#Chronic urticaria

[duality-disability]

Update to our allergist/'throw a medication at it' post:

We had a follow up today, increasing the allegra we take but if it doesn't work by next week; We've 'failed the treatment' and will be perscribed a monthly injection called Xolair.

Only issue is: Xolair has a tiny chance to cause.. anaphalatic shock.

So we were perscribed an epipen to bring with us to every injection if we start it.

+ in the notes of our appointment, there was mention that our "symptoms and timeline match up with that of chronic spontanous urticaria"; which ig is our unofficial diagnosis, despite our hives having known triggers (cold, skin pressure, stress)

Also! We were told it looks like we could be getting scarring from these hives, which would be.. fuckin lovely.

yall i'm so tired.

#chronic illness #disability #physical disability #chronic disability #chronic pain #chronic hives #chronic urticaria

[teddynotthebear]

hey fam, your hives ever be so bad you convince yourself you’re being punished by god for misdeeds in a past life

#personal #chronic hives #chronic urticaria

[redtail-lol]

I'm diagnosing myself. With... Chronic spontaneous idiopathic urticaria (chronic spontaneous hives) because literally every 2 or 3 days I break out in hives on my arm and it's always my right arm always near my wrist. There's literally no unifying factor in these breakouts other than where it happens and what the hives look like (clusters of slowly growing skin-colored bumps) oh and obviously the itch. Ergo, there's nothing to pin as the cause. No allergen. It just happens. Fuck me

#urticaria #chronic hives #hives #chronic urticaria #spontaneous hives #spontaneous urticaria #self diagnosis #self dx #there's no reason for me not to self dx this #“see an allergist” no #it's easily self diagnosable #like this is something you'd get a 0% false self dx rate from

[littlemisskitkat]

I met a girl at work today who also has chronic urticaria and I feel less alone now

#mine is not at all like other’s tho #it’s more like welts #dermatographia #chronic urticaria #I’m allergic to myself basically 😑

[dumbasswithapen]

can we just listen to Disabled people when they say what accommodations they need??? Like it really isn’t that hard to just take someone’s word on what is best for their own body! Whether it’s more or less or different than what you deem they need it really isn’t your place to say!!!

Sometimes, people need more than they show! Especially if they’re used to being in pain all the time, then they won’t always display that discomfort.

Sometimes the accommodations someone needs are different than what you assume. A friend who struggles with noise sensitivity may ask for you to turn on a different type of music, instead of turning it down, and if that is what they express they need you don’t have to say “oh no I can just turn it down!” and ignore them saying that that isn’t necessary because your idea of noise sensitivity is different than their own experiences and needs.

And sometimes people need less than you try to provide! Or simply don’t want that accommodation at the time! And here’s the crazy part: this applies even if what they say to do could hurt them. Obviously this isn’t a rule for every situation*, but for some it absolutely is. If your friend wants to tag along for, say, a hike, and they have joint pain it isn’t your place to add in “oh no but they can’t do [the hike]! They’ll be in pain! We have to do something else to accommodate them!” If that person expressed a desire to go, especially if offered other options prior that wouldn’t hurt them, let them live. Let them do the thing that puts them in pain, because Disabled people don’t always want to be shoved into a little box of safety. Absolutely sometimes they do, and some might always want to, but if they don’t, then let them make their own choices for their body. Just as anyone else does. You go out and get drunk, even if it gives you a hangover. You go skating even if you’re shit at it and scratch up your knees a bunch. Just because someone is Disabled doesn’t mean that they can’t do the same thing and do that fun thing that hurts them.

I don’t know if I’m displaying my point how I want, so here’s my own example: I am allergic to the cold. Anything below 60 degrees (f) I get hives. Any water cooler than a fucking warm shower I get hives. My joints don’t do great when it’s cold out. This does not mean that when I say I want to go swimming, you can say “oh but you can’t you’ll get hives!” Or “no you can’t do that you’ll be in pain!” Because. I know that. I know that. I know my Disability better than anyone else can, and I can ask for accommodations I need. I am not a child to be wrapped in bubble wrap so I don’t get hurt. My body is my body and I can do with it what I want, and face the consequences. Likewise, just because I said I wanted to go swimming doesn’t mean that when I don’t want to go out and muck around in the snow it is anyone’s right to say “oh but you wanted to swim earlier, so obviously it isn’t that bad for you!” Or “oh it’s fine it’s not that cold! Just wear a sweater!” Because at that time I need and want different accommodations and that should be listened to and considered accordingly, as far as it can be in that situation.

Seriously. Just listen to us. We are in our own bodies. We know ourselves. It really isn’t that hard

*a situation where this point would be null is, for example, a situation where the person has been peer pressured into doing something, or one where you know the person well and know that the endurance of pain is a self-harming behavior

#disability #disabled #information #shi rambles #ableism #accommodation #cold urticaria #chronic pain #Like I get that my mom wants the best for me but I really know myself #If I avoided getting hives I’d be avoiding swimming at all. I’d not be having cold drinks or foods. I’d be not going outside #Even if I’m complaining about being in pain it doesnt mean that I don’t want to do the thing. It just means I don’t want to be in pain. #I know that won’t change but it’s not the change that matters it’s the expression of it #idk #actually disabled #ugh I don’t like wiriting that i feel like a fraud cuz im not disabled “enough” #It’s so fucking stupid I hate my brain

[xieliancore]

icb i hadnt draw heterochromia!chuuya before???

#bsd #bsd fanart #bungou stray dogs #chuuya #chuuya nakahara #if this looks ugly is bc i can barely open my right eye #gotta love chronic urticaria #my art

[thatchronicfeeling]

Medical Person: What are your symptoms? Disabled/Chronically Ill Person: This is a trap.

#chronic illness #me/cfs #myalgic encephalomyelitis #chronic fatigue syndrome #pots #postural orthostatic tachycardia syndrome #ulcerative colitis #ibd #inflammatory bowel disease #polymorphic light eruption #solar urticaria #mast cell activation syndrome #postural tachycardia syndrome #disability

[pinkplasticprincess]

Being chronically ill is crazy because I’m essentially just living with multiple warning lights on my dashboard lit up but if an otherwise able bodied person suddenly had their body’s check engine light on they’d go into a coma

We built different

#chronically ill #chronic illness #chronic pain #costochondritis #inflammation #i’m physically disabled #pots #postural orthostatic tachycardia syndrome #fibromyalgia #hypermobility spectrum disorder #neuropathy #cold urticaria

[p0is0n-is-th3-cur3]

me when the chronic illness makes me sick: 😱😱

#It’s supposed to do that #It’s called a chronic illness for a reason #chronic illness #asthma #cold urticaria #chronic pain #Tato has shitty health and needs to see a doctor

[us-the-voices-and-more-voices-2]

I’m not gonna lie, I’m the type of person to sound like I’m literally dying over the most minor and mundane stuff.

*starts wheezing and coughing like a 70yr old smoker and sounding like a kazoo after laughing too hard*

“*wheeze* I’m *WHEEZE* fine *WHEEZE* I need my meds I’ll be *WHEEZE* fine.” (Actually I am not fine I just don’t like worrying people. But if I didn’t have my meds near me I’d be freaking the fuck out actually.)

*gets a bit too cold because I didn’t anticipate the weather changing so quickly.*

“oh. My hands are super cold and my arms and legs and I’m super itchy now. *looks diseased and about to die of chicken pox or something worse* guys I’m f-f-fine I just need to warm up and I-I-it will go away.”

*goes outside when there’s a high pollen count, or smoke or air pollutants of some kind*

“achanooie, I’m fine guys I’m just having allergies. *eyes literally go red and puffy and is dribbling snot out my nose.* I’m fine :)”

*randomly touches something or brushes against something.*

“Oh shit. What was it this time? *a small or big amount of hives starting to form* I must have touched something on the table I’m allergic to I gotta go wash my arm I’ll be back. *disappears to the back rooms and comes back* well idk what it was but I’m not touching anything else.”

life with chronic illness is fun.. yay

#Asthma #chronic illness #asthmatic #disability #cold urticaria #cold allergy #food allergies #allergies #yes I probably do have some sorta undiagnosed histamine disorder my whole family probably does #I am allergic to the most random shit! #and like 70 things I don’t even know #I’m allergic to the DIRT #or something in dirt #like I want you to understand I am like only like 25% sure every time I try a new food I won’t randomly get anaphylactic shock or something #my mom randomly developed a corn allergy when she before hand she was NEVER ALLERGIC (like anaphylactic allergic!) #my family on my mums side has some fucked up something #and it is weirddddd #-pop #Like ??? The cold. And DIRT and just all sorts of shit I’m like so allergic too I get HIVES every time I touch it #like cruel

[teddynotthebear]

ok, chronic hives homies. urticaria cuties. my weal-covered warriors. I come begging on my knees.

I have a doctors appointment with a new doctor tomorrow, and she hasn’t ordered an allergy test yet but based on past experience she is definitely going to (because apparently it’s so hard to believe that someone has hives that need treatment that aren’t caused by an allergen). Because of this, I’m avoiding antihistamines and other allergy meds (because when you go in for testing they don’t want you to take allergy meds for three days before the test). However, as I’m sure most of you understand, because of this I Am Itchy As Fuck And Cannot Sleep.

How do I get some sleep while also itching like a motherfucker and being unable to take meds for it? TIA

#personal #chronic hives #chronic urticaria #urticaria #hives #I’m so fucking itchy my dudes #itchy #skin condition #dermatology #allergy #MCAS #I don’t know if I have any of these things for real but I know this symptom overlaps with a lot of these things which is why I’m tagging #mast cell activation disorder

[nocherryblood]

Getting ready to clean up a room or something so you have to pull out these bad (as in, literally, because they don't cover half my arm) boys:

#psoriasis #dust mite allergy #chronic spontaneous urticaria

[chicago-geniza]

Like it's on me for not checking, I always check NSAIDs and prescriptions, but in my defense who the fuck would put BLUE DYE IN A MULTIVITAMIN, it's like trying to get around all the SECRET WHEY PROTEIN you find in every conceivable packaged food unless it's labeled vegan up and down with a cross-my-heart-hope-to-die seal of authenticity. Also hate having this specific allergy because 75% of the info when you search is from deranged homeopathy bloggers who try to cure their kids' ADHD by making them eat a raw paleo diet with no sugar or something and I am filled with suffocating rage lol

#'Intractible puritic disorders' yeah I've had chronic idiopathic urticaria for over 18 years

[ghost-shepherdess]

wish doctors would stop treating patients as landscapes of study and actually treating us as humans !! or that at least they'd see our painful soils eroding instead of focusing on brushing fallen leaves aside for aesthetics !!

#big chronically ill sigh that i have some form of autoimmune #but my doctor decided to treat a symptom (urticaria) instead of my painful and uncomfortable flares #and he didn't even explain if the autoimmune was the urticaria or if that's just a symptom #and now ill have to just take antihistamines for 6 months before he starts looking into the flares #disability

[nospoonsindrawer]

Has anyone else noticed how very acceptable it is to crap on people with allergies on Tumblr?

If you remind people that this thing that is completely innocuous to most folks, is deadly to others. Doesn't mean your wrong for enjoying it, just a reminder that people with dangerous allergies do in fact exist.

And they will respond with an eye roll and have a laugh about peak Tumblr nonsense.

I see this from people that would recognize this as unacceptable if allergies were substituted for another disability.

I'm very tired of this societal idea that your allergies are just you being a pain in the ass for the fun of it.

Oh, did the fact that people like me exist ruin your day?! So sorry that my disability has so negatively impacted you.

#allergies #chronic illness #disability #mastocytosis #mcas #mast cell disease #housebound #mast cell activation syndrome #urticaria

[asymm3]

sometimes i gaslight myself about my health issues

other times i’m sitting in my backyard at 2am trying not to throw up and covered in hives because i took a hot shower

#it’s funny bc this is completely unrelated to what’s causing my chronic pain #heat allergy is haha funny until warm food and drinks/ showers/ exercise/ walking most times causes you to get sick #i need a specific dose of allergy meds that’s really hard to find off brand and is $30 for 12 days worth #disability #cholinergic urticaria