something i noticed when watching pogtopia is that wilbur actually always had food on him and was always eating and keeping his hunger up even when he was hardly low enough to need it and it was such an interesting thing to see from someone so obviously suicidal and mentally all over the place and pointedly doing everything he could to make his and his loved ones lives as miserable as possible. but then i realized, that’s just it, it wasn’t about living it was about survival because wilbur was determined to survive for as long as it took to make his death fucking incredible, his end explosive and meaningful, and making sure a few potatoes were in his pocket and mouth at all times was more than a fair trade to get that ending.
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Summary: Unmasking Autism by Devon Price has a lot of good insights, but in my opinion could use more nuance about the harms experienced by early diagnosed autistics and autistics who can't mask.
I've been listening to the audiobook of Unmasking Autism by Devon Price. There's a lot of really good information in it and a lot that's really relatable as a late diagnosed, trans, fairly high masking autistic and I have a few criticisms of it:
It seems that Dr. Price falls into the common "grass is greener" pitfall. The book is focused on the harms of masking and the way that oppression forces many marginalized people to mask. It also discusses the way that this causes many marginalized people to not be recognized as autistic, which robs us of a valuable tool for understanding ourselves and our struggles. I felt that the way these very really harms were discussed sometimes minimized the also very real harms that come with being diagnosed as autistic as a child, especially for marginalized people. These discussions also didn't acknowledge the fact that some autistics cannot mask and experience specific harms because of that.
Similarly, I felt there were some missed chances to emphasize the internalized ableism component of the urge to distance ourselves from the label autism. This was framed in a discussion about how certain stereotypes about autism can make it more difficult to recognize and identify with autism within ourselves, but many of those stereotypes, like "the nonverbal toddler in bulky noise cancelling headphones at the grocery store, do represent some very real autistics who are also valuable human beings. This was addressed some later in the book than when this criticism first arose for me, but I think it's something that should have been more emphasized throughout. Similarly, there could have been more emphasis that people who do fit certain other labels also deserve to be treated better when when discussing the stigma that comes with some misdiagnoses autistic people commonly receive, such as personality disorders.
At least as far as I've gotten, there's a fair amount of discussion of eating disorders among autistic people, but this discussion has been strictly about restrictive eating disorders and primarily anorexia. It's fine to focus on that, but if you claim to be discussing eating disorders generally you also need to talk about bingeing. ARFID should also be included, especially if you're talking about autistics!
There's a lot of discussion about maladaptive drug use and substance use disorders among autistic people, but so far I feel there's been a lack of recognition that drug use can be adaptive as well.
So far, I think I would overall recommend the book. However, I do also worry about what people reading it without also having heard the perspectives of high support needs and/or low masking autistics may take away from it. Similarly, I also think people reading it should be sure to seek out the perspectives of people who do identify with BPD, NPD, schizophrenia, and other highly stigmatized disorders that autistic people are sometimes labelled with.
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