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#Multiple Sclerosis
tfw-adhd · a year ago
I made some Sensory Overload Cards that you guys can use - sometimes everything can become too much for us to cope with, and we can feel overwhelmed and want to go somewhere quiet to calm down. 
I’ve walked out of class a couple of times because I was experiencing sensory overload, and I thought it would be a good idea to have some cards that we can show teachers/friends/whoever if we need to leave the situation but can’t bring ourselves to talk.
Here’s a link to the PDF that you can print out and cut up - there’s eight identical, small cards so that there’s enough for you to put one in each bag/jacket pocket so that you always have one with you.
I hope this helps!
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yourdailyqueer · a year ago
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Mikey Neumann
Gender: Male
Sexuality: Asexual
DOB: 16 April 1982
Ethnicity: White
Occupation: Prof video gamer, Youtuber, video game writer, film critic
Note: Has multiple sclerosis
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beaky-peartree · a year ago
i sometimes get asked what exactly is multiple sclerosis and what does it do? well ive finally came up with an image that can sum it up entirely:
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neurosciencestuff · 3 months ago
Simple sugar found in human breast milk possible therapy for repairing myelin in multiple sclerosis
N-acetylglucosamine, a simple sugar found in human breast milk and sold as an over-the-counter dietary supplement in the United States, promotes myelin repair in mouse models and correlates with myelination levels in multiple sclerosis patients according to a new University of California, Irvine-led study.
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(Image caption: Shown are brains of newborn mice treated with or without N-acetylglucosamine by providing their nursing mothers with N-acetylglucosamine in their drinking water. Secreted in breast milk, N-acetylglucosamine entered the brain of nursing mice and stimulated myelin stem cells to promote myelination as measured by increased levels of staining (green) for both myelin basic protein and myelin (fluoromyelin). Credit: UCI School of Medicine)
Published in the Journal of Biological Chemistry, the study also demonstrates that in mice, delivering N-acetylglucosamine orally to lactating mothers drove primary myelination in their nursing offspring. N-acetylglucosamine is a simple sugar that is metabolically attached to proteins at the cell surface to control cellular function.
“We found that N-acetylglucosamine activates myelin stem cells to promote primary myelination and myelin repair,” said Michael Demetriou, MD, PhD, FRCP(C), professor of neurology, microbiology and molecular genetics at UCI School of Medicine and leader of the study. “Our data raises the intriguing possibility that N-acetylglucosamine may be a simple therapy to promote myelin repair in multiple sclerosis patients”. Formal human studies will be required to test this theory.
The failure of robust re-myelination following inflammatory demyelination in multiple sclerosis leads to chronic disability and neurodegeneration. Myelin insulates the long, cable-like nerve cell branches called axons, and serves to increase the speed of electrical signal conduction between neurons. Myelination in the central nervous system also plays an important role in cognitive development during childhood.
“Interestingly, since N-acetylglucosamine is a major component of human breast milk but not baby formula, it may explain some of the cognitive function and myelination benefits realized by children fed breast milk as opposed to formula.” said Michael Sy, MD, PhD, assistant professor of neurology at UCI School of Medicine, co-director of the regional MS program at the VA Long Beach Healthcare System, and first author of the study.
Dr. med. Alexander Brandt, MD, who led the clinical parts of the study together with Dr. med. Friedemann Paul, MD, added, “The association of reduced N-acetylglucosamine serum levels with white matter changes in the brain of patients with multiple sclerosis suggests that N-acetyglucosamine deficiency may contribute to disease severity.” At the time of the study, Brandt has been the head of the Translational Neuroimaging laboratory in the Clinical Neuroimmunology group at Charité – Universitätsmedizin Berlin, which is led by Paul. Brandt has since transitioned to the UCI School of Medicine as associate professor of neurology.
Formal clinical trials are required to test the applications identified in this study and are currently being pursued by the investigators.
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whumpster-dumpster · a month ago
What injuries would make it so someone can't walk anymore?
Any of these could cause paraplegia:
spinal cord damage i.e. in a car accident
cerebral palsy
nerve conditions
multiple sclerosis
spinal tumors
brain tumors
hereditary spastic paraplegia, a rare genetic condition
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huffpost · 2 years ago
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Selma Blair Walks The Red Carpet With A Cane After MS Diagnosis
Selma Blair showed just how strong she is appearing on the Vanity Fair party red carpet during the Oscars on Sunday.
It’s the first red carpet appearance for the actress since she revealed that she was diagnosed with multiple sclerosis back in October.
“She needs a cane to help walk, but she came to prove that no matter how tough this disease, she is a fighter,” wrote Jessica Radloff, the West Coast editor for Glamour who tweeted out a video of Blair on the carpet. 
The “Legally Blonde” and “Cruel Intentions” star announced that she was diagnosed with multiple sclerosis in October 2018.
“I am disabled,” Blair wrote in an Instagram post at the time, noting that she first found out she had the disease in August.
“I fall sometimes. I drop things. My memory is foggy. And my left side is asking for directions from a broken GPS. But we are doing it.”
She added that she’d likely had the “incurable disease for 15 years at least,” but that she was relieved to finally know what she had.
“I have MS and I am ok,” Blair added.
Read more of Selma Blair’s story here.
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mslifelines · 3 years ago
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Talk to your doctor immediately if you think you’re experiencing symptoms of depression, or call the National Suicide Prevention Hotline at 1-800-273-8255.
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alpha-tequila-uncle · a year ago
Able-bodied Fuck: If your pain is chronic, shouldn’t you be used to it now & basically not feel it?
Me: If I never stop punching you in the face, shouldn’t you get used to it & basically not feel it??
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mslifelines · 3 years ago
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Living with MS is not easy by any means. That’s why lending a hand in any way can mean the world to an MSer. Even if it’s something as simple as being driver for the day.
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mlm-saeran · 3 years ago
Me: hey insurance company, do you think you can pay for these very important treatments, if i dont get them I'll either end up bed ridden or dead
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killin-it-captain · 3 years ago
If You’re Able-Bodied, You NEED To Read This RIGHT NOW.
Lately I've been making a point to go over and spend some time with my mom. Today I found her trying to be hospitable but clearly somewhat irritated. After some unrelated conversation, she finally told me what was on her mind.
My mom has MS. That's multiple sclerosis. It's an autoimmune disease wherein the body's immune system begins to attack itself - specifically, the myelin sheaths that protect the nerve fibers in the brain. Some people with MS also experience damage to the nerve fibers in their spine. Essentially, the nervous system is the focus of this disease.
There is more than one form of MS. My mom has relapsing-remitting MS. That means she has periods of time where her symptoms are less severe (note: LESS SEVERE, not gone) and other times - flare ups - when her symptoms are debilitating. The symptoms are varied and there are a LOT of them. Not everyone has the same symptoms, it just depends on how much damage has been done, and where.
Mom experiences extreme, debilitating fatigue the likes of which no able-bodied person can comprehend. It strikes without warning and puts her down fast, sometimes for days at a time.
She experiences nerve pain. Phantom itching. Brain fog. Trouble with recall. And these things are in addition to other diagnoses, which are her business and won't be discussed here, but often interact with her MS in unbearable ways.
But do you know what mom was most upset about today?
The attitudes that people take toward people with invisible illnesses.
See, mom feels like she has to hide her symptoms and try to behave as much like an able-bodied person as possible. She feels like she can't vocalize it when something is bothering her. Why? Because able-bodied people believe AND SAY very insensitive things about her, and that's more unbearable to her than her ACTUAL DISEASE.
"Oh, I know, I'm so tired too, I didn't get any sleep this weekend!"
"Why don't you just take a nap/drink a coffee?"
"You should try changing your diet, maybe if you didn't drink so much soda..."
"You don't look sick/you seem fine!" (I think sometimes people mean this as a compliment. It's not.)
And worse are the people to whom she has explained what's going on and why she can't just overcome it with sheer willpower or some Tylenol or a cup of coffee, and who still say the same insensitive things to her.
Do you know what she said to me today?
"When I tell someone about my disability, I don't want them to do anything. I don't want them to feel sorry for me. I don't want them to try to help me. I just want them to know something."
She just wants them to understand, so she doesn't have to waste spoons explaining again and again. Or bottling until she bursts. Or be judged as lazy, or a miserable complainer. She just wants people to be told the facts, and then know them, so that when her disease strikes, they can say to themselves, "I know what's going on here," and not say something insensitive that chips away at her.
So you know what I'm asking everyone who reads this to do tonight? Open Google and search "autoimmune diseases." See about the various types that there are. Click on a few. You can start with MS. Maybe move on to Lupus. There are a bunch. Or just read about what autoimmune diseases are and why they're classified that way, what they can do on a broad scale.
These are just one type of so-called "invisible illnesses," and they account for a good number of disabilities experienced by people the world over. I want you to think about the ways that people can hurt that you would never know about if they didn't tell you. And then think about how society makes them feel like they're not allowed to talk about how they hurt, lest they be judged as complainers who don't try hard enough. Think about how they have to deal with that STACKED ON TOP OF the debilitating illnesses they're already living with.
And then I want you to think long and hard about the meritocracy we live in, and what you can do to be more mindful of the way it disenfranchises disabled folk. Think of ways you can respond to people that don't delegitimize the symptoms of invisible illnesses, and use those alternatives ALL THE TIME, just in case you're talking to someone that doesn't want to let on that it's their illness that's causing it.
We can all do a lot by making this effort. It's worth it to make the world a more hospitable place for those among us who struggle most.
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thebibliosphere · 2 years ago
I dunno about all y’all but I am absolutely lovingliving in the future where medical science is finally starting to get to a point where chronic conditions and diseases once thought to be “mental weakness” or, given how MS predominately effects women more than men, “hysterics”, (and then largely for the last 40-80 years “we dunno but this shit is legit”) are finally being picked apart out in the open and hey, actually, it looks like it’s a mixture of genetics, environmental factorsand a whacked out immuno-response to various different pathogens setting the body off on a self-destructive spiral. Neat!
Isn’t that neat? Isn’t it nice to think that maybe in the next few decades, armed with this knowledge, there might be a solution for shit like this?
What a time to be alive.
Fuck yeah.
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You know what? I'm gonna say it
Shoutout to the chronically ill boys with medical devices (or other things that aid them/make life easier) that they can't just leave behind
The ones who are embarrassed about their equipment because of social stigma
The ones who AREN'T embarrassed but are told they should be
The ones with ostomy bags
The ones with insulin pumps
The ones with inhalers
The ones with hearing aids or cochlear implants
The ones that have to carry EpiPens everywhere because of severe allergies
The ones with long term catheters
The ones who have to/choose to wear incontinence products
The ones with mobility devices
The ones with limb braces
The ones with prosthetics
I see you, and I love you.
Feel free to add on
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