Me stimming my way trough the house, does some dance pirouettes, thinks about my current hyperfixation and lies down on the floor while crying bcs i saw a bee
“Anyone can be an artist, you just need practice!” Not if you have poor fine motor skill control like I do. This whole “you can do anything you put your mind to” thing, while encouraging on paper, is just a touch ableist.
hi! hope you're having a good day! i would like to ask a question. it's something you've talked about before, i'm pretty sure. but what do you think or feel when people say, "visibly autistic doesn't exist?" i saw a post on reddit talking about how you can't be visibly autistic, and it ticked me off. i myself am not quite visibly autistic (i am low support needs, probably level one but no official diagnosed level), and i would like to hear from someone who has higher support needs than i. of course, absolutely no pressure to answer! you are not obligated to talk about this at all. thanks for your time!
Hi anon! I think this is a very important topic and I’ve talked about it in the past as well.
Honestly, it pisses me off. Because it ignores a HUGE population of autistic people. A lot more autistic people are higher support needs than people think. I think it was said that 26% of autistic people have “severe” autism? Or around that number. Although that doesn’t include those with medium support needs, and the likes.
When people are saying that “autism is invisible” they’re ignoring people like my friends and me. They’re ignoring those of us who do look autistic, who do need care in everyday life, who are visibly autistic. And it pisses me off when people say it. It’s 100% ignorance. Ignorance towards those who are higher support needs and low masking. And even those who ARE lower support needs and low masking, which is a thing.
Low masking autism, visible autism, is a thing. And people love to acknowledge it until it doesn’t fit their quirky idea of autism. Until it doesn’t fit the silly hand flapping and being “quirky”. When it doesn’t fit that, when it involves violent meltdowns, needing help using the bathroom, needing help every single day with “basic” things, suddenly it doesn’t exist to them. It isn’t possibly autism, it’s something else. It’s intellectual disability, it’s this, it’s that, it just isn’t autism. It can’t possibly be autism, right? /sarcasm
It annoys me so much, and I think more people need to talk to higher support needs, low masking individuals. They need to talk to them. They need to expand their social media coverage and friend groups. They need to see these things and believe it, because autistic people are here, and they’re visibly autistic. One autistic person isn’t going to look the same, they’re going to have different needs, but that doesn’t mean that autism doesn’t have a look for some.
sometimes i feel like people forget autism is a disability. and that’s not a bad thing! i’m all for disability acceptance, im proud of my disabilities. but i feel like we forget autism can hurt.
it hurts that i have to put more time and energy into socializing than others.
it hurts when i need to move so bad, usually cause im overwhelmed by either my surroundings or emotions, that i thrash and hurt myself.
it hurts that i cant be in places that are too loud or too bright, which on bad days can be as simple as a small, quiet noise or dim lights.
it hurts that i struggle to tell when im hungry, thirsty, tired, etc. so i can’t properly take care of myself. it doesn’t help my insomnia and i get very nauseas and get UTIs.
i 100% believe in autism acceptance. i don’t want a cure. but i also want us the acknowledge that it can hurt. it doesn’t mean my entire life will hurt, but some parts will. and i want a community where we can see both sides, see the hurt, and celebrate it anyway.
Idk who needs to hear this but it's okay to cry over spilt milk. You dropped your food and you were really excited to eat it? You can cry, you're not any lesser than anyone else because it's made you upset. It's not silly if it made you sad.
By keeping a tray full of no prepare necessary food, in the fridge it can be used to aid neurodivergent or fatigued people.
By putting food like, cheese and crackers, or whatever is a safe food for you personally on the tray, it can be taken easily to the couch or bed to be eaten from whenever you are hungry.
This prevents executive dysfunction or fatigue and any reason preventing you from eating. You need to care of yourself because everyone needs food to stay alive including you.
You deserve to eat even when on a bad brain day and are unable to prepare a meal for yourself.
If not having a full meal doesn't satisfy you, a snack may even give you the energy to make a full meal afterwards!
Nobody talks about not knowing when you need to eat, drink or pee. Not knowing when you're in pain, or why you're in pain. Not being able to communicate what you need.
Or when change is so hard to deal with you have meltdowns and outbursts. When you can't control your anger and hurt yourself or others. When you can't emote unless you're breaking down.
Or when you can't understand what someone is saying, what you're reading, anything. When you can't even try because trying makes it worse. When you ask for help but not getting what they say just makes you more frustrated.
And so many more difficult experiences we have to deal with that no one likes.
Just a reminder that people who still live with their parents as adults deserve respect and for you to stop being ableist. There are multiple reasons someone could still live with their parents! From invisible to visible disabilities, finance issues, and more!
Stop using the “well they’re gonna turn into a creep living in their parents basement” punchline! It’s disgusting. STOP. BEING. ABLEIST. STOP. FORGETTING. THE. POOR.
what matters most about your interests is that they make you happy. whether other people find them productive is irrelevant. you don't have to produce anything. you are not a machine. your interests aren't for others. your interests are for you. do what makes you happy.