shout out to the kids who looked up their own disability to find no information
shout out to those who have heard doctors tell them they've never heard of their disability
shout out to the one in millions, the rare disorders and disabilities
shout out to those with untreatable chronic pain
shout out to those who have had to hide their pain, those who shoved it all down for years
shout out to us all for enduring the bullshit society puts us through
shout out to my homies with arthrogryposis!
shout out to disabled folks who "don't look disabled"
y'all are all so valid. we're all valid.
your pain, suffering, and trauma is all fucking valid.
I love you all
9 notes
·
View notes
Blogging with More Honesty
Blogging with More Honesty
Our latest visit to Shriners Children’s in Greenville, SC was last week. As I always do, I wrote my blog post covering the visit over on The Greene Affect. Since the beginning, I’ve tried to be uplifting and playful with these posts. I entitle the entire series Greene does Greenville, which is followed by a subtitle. Last year I tried to maintain a feel of movie titles and movie sequels. So far…
View On WordPress
2 notes
·
View notes
Always Answering the Hardest Question
Throughout this journey, I’ve learned many things. How to change diapers while working around various casts, the benefits of owning a Giraffe Bottle, and new terms such as torticollis, nemaline myopathy, and apraxia. I’ve also learned that people will ask awkward questions when faced with awkward situations.
I fully admit that asking how our son is doing, even now, can be an awkward question…
View On WordPress
0 notes
I was watching a video about Loki S2E1 on YouTube (video podcast) and one of the men said that Liz Carr (Judge Gamble actress) looked weird. He mentioned that she could be an alien.
Good time to remind people that Liz has an organic disability called arthrogryposis multiplex congenita.
5 notes
·
View notes
Hello! I just wanted to come in and say how happy it makes me to know there's people on this site with amc, too ;;;; I recently saw a furry art post of yours that had afos and surgery scars, and I felt so seen! I have the same hands, afos, scars -- I'd never seen art like that and about amc before, and so well done, as well! It made me very happy :] I hope you have a lovely day, and happy disability pride month!!!
Hello there!!! This is so sweet, I'm so happy to hear my art made you feel like that! It is so nice and comforting to me to know there are people like me out there too, so thank you for reaching out and reminding me that I'm not alone <3
I recently got a message from someone else that has AMC just like us, and who was also happy about the drawing I did! Things like this are the most awesome part about sharing my art online. It's so worth it :)
Happy disability pride month to you too, and a happy (late) AMC awareness day! I don't have access to my drawing stuff right now, but I plan on making another drawing about having AMC and being proud when I do :D
6 notes
·
View notes
Hi everyone! I wanted to introduce myself. I'm Jessica and I was a previous user of Tumblr before it was bought. I decided to come back.
Today I'm not so much a fandom person (my first account was a Supernatural and Destiel vibe) as I am living my "real" life as an artist, author, historian, and disability rights activist. I'll be 42 in February and I live on the border of Ohio and West Virginia - like, literally on the border. I can almost throw a rock and hit West Virginia from my apartment building. Living here after spending over twenty years in Georgia has been a fresh change. Georgia is not a great place for people with complex disabilities like mine. I get much better medical care and access to state services here in Ohio, which is why I came here. My ancestry is Appalachian anyway, so this does feel like home in a strange way.
My art is what I do the most. This is me doing a commission order a few years ago.
You're immediately wondering about my disability and why I do everything with the tools in my mouth. I was born with a condition called Arthrogryposis and that just simply means my joints have very little range of motion. Much of my body is stiff. So I taught myself to play with my toys, markers, etc., with my mouth rather than my hands before I could even read or go to school. It was natural for me. I live a happy life and I'm not upset about being born with this disability. You don't have to feel sorry for me because I don't feel sorry for me.
At this stage in my life, I'm working on art commission number 91 with about 50 more on my wait list. My work specializes in black and white pencil portraits, mostly of different historical periods. Most of the art people order from me has to do with my ability to interpret their previous lifetimes (yes, reincarnation) as well as introducing them to their spirit guides. I do regular art with no spiritual complex as well, like family portraits, friends portraits, pet portraits, architecture, fan art, original characters, some fantasy, witchcraft, folk magic, paranormal, historical events, etc. I'm heavily trained in realistic very detailed portraits, so if you're looking for anime or cute illustrations, I'm probably not your woman.
This is the last commission I finished.
This is an interpretation of that customer's spirit guide as they appeared before they died. This is "my style" of art, as they say. I like to do color art too but I finish black and white orders much faster.
Besides art, I'm a lifelong student of 19th century history in America focusing on women's roles, families, social issues, disability history, and LGBTQIA+ history. I was in school to specifically become an antebellum and Civil War historian before chronic illnesses forced me to drop out. Higher education 20+ years ago was a casserole of nonsense when it came to helping disabled students succeed. Don't get me started.
I'm also a lifelong paranormal researcher focusing mostly on hauntings tied to antebellum and Civil War America including old folklore. My mother and grandmother were Missouri folk magic practitioners. I was raised in an understanding of the unseen world. I also collect reincarnation cases from the Civil War period sparked by my own case from that time. I'll talk about that elsewhere if you want.
Follow me here if you like. I'm just getting started. I have to relearn how to use this app.
-Jessica
Shop: etsy.com/shop/ArtByJessicaJewett
If you're not interested in art, I also accept tips if you enjoy my content. I'm at $ArtByJessicaJewett on CashApp, at Jessica-Jones-1002 on Venmo, and PayPal.me/ArtByJessicaJewett on PayPal.
311 notes
·
View notes