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meadowsystem · 1 year

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💙 my heart is heavy with this one 💙

I have consistent nervous breakdowns over knowing this is my life. But yet I know many have no idea about the things I'm about to tell you.

Cyclic vomiting syndrome itself is not truely life-threatening but the complications that it creates can be.

I'M BEGGING FOR HELP!!

They do not provide enough accessible treatment. For complications I face from this rare disease.

I am unable to keep a job as I cannot work during vomiting episodes. Lasting anywhere between hours to days. Not including the recovery time needed after the episode is finished.

IT IS DEBILITATING.

Workplaces refuse to hire me when accomodations are asked due to this disability making me "unreliable". If you don't tell your employer and you miss too much work, your let go for being "unreliable". Finding a workplace who will accommodate you and provide consistent wages ... is unobtainable.

Accessing proper insurance coverage needed to make this rare disease manageable is unobtainable due to the plethora of needs we require to have met. Even when on welfare or disability.

Those who are not able to manage the triggers are pushed out of the workforce and forced to fight to get disability. Often unable to obtain federal disability as it isn't "as bad as cancer" as I was told... even with my other plethora of diagnoses that made my doctor feel it was my best course of action.

Not only dose this rare disease have complications of dehydration, damage to the esophagus and tooth decay. Most with this disease also suffer from other conditions (comorbidities), particularly other functional issues. Some of the common functional comorbidities to CVS include migraine headache, chronic fatigue, irritable bowel, gastroparesis, depression, anxiety, POTS and/or other forms of dysautonomia as well as neuromuscular disease include intellectual disabilities, autism, seizures, and/or hypotonia. As well as mitochondria dysfunctions

Incase you don't know mitochondria dysfunctions means your body cannot efficiently turn sugar and oxygen into energy, so the cells do not work correctly. This can affect different parts of the body: the brain, kidneys, muscles, heart, eyes, ears, and others. Organ dysfunction can be a very real possibility. Organ failure is organ dysfunction to such a degree that normal homeostasis cannot be maintained without external clinical intervention.

I have been diagnosed with 8 and counting of the comorbidities. These comorbidities have their own comorbidities that have also been added to my list.

Many doctors are under educated on CVS. Often those with CVS are not properly diagnosed, even with symptoms at a young age.

Many doctors tell us to figure out our CVS triggers to manage the disease. In my case I have so many triggers due to my plethora of diagnoses/comorbidities that my CVS is incredibly difficult, even unrealistic to manage even with proper medical support. (So many overlapping, environmental, situational, medical, life triggers... so many triggers not on this list and still more unknown triggers)

THIS IS MY LIFE! THERE IS NO CURE.

They're are only underfunded small individual research/studies. They have not found a cure. We don't have proper support and thus we suffer. Look at this link ... the lack of information

https://rarediseases.info.nih.gov/diseases/6230/cyclic-vomiting-syndrome

I SUFFER.

My disadvantages have been continually coming to light. My realization I likely won't be able to achieve basic life milestones has been heartbreaking.

Medically assisted suicide is easily achievable even in even minor cases of CVS. While there is little to no support and even less accessibility.

What options do those with this disease have?

Suffer or give up ...

I'd also like to finally note the journey to diagnosis is horrendous. Doctors diagnose cyclic vomiting syndrome based on family and medical history, a physical exam, pattern of symptoms, and medical tests. Your doctor should perform medical tests to rule out other diseases and conditions that may cause nausea and vomiting.

-add on the factors of age, ethnicity, gender, life style, fashion choices, preconceived assumptions ... the list goes on ... the journey to diagnosis often feels unbearable-

If you have read this please comment, I need some validation.

💙

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void-tiger · 10 months

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Right. I need a nap. I’m feeling resentment about friends getting to do Cool Things again. And I’m old enough to know I’d feel less jealous about it with my leaky batteries recharged a bit.

(it’s not their fault I live far away, and have disabilities affecting getting to do Neat Things On My Own at least.)

#tiger’s roar #mental health bullshit #chronic fatigue #chronic illness #…yeahhh my therapist is prolly right that I should join a support group for the connective tissue disorder #loathe as I am to admit it #because I Despise being turned into some sort of Teacher’s Pet in these sorts of things #or deal with A Fight #or deal with Desperate Single Men smothering or creeping on me #just. why i hadn’t wanted to join one for the anxiety/depression or adhd #…but as she pointed out. How To Self Advocate.#since while the docs here I don’t treat me badly? usually?#it Is hard to self advocate when you DON’T know what’s Not Normal #and your brain often masks things as either fatigue or promptly doesn’t Store that information #soooo you feel like shit without reason or recall until that oHHH So THAT’S What

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bluedishsoap · 1 year

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put up a new design on my redbubble, click here to check it out :>

#my art #redbubble #reblogs appreciated!#drawn organs #tw brain #horror art #mental health matters #mental health advocate #mental heath support #mental illness

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cinnamonmustard · 2 years

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Alice Wong 😭🥹🥲☹️😤😢🤯❤️💔❤️‍🩹

#I’m so glad she’s ok…. that blog post was so intense #I’ve never read such an up close and personal story about advocating for yourself and in community during such an severe health crisis #the hospital is so bad….. she would be dead without her sisters….. …. ahhhhhh…….#imagine discerning the inter-team dynamics between your medical attendants such that you take that into account when deciding if surgery is #the right choice #WHILE RE-LEARNING HOW TO BREATHE EAT AND POOP????#i’m speechless #it’s really solidifying in my brain how so much of disabled people dying young isn’t actually about our health but #the sheer force of will you need to survive in a system that would be so much happier if you died #what the fuck. what the fuck.#I’m glad she’s alive #I’m glad her gfm goal was met #for now #I wish her so much peace and strength and joy #Alice Wong #dj #disability justice #ableism cw

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thedvwalkingwounded · 29 days

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MENTAL HEALTH MONDAYS: What is a Bipolar Disorder "Mixed Episode?"

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#bipolar #bipolar disorder #brain illness #mental health #mental health advocate #mental health awareness month #mixed episode

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existential-screaming · 8 months

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Me after being stabbed in the back by the same person and forgiving them 5 times in a row and finally at the 6th time drawing the line and getting pissed off: "This person hurt me"

Random person who asked why I'm angry: "Idunno man have you done anything which may have caused this?"

#people need to stop playing advocate of the devil #me and the devil are roommates in my brain #appearantly when sketching situations I make it sound like I'm playing the victim #but honesly when I break I think I have all the right to claim myself as the victim #unsolicited advice #advocate of the devil #angry #rant #frustration #mental health #adhd #autism #audhd

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ctbraininjurysupportservice-blog · 1 year

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Discover the inspiring world of ABI Resource Advocate Art, a unique and captivating collection created and presented by an individual thriving despite living with a Traumatic Brain Injury (TBI).

This exceptional artistry not only serves as a testament to the resilience and determination of the human spirit, but also raises awareness for the challenges faced by those living with TBI. By transcending the boundaries of traditional art, the artist has harnessed their innate talents and channeled adversity into a powerful visual language that inspires, educates, and motivates us all. Embrace the captivating beauty of ABI Resource Advocate Art and join us in celebrating the indomitable spirit of the TBI community.

art therapy, advocacy, mental health, creative expression, healing, self-discovery, recovery, resilience, trauma, support, empowerment, self-care, therapeutic, arts-based interventions, emotional well-being, mindfulness, psychological, coping strategies, art materials, catharsis, creative process, personal growth, communication, group therapy, artistic, self-esteem, stress reduction, artistic journey, transformation, connection, holistic, self-awareness, non-verbal, individual therapy, art techniques, brain injury, painting, drawing, sculpture, self-expression, art education, social change, wellness, art advocacy, community, artistic voice, disability, rehabilitation, accessible art, inclusion, collaboration, creative arts therapies, music therapy, dance therapy, drama therapy, storytelling, visual arts, occupational therapy, cognitive, physical, emotional healing, human rights, therapeutic alliance, art therapist, expressive arts, personal narrative, cultural, social justice, art programs, advocacy organizations, art-based research, creative healing, awareness, brain health, survivor, artistic empowerment, resilience building, identity, artistic exploration, sensory integration, creative writing, restorative, interdisciplinary, art-based practice, mental health promotion, trauma-informed.

#Discover the inspiring world of ABI Resource Advocate Art #a unique and captivating collection created and presented by an individual thriving despite living with a Traumatic Brain Injury (TBI).#https://www.ctbraininjury.com/blog-ABI-RESOURCES/categories/abi-art #This exceptional artistry not only serves as a testament to the resilience and determination of the human spirit #but also raises awareness for the challenges faced by those living with TBI. By transcending the boundaries of traditional art #the artist has harnessed their innate talents and channeled adversity into a powerful visual language that inspires #educates #and motivates us all. Embrace the captivating beauty of ABI Resource Advocate Art and join us in celebrating the indomitable spirit of the #art therapy #advocacy #mental health #creative expression #healing #self-discovery #recovery #resilience #trauma #support #empowerment #self-care #therapeutic #arts-based interventions #emotional well-being #mindfulness #psychological #coping strategies #art materials #catharsis #creative process #personal growth

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vegasshovelscum · 1 year

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A smart psychiatrist would probably be like yeah you should vent you need to get it out. That’s the key.

Oh that’s weird Dr. Amber from Baptist health Hardin she does not believe that you should let it out

I don’t I didn’t think she was a doctor doctor. I thought she was a patient advocate ha strange.

I swear to God you guys, I swear to God like oh man, some kids are gonna have fun with her Internet later on

Terroristic threatening is thrown out a lot because a lot of people lie a lot

So the important thing is to come up with solutions and enforce those solutions

Having recorded phone calls that should be across the board a thing to protect African-Americans to protect all people

Because I promise you plenty of amber bitches have accused Black people of terroristic threatening I know the bitch has done it

—

If your job as a therapist, or a psychiatrist is to help the mind of a person and your best advice is for that person to let it out I believe that’s really good advice

And I believe that amber is a cock block to better health

People who try to limit your freedom of speech, that is very tragic. That’s terrorism. It’s also against the American constitution.

Even if you don’t like what somebody says a person is permitted to say what they want to say unless officer, doofus or whatever you know, I’m not gonna call him that because that’s the other guys nickname and the other guy is actually smarter than you are motherfucker all you are is a Dennis wannabe

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pwrn51 · 1 year

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Misplaces car keys and wonders is this Dementia

In the latest episode 7- of Truth, Lies & Alzheimer’s, host Lisa Skinner explains how to tell the difference between normal aging forgetfulness and a more serious impairment happening in the brain. Lisa also discusses signs of normal aging, mild cognitive impairment, and little-known facts about brain disease. This is a must-listen episode for anyone who occasionally misplaces car keys and…

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#Ageing Parents #Aging #Aging forgetfulness #Alzheimers #Brain Fog #Brain Health #Care Keys #Caregiver Advocate #Caregivers #Dementia #Early Onset Alzheimer&039;s Diagnosis #Elderly Care #Lisa Skinner

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meadowsystem · 1 year

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🌹 Therapy today has taught me that I tap into this force and passion to fuel my drive for advocacy.

I'm not really sure why this impressed my therapist so much.

Something I struggle alot with is the lack off community and access. The amount of barriers for so many groups of people. I don't understand why this is so hard.

I've been struggling not because of something I've done but thing I've had no control over. Isn't that so difficult to cope with? The idea we hear money doesn't buy happiness. But it actually can, the financial strain is mind boggling to process. Hearing people spit out "I did it, so can you" is like knife shapinging. If you know the struggle all so well why wouldn't you want to male it more accessible. Especially with the inflation we face today, how can you fell fine knowing people are out here homeless and freezing to death.

People are out here raw dogging life without the medical assistance needed without proper medication. Running through life experimenting drugs to find your perfect combination.

Acess is so important. Being at this disadvantage at life has made me struggle with the idea it will always be a struggle. Fighting for your rights, morals, values and ethic beliefs. Have the strength to stand up and say hold on this us wrong.

Let's not spread misinformation that can kill people.

Just one more try.

#one more try #mental illness #ptsdlife #quiet bpd #fibrowarrior #arthritis #cvs #ibs awareness #touch of the tism #adhd brain #mental health advocate #stay in your lane #grow up #equity #accessibility

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neil-gaiman · 3 days

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Hi Neil.

I know you are flooded with asks and this somehow became extremely long. Too long. “Why am I suddenly telling this poor man my life story?” too long. “I think I’d rather he work on the GO3 script than read this wild beast” too long. “He’s going to think you’re criminally dangerously insane” too long. If you never get to it, I’m good with never seeing a response from you. Maybe it’s better that way? Maybe an anon would have been nice here. But, it’s 2024, so I say “we ball.” It’s a privilege to be able to send this to you at all. You get a lot to this effect and I hope they give you good feels, so maybe what’s the harm, yeah? Because this is not an ask. This is a thank you letter.

First, thanks for reblogging my therapist post, I hope it amused you. I nearly sent you “How am i supposed to explain this to my therapist?!” But refrained. At that time.

So, therapy. What is therapy really? Well…

Things have been really rotten for as long as I can remember. Bad health, bad doctors, bad relationships, bad coping mechanisms, bad all kinds of things. (Yeah, bad is a weak and unhelpful word, my therapist reminds me, but we’re doing this.)

Well, things got even more really really rotten and BAD these last few years. Health declined further, coping mechanisms declined further and more intensely, packed up my life, applied for disability, moved back in with my parents across the country.

Then 4 years ago last week I watched my fiance die of a sudden heart attack. I was 29. Two years later my best friend died. Then last summer I sauntered vaguely into a cancer scare. Not long before an operation my cat who has been my companion through so much garbage died as well. I’m not entirely in the clear on the cancer scare front. All my attempts at going back to work, volunteering, going to grad school - they collapsed on me because I couldn’t get through this STUFF.

(Sometimes when I talk about this, when I tell people, I think “they are going to think you are a raging pathological liar.” Because I’m not sure I would believe someone if they told me all of this happened to them. In such a short time period. All before they were 35. And hell if that hasn’t been isolating. You know how it sounds? Lonely. And it is.)

I did the hypervigilant and sensation/experience chasing stage of PTSD. It got me in a lot of trouble in all kinds of ways. I had to do a lot of medical and psych advocating because things kept getting worse. That was exhausting. Then that peaked. I went into the thick of the “I feel absolutely nothing” stage for a long time. I didn’t feel fatigue or hunger or thirst. Not people, feelings, a reason. Not hope.

But of course, like seems be for a lot of us, I somehow found Good Omens at just the right time. I was a very “I’m so cool and intellectual I mostly consume non-fiction media” person for too long. Like, what? How is that even a real thing? And it wasn’t real. It was just part of this curated autism mask that I don’t think anyone really bought anyway.

I think I got to a point where I’d just had too much reality. I needed fantasy. I didn’t realize I always needed it. But I denied myself for too many odd and painful reasons. Maybe I thought it was an escape I didn’t deserve.

But as it turns out, it wasn’t an escape. I watched both seasons last fall, and then this light came on. I watched it again and again.

I came to tumblr because I needed more. I found this fandom. I stepped into this beautiful world of fanart and fanfiction and brain flexing meta writing and a sense of community and wonder that you and Terry created - that everyone involved in the show inflated - exploded in the right way - like fireworks if fireworks were some kind of autocatalytic reaction - a self perpetuating force.

It’s not a “saved my life” feeling. Not a “getting my life back” feeling. It’s been a “maybe it’s time for you to have the life you’ve always been denied - that you’ve denied yourself” feeling.

I’m creating. I’m not “great” yet. Not terribly “good” at all. Maybe “behind” as far as the “proper” timeline for starting. I know there isn’t one, not really, but boy does that society machine make ya feel like there is. And sure, I started and stopped a lot in the past. But the second it got hard I always gave up. I felt like if I didn’t get it “right” to begin with, then I just didn’t have it in me at all. But for once I’m really in it. I’m writing and trying to draw things that look less like fever dream five year old drawings. (Not that there’s anything wrong with those, is there? 🙃) I’m eating better. I’m sleeping better. I reach out to old friends more. I’ve made new friends who share this love of Good Omens.

My therapist has been floored by the change in me. After that first funny mini flop, he has been so encouraging about it. I saw him this week and I said “Maybe this is helping me get prepared to start living again. Maybe it’s a springboard.” And he honest to god said “But You ARE living. This is YOU LIVING. Why does it have to be a springboard? Why do you have to turn this into ‘work?’ Just let yourself have this for once in your life.”

But there were two more added elements that made it all work. And I can’t help but think this whole brainrot thing wouldn’t have happened without them. So many things just happened all at just the right time - a proper coincidence.

In all of the madness of the last few years I finally got the memo that I'm autistic. i figured I was for a while. But it finally sunk in for me and my docs and my people. So I’d been working on unpacking that. Grieving the life that could have been entirely different, shedding the mask. I let myself hyperfixate openly instead of hiding it and hating myself for “spiralling” or “obsessing” like others -!like ‘I’ always punished myself for before we knew that it was a trait and not a personality flaw.

Then over the last few months my therapist and I started trying this new exercise. One session he stopped me and said “in the last 20 minutes you have responded to what I’ve said with 9 ‘I knows.’” My response to that? “Ugh, I know.” So we started this “I know” swear jar type situation. Really, I’ve been afraid of not knowing. I couldn’t let myself “not know.” Because it meant I was “dumb.” I was just drowning for so long in guilt and self loathing for the “I knew better and screwed up anyway.” Or “I should’ve known better - I should know that by now.”

As it turns out, there’s a lot of things I don’t know. That I didn’t know. Things I will never know. And refusing to admit all of that kept me from learning a damn thing. Kept me from asking questions. Kept me from trying new things because it was scary to do something new - something unknown - and I "knew" how it would all turn out anyway. Kept me from connecting with people because it was painful or embarrassing when they knew things I didn’t and it seemed like I already should have. Kept me from getting better at making art, music, writing. Kept me from forgiving myself. Kept me from growing. And kept me from moving forward. Maybe not on. I don’t know if we ever “move on” from things. But we can move forward as we carry them. And as we do, the weight gets less. We’re able to carry it better. But only if we can admit that we don’t know how. Only if we don’t treat ourselves like this is something we do know or should know and we’re just failing because we’re less than. Not good enough. Not strong enough. Not deserving. We have to be able to say “I don’t know how to do this.” And then we can start looking for the answers. We can ask. We can learn.

I thought about the apple. Being able to tell the difference between good and evil. Aziraphale’s years and years of watching what he “knows” to be true be proven wrong. Crowley’s need to ask questions…

The simple and enormous gift of “Knowledge.” The “Knowledge” of the difference between Good and Evil. The “Knowledge” that can only be gained by realizing, accepting, admitting that there are things we don’t know. Asking the questions. Sometimes we get answers we don’t like. Sometimes the consequences of asking hurt us. And unless you want to stay in that painful place that painful knowledge got you, well, you’ve got to let yourself learn how to get out.

So all of this good? I never expected this. I never thought I deserved it. Joy and belonging and this sense that “Yeah, maybe things can get better. Maybe things can be good.” Because I said those things, not truly believing them, to the people I thought needed to hear it. But it couldn’t save them. It was hollow. The proof for us wasn’t really in our orbit or on our radar at the time. And now they’re gone.

People always say “it’s never too late.”

One of the people I lost said “it’s later than you think.”

I jokingly would respond “it’s already too late.”

It was for him in the end. For them. For some people I guess it really is. But maybe a lot of the “too late” people are there because they think “they know” that things will never be good for them. So they stop looking, they stop asking, stop finding. And eventually they just stop.

Then there came Crowley’s “It’s always too late.” The first time I heard it I thought “For sure, Crowley-cakes, I KNOW.”

But then…I just needed to rewatch the whole thing. And lines like that…familiar things…familiar themes…I was suddenly identifying with these characters. I suddenly saw myself. And the realization hit - I connected with something! Something new. And I FELT THAT. And that tiny little crack that made in the wall was just enough to start breaking it down. Yeah, when you start letting yourself feel after not feeling for so long, opening up to the good feelings means opening up to feelings and then the bad ones come out too. But when there IS good … it helps you balance. You can deal with the bad a little better because you’ve got the good thing to lean against when it gets too much. And now you’ve got feelings. You’ve got good and bad. You’ve got sticky foggy grey. You’ve got life.

Whew.

So, TLDR, thank you. From the bottom of my slowly healing heart, thank you.

And to sign off with some shits and giggles… I couldn’t find this in existence as a sticker so I had to custom order. Perhaps this will spread misery and panic among the humans of my city - or at least a malignant and creepy sense of unease.

Or maybe they’ll say “wtf” and go home and google it and they’ll fall into the Good Omens hole they never knew they needed too.

Thank you for this. I never quite know what to say to messages like this apart from I am really glad that it helps. (It becomes the weird extra piece that I worry about when writing season 3 -- hoping that it will be that thing again. Not just a story, but something that helps people feel and helps with healing and helps with love.)

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reasonsforhope · 11 days

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Flint, Michigan, has one of the [United States]'s highest rates of child poverty — something that got a lot of attention during the city's lead water crisis a decade ago. And a pediatrician who helped expose that lead problem has now launched a first-of-its-kind move to tackle poverty: giving every new mother $7,500 in cash aid over a year.

A baby's first year is crucial for development. It's also a time of peak poverty.

Flint's new cash transfer program, Rx Kids, starts during pregnancy. The first payment is $1,500 to encourage prenatal care. After delivery, mothers will get $500 a month over the baby's first year.

"What happens in that first year of life can really portend your entire life course trajectory. Your brain literally doubles in size in the first 12 months," says Hanna-Attisha, who's also a public health professor at Michigan State University.

A baby's birth is also a peak time for poverty. Being pregnant can force women to cut back hours or even lose a job. Then comes the double whammy cost of child care.

Research has found that stress from childhood poverty can harm a person's physical and mental health, brain development and performance in school. Infants and toddlers are more likely than older children to be put into foster care, for reasons that advocates say conflate neglect with poverty.

In Flint, where the child poverty rate is more than 50%, Hanna-Attisha says new moms are in a bind. "We just had a baby miss their 4-day-old appointment because mom had to go back to work at four days," she says...

Benefits of Cash Aid

Studies have found such payments reduce financial hardship and food insecurity and improve mental and physical health for both mothers and children.

The U.S. got a short-lived taste of that in 2021. Congress temporarily expanded the child tax credit, boosting payments and also sending them to the poorest families who had been excluded because they didn't make enough to qualify for the credit. Research found that families mostly spent the money on basic needs. The bigger tax credit improved families' finances and briefly cut the country's child poverty rate nearly in half.

"We saw food hardship dropped to the lowest level ever," Shaefer says. "And we saw credit scores actually go to the highest that they'd ever been in at the end of 2021."

Critics worried that the expanded credit would lead people to work less, but there was little evidence of that. Some said they used the extra money for child care so they could go to work.

As cash assistance in Flint ramps up, Shaefer will be tracking not just its impact on financial well-being, but how it affects the roughly 1,200 babies born in the city each year.

"We're going to see if expectant moms route into prenatal care earlier," he says. "Are they able to go more? And then we'll be able to look at birth outcomes," including birth weight and neonatal intensive care unit (NICU) admissions.

Since the pandemic, dozens of cash aid pilots have popped up across the nation. But unlike them, Rx Kids is not limited to lower-income households. It's universal, which means every new mom will get the same amount of money. "You pit people against each other when you draw that line in the sand and say, 'You don't need this, and you do,' " Shaefer says. It can also stigmatize families who get the aid, he says, as happened with traditional welfare...

So far, there's more than $43 million to keep the program going for three years. Funders include foundations, health insurance companies and the state of Michigan, which allocated a small part of its federal cash aid, known as Temporary Assistance for Needy Families.

Money can buy more time for bonding with a baby

Alana Turner can't believe her luck with Flint's new cash benefits. "I was just shocked because of the timing of it all," she says.

Turner is due soon with her second child, a girl. She lives with her aunt and her 4-year-old son, Ace. After he was born, her car broke down and she was seriously cash-strapped, negotiating over bill payments. This time, she hopes she won't have to choose between basic needs.

"Like, I shouldn't have to think about choosing between are the lights going to be on or am I going to make sure the car brakes are good," she says...

But since she'll be getting an unexpected $7,500 over the next year, Turner has a new goal. With her first child, she was back on the job in less than six weeks. Now, she hopes she'll be able to slow down and spend more time with her daughter.

"I don't want to sacrifice the time with my newborn like I had to for my son, if I don't have to," she says."

-via NPR, March 12, 2024

#united states #flint michigan #michigan #cash aid #basic income #poverty #poverty relief #child poverty #mothers #pregnancy #prenatalcare #healthcare #healthcare access #public health #child development #good news #hope

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yamameta-inc · 3 months

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it is horrific what we’re allowing to happen to children right now. if covid causes cognitive dysfunction and decline in adult brains, what impact will it have on small brains that are still developing? many children who are too young to even be vaccinated are catching covid, as well as a whole host of other opportunistic infections. children can get, are getting, long covid. children aren’t sick often because it’s “normal” or “good” for them—they’re sick often because they’re more vulnerable than adults.

children have no choice but to be sent to schools where they get sick again and again. they don’t have the ability to distance themselves from their parents and establish boundaries, they’re entirely reliant on their carers. if their parents do not believe in covid prevention, they have no means to protect themselves. they don’t have the ability to consent to what is happening to their health.

schools are not just allowing children who are sick to attend class anyway, they’re borderline mandating it. schools as an institution care more about meaningless attendance records than about students’ wellbeing. the classroom is an environment where all factors incentivize students coming to school sick.

there are horrific accounts from parents about kids being sick 24/7, never having energy, struggling with schoolwork. there are horrific accounts from teachers about their young students being different these days, unable to handle the usual schoolwork, showing signs of that classic covid “brainfog.” i’ve seen evidence of schools making their tests and criteria much easier in order to maintain an acceptable pass rate instead of addressing the actual core problem in the slightest.

i often think about a comment i read once about how someone knew it was fucked when no change happened after sandy hook, when the US decided and enshrined the fact that children were acceptable sacrifices. this is how it feels. this isn’t just about the US though. children are getting reinfected with covid again and again worldwide. this is about the entire next generation.

they didn’t choose any of this. they have no power to stop this whatsoever. none of us consented to this, obviously, but children most of all. most of them don’t even have any idea what’s happening to them, and won’t for years.

there needs to be a push for schools to adopt better covid prevention measures, like better ventilation and air filtration. but even more crucial, and much more difficult, is to do away with the ideology at the core of how schools are designed. just like how workers deserve sick leave, children need to be able to stay home when sick. no jumping through hoops for a doctor’s note to be accepted, no strict time limit. schools obviously know that 1 student staying home sick is less disruptive than 20 students being sick and unable to do their schoolwork. they know the math, but they aren’t after efficiency. just like companies know that happier workers are more productive. that’s not the point. it’s more obvious than ever what is choking our societies to death on every level.

i’ve seen university unions who’ve won teachers the right to demand masking in their lessons, the right to have air filters installed in their classrooms. the same needs to happen for K12 schools, especially since young children can’t advocate for themselves. parents could theoretically wield a lot of influence as well—but let’s face it, most are uninterested in or actively hostile to the idea of better air for their children. efforts to combat this need to be organized, sustained, and coordinated.

imagine how current children will feel once they grow up and look back and realize that their health was compromised before they even learned to speak, that they were born into a sick world, that they were born to be sick, not inevitably but because people preferred things this way.

#covid

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hyperlexichypatia · 10 months

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One of the main problems I have with Trauma Discourse (besides the problems I’ve already outlined in all these other posts really just so many) is that calling a problem “trauma” transmutes it from a problem with a specific, identifiable, external cause to an inner “mental health” problem, the new “brain disease like diabetes” model. If you say “He’s miserable because he’s being abused,” the solution is obvious: Stop abusing him. If you say “She’s depressed because of the trauma of being abused,” you’ve shifted the problem to her reaction, and now the solution becomes that she needs therapy or treatment or intervention to learn to process or heal from or cope with being abused. Even in medical model advocates’ own pathology paradigm of “Post-traumatic stress disorder,” the “Post-” part is essential. The concept is supposed to refer to the stress that lingers after the trauma and danger is passed, not to the stress of ongoing danger. Trauma discourse, as applied to public policy, has unhoused people having to sleep on the street until they’ve processed the trauma of sleeping on the street enough to be “mentally healthy” enough to deserve housing, and has schools cutting school lunch programs while training teachers in “trauma-informed” practices to help students with the trauma of being hungry.

#mad liberation #mad pride #trauma #discourse #circular reasoning

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smokesandsonatas · 9 months

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can i have some headcanons of what our twisted wonderland boys will do after they graduate? you can choose only 4 if there is a limit, thank you so much

Twisted Wonderland characters after their graduation at NRC

- This really tickled my brain so I'm going to write assumptions for everyone. I drafted this around last year then only got to post this right now, haha. -

Heartslabyul

Riddle Rosehearts

After his graduation from NRC, and bagging home the highest honor for an exceptional mage, I can see Riddle furthering his education. If there's such a thing as Ph.D. in Twisted Wonderland, Riddle will pursue that. I can also see him becoming a "Double Doctor," a medical doctor, and a doctor of Philosophy. Not only that but Riddle will also pursue law, along with magical medicine. A doctor and a lawyer, all in one. Riddle would go on to be an internationally recognized mage. He will also be an advocate of Mental Health education, fueled by his past and his mission to never let anyone experience what he went through.

Ace Trappola

I can honestly say I see him being recognized as a famous basketball player or entering the military enforcement of Queendom of Roses along with Deuce. Occasionally, Ace will perform magic tricks along with his brother, which is always a hit of course, someone even offered the Trappola brothers to appear in a reality show but Ace had other plans. In his 3rd year, he will become the Dorm leader of Heartslabyul, while Deuce will be his vice.

Deuce Spade

Will become a high-ranking magical enforcer, his salary will allow him and his family to live comfortably, especially his mom. Once the Queendom of Roses gave Deuce an award as the 'Hero of the Year,' he broke down into tears as he hugged his mom. Will be buddies forever with Ace.

Cater Diamond

Will be a famous vlogger. Be it traveling or fashion, Cater will be a famous influencer. He will also have a successful studio with workshops on how to run a magicam account successfully. If there's a fashion show, he would always be on the VIP list, as he is acquainted with Vil. If he feels burned out, he'll try to stay away from social media. If Cater can't form long relationships, he'll just leave his mark in the world with his vlogs. #LonelyButNotReally

Trey Clover

Owner of a famous bakeshop. His family's shop will prosper under his guidance. On every occasion, their sweets will sold out. One time a magazine listed Trey as the "sexiest pastry chef," and Cater and his other friends will never let him live with it. The Clover's Bakeshop occasionally partners with Mostro Lounge, and when they do, everything sells out within seconds.

Savanaclaw

Leona Kingscholar

He does not need to work, but he is a genius as Leona is still a prince of a noble family. Have you seen those alpha males ads? Leona will be all of that. A CEO of his own company and at the same time a diplomat of Sunset Savannah to other nations. His business started out as a mining corporation, gradually expanding into construction. A noble man who many people - beastmen and beastwomen - fawn over with. A millionaire. A bachelor. Once, Farena, the current king and his older brother, called to meet with him and Leona put harshly down the phone. Leona's reason for doing this? When he realized that Farena tried to marry him off to a noble from some rich kingdom 'for his future'. Leona's reply? Is a simple scoff and a very deep, "Fuck off."

Ruggie Bucchi

Will be an assistant to Leona. The next generation of Hyenas will not experience poverty as Ruggie did. His all-around skills will come in handy as a secretary. Ruggie will be a finance speaker. He will sometimes get his hands dirty. What? Hyenas are used to it. Fear not, he's still the same old Ruggie, just a little more rich.

Jack Howl

After graduation, Jack will get a lot of offers to be a professional magift player. Leona will offer to sponsor him tho, so he doesn't need to worry about financial things. Will be an advocate of physical health, his muscular physique is no joke. I can see Jack being a well-known magift player and a track and field competitor, with the help of Prof. Vargas as a head coach.

Octavinelle

Azul Ashengrotto

In every nation, there's a branch of Mostro Lounge. Azul will be listed as the "Top 100 most successful bachelors," along with Jade, possibly Floyd, Vil, and Leona. Azul would go on to accumulate a lot of awards for his splendid business skills. Will own a share in almost all known companies. He'll have to pull strings from Idia to let him invest or buy shares from Jupiter Enterprises. Azul will be compared to the Sea Witch due to how influential he is. Once his mother passed him their restaurant in the Coral Sea, Azul's work will quadruple, and so is his income. Because of him, the mermen's view of octomerpeople will change. But for a darker secret, Azul will be known as the Mediator, and every Mostro Lounge place will be known as a neutral territory for members of the 'other' world. Of course, the Leech twins will still stick with him.

Jade Leech

Jade will inherit their Father's mafia legacy, along with Floyd. The Leech family will prosper under the twins' rule. Jade will open a mushroom business, as to what kind of mushrooms he's selling Jade will smile in response and say it's a fresh mushroom from the mountain. Jade's favorite base of operation would be on land, it's just more fun and chaotic when he watches humans stutter and pass out once he interrogates them. Jade will work as Azul's concierge, working for both him and the Leech family. And in the morning, he'll be the vice manager of Mostro Lounge. But sometimes it does get a little boring. Once a company famous for being greedy with their demands easily relents when they realize it is The Jade Leech that will conduct business with them. Such a shame, Jade would've loved to see the look on their faces.

Floyd Leech

Floyd would be proud of his shoe collection! By now he would have a hundred pair of shoes. Of course, he's still with Jade and Azul, acting as the brawns of the trio. He will make it a point with them to only give him interesting jobs, if it's boring? Floyd would abandon that. One time he learned to drive, he brought his sports car to another country and accidentally got pulled over in the Queendom of Roses, to his surprise it is Mackerel (Deuce) who pulled him over! Floyd paid for the ticket and then went on to hang out with him. Floyd's favorite part of his job is squeezing everyone that owes them unpaid debts!

Though Floyd just doesn't understand why Momma Leech wants to introduce him to a mermaid. Jade is laughing at first, but not anymore once his twin realized that their Momma intends to introduce him to a mermaid too! Floyd will never forget the look on Jade's face - that's probably reflected on him - once their Momma gushes over about 'baby eels'. What? Mermaid eels have little populations. They have to do their part, don't they?

Scarabia

Kalim Al-Asim

Kalim inherited his father's multi-million business. Through his easygoing personality, Kalim is well-loved by everyone. He established business trade routes with almost every nation, while still honoring his personal ones. An example is with the Felmier's, so that their apples will be enjoyed by everyone in Scarabia. The threats grew along with the Asim's already immense wealth. Don't worry, Kalim by now, will know how to defend himself using his unique magic. He just had to know how to reply with the various marriage proposals going his way, it pains Kalim to reject every single one, you know.

Jamil Viper

After his graduation at NRC, Jamil would take a year or two for himself. He will travel across Twisted Wonderland, and by this time Jamil's perception of the world would change. Finally prioritizing himself and is selfish for once. When he will come back, however, he will be met with a warm welcome from the citizens of Scalding Sands and the Asim and Viper family. Jamil would go on to become a successful businessman and bodyguard best friend of Kalim. But this time, they're on equal footing.

Pomefiore

Vil Schoenheit

There's no spotlight if there's no Vil Schoenheit. He will become the highest-paid actor for straight 5 years, until Neige just slightly beats him, running off a few hundred thousand madol. But in the same year, Neige surpassed him in pay, Vil went on to win the Best Actor award for his work in a movie as a misunderstood villain protagonist. His movie even screened in the coral sea! As if there's no stopping him, his successful cosmetics company took off Twisted Wonderland by storm, his eye palette alone is sold out within seconds.

Rook Hunt

Oh dear, Rook will also inherit the Hunt's family business. One moment someone can see Rook in Quendom of Roses then the next he would be spotted on Sage Island. Of course, Rook will not stop admiring beauty and arts! He will fund archaeological studies, theater, art museums, galleries, and even beauty pageants. Rook will be one of the art and beauty industry's most important benefactors.

Epel Felmier

Will be known as the "pretty boy of magift." Not in a bad way, but more like a compliment. His talent is honed thanks to his NRC club. Sometimes Epel would attend fashion shows that present him as a "manly man", you know wearing suits and all of that. Because of his new-found fame, the Felmier's apple business will bloom, in part thanks to Kalim.

Ignihyde

Idia Shroud

Will become the head of S.T.Y.X, but will also manage the Shroud's position in Jupiter Enterprises. On top of that, Idia will develop one of the best MMORPG and FPS games Twisted Wonderland had ever seen. Additionally, Idia won't just stop in developing games, he will also develop magic-infused medical devices that will drastically change the healthcare industry, crediting the Idia Shroud for its invention.

Once a magazine included Idia in their "Top 100 most successful bachelors," he almost sued them if not for Azul, Ortho and his parents convincing him it's a good thing. But Momma and Papa Shroud can't help but wonder when will they have grandkids, the Shroud's need an heir to continue their duties, you know.

Ortho Shroud

Ortho will stay at his brother's side! But his looks will drastically change, if the Ortho from before looks young, the Ortho from the future will have a much taller body, but he will still regain his childlike curiosity. Only the future Ortho is more mature and more open to take time for himself. He will ask Idia to send him off to faraway lands to gather information and to also satiate his curiosity about the real world. Ortho will become independent yet still close to his brother.

Diasomnia

Malleus Draconia

Malleus' coronation is one of the most liveliest and solemn celebrations Briar Valley had seen for the last 5 centuries. Under King Malleus' rule, his kingdom will prosper. Faes and humans alike will come to a much more common understanding. Although the valley still heavily relies on magic, technology will become available, as a courtesy of the friendship acquaintanceship of Idia.

On some days, Malleus will truly get busy. Managing a country and it's affairs is no small feat. Through trades and partnership with every Kingdom, from Savanaclaw to the Coral Sea courtesy of his two alumni schoolmates from NRC, Briar Valley will prosper. It just gets annoying sometimes when the news reporters, the common folk, the fae senators, and even his own grandmother will ask him about an heir. Malleus still needs to find someone who will stay by his side, and it's not an easy thing to do.

Lilia Vanrouge

Sweet old man Lilia is on his way to retirement. In the chapter of Diasomnia, we learned that his magic is running out. Well, all good things must come to an end. Though his eventual retirement in the Land of the Red Dragon came true, he still returned. And Lilia had his fair share of adventures. Because Malleus is busy with the preparations for his coronation, Lilia is there to help him. On the occasion he's free to do anything, Crowley offered him a teaching position in NRC, which is the spot left open by Professor Trein. Lilia accepted, and for a semester he become a teacher, quitting right after to attend Malleus' coronation.

Lilia liked to think a had lived a full life. He was it all. A fearsome general, a caretaker of the young prince, an adoring father, and a good friend.

Sebek Zigvolt

No one dares to Disrespect the King under my watch! That is what he would occasionally say. If one of Briar Valleys' own Fae advisors disrespects Malleus, expect Sebek to speak, and even draw his sword. Yes, he's part human and half Fae but that doesn't mean he's not powerful enough to defend the king.

With this Sebek will grow in closer relationship with his grandfather and his mortal dad. His parents' dentistry business will expand, and for some time Sebek's face is the model of it, which made him embarrassed, yet he still loves his parents nonetheless.

Silver

I can see Silver honoring his promise to Lilia and staying by Malleus'side. However, that is considering if his feelings don't change. Silver will quickly become one of Briar Valley's most beloved humans, and for some reason, he always gets mistaken as an RSA graduate. Once Vil invited him to cover for a sick model in a fashion show and he declined but Vil already presented his picture to the photographers. For some reason, his picture was leaked to the public and Silver's name is trending for days. Some say he's a child of the king, and others compare him to Neige's beauty. His face was everywhere in magicam, with the hashtags "the most handsome sleepy prince," and the "dreamy prince of dreams."

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