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shesmorethanfibro · 2 years

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When I publish my official blog, I want to do a giveaway over on here and my other shesmorethanfibro social accounts, but unsure of what is best. I was thinking maybe Amazon, or if there is any website that you can order things health related could be better, but I just want to leave it open though and get everyone’s opinions for which may be more helpful. If one gets suggested more than another, (I may after this hold a official vote) then I will probably go with that! So please let me know in the comments 💜💜

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shesmorethanfibro · 2 years

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HI SO SORRY FOR MY LACK OF POSTING ! I HAVE BEEN WORKING ON A SHESMORETHANFIBRO BLOG / WEBSITE IN HOPES TO BE ABLE TO SHARE SHESMORETHANFIBRO TO MORE PEOPLE. AWARENESS & SUPPORT ARE WHAT I STRIVE FOR WITH THIS ACCOUNT AND REALLY WANTING TO BE ABLE TO SHARE IT TO OTHERS! BEFORE I MADE SHESMORETHANFIBRO, BEFORE I FOUND THE CHRONIC ILLNESS AND FIBRO COMMUNITY I FELT SO ALONE IN MY STRUGGLE. AND THAT FEELING DOESN’T ALWAYS GO AWAY, BUT IT IS SO COMFORTING TO KNOW THAT THERE ARE PEOPLE WHO FIRST HAND UNDERSTAND. GONNA DISCUSS MENTAL HEALTH, DEPRESSION, HOW I AM WORKING ON THAT AS WELL AS TRYING TO FALL BACK IN LOVE WITH MY BODY THAT DOESNT EVEN FEEL LIKE MY OWN ANYMORE, MY STORY, EXPERIENCE WITH FIBRO AND THINGS THAT HAVE HELPED AND HURT ME, LIVING LIFE WITH FIBRO, WORKING ON ACCEPTANCE, GONNA BE DISCUSSING THE GOOD AND THE BAD ALWAYS. AND SO MUCH MORE I AM ALWAYS GOING TO POST THE GOOD AND THE BAD AND BE HONEST WITH MY STRUGGLE WITH DEPRESSION, AND FIBRO IN HOPES THAT IS SOMETHING THAT SOMEONE NEEDS TO HEAR. AND I AM HOPING THAT BY PURSUING THIS BLOG I CAN REACH OUT TO MORE AND DO JUST THAT. HOWEVER , JUST BECAUSE I AM HOPING TO DO THAT AND CREATING A BLOG THROUGH THAT DOES NOT MEAN THAT I HAVE FORGOTTEN ABOUT MY SHESMORETHANFIBRO SOCIALS TO BE ABLE TO DO THAT ON!

I HAVE A LOT OF UPCOMING POSTS (AND I WILL CONTINUE POSTING ON HERE ONCE THE BLOG IS PUBLISHED , BUT POSTS COULD MAY BE TOO LONG FOR INSTAGRAM SO I WILL HAVE TO POST THE CONDEMNED VERSION , OR IN THE COMMENTS , OR MAY JUST HAVE IT ON THERE AND POST SIMILAR BUT DIFFERENT CONTENT HERE) IDK HOW I’M GONNA DO IT JUST YET , BUT SHESMORETHANFIBRO WILL STILL BE HERE AS WELL. A LOT OF UPCOMING POSTS LIKE I SAID WHICH I AM EXCITED TO POST VERY SOON. WILL KEEP YOU ALL UPDATED WITH MY BLOG , AND HOPEFULLY WILL GET IT PUBLISHED VERY SOON.

SENDING SPOONS WARRIORS 🥄🥄🥄🥄

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shesmorethanfibro · 2 years

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May 12th, National Fibromyalgia Awareness Day. 🦋⠀

I was 13 when my journey with fibromyalgia began. This year it will make it 8 years since. I remember hearing from doctors, “you’re young, you shouldn’t be in pain” well, that didn’t stop it from happening anyway right? Fibromyalgia affects more than 3 million people in the US alone per year. I was cheerleading with fibromyalgia. I was going to dances with fibromyalgia. I was going to school with fibromyalgia, going to the mall, laughing, smiling, all in pain and feeling so much every single day. And there are days where I can’t even get out of bed. Or I cry when i walk a little too much. Or i get a sharp pain that has me hunching over in the middle of a store. Or when my insomnia and my chronic fatigue are both bad at the same time and i hallucinate. Just because people with fibromyalgia smile, doesn’t mean that we are not in pain. That doesn’t mean that we don’t deserve to have a cure. ⠀

I had different ideas for this post. A little positive. But I don’t have that in me. Because I am just so mad at the world. I’ve been having a really hard time with this recently. Even after 8 years for me, acceptance is hard to find. Because we do not deserve this. I don’t want to be in pain anymore. I don’t want to feel exhausted all the time. I don’t want to also have insomnia. I don’t want to deal with the symptoms my body likes to randomly throw at me like fibro fog or sensitivity to weather, whatever weird shoulder arm thing my body has decided to hit me with, numbness, skin sensitivity, light, noise sensitivity, flares, and so much more. I want to be able to one day say that I used to have fibromyalgia. I know we all do.

From a monologue I wrote for one of my acting classes, “And I feel like I’m never gonna be truly okay, because I am going to always be waiting to wake up from that nightmare. And I never will. I don’t deserve you. You do not deserve me. You don’t deserve to take my dreams, and my hope, my days, my laughter, my happiness, my life. But if you want to there’s not much I can really do about it to either succumb and let you…or try to survive through you and in spite of you. But that doesn’t mean it doesn’t hurt. But with that being said, I just want you to know… I am here. I am here fighting to have and keep those things everyday in spite of you. Good days and bad. You may win the battles, but I will win the war, I promise you that. And I will never give you the satisfaction to say otherwise. You may beat me down, but you will not break me. Because that is what I deserve.”

I find it so hard to even see myself dealing with one more day with fibromyalgia. But I’ve made 8 years. And no matter how hard it gets, I can say that I’m surviving it. And that’s something fibro will never take from us. That we are survivors, we are WARRIORS. And by raising awareness, we can get actual helping medication, we can get a cure. Because we deserve that. So I’m asking you guys to stand up, and wear purple, share, like, comment, whatever because we with fibromyalgia and chronic illnesses do not deserve this. And maybe if we all raise awareness for it that we won’t have to deal with this forever. Cause I know for a fact us warriors are SO strong. But that doesn’t mean that strong people don’t get tired. So let’s all please raise awareness so that we can come up from this nightmare one day. Thank you. 💜

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shesmorethanfibro · 2 years

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May 12th, National Fibromyalgia Awareness Day. 🦋⠀

I was 13 when my journey with fibromyalgia began. This year it will make it 8 years since. I remember hearing from doctors, “you’re young, you shouldn’t be in pain” well, that didn’t stop it from happening anyway right? Fibromyalgia affects more than 3 million people in the US alone per year. I was cheerleading with fibromyalgia. I was going to dances with fibromyalgia. I was going to school with fibromyalgia, going to the mall, laughing, smiling, all in pain and feeling so much every single day. And there are days where I can’t even get out of bed. Or I cry when i walk a little too much. Or i get a sharp pain that has me hunching over in the middle of a store. Or when my insomnia and my chronic fatigue are both bad at the same time and i hallucinate. Just because people with fibromyalgia smile, doesn’t mean that we are not in pain. That doesn’t mean that we don’t deserve to have a cure. ⠀

I had different ideas for this post. A little positive. But I don’t have that in me. Because I am just so mad at the world. I’ve been having a really hard time with this recently. Even after 8 years for me, acceptance is hard to find. Because we do not deserve this. I don’t want to be in pain anymore. I don’t want to feel exhausted all the time. I don’t want to also have insomnia. I don’t want to deal with the symptoms my body likes to randomly throw at me like fibro fog or sensitivity to weather, whatever weird shoulder arm thing my body has decided to hit me with, numbness, skin sensitivity, light, noise sensitivity, flares, and so much more. I want to be able to one day say that I used to have fibromyalgia. I know we all do.

From a monologue I wrote for one of my acting classes, “And I feel like I’m never gonna be truly okay, because I am going to always be waiting to wake up from that nightmare. And I never will. I don’t deserve you. You do not deserve me. You don’t deserve to take my dreams, and my hope, my days, my laughter, my happiness, my life. But if you want to there’s not much I can really do about it to either succumb and let you…or try to survive through you and in spite of you. But that doesn’t mean it doesn’t hurt. But with that being said, I just want you to know… I am here. I am here fighting to have and keep those things everyday in spite of you. Good days and bad. You may win the battles, but I will win the war, I promise you that. And I will never give you the satisfaction to say otherwise. You may beat me down, but you will not break me. Because that is what I deserve.”

I find it so hard to even see myself dealing with one more day with fibromyalgia. But I’ve made 8 years. And no matter how hard it gets, I can say that I’m surviving it. And that’s something fibro will never take from us. That we are survivors, we are WARRIORS. And by raising awareness, we can get actual helping medication, we can get a cure. Because we deserve that. So I’m asking you guys to stand up, and wear purple, share, like, comment, whatever because we with fibromyalgia and chronic illnesses do not deserve this. And maybe if we all raise awareness for it that we won’t have to deal with this forever. Cause I know for a fact us warriors are SO strong. But that doesn’t mean that strong people don’t get tired. So let’s all please raise awareness so that we can come up from this nightmare one day. Thank you. 💜

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shesmorethanfibro · 2 years

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Reminder going live tomorrow for fibromyalgia awareness day over on my shesmorethanfibro Instagram!!!

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shesmorethanfibro · 2 years

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Going to be going live on my shesmorethanfibro Instagram on the 12th for fibromyalgia awareness day, and will be talking about my fibro journey 🥄🦋💜

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shesmorethanfibro · 2 years

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so my body has been deciding to throw some new kinds of my pain for me my way, and I am wondering if anyone else has / is dealing with the same.

basically it had started at night a couple times until today it did it in the morning, and it is happening more frequently. but it feels like in my left shoulder, what I imagine it feels like if your disc pops, idk but it feels like a pop and so the pain radiates in my shoulder, but then goes to my left arm, left side of my neck and then just the left side of my body. that same bad pain just shooting through and then depending on how I move my arm, it can do again, making it worse. And when that happens sometimes it will make my arm feel numb. But there’s sharp pains throughout thag side of my body, feels like it’s on fire, and at least right now it feels like it’s slowly radiating to the other side of my body.

I don’t know how long it really lasts cause it had been starting at night and then I’d go to sleep, so I’m really hoping it will not last all day because it’s just so bad and intense. So let me know if this has happened to you before or heard anything about this? And if so does anyone know how to maybe help it? Like ice or heat work? thank you 💜

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shesmorethanfibro · 2 years

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Waking up in the morning, and just feeling so much pain first thing, already, it is so frustrating and discouraging.

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shesmorethanfibro · 2 years

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I often feel bad that my posts haven’t been super positive and upbeat lately, and I definitely wanna do that more but I also want to show my truth of how I’m doing mentally, and with my fibro, because not everyone is in a place of acceptance and hope. And I don’t want anyone to think that they’re alone in that because they’re not. I’m dealing with the same. And depression, and hating fibro, and hating being inside of my body, and so much more. And I want that to be something that we work on together. So working up to being more positive and upbeat, but you know right now this is apart of my journey. And I hope you’ll continue staying for it 💜🦋🥄

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shesmorethanfibro · 2 years

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Anyone else ever think they're over-exaggerating their pain and that it's not really that bad and that they should really just suck it up? Even as they're in the middle of a flare up and struggling just to shift position on the couch?

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shesmorethanfibro · 2 years

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Late night thoughts with serenity. I know it’s not constructive, I know that acceptance is something that I genuinely am trying to work on, but I can’t help but think this. Am I the only one when you’re just sitting in bad pain, frustrated, just attempt at channeling all the doctors that said “you’re too young to be in pain” or “it’s all in your head” and you just try to convince yourself that maybe it is? Cause I do that alot. I try to think, maybe I’m just doing this for whatever reason, but I’m not actually in pain. And you focus so hard only to still be hurting badly. Update : it doesn’t work. And you’re happy that yeah it’s not all in my head, the doctors were wrong, I have a diagnosis finally. But it’s also like fuck, this is my diagnosis and I’m in so much pain, always in pain and it’s real, and sucks, and it’s forever. Chronic pain sucks. It’s real and to all those doctors or people that say that, I have a special finger for you. Working on acceptance but crap, why can’t it just be all in my head. Why me? I was 13 you know? And now I’m 20. Why can’t it just be all in my head? Why do I have all these shitty symptoms? Why does it effect my life? why do i have chronic pain? Does anyone ever think this as well? Comment, and goodnight. And maybe this will be a new series? 💜🦋🥄

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shesmorethanfibro · 2 years

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Any tips or tricks about how to lose weight with fibro or chronic illness?

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shesmorethanfibro · 2 years

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New post asap, this week is my midterms so I’ve been preparing for it, and breaking cause of pain and fatigue, and struggling, and yeah so it’s been a lot. But should next week have a new post up!

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shesmorethanfibro · 2 years

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I hate hope. In my experience hoping for things just makes the inevitable disappointment hurt more. I believed I was more mentally okay than I am actually am. That I was even a little close to accepting my fibromyalgia. And that as much as I tried to deny it I was hoping that a geographical cure would happen that would just make my depression better, my pain become just bearable everyday. It’s not until you’re alone in your dorm room, in the dark, crying again like you have several days this week, because you don’t wanna do life. And how you don’t understand how life could give you a chronic illness at 13, going on 8 years now that leaves you in pain everyday when all you wanna do is live your life the way you deserve to. So long story short, things have not exactly gone as I was hoping they’d go.

The thing though that has gone right is the acting. I love my classes, and my professors are so great and so understand and accommodating. I know I’m gonna learn a lot and already see myself learning a lot so that helps. Just outside of it I just feel wrong. On the positive I forced myself out a bit and regardless of pain i enjoyed it. But I just feel like when I’m not in class it’s just wrong. For many reasons. Like even when I’m around people sometimes because what they can do I cannot all the time. And what they wanna do I cannot all the time. Right now that happens more often than not. People not fully understanding, the guilt you feel because of it, and so much more. And you feel alone because of it. And you just realize when you’re sitting in your room that maybe you’re not even as close to okay as you thought. Maybe you just have to say im alive for now because that’s just what you feel. Because it’s easier than saying I feel depressed, stressed, pained, exhausted, overwhelmed, etc. The change has been harder than I thought, making me question more than I thought. I’m missing my family, feeling alone, hating fibromyalgia, hating life because it would give a 13 year old fibromyalgia, just everything. I know I have a great purpose in life and that helps me. I just gotta through the rest. Gonna work on finding a new therapist, even when I don’t want to listen to my body, and knows it’s not my fault. Do what’s best for me. Figuring out how living life, trying to function with fibromyalgia works. Posting and communicating more, using all this to push me to be the person I wanna be. Try to figure out what I want tbh and who I am.

I wanted this to be more happy. Like woo I’m following my dreams, with all that hope I had. But that’s not real. And it’s not that easy. And I’m not gonna put on a face and pretend that it is. That’s not what this accounts about. I have to remind myself to take it one hour at a time if I have to, even one minute if an hours too much. And that I’m stronger than I think. I’m gonna try posting more, and on YouTube soon things just have been.. well you see by this post lol. And just gotta remind myself that “shes more than fibro” 😉😉 gotta end it on a good note 😩💜

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shesmorethanfibro · 2 years

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Hi, gonna be posting more on here very soon, but I also post more content especially on my story over on my shesmorethanfibro Instagram! So check that out if you haven’t! 🦋🦋 Happy Valentine’s Day! 💜

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shesmorethanfibro · 2 years

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Hello, Serenity here with an exciting announcement. I have talked about my dreams of becoming an actress and I had every intention of moving in order to pursue that, which is half of my news. I am enrolled in the Academy Of Art University and headed to San Francisco! I have been open as well about the podcast / YouTube channel I have intended on making and although I do plan on creating the podcast for now, in a dorm, it may have to be on the back burner but the YouTube part is still going! Oh and more story posts throughout the day! but I plan on vlogging and talking at least a few times a week to kind of do the same thing I planned on podcasting about but also to show that yeah, it’s going to be hard, and I genuinely am anxious about it where my pain is concerned, but I am more than just my fibro. Even if it’s hard to believe sometimes. So I wanna show the good and the hard when it comes to following your dreams with fibro. The good pain days, the bad pain says, the trying to navigate college with it, how I’m doing mentally as well, etc. because my senior year of high school was the year my fibro got so much worse and because of it and other factors I only went to school like twice a week and got to the point to graduate I had to go to the tutoring center for 2 hours everyday in order to. And since then I have been very safe and scared because even doing some little things can be challenging like walking around the store a lot on a good or decent pain day or how bad pain can be some days I can’t walk to the bathroom without struggling or crying. So I am scared to be out of my comfort zone, I am scared to go through life with fibro. I am so thankful for the medical accommodations department who have been working with me to make it and my housing, my classes, living and life there easier on some needed things which definitely relieves some of my fears. And honestly it would be so much easier if acting wasn’t my dream, but it is so i am going to try to fulfill them. And that’s what I want to show. That it’s gonna be hard and scary but even if you don’t believe it you are more than your fibro. So wanna show that. So if you want to subscribe to my channel link is in my bio! 💜💜

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shesmorethanfibro · 2 years

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Hi so I created a Facebook group, We Are More Than Fibro because I love this account but I would love to be able to reach out to more of you about the struggles of fibromyalgia and all that comes along with it like the fatigue, depression, anxiety, etc. and I can on here or my story but still it’s not as connected as I wish it could be. So I created this Facebook group where the goal is that we can all share our journeys, our pain, our sadness, our advice, rants, when we need support and so much more. You need to ask if anyone else has this symptom because you feel alone and seemingly havent heard about it? There you can. The account is for now private but I’ll be going everyday to accept people and such. Please consider joining, I know Facebook isn’t as popular as it used to be but I believe this could be a great way for everyone to help eachother get through. So the link is in my linktree in my bio, please go check it out there or simply search. Thank you and I’m excited for all this possibility! Goodnight warriors! 💜🦋🥄

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