robinlikestea

[robinlikestea]

Tfw you have so many prescriptions that the pharmacist knows you

#spoonie humor #spoonie #chronic illnesses #chronic illness humor #chronic illness #chronically sick #chronically ill #spoonie meme #spoonie problems #eds humor #eds #ehlers danlos zebra #ehlers danlos problems #ehlers danlos #disabled #disability #chronic pain #chronic fatigue #chronic illness memes #chronic disease #my pharmacist is nice #lol

[robinlikestea]

Ayy ya boi is finally applying for dissabilty!! ✌️

#wish me luck #disability #disabilties #disabled #chronic illnesses #chronic disease #chronic illness #chronic pain #chronic fatigue #eds #ehlers danlos zebra #ehlers danlos syndrome #ehlers danlos #invisible illness #invisible disability #eds zebra #spoonie

[robinlikestea]

*vibing*

*remembers I have Symptoms Syndrome™️ and am very breakable*

*vibing ✨gently✨*

#its the neck instability for me #smh #craniocervival instability #ehlers danlos problems #ehlers danlos zebra #ehlers danlos #ehlers danlos syndrome #hypermobile problems #hypermobility #joint instability #chronic illnesses #chronic pain #chronic illness #spoonie problems #spoonie #disabled #disability #invisible illness #i am fragile

[robinlikestea]

Oh you level up with 'life experience'? Well I use near-death experience to power level MY symptoms.

And that's what we call a pro-gamer move

Old people that tell me "just wait till you get to be my age" are just mad that my conditions leveled up faster than theirs

#self reblog #felt like i needed to add this

[robinlikestea]

*gets booed out of the doctor's office*

[robinlikestea]

Old people that tell me "just wait till you get to be my age" are just mad that my conditions leveled up faster than theirs

#oh it took you 65 years #to start having joint pain? #I was born like this #spoonie humor #spoonie problems #spoonie #chronic illnesses #chronic illness #chronically ill #chronically sick #young and sick #chronic pain #eds #eds humor #ehlers danlos syndrome #ehlers danlos #disabled #disabilties #disability #they just jealous #levelling up #chronic illness humor #spoonie joke

[robinlikestea]

My physical therapy is mostly just me moving my head up and down and then side to side. Smh

#pls laugh at my joke #craniocervival instability #eds #eds humor #eds zebra #eds meme #hypermobile ehlers danlos #hypermobile eds #hypermobile problems #hypermobility #ehlers danlos problems #ehlers danlos type 3 #ehlers danlos #ehlers danlos syndrome #chonic illness #chronically ill #spoonie problems #spoonie humor #spoonie #spoonie meme

[robinlikestea]

Person: so... what do you do?

Me: have symptoms

Person: oh. Do you go to work or school or...?

Me: ✨ no ✨ just symptoms :)

#small talk as a disabled person #disabilties #disabled #chronic illnesses #chronic disease #chronic illness #chronic pain #chronic fatigue #spoonie problems #spoonie humor #spoonie meme #spoonie #eds humor #eds #ehlers danlos #disability #ehlers danlos problems #ehlers danlos type 3 #ehlers danlos zebra #symptoms #chronically ill #chronically sick #chronic illness humor

[robinlikestea]

A reminder that if you have chronic pain, you may also end up experiencing other disorders/mental issues, such as executive dysfunction, processing issues, sensory issues, hyper vigilance, PTSD, paranoid thinking, severe panic/anxiety disorders and even mood instability, mania and psychosis.

Being in pain, especially constant pain, does affect you mentally. Burn out and overstimulation are so so so common with chronic pain.

We dont really talk about this or even address because to many it sounds rediculous, but it’s really not, there’s tons of stories of people experiencing hallucinations, distorted thinking, processing issues, dissociation and so much more when they’re hurt/put in severe pain, it completely makes sense that people who are always in severe pain can face similar problems.

[robinlikestea]

When your doctor doesn't know what's wrong with you so you get diagnosed with ✨ dehydrated bitch ✨

#haha love it when that happens #chronic illness #chronic pain #spoonie #eds zebra #ehlers danlos #ehlers danlos problems #ehlers danlos syndrome #ehlers danlos zebra #chronic illnesses #chronic disease #undiagnosed chronic illness #spoonie problems #rare conditions #rare illnesses #eds #hypermobile eds #eds humor #disabled #disability #disabilties #disabledlife

[robinlikestea]

My First Year

2020 was my first year

It was the year that I escaped

The year I laughed the most

But also felt the most pain

The year I apologized too much

And learned to cry again

The year I lost my religion

But found the most friends

The year I redefined myself

The year I started to believe

That good people really do exist

And, maybe, one of them is me

The year I allowed myself to love

And it was the best choice I ever made

The year I took care of myself

And discovered that I'm brave

The year I truly realized

How inhuman people can be

But also how kind, and how loving,

And how full of beautiful things

The year I changed the most

And made the most people smile

This year made me think

Maybe next year is worthwhile

#just another sappy poem #poetry #mine #original writing #poem #2020 #2020 poetry #my first year #original poem #original poetry #2020 positivity #december 2020 #2021 #art #original art #art (?) #writing #poetry writing #poem about this year #my year #positivity #my art #my artwork #i tried #my writing

[robinlikestea]

It's strange how pain that, just a few years ago even, would have been a 10 on a pain scale for me are now something tolerable that I experience daily. I guess it really goes to show that things which used to feel unbearable can become normal over time.

#chronically ill #chronic illness #chronic illnesses #chronic pain #chronic fatigue #chronic disease #spoonie #disabled #disability #undiagnosed chronic illness #undiagnosed #out of spoons #spoonie problems #fatigue #pain scale #pain #ehlers danlos syndrome #ehlers danlos #eds #ehlers danlos problems #ehlers danlos zebra #ehlers danlos life #ehlers danlos type 3 #eds zebra #suspected eds #pain tolerance #disabilties

[robinlikestea]

I am too young

-a poem about living with chronic illness at a young age-

I am too young

That's what people say

Too young for this body

That I battle everyday

I am "too young"

Too young for such pain

My youth contradicts

My mournful refrain

My skin is still soft

My face not yet aged

Untouched by wrinkles

My bones seem unscathed

But my eyes are dark

And my soul is old

My mind is troubled

And I am perpetually cold

Beneath my skin

There are things you don't see

I am young and in pain

That is hard to percieve

For I no longer cry out

I no longer grimace

I don't write pain on my face

For all to see and listen

These are old wounds

I've forgotten exist

But they have not forgotten to hurt

They are now quiet and listess

I am too young

Too young for dark thoughts

That's what I've been told

Though I've learned I am not

Where is this child

I'm told I contain

This healing youth

That makes me immune to pain

Perhaps I am old

Or perhaps you are wrong

To assume that I'm fine

Just because I've been strong

I've seen pain

I've looked in it's eyes

It does not discriminate

It is often disguised

But I've seen so much hatred

And I've also glimpsed death

So long as I avoid them

There is still some of me left

#poem #poems #poetry #mine #ok to reblog #original writing #chronic illness #chonically ill #chronic illnesses #spoonie #chronic pain #disability #disabilities #disabled #mental health #invisible illness #mental illness #eds zebra #ehlers danlos #spoonie problems #original #original poetry #im nervous abt posting this #writing #my writing

[robinlikestea]

Occasionally, my middle finger will dislocate for seemingly no reason and if that's not my body directly saying "fuck you" to me, then I don't know what is.

#spoonie humor #spoonie #out of spoons #eds zebra #hypermobile eds #ehlers danlos life #ehlers danlos #eds #ehlers danlos problems #heds #hypermobile ehlers danlos #chronic illness #chronic pain #chronically ill #disabled #eds meme #eds humor #ehlers danlos syndrome #hypermobility

[robinlikestea]

friendly reminder that being disabled is a full-time job. don’t let anyone make you feel bad for not working when you are physically incapable. you work harder than anyone else just to keep up with your day-to-day life.

[robinlikestea]

The ‘How are you?’ check list post

• Did you eat?

• Have you been drinking water?

• Have you had your hug?

• Have you taken your medication?

• Don’t worry, you look amazing.

• It’s okay to take the day off.

• Stay in if you don’t feel like going out.

• Do you need to be alone right now?

• If you feel like you’re disassociating, try counting your fingers or looking at your finger whorls. Remember that they are unique to you, that you are real.

• If you are having a panic attack: 

1: Ground yourself to reality with something familiar like a keychain or even pictures of something on your phone. [Cats and dogs are good.] Also, do not trust everything your mind/body is telling you right now. Thoughts like, ‘i’m going to die’, ‘everyone is leaving me’, ‘everyone hates me’, are a part of the panic, try not to linger on them, because they will only make it worse. 

2: Find a space that feels the safest for you, and stay there.

3: Take slow, deep breaths. After breathing in, hold it for a few seconds before breathing out. 

4: Stimulate your mind with something simple, and not stressful. Tap your fingers, re-read nice messages from someone, play a game on your phone that doesn’t require any thought or is timed. 

5: You are doing a really good job. You don’t have to feel embarrassed. You are not alone. You are strong.

• Have you spoken today?

• Don’t feel guilty for feeling upset, you’re allowed to.

• Did you brush your teeth?

• If someone’s misgendered you today, and you’re out, correct them if you can.

• You don’t always have to be brave. You can hide today, if that’s what you need.

• Take a deep breath.

• If you’re wearing a binder, raise your arms and take several deep breaths. Cough to clear your lungs.

• Don’t be afraid, you’re not alone.

• If you’ve been sitting a while, stand up and stretch.

• Eat something sweet. (If you like it)

• You’re awesome.

[robinlikestea]

Why does no one talk about the emotional pain that fatigue often causes? When my fatigue is at it's worst, I can do absolutely nothing- I have to lay down, usually unable to move or even talk.

Even watching or listening to something is too hard. Even holding my phone is too exhausting. Even sleeping requires more energy than I possess in these moments and it is so isolating. It's so frustrating that I find myself in tears almost every time this happens.

Like many of us, I've been told my whole life that I was simply being lazy and for so long I believed it. It's lead to me thinking that I can always just push myself a little more, try a little harder, hold out a little longer. But I can't.

Sometimes all you can do is exist and that's okay.

#chronic fatigue #fatigue #chronically sick #chronically ill #chronic illness #chronic pain #spoonie #out of spoons #low spoons #cfs #migraines #mental health #disability #internalized abelism #disabled #depression #dysautonomia #pots #potsie #eds #ehlers danlos #eds zebra #disability awareness