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jcmarchi · 17 days

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Shaping the Future of Medicine Together - Technology Org

New Post has been published on https://thedigitalinsider.com/shaping-the-future-of-medicine-together-technology-org/

Shaping the Future of Medicine Together - Technology Org

When Neil Sullivan — a nonverbal individual with profound autism and a complex array of medical conditions — aged out of pediatric care and began seeing adult-care physicians, some doctors dismissed behaviors that they thought were related to his autism rather than to his health, said his mother, Maura Sullivan.

It was frustrating for both her and her son to see his symptoms go unheard and untreated.

“They didn’t see the significant medical conditions that might have been causing him to be aggressive or sleepless,” she said.

Harvard Medical School’s Office for External Education (OEE) offers programs that aim to make scenarios like this less common. Its newly launched Adult Autism Health Resources website provides tools for autistic adult patients and their families and its Clinical Care for Autistic Adults course educates physicians, nurses, and health professionals.

Autism resources represent just one way OEE has worked for 10 years to bring the HMS community’s expertise, evidence-based practices, and research to learners around the world, including medical students and trainees, health care professionals, corporate leaders, and patients and families.

Through in-person, blended, and online programs, courses, and published content, OEE develops educational opportunities to prepare learners to anticipate and shape the future of medicine and health care.

For instance, a self-paced, online certificate program set to launch in April focuses on how to implement and design AI solutions for health care. The growing collection of HMX interactive online medical science courses explores foundational and advanced topics important for a variety of health care careers.

As OEE marks its first decade, its leaders are reflecting on the impact of their work so far.

“As we reflect on the Office for External Education’s first decade with an eye toward the future, I feel an extraordinary gratitude,” said David Roberts, HMS dean for external education. “Our faculty and staff work tirelessly amid a massive, complex, and ever-evolving global health care landscape to bring HMS to the world. I can’t wait to see what the next 10 years will bring.”

Building on HMS’s legacy of offering accredited continuing medical education that dates back more than a century and published consumer health information since the 1970s, OEE is guided by the School’s commitment to provide an inclusive environment for learners as it supports the HMS mission to improve health and well-being for all.

Here are some recent examples of how HMS faculty, learners, and patients have shaped and benefited from external education experiences.

Patient experiences set the course

Maura Sullivan, senior director of government affairs and health policy at the nonprofit The Arc of Massachusetts, served on the patient experience board for OEE’s autism course and related resources. She helped guide the development of the website that helps autistic adults and caregivers ensure that they receive competent health care, understand their health care rights, navigate insurance coverage, and organize care details.

“I don’t think there are other resources like this that go so deeply and take into account the lived experience,” she said. “I absolutely think this is going to be used across the nation and the world. I think it’s an incredible tool.”

Sullivan noted that the number of people with autism continues to grow, as more children are diagnosed and as children age into adulthood. Autistic individuals often have intellectual or physical disabilities, and the National Institutes of Health recently designated people with disabilities as a group that experiences health disparities.

“We want to help the health care workforce become more confident in treating patients with autism. If they are prepared, they will jump in and do it,” Sullivan said. “That is far preferable to families struggling to find health care and then maybe ending up at the emergency room.”

Neil Sullivan also helped OEE develop the autism course by allowing one of his doctor’s visits, complete with physical exam and blood draw, to be recorded to demonstrate clinical care best practices.

Clinical trial volunteers guide science

Salim Bouguermouh was working as a physician-scientist when he participated in OEE’s Global Clinical Scholars Research Training certificate program (GCSRT) in 2014. He mastered skills in the program that helped him make a career move into the pharmaceutical industry, landing a senior management position at Pfizer in 2017.

The HMS training played an even bigger role in his career when the COVID-19 pandemic hit. As the novel virus caused illness and death, Bouguermouh worked long hours in virtual meetings with researchers from around the world to advance clinical trials for the Pfizer-BioNTech COVID vaccine and to accurately report results.

In addition to feeling fortunate to have been part of the effort, Bouguermouh said that the technical and scientific skills he sharpened in the GCSRT program contributed to his team’s success — and that the managerial and people skills he honed there were especially important.

“We scientists have a tendency to forget that soft skills are critical,” he said. “I didn’t know what to expect from the program, but retrospectively, it was really well designed.”

Bouguermouh recalled that along with topics such as statistics and data publication, the program covered teamwork, social skills, and the ethical aspects of working with patients. The faculty emphasized that clinical trial volunteers are not just experimental subjects, but people.

During their group projects, Bouguermouh said, he and his classmates considered the number of visits a volunteer would need to make, their weekday and weekend schedules, and how to reduce the number of samples they would need to give.

So meaningful were these lessons that Bouguermouh continues to minimize any unnecessary burden on volunteers when designing clinical trial protocols in his daily work.

“We maximize anything that makes their lives easier — even if it’s more expensive,” he said. “We value their contribution to science.”

A cancer patient lights the way

Contributing to science is something Chuck Stravin knows well. Living with metastatic kidney cancer, he has advanced research and helped extend other patients’ lives by participating in six different clinical trials.

Although Stravin has had to step back from his career as an operating executive to focus on his health, he said educating health industry leaders through OEE’s corporate learning programs has restored a sense of purpose and control over his life.

So far, he and his oncologist Toni Choueiri, the Jerome and Nancy Kohlberg Professor of Medicine at HMS and Dana-Farber Cancer Institute, have led a handful of program sessions. Stravin has been impressed by the companies and range of employees participating, including research and development scientists and sales and marketing managers.

He said the programming is valuable because “some of these people have probably never spoken to a patient before.”

One of Stravin’s most gratifying moments came in a custom program for a pharmaceutical company, when participants gained a better understanding of the perspective that patients like him can be satisfied with a partial response to treatment, meaning that a drug protocol has not fully eliminated a cancer. The participants’ perspective changed from considering anything other than a full response as a failure to understanding that a patient with metastatic disease might define partial response as a success because it extended the quality or length of their life.

Stravin also enjoys discussing implied consent. He emphasizes the need to simplify trial paperwork so it is not written solely from the perspective of lawyers hedging against potential litigation and focuses more on what the patient is likely to experience and why they would want to risk potential side effects to participate in a trial.

Fewer than 12 percent of people with a metastatic kidney cancer diagnosis live beyond five years. Stravin is coming up on year eight, celebrating milestone life events with his wife and four adult daughters, such as graduations and a wedding, and pursuing his new calling to advocate for kidney cancer awareness and teach in the HMS corporate education classes.

“When you see that aha moment, and the participants’ eyes brighten as if to say, I get that, I understand it — it’s pretty cool,” said Stravin. “I’m really happy and proud.”

Source: HMS

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masterpromotional · 1 month

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Rauf & Faik - childhood (Can't Buy Me Loving / La La La)

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eastsidemags · 2 months

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ComicBooks for Kids Weekend!

East Side Mags is proud to announce our new partnership with ComicBooks for Kids out of Saint Charles, IL!

This weekend is their big fundraising/awareness weekend and we’re stoked to be a part of it.

About the organization: ComicBooks For Kids! (CB4K.ORG ) Incorporated in the state of Illinois, is the largest 501(C)3 charity in North America and the UK for comic books and pop culture items to children in hospitals and cancer centers. They support over 200 hospitals, orphanages and other social organizations in all 50 states to all demographics and to all provinces in Canada. The number of hospitals they support increases every month. They are a free service to all of these hospitals and a partial list of those they support can be found here. https://www.comicbooksforkids.org/medicalfacilities They do this full time, every day of the week. As mentioned above, their sister charity, ComicBooks For Troops provided over 100,000 comic books and graphic novels last year becoming the largest charity in our industry to all branches of the military for these items.

Now - here’s how you can help:

Come by and shop with us between March 1-3 and we’ll donate 10% of our proceeds to CB4K! The more you spend, the more we donate!

PLUS: You can also bring in comics, graphic novels, toys, plushes and more to donate and we can ship those items to CB4K along with our monetary donation!

Help us help kids in need! See you soon!

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readersmagnet · 3 months

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Luisita is Sick by Dora Przybylek

"Luisita is Sick" by Dora Przybylek is a heartwarming children's book that follows Luisita as she faces challenges with bravery and learns the power of friendship. Through diverse characters who support Luisita, the story encourages empathy and compassion, promoting inclusivity in children's books.

It's a perfect addition to any young reader's library. Grab a copy at www.doraprzybylek.com.

#Dora Przybylek #Luisita is Sick #ReadersMagnet #children with cancer #cancer awareness #empathy #childhood cancer awareness #kids books #inclusivity in children

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thecatcavewithin · 8 months

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Day 3 | 30 Days, 30 Facts with Nur

#indiedev #indiegame #gamedev #games #madewithunity #indiegamedev #pc games #fuck cancer #childhood cancer #cancer awareness #cancer #disease #children #childhood #tumblr chilenito #chill #chile #mole interest

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earthyaries · 2 months

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WAYS U CAN PLEASE SATURN ACCORDING TO UR SATURN PLACEMENT ♄

1H/ARIES SATURN: RESPECT URSELF. DO NOT ALTER UR BOUNDARIES TO BE LIKED. SELF IMPROVEMENT. PUT EFFORT INTO UR BODY/APPEARANCE. WORKOUT / BE ACTIVE. HEALTHY COMPETITION. PRACTICE OFTEN. BE CONFIDENT BUT NOT ABOVE OTHERS. SLOW DOWN. SELF GROWTH. DELIBERATE ACTIONS.

2H/TAURUS SATURN: DEVELOP STRONG VALUES. DO NOT UNDERMINE URSELF. QUALITY OVER QUANTITY. INTENTIONAL SPENDING. HEALTHY RELATIONSHIP WITH FOOD. TRY NOT TO OVERINDULGE ; TRY NOT TO WASTE. STOP SELF SABOTAGING. NO SELF DEPRECATING. APPRECIATE WHAT U HAVE. EXPRESS GRATITUDE. DONATE WHAT U CAN.

3H/GEMINI SATURN: THINK BEFORE U SPEAK ; SPEAK LESS THAN U DESIRE. STOP OVERSHARING. FOCUS ON UR CRAFT ; GET RID OF THE DISTRACTIONS. POWER IN THE TONGUE. PERSONAL MOTTOS. STAND FOR WHAT IS MORAL ; BE WELL INFORMED. HAVE HARD CONVOS WHEN NECESSARY. BE A SUPPORTIVE FRIEND. STOP COMPLAINING. FIND SOLUTIONS. ADAPT & OVERCOME.

4H/CANCER SATURN: CREATE BOUNDARIES & STICK TO THEM. BE OF SERVICE TO OTHERS WITHOUT SELF SACRIFICE. DO NOT BE OVERLY SELFISH. EXPRESS UR NEEDS. TAKE CARE OF UR MENTAL HEALTH. EMOTIONAL REGULATION. SELF CARE. BE SELECTIVE OF UR INNER CIRCLE. POUR INTO UR LOVED ONES. TREAT OTHERS WITH KINDNESS. KEEP UR LIVING SPACE CLEAN.

5H/LEO SATURN: LET GO OF SELF DOUBT. BRING UR VISION TO LIFE. MASTER UR CRAFT. BELIEVE IN URSELF & WORK TOWARDS UR GOALS. GET RID OF UR NEED FOR OUTSIDE APPROVAL. LOOK OUT FOR THE CHILDREN ; BE THE PERSON U NEEDED GROWING UP. WORK HARD, PLAY HARD. DELAYED GRATIFICATION.

6H/VIRGO SATURN: FOLLOW A ROUTINE. HEALTHY HABITS. STRUCTURE. KEEP UR SPACES ORGANIZED ; DE-CLUTTER. BE A FRIEND TO ANIMALS. TAKE GOOD CARE OF UR PET/S. PUT IN THE WORK EVERY DAY. OFFER A HELPING HAND. HONOR UR OWN TIME & ENERGY ; DO NOT ENGAGE IN ONE-SIDED RELATIONS.

7H/LIBRA SATURN: MAKE UR OWN DECISIONS. TAKE ACCOUNTABILITY. CRACK DOWN ON CO-DEPENDENCY ; AVOID SELF ISOLATION. LONGTERM RELATIONS. BE THE BIGGER PERSON. FORGIVE BUT DON’T FORGET. APPLY LESSONS FROM THE PAST. TREAD LIGHTLY. RESPECT THOSE WHO CAME BEFORE YOU. FORM LASTING ALLIANCES.

8H/SCORPIO SATURN: KEEP THINGS TO URSELF. STAY PRIVATE. PRACTICE SELF CONTROL. RESILIENCE IN THE FACE OF HARDSHIP. HOPE FOR THE BEST, PREPARE FOR THE WORST. SAVINGS/RAINY DAY RESOURCES. EMBRACE CHANGE. LEARN TO LET GO. RADICAL ACCEPTANCE. SEXUAL DISCIPLINE. XTRA EMPHASIS ON SAFE SEX!

9H/SAGITTARIUS SATURN: PRACTICE UR BELIEFS. WALK THE TALK. MANTRAS. LEARN FROM OTHERS ; COME TO UR OWN CONCLUSIONS. STUDY. BE AN ETERNAL STUDENT. ALLOW URSELF TO BE OUT OF UR ELEMENT. RESPECT OTHER CULTURES. MAKE UR OWN TRADITIONS. STAY HUMBLE. ACCEPT MULTIPLE TRUTHS. APPLY WHAT WORKS.

10H/CAPRICORN SATURN: KEEP UR EYES ON THE PRIZE. TRUST THAT ALL THINGS COME IN DUE TIME. KEEP URSELF MOTIVATED. WORK FOR WHAT U WANT. STAY CONSISTENT. PERSONAL LEGACY ; THINGS THAT LAST. BECOME UR OWN ROLE MODEL. DO IT URSELF / DO IT RIGHT. LIVE WITH KARMA IN MIND.

11H/AQUARIUS SATURN: LEAD THE WAY ; FURTHER THE CAUSE. BETTER THE COMMUNITY— CREATE UR OWN. BE CONSCIOUS OF WHOM U ASSOCIATE URSELF WITH. BEFRIEND PPL OLDER THAN URSELF. LONGTERM FRIENDSHIPS. LONGTERM RESULTS. ADVANCEMENT. NETWORKING. ONLINE INFLUENCE. SET THE STANDARD.

12/PISCES SATURN: ALL IN MODERATION. HEALTHY COPING METHODS & LIFESTYLE PRACTICES. CONSIDERATION. REFLECTION ; SELF AWARENESS. THERAPY. STANDARDS. LEAVE ONCE DISRESPECTED. NO FAKE FRIENDS. MIND OVER MATTER. MANIFESTATION. BE REAL WITH URSELF. SELF TRUST.

#saturn #astrology

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evo4soul · 11 months

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Secondhand smoke and 3rdHand Smoke: Uncover Hidden Dangers

Unveiling the hidden dangers of secondhand smoke and thirdhand smoke: health risks, exposure mitigation, and promoting smoke-free environments.

Introduction We all know about smoke, but what is second hand smoke? Secondhand smoke has long been recognized as a significant health hazard, but there is another less known and insidious threat that lingers long after the cigarette has been extinguished: thirdhand smoke. While secondhand smoke refers to the direct inhalation of smoke from burning tobacco, thirdhand smoke refers to the residual…

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slyandthefamilybook · 5 months

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since we now know that all those "my blog is safe for Jewish people" posts are bullshit, here are some Jewish organizations you can donate to if you actually want to prove you support Jews. put up or shut up

FIGHTING HUNGER

Masbia - Kosher soup kitchens in New York

MAZON - Practices and promotes a multifaceted approach to hunger relief, recognizing the importance of responding to hungry peoples' immediate need for nutrition and sustenance while also working to advance long-term solutions

Tomchei Shabbos - Provides food and other supplies so that poor Jews can celebrate the Sabbath and the Jewish holidays

FINANCIAL AID

Ahavas Yisrael - Providing aid for low-income Jews in Baltimore

Hebrew Free Loan Society - Provides interest-free loans to low-income Jews in New York and more

GLOBAL AID

American Jewish Joint Distribution Committee - Offers aid to Jewish populations in Central and Eastern Europe as well as in the Middle East through a network of social and community assistance programs. In addition, the JDC contributes millions of dollars in disaster relief and development assistance to non-Jewish communities

American Jewish World Service - Fighting poverty and advancing human rights around the world

Hebrew Immigrant Aid Society - Providing aid to immigrants and refugees around the world

Jewish World Watch - Dedicated to fighting genocides around the world

MEDICAL AID

Sharsheret - Support for cancer patients, especially breast cancer

SOCIAL SERVICES

The Aleph Institute - Provides support and supplies for Jews in prison and their families, and helps Jewish convicts reintegrate into society

Bet Tzedek - Free legal services in LA

Bikur Cholim - Providing support including kosher food for Jews who have been hospitalized in the US, Australia, Canada, Brazil, and Israel

Blue Card Fund - Critical aid for holocaust survivors

Chai Lifeline - An org that's very close to my heart. They help families with members with disabilities in Baltimore

Chana - Support network for Jews in Baltimore facing domestic violence, sexual abuse, and elder abuse

Community Alliance for Jewish-Affiliated Cemetaries - Care of abandoned and at-risk Jewish cemetaries

Crown Heights Central Jewish Community Council - Provides services to community residents including assistance to the elderly, housing, employment and job training, youth services, and a food bank

Hands On Tzedakah - Supports essential safety-net programs addressing hunger, poverty, health care and disaster relief, as well as scholarship support to students in need

Hebrew Free Burial Association

Jewish Board of Family and Children's Services - Programs include early childhood and learning, children and adolescent services, mental health outpatient clinics for teenagers, people living with developmental disabilities, adults living with mental illness, domestic violence and preventive services, housing, Jewish community services, counseling, volunteering, and professional and leadership development

Jewish Caring Network - Providing aid for families facing serious illnesses

Jewish Family Service - Food security, housing stability, mental health counseling, aging care, employment support, refugee resettlement, chaplaincy, and disability services

Jewish Relief Agency - Serving low-income families in Philadelphia

Jewish Social Services Agency - Supporting people’s mental health, helping people with disabilities find meaningful jobs, caring for older adults so they can safely age at home, and offering dignity and comfort to hospice patients

Jewish Women's Foundation Metropolitan Chicago - Aiding Jewish women in Chicago

Metropolitan Council on Jewish Poverty - Crisis intervention and family violence services, housing development funds, food programs, career services, and home services

Misaskim - Jewish death and burial services

Our Place - Mentoring troubled Jewish adolescents and to bring awareness of substance abuse to teens and children

Tiferes Golda - Special education for Jewish girls in Baltimore

Yachad - Support for Jews with disabilities

#atlas entry #please add any more you know of an especially add fundraisers for you or people you know #if there are any fundraisers for synagogues please add those as well #jew #jewish #judaism #jumblr #punch nazis

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homunculus-argument · 6 months

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Fantasy worldbuilding time: What if different magic skills are inherent, but the different "genres" of magic are cultural?

Like you've got a specific set of different types of magic that one could become skilled in, and people with the inherent knack for the different types are born at roughly even ratios all over the world, but the cultural ideas of what one should do with these natural inclinations are so deeply ingrained to the people of each place that they're not even aware that the spark at the root is the same damn thing as something completely different.

A highly complex and politically sophisticated merchant region combs through the local children to find the ones with potential for magic, puts them to school and sorts them into careers based on skills. A child born as a nameless orphan beggar might be raised to become a mage emissary if she is found to have the ability to subtly shift peoples' hearts, minds and opinions - a skill invaluable in politics. Visiting a different region for negotiations, she is shocked to have her horse taken by a lowly stablehand who wields the same gift as she does. Around here, the spark to shift minds is interpreted as the knack to tame and train animals - it wouldn't occur to anyone that the gift for handling dogs and horses could also be used for handling people.

Or a large empire that has slowly drifted into decline during their long span of peace, that has been cultivating the gift of training healers. They have the odd gift to make the body do things - move one vein to meet the other while mending a wound, tie broken ligaments together, sense where a lump in the body is a cancerous growth and shift arteries away from it to starve the growth. They see through the body, move things around, and shift the off-centre, tilted things to be more properly aligned. Healers are known as the most gentle type of magicians, who could not be forced to do harm even at the threat of death.

It's a bit of a shock to discover that the neighbouring warlike kingdom - who does not have healers - also has people born with the same inherent way to see through bodies and move bone, ligament and vein. They, however, are trained to tear people apart.

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nabulsi · 2 years

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Palestine Donation Links Masterpost

This is a masterpost of places to throw your money at to support Palestine. I'm gonna try and keep this updated as much as I can.

*** Please note, donating does not mean you should stop boosting Palestinian voices. Spreading awareness is JUST AS IMPORTANT as sending money since misinformation is one of the Zionist movement's most dangerous tools. ***

(Last Updated: 13-02-2024)

Palestine Children's Relief Fund

In addition, follow the PCRF on twitter (@/thePCRF) as they regularly post about opportunities to donate to support Palestine.

UNRWA

Doctors without Borders

Defense for Children Palestine

Palestinian Red Crescent Society

United Palestinian Appeal

Heal Palestine

eSims for Gaza

Care for Gaza (PayPal / GoFundMe)

Medical Aid for Palestinians

Islamic Relief USA

ANERA

Help Gaza Children

Sulala Animal Rescue

Hirbawi Kufiyas

Palestinian Youth Movement

BDS Movement

Decolonize Palestine (Patreon)

Aid requests from Palestinians in Gaza:

Help Ahmed Saad get to safety

Help Lama AlJamous Evacuate

Support Khalil in Gaza

Help Yoseph and his Family

Surgery fund for Abdulaziz

Support Abdelrahim Alfarra

Help Yosef Kassab Evacuate

Safe Passage for Nadin

Help Yousef Yaser get treatment for cancer

Help Adel Al Zaharneh

Help Shaymaa's family leave Gaza

Evacuate Abood's family from Gaza to safety

Help Mohamed and his family evacuate

*** If you have any additional recognized and trustworthy places to donate, please either reply or send me an ask or DM and I will update this list! ***

In addition, Palestinians (both in Palestine and diaspora) can feel free to leave your paypals / ko-fi's / cashapps / venmo.... whichever you want in the replies.

#palestine #free palestine #bds #boycott divestment sanctions #palestinian youth movement #decolonize palestine #pcrf #palestine childrens relief fund #united palestinian appeal #unrwa

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myboyfriendjake · 6 months

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usually don't post about non-fandom stuff on here but just wanted to take a quick moment to say that what's going on in palestine is not war, it's genocide.

what the israeli government is and has been doing to the palestinian people since its founding is disgusting, and if you support israel, do your research and don't interact with me. if you support israel, i can't see you as human because no one with a heart would support ethnic cleansing and mass murder

they've been taking more and more of their land since israel was established (originally 56% of palestine's land, now they have over 80%)

bombing hospitals (they've bombed a number of hospitals, including children's hospitals, cancer wards)

over 10,000 palestinians have died so far in this conflict. these are civillians

palestine does not have a military. israel, on the other hand, has a military with about 20 billion usd in funding every year, plus billions in aid from other countries

israel cut off energy and water for gaza. why do they have power over another country's electricity and water supply? and why this collective punishment of all palestinians for something a terrorist group did?

bombing hospitals, places of worship, and collective punishment are all war crimes and technically illegal, but most countries and journalists are turning a blind eye to that

banned chemical weapons - white fucking phosphorus - are being used in gaza on civilians

over 80% of the people in hamas are palestinians who were orphaned by israeli airstrikes. israel is the reason hamas exists.

if you are human, please try to spread awareness. many foreign journalists aren't even allowed into gaza as israel is controlling access to palestine. thousands of palestinians have died, and many governments and media sources are supporting this genocide.

the more we keep spreading the message, the more people will know, and hopefully we can help in some way.

#i stand with palestine #free palestine #palestine #israel #gaza #genocide in gaza #genocide in palestine #if you unfollow me for this then #how do you sleep at night ig?#please spread the message

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