Mind-Body Resources (healingfromchronicpain.com)

It’s a pain: the physical impact of trauma | Carolyn Spring

Irritable bowel syndrome and trauma (carolynspring.com)

#so... i'm certainly speculating but this *might* explain a lot of things for me #why my migraines were so severe and then seemingly dropped off the face of the planet #they're so much more infrequent now i almost feel guilty about being so incapacitated by them before. i don't know. #recommended reading

[neoninpieces]

On a random different note with regards to switching and alters, I never like using the terminology of "(alter) is fronting" because it just gets so confusing and I don't like people treating me, as alters, as if we're separate people. I really just want people to understand that I am Different Sometimes and I grew up telling people things like "I'm in (xyz) mode rn lol" and I'd be like "I can't talk about that topic because I'm not in the right mode to be interested lol" stuff like that

And that's still how I experience my switching and my alters and that's still how I explain to people my switching and whatnot

But I've always tried to avoid the terminology of "(xyz) is fronting" or whatever because it confuses me Greatly and I don't resonate with that language

And I kinda realized yesterday like. Wait. Why force myself then? Why do I have to conform to that language? If saying that I'm in XYZ mode is what is more comfortable for me and makes the most sense and is what I prefer, why would I force myself to change that language?

I really think the wider DID/OSDD community needs to understand that the language you use to describe your DID or OSDD, the language you use to describe your switches, your experiences, etc. is incredibly subjective and nobody should be forced to conform to language they don't feel comfortable using for themself

[neoninpieces]

i blog for like 5 people and 3 of them are me

#meme house

[neoninpieces]

this tumblr is four years old.

i'm still infrequently posting on the external blog i made. i'm find myself enjoying writing there, despite how long it takes to churn out a post. i still want everything on it to be... not perfect, but maybe to perfectly capture what i'm trying to say. so it takes a while, but i think i'm writing well without second-guessing myself too much. i'd rather write something i'm proud of at a snail's pace than something i injure myself over from excessively rolling my eyes at it a year later (it's happened).

hmm. what else has changed in four years? what else has changed since i left and came back?

there's a lot i just considered sharing, since it feels like speaking into the void– but it's still too personal. i'm not above fearing reproach from strangers over lifestyle changes. even if i don't share anything, it's still kind of nice to keep some kind of record that i'm here.

so. cheers to four years of treatment, four years of surviving, and four years of this blog.

[neoninpieces]

Shout out to systems who help themselves.

Systems who work on grounding. Systems who research their disorder and try their best to understand. Systems who leave conversations when triggered to take a break, and who work on those triggers without just giving up.

Shout out to systems who cannot get help from a therapist, for whatever reasons they have, and chose instead to change themselves for the better. Your actions show that change, and it’s so wonderful to see those who have grown and changed. I’m so proud of everyone who has looked into therapeutic techniques and implemented them.

Good luck with your healing my friends!

[neoninpieces]

there’s a special kind of grief you feel towards yourself when you’ve been mentally ill for as long as you remember. you see ppl saying they long to return to their old self but you don’t have an old self, or if there was, you can’t remember it. ur “old self” was a child. this self is all you’ve ever known. then there’s the fear that comes with trying to find out who you are without your mental illnesses, it’s all new to you and you don’t know if you’ll like who you’ll be

[neoninpieces]

uhhhhhhh

#might as well invest in my sideblogs if i'm back on main #maybe i'll keep ranting contained to this one. not specifically syscourse but like. in that vicinity #bc it exists and it's wild that it has to! but also i think there should be some clarifications about what did actually... is

[neoninpieces]

we've been moving further away from using tumblr in the past... jeez. years. there was this idea that since the younger parts wanted to keep using it, starting a did-related blog would help us stay. it worked at first, but there's just nothing we're really interested in sharing on here now. there's a lot of misinformation and misconceptions on here still, and we're not really cool with risking falling back into bad habits from 2019. there's a new place we're writing at, but we're trying to be secretive about it for the most part because we're still trying to maintain a balance between how we want to be seen and how our old content on here might influence how people perceive us. i'm not sure if that makes sense.

anyways, if anyone in the void happens to see this, dm if you're interested in reading the blog. it's way more professional than we've ever been on here. sorry for yeeting so much.

[neoninpieces]

tbh i’m getting pretty pressed at the sheer amount of “doing [X] with DID/T*urette syndrome” on tiktok and youtube. like I’m seriously convinced that there’s there’s so much misrepresentation and disinformation (based on confirmation bias: “it happens to me, therefore the experience is universal”) being spread that if anyone in treatment/dx’ed with either spoke up and said they were uncomfortable with it they’d be harassed for not following the archaic tumblr mentality of “well the person i developed a parasocial relationship with said it so it must be true”

let's be real it’s not even “raising awareness” or “normalizing” at this point and frankly it’s the exact fucking opposite of “humanizing”. there's a huge amount of people just waving their arms wildly, squealing and jumping in the air in the hopes that people will watch them and they'll be the next viral star, profiting off of merchandise and fame for having actual disorders.

Neither DID nor TS go away just because your most popular curated online identity revolves around having it!!! AHHHHHHH RAISE REAL AWARENESS CHALLENGE I'M BEGGING YOU

#should clarify that. there really are people who have accounts solely dedicated to raising awareness about ts #but uh... i'm obviously not talking about them am i lol.

[neoninpieces]

On the guy who “changed MPD to DID”

Recently I’ve begun to see things like this surfacing…

AND IT NEEDS TO STOP!!!

An article that was written in 2014 has been resurfacing lately in the plural community, especially among people without DID/OSDD. This is the article in question. In this article, the author is expressing some less than validating feelings about what he calls MPD. He didn’t believe in it. He seems to personally adhere to the unsubstantiated iatrogenic (it’s created by therapists) & sociocognitive (it’s a fad) models. He talks about how he wanted to remove MPD from the DSM-IV, but couldn’t do so.

Why is this such a big deal…?

Well, the guy who wrote this article is Allen J Frances, the man who chaired the DSM-IV taskforce. People have recently started spreading around these scary rumors that because he personally didn’t believe in MPD, he came up with “DID” to replace it.

This is NOT true.

Each edition of the DSM is run by a taskforce of many people. You can learn about how the taskforce for the DSM-IV worked here. Basically, the diagnoses were divided across different work groups who would receive input and data from researchers that specifically researched those disorders. They’d then analyze what might need changes, conduct field trials, and propose their suggestions, etc.

Frances just oversaw this process. He wasn’t a member of any of the work groups who were actually down in there coming up with & suggesting the changes. (Source: The DSM-IV pp.851-873 lists out everyone who contributed & what they did.) He wasn’t a researcher, either. He wasn’t giving any input or data.

He did not “coin” DID. The name change was recommended by researchers.

Look, I’m not a fan of Frances either. He doesn’t believe in the disability that I have. As the chair of the DSM-IV, he was strongly against ‘diagnostic inflation.’ His intention with the DSM-IV was to make sure that diagnostic criteria were as limited as possible so less people could get diagnosed. Because of this, many diagnoses ended up with minimal information and vague, limited criteria.

He’s not on the taskforce anymore and hasn’t been for a long time. If he’s the chair of anything now that would be campaigning against the DSM-5. This guy actively condemns the most recent DSM because it undid a lot of the (frankly, harmful) changes. The DSM-5 lowered the threshold of many diagnoses, undoing the more restricted nature Frances pushed for.

That doesn’t mean that the DSM-5 is perfect; I certainly don’t think so. But it’s a lot better than the old manual, in my opinion.

Back to the whole “He coined DID!!!” thing…

So this whole thing that Allen Frances “coined DID” and “DID is his ableist replacement of MPD” is so fucking ridiculous. Don’t you guys think that if this were true, people would have been talking about it more? The earliest thing I could find mentioning something like this was this blog post from 2019.

I keep seeing threads practically repeating what is in this blog post. They keep bringing up that article I shared at the beginning of the post, but if you read through that article…he never mentions that he changed MPD to DID for some ulterior motive. He never even mentions changing MPD to DID at all. He just talks about his shitty opinions and whines about how he couldn’t delete MPD even if he wanted to. The best he could do to harm the diagnosis was injecting some controversy into the manual (which has been removed in the DSM-5).

Here’s that controversy. (The highlighted bits)

(^ Fuck that ableist shit. Why is everyone focusing on the disorder name and not THIS?)

I just have to wonder… If someone who was literally not a researcher coined DID and did so in order to harm people with it, over 20 years ago, WHY WOULD NO ONE WHO ACTUALLY RESEARCHES AND CARES ABOUT DID/OSDD TALK ABOUT THAT? Because there’s quite a lot of professionals who have talked about the controversy & restrictions he put into the manual! And, unsurprisingly, the name is not something that has come up! Nearly all professional sources I have found that talk about the change from MPD to DID says that it was done in order to make the disorder more understandable.

And do you guys wanna know some of the other disorders that were renamed in the DSM-IV? Literally all of the dissociative disorders (other than DPDR). They were all renamed to have “dissociation” in the name. To make them more understandable. Yeah.

DSM-III:

DSM-IV:

So, to all those people out there shitting on the DID diagnosis because they think that this asshole coined it…why are just shitting on DID when you should be shitting on ALL of the dissociative disorders that got name changes? Seriously, though. Saying that he coined DID is just straight up misinformation. My concern is that all this “DID is ableist” talk is going to end up getting dissociative people attacked or push them away from getting help. Reframe the hate lens!!! You can dislike Frances without spreading misinformation that can end up harming the people with the disability that he does not believe in.

That’s all I have to say on this.

- Sunflower

#came across this and i feel it's necessary to share #there's been a lot of misinformation #and blatant fear mongering #regarding the reclassification of THE DISSOCIATIVE DISORDERS AND THEIR CATEGORY #and i'm not gonna name anyone because i'm fucking sick of drama #but this traces back to someone responsible for #a lot of fucking fear mongering and anti-treatment rhetoric #being spread in the DID/OSDD community #Standing On The Box™

[neoninpieces]

Not diagnosing a child doesn't mean they won't notice they're different. It just means that instead of thinking "I'm struggling because I have autism/adhd/anxiety/depression/schizophrenia", they will just conclude that they are struggling because they are stupid, weak, annoying, unlovable, etc.

[neoninpieces]

I’m really, really grateful to @multiplicityandme for consistently combining the research of DID dissociative disorders (to a...

#actuallyDID #dissociative identity disorder #Standing On The Box™ #multiplicityandme

[neoninpieces]

I’m constantly seeing people say that they’ve seen discussion of a certain myth they want to dispel, but never the source of the myth or who is spreading it… like, just admit that sometimes you want to talk about it. There’s absolutely nothing wrong with sharing educational information for no reason.

#text post evidence

[neoninpieces]

we’re now entering the phase of hearing “vibe check” used by cowards who are all for talking shit but scurry when there’s even a remote possibility they could be called out, i see

#my family is… too reliant on vibe checks #and not enough on healthy communication

[neoninpieces]

it’s all “I feel validated by this person” until they say something, but it’s the way they say it that really undoes all that work

#c #don't reblog

[neoninpieces]

everyone and everything is annoying. i want to live in a one-bedroom cottage with no room for anyone else.