#DD self-advocacy

[frail-and-freakish]

today, april 11th, is the anniversary of Mel Baggs' death. Mel Baggs was one of the early founders of the neurodiversity movement and believed that no one was too disabled for human rights, something that modern nd movements fail to understand to this day. sie was so instrumental to my understanding of literally everything. sie died from medical ableism and neglect during the beginning of the pandemic. we would be nowhere fucking near where we are now without hir. i've decided to make a masterlist of some of my favorite posts of hirs, organized into different categories.

(some of these are listed in more than one category because they overlap so much)

here are some of the "essentials" (what you might have already read by hir/should read first):

hir memorial site hosted by ASAN:

In My Language

the oak manifesto

There is ableism at the heart of your oppression, no matter what your oppression might be

Getting The Truth Out (many pages, parody of bad autism awareness campaign called "getting the word out")

the meaning of self-advocacy

what makes institutions bad

aspie supremacy can kill

here are some of hir beautiful writings on perceiving/communicating with hir environment as an autistic person, and on communication in general:

up in the clouds and down in the valley: my richness and yours

distance underthought

the naked mechanisms of echolalia

empty mirrors and redwoods

the fireworks are interesting

hir tumblr tag #sensing (@withasmoothroundstone)

on personhood and who has the authority to take it away:

being an unperson

what it means to be real

empty mirrors and redwoods

on institutions and the I/DD service system:

caregiver abuse takes many forms

"i don't know that person's program"

what my home means to me

dd service system tag

god help the critic of the dawn: glamour and its fallout

what makes institutions bad

post on the JRC

outposts in our heads

on online social justice communities/their inaccessibility:

Your politics have a problem when they contradict the real-life experiences of the people they're supposed to be about.

politics, ethics and mental widgets

hir tumblr tags #outside the wall and #little packages (@withasmoothroundstone)

misc:

The Bones My Family Gave Me

Please violate only one stereotype at a time

My sort of people, just as real as theirs.

Reviving the concept of cousins

gender tag

this is hir poems and creative works:

this is hir writing on autistics.org:

may hir memory be a blessing/revolution.

#mel baggs #z”l #autism #actually autistic #autism acceptance month #autism awareness #disability #disability rights #disability justice #mushroom.txt #actuallydd #autism acceptance #actuallyautistic #tagging this in All The Tags so people see it #autism awareness month #autistic #autistic spectrum #autistic things #asd #neurodivergent #neurodiversity #i/dd

[lavcommunicatez]

wish there are less people invested in one single narrative of nonspeaking / nonverbal identity.

feels like there many different “traditions” or something of nonverbal nonspeaking activists and each small community all says same thing, same origin story same definitions same words same talk points. and I understand this because we are all autistic! we are all echolalic we all echo language and ideas from the community we surround selves with. but find it really hard when echo words becomes ddogma becomes thing you can’t say differently and just assume everyone thinks same thing or else not really in group.

(going to try to use “nonspeaking” for first community and “nonverbal” for second community because that’s what each one of these communities usually prefer. language hard so sorry if don’t do this consistent.)

like if I go to one of I-ASC (international association on spell to communicate) conference or one of their neuro lyrical events online. as a nonspeaker since birth who does have experience of “learned language without having speech”, of people assume don’t understand anything until finally found way to express self that world understands, and people still doubt am really the one saying this. in some ways relate to these people much much more than people on here who mostly became nonspeaking later in life and have very different upbringing not raised as a person with a DD not grow up without speech. places like the I-ASC and the Spellers community and impAACt and local meet up group for nonspeakers feel like family to me, feel like my people who move and talk and live like me.

but. there things in these community that are very black and white. that just can’t relate to. don’t relate to mantra of “speech is motor, language cognitive” for example. or “it’s not about don’t understand or about I don’t want to, it’s about can’t make body do it.”. because my motor issues interact with language processing interact with cognitive stuff not able to neat separate. yes AAC is freedom but I still have to make a lot of compromises to express self with words. have to leave out a lot or (more often) add a lot unnecessary stuff because there things that brain stuck that just can’t say in a way people will understand.

think this is true for lots more nonspeaking people than organizations like these (which were started + run by speaking people and communication & regulation partners and SLPs) say is true. a lot of nonspeaking people in these communities encouraged by speaking people in movement to focus emphasize on “we don’t have intellectual disability we can communicate with words just as good as you can, the motor problems is all that there we don’t have any language problems .” because this is what parents and speaking autistics and well meaning allies/communication partners think is important. they think the way to value us and to say we feel and think and know and should have rights (which we should!) is to distance distance distance far far away from any associate with intellectual disabilities with language disabilities with cognitive disabilities with process differently.

so as long as can be acceptable enough nonspeaker to them they support. which does not feel like support. nonspeaking doesn’t mean non thinking but intellectual disability and language deficit and cognitive disability doesn’t mean non thinking too. and a lot of people in these communities do have more complicated relationships with language but are told by speaking people in these communities to not talk about that only talk about motor stuff or connect everything back to motor stuff. which doesn’t feel like support. feels like flatten make easier make more convenient.

and then when I go on tumblr and see the nonverbal people speaking out here. i started out not on social media mostly in offline AAC and speller advocacy and someone told me there was good community of autistics with good range of support needs on tumblr so I joined. and do find bigger range of autistic and nonverbal nonspeaking experiences able to talk about here. able to talk about mental illness & psychosis & dissociation (which even nonspeaking advocacy communities assume nonspeaking people don’t have these problems or not capable). able to talk about “challenging” behaviors that so so stigmatized. able to talk about language and cognitive stuff. able to talk about gender and queerness without be policed (a lot of professionals and communication support people in nonspeaking advocacy are weird conservative and don’t think can know our genders / sexualities even though always talk about presume competence. it weird.) just saw beautiful post about nonverbal trans experience with gender that I loved. really like that people with intellectual disability getting heard, that we challenge expectation to have “proper” writen language. speech therapy and even learning how to use AAC, learning how to use letterboard etc was always about correct every mistake, about fade prompting, about use grammar properly so other people think competent. and have been able to let go of that on here because the language norms are so so different.

but at the same time I feel like there lot more stuff that not useful. lot of focus on right words to say, a lot of calling out other blogs, a lot of trolls, lot of drama that really doesn’t exist in real life nonspeaking community. like frustrated when go in nonverbal or nonspeaking tag and most posts not about nonverbal people human rights or experience, but about words. specific about people saying go nonverbal, someone trying to say it’s good or someone trying to say it’s bad. every other post about someone ask for right word to say instead of “go nonverbal”, or list of other words to say. or people asking whether or not they’re nonverbal or semiverbal or lose speech. and even within nonverbal community on here lot more talk about words than about justice. or even about lived experience of be nonverbal. people forget that real world outside tumblr tags exist sometimes. that there people living without communication, people being deny communication, people in institutions, people without resources. and that there are ways to change that and to self advocate besides changing what word you call yourself.

not saying words not important. yes it is annoying and bad when people talk abouit going nonverbal and forget that we exist. yes am grateful to people who decide to change what word they call themself to not erase us. but frustrated with how there not really conversation, one opinion just take as The Nonverbal Opinion, just like how it is in offline nonspeaking / speller community.

not seem like these communities are interacting, are compare notes on experience are combine to synthesize into something better. into what community could be. community that leaves no one behind. community that doesn’t claim to speak for everyone, doesn’t claim account for all experiences but still says all nonspeakers exist and all deserve rights. doesn’t tell anyone “don’t talk about your experience with X because it doesn’t fit what we want to tell the world that nonspeaking people are like.” where everything able to be talked about without it ever make less true that all of us need respect and rights more than any one word / idea.

curious if anyone have ideas for how to make this community.

#new pinned post hello #am in AAC user discord server where it does seem like there people from all these different tradition & belief & experience #but even that mostly have people who grew up speaking and not a lot of full time AAC users #nonverbal #nonspeaking #community #lav talkz #long post #AAC #disability #dd stuff

[five-thousand-loaves-of-bread]

in short, think self diagnosis, after extensive research, is valid.

not everyone have access to medical professionals. not everyone have access to competent quality medical professionals. not everyone can afford. medical trauma & medical neglect exist. misdiagnosis exist. medical racism sexism misogyny. etc.

though. to add some nuance: (i am specifically addressing autism but probably applies to most self diagnosis)

1. sites like tiktok and tumblr provide important lived experience lens that hard to find any other place. often play huge part in journey! but tiktok and tumblr should not be only place you do research for self diagnosis.

further, watching one tiktok or one tumblr post is not enough for self diagnosis. know most people who self diagnose isn’t doing this, but do see some people do this.

2. there are late diagnosed autistic people with higher support needs. there are late diagnosed autistic people who are visibly developmentally disabled but their other I/DD diagnosis covered over their autism. etc.

having said that though. overwhelming majority of autistic who self diagnose who are late diagnosed. have lower support needs, are high masking, less visibly autistic. most of them lived their life in nondisabled neurotypical society, mainstreamed, go to typical school, get job, maybe job after job after job fired quit fired again—often forced to be this way, not given choice. which is all distressing. have grief about not being noticed as autistic earlier.

but. you need to know that there are early diagnosed autistic folks, some of them high support needs and/or nonspeaking minimally speaking, some of them who put in special ed, go to “special” schools, who have high support needs, who can’t or not allowed to live independently, who needs full physical assistance with bADLs, who can’t keep own basic safety, who will never able to hold typical job, etc etc… they are still autistic. just because you have trauma about being late diagnosed late identified doesn’t mean for them early diagnosis is a abuse free blessing.

early diagnosed, visibly developmentally disabled people like these often face the blunt of the violence. they are one of the most marginalized groups in our community.

some late diagnosed autistics hold privilege over some early diagnosed autistics. (note i say some—late diagnosis early diagnosis not monolith experiences.)

3. just because you are, say, autistic, doesn’t mean right this second you should be an autistic advocate, or right this second you’re qualified to. i believe all autistic people have important meaningful thing to say about own experience with autism. but being an advocate involves so much more than that.

being advocate involves constant learning, especially from people more marginalized than you and people not similar to you.

being advocate means constant self reflection, means reflect on own privilege and oppression, means reflect on own internalized ableism internalized racism, etc.

being advocate means learning to decenter self, learning how to hold space for others, learning how to apologize and take accountability.

being advocate means learning how to listen.

being advocate means learning how to take responsibility.

being an advocate means addressing own trauma and not project trauma onto others, especially other more marginalized groups.

being an advocate means acknowledging nuance.

newly realized autistics, newly self diagnosed autistics, newly professionally diagnosed autistics (who didn’t know they autistic before professional diagnosis), they all have important place in autistic community and autistic conversations. but being new to this means you have so much more to learn. and you need to learn how to do more good than harm when share own experience and do own advocacy.

4. there is a world of autism experiences beyond your own. listen to them, too.

with all that said. self diagnosis, after extensive research, is valid.

#actually autistic #actuallyautistic #self diagnosis #low support needs #high support needs #medium support needs #late diagnosis #early diagnosis #loaf screm

[briarpatch-kids]

FYI I think most people with intellectual disability actually prefer person-first language, not to be called “intellectually disabled people.” Everyone’s different but as far as community preference that’s been the norm for a while in self advocacy because of how constantly dehumanized people with I/DD are.

Honey, policing and correcting language like this isn't it. I'm friends with both intellectually disabled people and people with intellectual disabilities and the thing that BOTH groups prefer is not language policing like this. Fuck off and bother someone else instead.

#tay dont look

[pixierainbows]

Pixie have class , for I/DD people , about Self Advocacy . from Michigan’s DD Council . todays Session gender . so . Pixie ready just go if get bad .

but … it not get !! pixie so happy see all the labels explained with simple pictures and words

#actually disabled #queer #lgbtqi+ #gender #developmental disability #intellectual disability #lgbt #transgender #trans #nonbinary #asexual #lesbian #gay #biseuxal #pansexual

[personalisedsupports]

What is a Support Coordination Disability?

Adults with intellectual and developmental disabilities can benefit from a support coordination service. It helps them create a plan that meets their needs and builds on their dreams.

Individuals who want to use their DD waiver funds need to select or be assigned to a support coordination disability agency. These agencies are independent, community-based entities that are Medicaid and DDD-approved.

Individualized Service Plan (ISP)

Each individual approved for a waiver service will have an Individualized Service Plan (ISP). The ISP is developed using person centered planning strategies. It includes information about the person’s likes and dislikes, dreams for the future and medical history. It is reviewed and updated at least annually.

The ISP identifies informal supports and generic community resources as well as formal support/services funded through the Office of Developmental Programs. The ISP also identifies what is needed to be in place to receive these services and supports.

The Support Coordinator will help the person explore their interests and learn new life skills. These activities may include therapeutic horseback riding, cooking classes and computer design. This is a great way to meet others with similar interests and build social networks.

It can also help the person to develop more independence. In some cases, the Support Coordinator will not be able to arrange these formal supports and services immediately due to availability of funding through the County MH/ID Program or the Office of Developmental Programs. The Support Coordinator will document these unmet needs in the Priority of Urgency for Services (PUNS).

Linking

A person with an intellectual disability and their family members may be able to select or be assigned to a support coordination agency. This service helps people navigate the process of self direction by connecting them with resources and services in their communities, natural supports and those available through the waiver program.

The individual works one-on-one with a support coordinator to develop an individualized plan that meets their goals and desired outcomes. They also work to develop, monitor and revise the individualized plan on an ongoing basis.

A good support coordination agency will have staff with a variety of backgrounds and experiences. They should have an understanding of the complexities of the disability system. They should be familiar with state and federal regulations and procedures, as well as local community resources. They should also have a clear understanding of how to connect individuals with the programs and services that they need. This includes assisting individuals in the process of applying for the division’s programs and services.

Advocacy

Advocacy support coordination disability is a service that helps people who have a disability to make sure their rights are protected. The aim is to help them access and use services that can improve their quality of life. It can be done in many different ways. Some forms of advocacy are citizen advocacy, self-advocacy and individual advocacy. Citizen advocacy involves a community member volunteering to work with a person with disability and supporting them to have their voice heard.

Self-advocacy can be facilitated through groups and individuals, while individual advocacy is done one-to-one with a trained advocate. These services are often provided by disability organisations or through private agencies.

Individuals who are eligible for Division of Developmental Disabilities medicaid waiver programs can select their own Support Coordination Agency. MOCEANS is a

great option for those looking to connect to local advocates that have relationships in their county. All MOCEANS support coordinators reside in Monmouth or Ocean Counties and have first-hand knowledge of services and resources.

Monitoring

The support coordination agency is a service that helps participants find, link to and obtain services. They also work with the participant to help them reach their desired outcomes on their Individualised Service Plan. They do this by ensuring that the individual receives quality, person-centered and relevant services within their budget.

The supports coordinator can meet with individuals at their home, community location or ancillary service provider locations as long as it is safe for the individual and confidentiality can be maintained. They will assist individuals to develop quality person centered plans and complete any necessary tasks to ensure their plan is approved or revised in a timely manner.

Support Coordination Services are available for all NDIS participants through their planner or by contacting the NDIS directly. Those with more complex needs can request a specialist form of support coordination to develop a comprehensive plan and monitor progress toward their goals. This is called State Service Coordination and it is provided by DBHDD.

#support coordination disability

[communityinclusion]

Press Release: The Center on Youth Voice, Youth Choice Expands its National Community of Practice of State Teams Advancing Alternatives to Guardianship

Morgan Whitlatch, Director of Supported Decision-Making Initiatives, Center for Public Representation

Phone: [phone]

Email: [email protected]

Allison Hall, CYVYC Project Director, Institution for Community Inclusion

Phone: [phone]

Email: [email protected]

Quinn Barbour, Institute for Community Inclusion

Phone: [phone] (office) / 857–271–6617 (mobile)

Email: [email protected]

Website: www.communityinclusion.org

PRESS RELEASE

For Immediate Release: May 12, 2023

The Center on Youth Voice, Youth Choice Expands its National Community of Practice of State Teams

Advancing Alternatives to Guardianship

Boston, MA — The Center on Youth Voice, Youth Choice (CYVYC) is delighted to announce its selection of three additional State Teams to join its national Community of Practice to promote alternatives to guardianship for youth with intellectual and developmental disabilities (I/DD). Nineteen teams from 15 States and the District of Columbia applied. The quality of the applications was excellent and revealed a deep interest in and commitment to Supported Decision-Making and its importance in the lives of transition-age youth.

After an extensive selection process, CYVYC has chosen State Teams from Arizona, California, and Texas to join our existing Community of Practice. Each of the State Teams will be co-led by a youth with I/DD who is between 14 and 26 years old. The organizations co-leading the efforts of these newly selected State Teams include:

· Diverse Ability Incorporated

· Disability Rights California

· Texas Council for Developmental Disabilities and Texas Advocates

Under a 5-year grant from the US Administration on Community Living, CYVYC provides extensive technical assistance to State Teams to promote alternatives to guardianship so that fewer youth with I/DD have legal guardians. The Community of Practice — now composed of 11 State Teams — fosters a rich dialogue around best practices, supports long-term change, and centers the voices of youth leaders in its work. The Community of Practice members work together to create lasting systemic reform in their states and support Youth Ambassadors to be leaders for change.

“We look forward to collaborating with these new State Teams in advancing the decision-making rights, self-determination, and leadership of youth with I/DD. Ensuring this next generation of youth is front and center in all levels of this work is key to the success and lasting impact of this national initiative,” said Cathy Costanzo, Executive Director of the Center for Public Representation (CPR), which facilitates the CYVYC Community of Practice.

The CYVYC Community of Practice Selection Committee was composed of a Youth Ambassador, a member of its Youth Advisory Committee, a representative from its National Coalition, and CYVYC staff, including representatives from the Institute for Community Inclusion, CPR, Self Advocates Becoming Empowered, and the Georgia Advocacy Office.

###

About the Institute for Community Inclusion

The Institute for Community Inclusion (ICI) promotes the inclusion of people with disabilities in their communities through training, consultation, clinical and employment services, and research. ICI is a University Center for Excellence in Developmental Disabilities based at the University of Massachusetts Boston and Boston Children’s Hospital.

#press release #center on youth choice youth voice #cyvyc #community inclusion #Institute for Comunity Inclusion

[infinitemonkeytheory]

The COVID-19 pandemic is not over. Ending the public health emergency will harm many people. Over a million people have died. The number of COVID cases are at record highs, and over 3,000 people in the United States are still dying of COVID every week. Less than 20% of the US has the bivalent booster. This is especially true for marginalized people. For all of these reasons, COVID is continuing to harm our communities.

Ending the public health emergency gives the dangerous impression that the COVID-19 pandemic is over. People need to continue to think about risk and community transmission. People need to continue to mask, people need to ensure that they are up to date with all boosters. People with developmental disabilities are especially vulnerable to COVID-19. Many in our community have additional risk factors, like heart or lung issues. COVID-19 is especially dangerous in congregate settings such as nursing homes, and it will continue to spread. COVID-19 was the leading cause of death for people with intellectual and developmental disabilities (I/DD) in 2020. People with disabilities, low income people, and people of color are more likely to have bad outcomes from COVID-19, including death.

Ending the PHE will negatively impact health care and health care coverage, especially for marginalized people who had difficulty accessing care even before the pandemic. During the public health emergency, Medicaid coverage has been more open and flexible than usual in many states. Medicaid has had enhanced federal funding. States could also not take people off of Medicaid. Over 19 million people enrolled in Medicaid since February 2020, whether due to this expansion or people who newly qualified due to changes in disability status, financial status, or age. On April 1, states will be able to reduce coverage and will no longer have the enhanced federal funding for Medicaid. Millions of people will no longer qualify and lose Medicaid coverage. Even more will lose coverage even though they still qualify, because the requirements to keep this coverage will be more demanding. The groups who will lose the most coverage despite qualifying will disproportionately be children and people of color. This is expected to be the biggest increase in uninsured children in the history of the United States.

#covid isn't over #public health #healthcare #covid pandemic #covid

[haahrshapiro24]

Cytotoxicity, healthful along with physicochemical qualities of an fresh stick resin-based endodontic wax that contain calcium supplements hydroxide

The most effective inhibitory activity on mycelial growth ended up being shown simply by oregano and also spearmint natural oils by carvacrol along with carvone, correspondingly his or her major constituents. Your inhibitory task had been evidently fungistatic in the. terreus along with F ree p. oxysporum nevertheless fungicidal in V. dahliae. Upon sporulation, evidently stimulatory outcomes were seen alongside inhibitory ones. Conidial manufacturing had been usually advertised by simply a-pinene within P. expansum and by sage acrylic within Y. oxysporum. From specific doasage amounts it had been marketed by simply cineole along with carvone in F ree p. oxysporum, by linden acrylic in A. terreus and also Sixth is v. dahliae. Findings using carvone along with carvacrol in opposition to put together fungus ethnicities within a garden soil environment indicated that Sixth is v. dahliae has been essentially the most hypersensitive as well as a. terreus probably the most tolerant of several infection. Our benefits demonstrate powerful yet divergent consequences as well as selectivity associated with motion with the reduced terpenoids on yeast strains that could grow to be critical pests regarding tomato. Of selleckchem unique significance may be the complete self-consciousness of progress and also conidial creation of /. dahliae, any virus otherwise extremely resistant against compound handle.This informative article inspects materials about the part from the health professional caring for individuals with a new two impairment (DD) involving mental disability and mind illness. Research online in the materials among 2000 along with The year 2010 ended in you use 21 years of age articles that will fulfilled the inclusion conditions. Seven important types of the function in the health care worker have been identified: (i) advocacy/health advertising (including utilizing loved ones); (two) assessment/case administration; (3) behavioral surgery; (four) communication; (v) management as well as the nurse's position within the multidisciplinary crew; (mire) functions concerning medicine administration; along with (vii) safety/risk supervision. There's a scarcity associated with research concerning the function associated with nursing staff working with individuals with DD, even though a number of opinion-based posts occur. This informative article determines an excuse for the part in the health care worker employed in DD to be more clearly articulated as well as the progression of evidence to steer best apply.One " floating " fibrous tumors (SFTs) really are a unique band of mesenchymal neoplasms of fibroblastic or perhaps myofibroblastic beginning and therefore are really unusual in the jaws. The existing review described a pair of further instances of SFTs in the gentle palate, combined with calculated tomography traits, which usually exhibited well-circumscribed soft cells lesions on the skin using crook and homogenous development. Subsequent vast resection, one of several cases revealed particular cancer pathological characteristics, such as infiltration involving mucinous human gland, hypercellularity, atomic atypia and also vulnerable beneficial yellowing with regard to S-100. Inside our encounter, SFTs might be of interest like a differential medical diagnosis every time a well-circumscribed along with sound bulk from the delicate taste buds is actually identified.

#Stem Cell Signaling Compound Library #HIF inhibitor #Filgotinib #Pepstatin A #SP2509 #Purmorphamine #Tideglusib #Ostarine #Sodium butyrate #Epirubicin #OICR-9429 #Tasquinimod #Celecoxib #Hygromycin B #SU5402 #VER155008 #Selonsertib #Losmapimod #GSK-LSD1 #Raltegravir #Cidofovir #Ledipasvir #Amprenavir #Velpatasvir #Ombitasvir #Paritaprevir #Penciclovir #Indinavir #Dasabuvir #Camostat

[higheverweave]

It seems I’m spending today Educating folks on my Autism diagnosis and Nuerodiversity as a whole:

So I will open this thread as a judgement free education zone for those who Geniunely want to learn or update some language.

You can put on Anonymous if it’s more comfortable or DM

Thanks

#asd #autism #actually autistic #asking autistics #medical question #doctors #nurses #paraprofessionals #special ed #developmental disability #DD and IDD #IDD #social groups #self advocacy #self advocate

[awn-network]

#actuallyautistic #actuallydisabled #i/dd #self-advocacy #self advocacy

[withasmoothroundstone]

My Offline Social Life In a Nutshell

I kneel in my garden You bend over in yours I am weeding zucchini You are watering corn

Staff talk to each other They talk to you and to me You and I don’t talk to each other But sideways-glancing, we see

[Image description:  Large field, of plants, there’s a weeded spot that’s mostly just dirt, I’m kneeling down pulling weeds, you can’t really see my face.]

Most of my in-person social interaction works like this.  It’s as much an artifact of the developmental disability system I am forced to live in to survive, as it is an artifact of anything particular about me or the woman I wrote this about, who I have only met in this kind of context.  

I owe my life to the DD system.  I have given up so much to survive the DD system even at its best.  Neither of these things can be ignored.  Everyone who uses this system to survive, gives up things you may not be able to imagine.  This should not inspire pity or a sense of sad inevitability -- “things have to be like this, it’s too bad” -- but outrage and love and common humanity.  This is an area where people don’t really differ from each other in anything but shape.  Don’t kid yourself that we’re some kind of second-tier human beings who innately can take this because we’re not quite as real as you and don’t feel it.  Most of us spend our whole lives shoving our humanity into boxes to survive and it’s never enough to please the forces that push us in that direction.  We feel it.  It always comes out in one way or another.  All of us.  Even those of us in hiding from ourselves.

I’m nervous about telling you the price we pay to be here.  I feel like i’m revealing a dangerous secret.  I feel like, in a system that is taking the place of something much worse, a system I need for survival, a system under threat right now, is not something I should be openly criticizing.  But if it continues without change, with everyone simply saying we’re lucky it exists -- which we are, but that’s not the whole story.  And without people knowing the whole story, we try to cram our souls into boxes.  Our souls eventually object.

Meanwhile we often try to connect with each other indirectly rather, as described in the poem.

[If you want more on why and how our souls object, see this post, It’s long.  But thorough..]

#actuallyDD #actuallyautistic #gardening #spilled ink #self-advocacy #poetry #social life #socialization #offline social life #offline socialization #indirect socialization #parallel socialization #indirect interaction #parallel interaction #developmental disability #DD services #DD system #being human #being real #being a person #real person #humanity #personhood #communication #indirect communication #parallel communication #DD self-advocacy #garden #zucchini #corn

[deleteddewewted]

If its okay I would like to say something about the anti All Might drama? I do think it was way out of line for anon to come at you like that. This is coming from someone who pays for art my self insert and Toshi, he is an incredibly flawed character. Flaws aren't always narcissistic, or selfish or super controlling. Flaws in a character can be something like incredibly self sacrificing to the point you destroy your own body. Its because of his own self consciousness and need to be valued as a person that Toshi would stay up for days before resting, and even then it was because his body could not continue on, as we see in Vigilantes where he falls unconscious mid leap across town cause of exhaustion. 

And it's okay to admit these flaws and still like him! That's a part of good story telling, is flawed characters still being loved because they feel more real. I do question the use of the word "grooming" when it comes to his relationship with Izuku because it's already established that Izuku wants to save everyone and is willing to sacrifice himself for that to happen. Toshi saw that same self sacrificing spirit and saw a younger version of himself, also wanting to save everyone. Neither of them realized how dangerous this could be.

Let me clarify, as an adult Toshi should know better. He can see for himself where that mentality got him, with a missing lung and stomach. However, I think Toshi genuinely believed that Izuku would stay safe no matter who he went up against with OFA. At the start of the series AFO has been dead for 5 years (as far as Toshi and the audience knew) and was the only one who could injure him.  No other villains ever came close to hurting Toshi. He was always faster, stronger, and smarter. He saw the same traits in Izuku and thought he would be perfect to carry on the duties of being a real hero. 

Toshi still left the decision making up to Izuku. He had stated on the rooftop that he couldn't tell Izuku to be a hero because hes seen what happens to people who aren't strong enough to fight villains. In his career I'm sure hes seen more than one person get killed trying to do the right thing, and this boy he barely knows, who he just saved from death even, is saying he wants to be "just like him". And so Toshi tells him no, and to think of a more realistic life goal. This was the right call as an adult in this situation. Obviously Toshi isn't going to just hand his quirk over to the first person he meets who says they want to be like him, he gets that everyday no doubt. 

But Izuku suprised him and made him rethink his words, and even offer to train him, something Toshi has never done. It is Izuku who agrees to training and taking on OFA even with Toshi admitting to him it's going to be super hard. He has no hold over the kid when offering this. Izuku saw that day how dangerous coming into contact with villains is and Toshi doesn't do any kind of manipulation. 

I saw it mentioned in another analysis once that even after they both realized how bad their situation is (with AFO back and Izuku being unable to control his power) that at that point Toshi could have quit on Izuku. Could have made him give OFA back or to another student like Mirio. It would have been a more responsible, safe thing to do at the time, but would have led Izuku down a dark path. The writer had made a comparison of Izuku ending up like Dabi, who's father was grooming him and quit on him the moment it seemed like it was a bad idea to continue. Just like Dabi, Izuku's quirk hurts him, but Toshi actually helps him work through that and learn to control it. Could you imagine how devastated Izuku would be if After all his hard work and training Toshi just said "nevermind give me OFA back, I'll give it to someone else"?

I think Toshi was aware of this and is why he dedicated himself to teaching Izuku. Sorry for such a long analysis, I wanted to give my thoughts on a couple of the topics being discussed. 

(@skeleton-aesthetic-bitch)

--------------------------------------------------------------------

(DD's response)

You're analysis is fair and i agree with a lot of your points. To clarify some of my wording regarding grooming, i did say that Toshi was grooming Midoriya. Grooming can be seen in many different ways, unfortunately in our world we see it more as a way to exploit and abuse children to make them do sexual acts, but in the context you yourself present its not in that context.

Endeavor groomed Dabi to be the person to surpass him and All Might out his obsession with the man and his need to beat him. We can see the full extent of it in the recent volumes with a full back story.

As for All Might, the grooming statement i based it off of the source Child Advocacy Centres of Alberta which holds a list of the stages of grooming of a child as well as the NSPCC own definition of child grooming. I agree that Midoriya had his self sacrificing personality way before All Might came into his life physically and that All Might didn't give up on him and helped him with his quirk development to the best of his ability. Toshinori be it in his attempt did fail to make sure that Midoriya kept safe within a limit, Aizawa and Torino being the ones to recommend and enforce Midoriya stick to what he could do and slowly build up to a higher potential, which lead to Midoriya's injuries.

Just wanted to clarify the grooming part but i do agree with your analysis and it was honestly refreshing to hear/read someone else's opinions. As for the anon that was sending those comment, i haven't seen them in my inbox and the original person apologized for the comment they left. I have no issue with the commentator but anon was a bit out of line with their words. Thats in the past now but please feel free to use my inbox for your analysis in the future. I will admit i look at people with a darker intention so my analysis usually looks into that but i also try to give redemption from time to time. I don't think you'll ever find me trying to give Overhaul or AFO redemption but everyone else is free game.

Thank you for sending in your personal analysis!💜

#submission #DD answers #all might analysis #all might #toshinori yagi #mha #bnha

[cannondisabledcharacters]

Charity Straw poll

To celebrate reaching 2,000 followers I will be donating to the following charities. Each charity will receive money based on how many votes it gets. The first place charity I will donate $50, the second place will get $25, third will get $15, and last place will get $10. So vote for your favorite charities!

Straw poll

Below are the description of each charity

Autistic Self Advocacy Network

The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Nothing About Us, Without Us!

Website Link

AIDS United

AIDS United’s mission is to end the HIV epidemic in the United States. Your donation helps us fulfill our mission through strategic grantmaking to grassroots organizations led by and working directly with People Living with HIV/AIDS, capacity building and leadership development for our grantees and others, and policy development & advocacy in support of local, regional and national government initiatives that advance our mission.

Website Link

4 Paws for Ability

Provide as many children as possible, within the scope of our ability to serve, and with disabilities falling under the definition of such in the Americans with Disability Act (1990) with access to a qualified service dog trained specifically for their needs, with no minimum age , and regardless of the severity of the disability.

Website Link

The Arc

For nearly 70 years, The Arc has been at the forefront of the fight for the civil rights and inclusion of people with intellectual and developmental disabilities (I/DD) and their families, playing a lead role in major victories in civil rights, community living, education, income security, and other important issues.

Website Link

If any of these charities are problematic please inform me and I will find another charity

#not character of the day #update

[adhbabey]

hi! I'm a sixteen year old girl, and a couple months ago I realised I might have ADHD. it's done wonders for my self-esteem to realise this because it means that it's not my fault for not being able to just do things, it's my gremlin brain's fault. Anyway I'm going to get an official diagnosis in the summer cause I'm able to get one. I love your blog, especially the bit about self-diagnosis. my parents are a bit skeptical cause they're like 'you just need to focus harder' and 'you can't believe everything on social media' but I ticked 73% of the symptoms on your page (yeah I'm kind of obsessive). How would you recommend dealing with people like that?

Thanks! And I love your blog, it's so helpful! :)

I apologize for not answering sooner, adhd be hard. But I do see u in my notifs :DD!!

You definitely sound like you have adhd, and the best advice I have is self advocacy. Stand your ground no matter what and don't budge with people who say you can't have ADHD. Say like "I want the doctors to decide" or "If I can talk to a psych, they will have the answers." Rather than shouldering the answers alone, say you want an expert to see. Parents can't really get in the way if they're not the authority on all the knowledge ever. You may have some leeway there.

And if they still won't budge, talk to your school counselor, and see if they can find a way to test you for ADHD. You do have some power, even if it's harder to find. I hope you get a diagnosis at some point, I believe in you!

Stand your ground no matter what. Don't give into people who say they don't believe you.

#babey asks #advice #adhd diagnosis

[marlon217700-blog]

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