#and my muscles and bones hurt so bad

[lastoneout]

So I've noticed recently an issue I tend to have with a lot of pain clinics and doctors in general is that I tend to have appointments early in the day when my pain isn't as bad as it usually is by the end of the day, and so I'll be like "yeah I have pain in my back and knees" and so they'll have me move around my back and knees to see what hurts, but since my pain isn't bad yet those movements don't hurt, so then they think I don't have pain or at least they don't believe my pain is as bad as I say it is. (Which extra sucks bcs typically those movements do hurt...AFTER the appointment. Which isn't helpful.)

So I've decided for my next intake I am going to schedule it as late in the day as I can and then spend the time before it doing anything I can think of to purposefully make my pain as bad as possible so I'm like, actually in believable ammounts of pain when I go in.

Should I have to do that? No! Is that bad bcs EDS is a degenerative disease and so doing things that hurt on purpose is really bad for me? Yep! Am I going to have to do it just to get these clowns to take me seriously? Absolutely 🙃

#like my last doctor sucked for a lot of reasons but he was SO convinced my pain was muscular #because I went there at like 9am and was feeling okay so when he asked me to move my back #the only thing that hurt was the muscles stretching #and so he just didnt believe my pain was coming from my nerves and my bones #despite the fact that I have imaging and diagnosises proving it's my nerves and bones #and then the muscle relaxers he prescribed didnt help at all and he was like *shrug* idk #fucking clown show #so yeah #just gonna have to Make Sure my pain is bad when I go in so they believe me

[theforgottendaydreamer]

not my leg deciding to start hurting again so close to the 2nd anniversary of me harming it so bad i ended up in the ER?? my leg knows?? it rememebers the day?? yikes.

#is it my psyche or #what's going onnnn #it hurts so bad i swear. i don't usually mind bone/muscle/nerve pain bc i have that like. often. very often. #but this injury in particular- it hurts aa #and no i didn't cut it!! i was hhhh having an episode?? crisis?? idk. and i stomped my bare foot. hard. fucked it up forever. #i don't even remember it well?? i wasn't myself.

[baka-monarch]

.

#crying alone in a bathtub cause my family used up all the hot water and from my own foolhardiness the plastic is already off the bathbomb #i literally took a bath last so i wouldn't use up all the hot water for my family #and now everyone else has used it and all i have left is cold water #i feel selfish for being upset at not having warm water #and sad cause i wanted hot water on my aching muscles and bones #because i woke up with my body in pain for no reason them i had to go to worm #work* #but I feel like I'm being selfish and shouldn't complain about the water because I've used up all the hot water before and it's the whole #reason i got in last #so now I'm in a puddle of cols water and crying alone and feeling guilty and bad and sad and hurt

[barksbog]

do any of you fellow gremlins have experience with working out when you´re struggling with fatigue and chronic pain?

i´ve been wanting to do a little more exercise and i can´t stand running, biking, swimming or fast walks. they tend to exhaust me way too much and i just crash for a at least a day afterwards.

i used to do workouts with my own body weight because i can do that at home at a slow enough pace that i won´t crash but most of those exercises are very heavy on my wrists and shoulders. i can´t even do situps anymore because my hips make a very scary popping sound jsfksdf

#basically my bones do things they shouldn´t and it makes my body hurt so putting more stress on it is really hard #i used to do a lot of pushups but my shoulder stuff has gotten so bad that i haven´t even dared to try in months #but i can also tell that i´m actively loosing muscle mass which isn´t improving things ):

[peapod20001]

I am the nail growth self saboteur!!

#random post #guess who rammed their hand in a wall and broke off the literal short nail on their hand?? this guyy #I’m prone to ramming parts of my body into things. it’s comical really #like a week ago I somehow bashed my hip into a drawer handle. because that’s how I roll 😎 #it hurt bad enough to shock me into silence </3 I got scraped bad enough for my parents to go ‘GASP. PEAA!!!! WHAT DID YOU DOOO???’ #read that in concerned parent voice if u would #it’s funny when I get hurt or do smth bad and I’m asked why I’d do that. like we both don’t know I function like a scarecrow brought to life #and learning to walk with no bones or muscles HHFSCREE #it’s fine now pain only hurts in like the first few moments and then it’s chill #got off topic there but anywayssss yea :> I’m just glad it was the one that was already broken an not a longer one #I’m surprisingly optimistic I’ll have u know. contrary to popular belief #adhd moment but do u ever think how we’re the first generation that will grow up and grow old on the internet? #do u ever think about what that’ll mean for us? or what it looks like? will there be a time when we just don’t log on ever again? #I also sometimes think of the internet graveyard. the millions of accounts that are no longer used either by choice or by some other #circumstance like passing away. I think we’ll only know when the future generations see a post by someone with a date 100 years in the past #these aren’t negative thought they’re just thoughts I have. a negative thought would be me wondering who will tell the world I’m gone so I’m #not waited on. obviously that’s not a problem I hate to worry about now but then intrusive thoughts do be intruding. anyways yea when I’m #gone at like. 80 (?) I’ll release my creations into the wild for people to do whatever with. it’ll be like an intrusive species lmfao my #impact on the world will be fucking up the online ecosystem forever #ok I’m done rambling now lol did you know I was holding a muffin while typing this entire thing? one handed I might add!! the chaos can’t #be contained no matter how much adderall u pump in me

[jonny-b-meowborn]

Everything hurts oighf ouchg

#idk if its my period or if I'm sick or if its some secret third thing #but. my muscles hurt #and bones #and tummy #and head #i was playing sims but im just too tired for that #i tried watching a youtube video and just doing a puzzle or a coloring book on my phone #but it feels like my body is too heavy for itself #like im sitting down but it feels like thats a lot of effort #i need to lie down #maybe get a nap #but like i felt a bit bad yesterday n i assumed its because I'm on my period n the day before i went out with my friends n was very tired #so i was like yeah im just tired and sore after hours of walking #but today it got even worse #like i had to sit down while making breakfast and its not a thing that happens often to me #idk i hope im not sick or anything #bee buzz

[coffee-bat]

the more i read tf2 fanfiction the more it's obvious who played paintball at least once in their life and who didn't

#by which i mean. people SEVERELY underestimate how much it fucking hurts to get shot #if you ever got hit in paintball you'd know a bullet (yes even one) isn't something you just walk off with no issue/act normal after #even if you're a trained mercenary. you won't be able to just fully *ignore* a bullet wound. #like paintball obviously isn't the real thing. BUT once you get hit with that and think you're dying you can imagine what the real thing- #-would be like💀 #it's a shaping experience i think everyone should get their ass kicked in paintball at least once /j #ramble #like bro genuiely. you ever played paintball? #it's treated so lightly but at least where i'm from it's hard rubber balls shot from rifles hard enough for thick rubber to break on impact #it's not toy guns. it's air rifles. this shit hits hard (only difference is that it doesn't penetrate). #one time i got hit in the arm and it crushed the fucking muscle all the way to the bone (as it turned out in the hospital)💀💀 #//also offtopic my first time getting shot was so funny (not at that moment ofc) #like i got hit in the right shoulder (the joint) and it hurt so bad i thought it broke a bone #then when i automatically clutched my shoulder it was wet and sticky💀💀💀💀 i near fainted lmfao

[mothheart]

Its too early to be getting a migraine already

#💔💔 #still not sleeping right #and my neck hurts so fucking bad. and its probably why im getting a bunch of migraines along with tbe no sleep #but idk what to do to help it lol #need to be slammed against a wall like a wet fish until every bone and muscle in my body is forcibly reset #itd work trust #itd work. trust #miles rambles

[pitiful-anonymous-vampire]

venting because I need to

I’m shocked that people know I can’t move half my jaw and, when I’m able to talk, I often have to talk through my teeth

they will know when this is the case

they will still expect me to sound a certain way and adjust my “tone” and, if my “tone” is off, I’m being “mean” and “horrible”

just try talking through your teeth while not moving your facial muscles or your tongue. then tell me I’m using a “mean” or “disrespectful” tone

#also when I don’t talk I’m being rude and mean and disrespectful #when I use a text to speech program I’m being annoying #when I text I’m being rude #when I write what I want to say on paper or something I’m being frustrating #I just can’t win no matter what I do #it sucks #and what’s worse is the people who complain take a tone with me every single day #a real tone not a disorder that prevents them from speaking #I’m tired of always being the bad guy #I want a hug #🥺 #sorry the deterioration of my bones and muscles and everything hurts your feelings that must be so hard for you 🙄 #tw sad #tw rant #tw venting #tw vent #tw vent ish #tw medical stuff #disability

[orcelito]

i think it's just in my nature to get stabbed

if i count this, then this would be the 3rd stabbing i have endured

#speculation nation #it very much follows the trends i saw in my prior stabs #aka tiny lil entry point but Much Blood #& other external signs such as bruising #like listen. she got me GOOD. i knew as soon as it happened that she cut me deep #slapped my hand over it and there was instantly blood. that doesnt usually happen for cat scratches for me. #this wasn't a scratch. this was a stab. i got stabbed in the Cheek. #nonzero chance it will scar. my other two stabs sure did. #also for new followers who have not heard the stories: one was a drink thermometer at work n the other was my machete #dropped the drink thermometer and tried to catch it. slammed it point-first into my palm. went a good half centimeter in. Ow. #machete was bc i was storing it in a random other box and forgot. upended it & dropped it point-first onto my finger #INCREDIBLY lucky it did not like. cut my finger off or w/e. it definitely hit the bone but it was on the backside of a finger #so it didnt hit anything essential. and really just kinda hurt like a bitch. #i have a backwards checkmark scar on my finger from it lol. i was very Very lucky. #also lucky w/ the thermometer that i didnt catch anything bad w/ it bc hands are really VERY incredibly intricate #sooo many things running thru those palms. i think it stabbed into muscle rather than ligaments. aka the less harmful outcome. #bc i still have full function of my hand! couldve been Much Worse. #aka what this means is i am a walking disaster and it really is a wonder i havent ended up in the hospital due to my many stupid accidents #anyways yea my cheek do be stabbed. guess that's why it bruised. crazy.

[ghostzzy]

ive made this post every weekend for the last two months but holy shit it is so unfair that doing things i enjoy makes me feel like i am literally dying

#i feel SO bad. i feel so terrible. #IT WAS A GOOD DAY BUT I FEEL HORRIBLE #AND I FEEL EVEN MORE HORRIBLE FOR FEELING HORRIBLE #BECAUSE IT WAS A GOOD DAY #AND I SHOULD FEEL GOOD! BUT I CANT! #because every fucking bone and muscle in my body hurts!!!! #how am i supposed to live my life like this!!!!!!! #whatever. i’m going to sleep asap and hopefully i can restore any of my spoons. god. #izzy.txt

[rosykims]

ok question does it still count as chronic pain if it comes and goes every couple of months ?

#the tag offers a lot of comfort but #ok not to sound like a twitter user but ig im afraid of co-opting a phrase that doesnt rly belong to me #but god im so fucking tired #i mean. im vaguely uncomfortable Always but for some months it fades and its rly manageable #like it only hurts when i go out of my way to like. touch my muscles too hard lol #but then it ALWAYS comes back. after a few months i can just Feel it settling back into my body #and its honestly mild like i know its not as bad as some people's but its just fucking constant and my brain cant adjust to it #and i cant sleep and cant think and cant get comfortable like i have STANDING just walking around my house for #idk. four hours now? bc sitting hurts <3 and lying down hurts <3 but also standing around and walking hurts too lmao #and im scared to take neurofen (ibuprofen) bc its late and im saving it until i go to sleep in a few hours nd also ive taken so much lately #i havent gone to a doc bc im scared whatever it is i wont be able to afford to treat #im already in physio for another reason and i can fucking BARELY afford it lol. obvs im gonna bring it up w her but #ugh idk i just needed to vent #anyways w/e tht spongebob guy was right i also have glass bones & paper skin & at night i lie awake until my heart attack puts me to sleep❤

[crescentmp3]

im about to sob in pain

#why. does every single bone and muscle in my body hurt. #i can't even move properly without tearing up #it hurts so bad #i didn't even DO shit #i woke up in pain yesterday and then on top of that we had to go on a '' picnic '' which just made it worse #and now it hurts so bad to just fucking exist #and if i try to tell my parents they blame it on me growing up because im a teenager #like MOM !! DAD !! i don't think wanting to SCREAM IN PAIN is a NORMAL thing !! #im so fucking tired #🌙rambling

[boygirlctommy]

good news I thought it over and my ocs are now MORE FUCKED UP

#my post #the lore is stored in the tags #ok so!! everin DIED right? and I’ve been struggling with how to bring him back #so I thought about it and I think kiet nekaia nyotila and andoras do some fuckin. BLOOD RITUAL thing #I’m not entirely sure how it works #they have to give something of themselves up but I’m not sure what yet #but anyways it starts working #oh this is gonna get like horrific possibly so. warning to stop reading if anyone’s made it this far #keep in mind everin is a several week old corpse at this time #he starts twitching. then convulsing #they can see the skin and muscle reforming itself around where it’d decayed #he starts making this awful wheezing gurgling noise #then as soon as his throat is fully formed. Screaming. blood curdling SCREAMS of agony that seem much too big for such a small guy #because guess what? coming back to life hurts like HELL!! anyone remember that ache in your bones you got when you were growing? imagine #that but 1000x worse bcus everything is growing in a matter of seconds #he thinks he’s on fire #his eyes reform (yeah. both of them.) but when he opens them everything is cloudy #his hair has been stuck through with white and gray #and even though he can hear. he can’t understand anyone. #surprise everin! you’re now fluent in the language of the gods!! the bad news of course is that you’ve forgotten any mortal language #his memory is also slightly fucked at first. it comes back bit by bit but at first ev has no clue who tf he is #oh everin my everin #I love him dearly #which I why I subject him to the most horrifying experiences conceivable

[typheus]

ive been doing neck exercises for the last 2 weeks and gotta say. this has been doing wonders for my neck and upper back pain 💚

#other #t talks #went to a pt for my neck pain and turns out my hypermobility also affects my neck #and thats why its been hurting so fucking bad for so long #cause the muscles stretch way too far to the point the bones are supporting themselves #which is! not good! #so now i gotta make the muscles strong enough to actually support my spine and head #like a fucking newborn 😭😭😭 #i also have to do this for my back! #but ya. turns out. my spine hasnt been killing me since i was 18. ive been killing it 💀

[roseband]

....at first i was kinda upset cause i looked "big" in the professional photos......

but uh....i zoomed in after downloading and i just got pretty muscular and u can see me cut when im not flexed at this point

.......incredible!!!!!!

muscle pig jae and muscle pig me cuz he got so buff its insane 💪

#personal #no man...im a fucking 2/4 how on earth can i think im 'big' lol.... #i mean i was severely underweight until i was like 24yo sooooooo my sense of normal is bad #BUT its really really hard for me to gain muscle cause of my eds and i literally got us gov free physical therapy to build muscle as a kid #SOOOOOOOOOOOOO this was sooooo hard for me and im so happy!!!!! #(i got shamed by two doctors cuz apparently the only thing holding my bones in their holes is....muscle rather than ligaments #(exaggeration buttttt paints the picture) and if i dont keep muscley ill hurt my joints more and i like having working joints) #i currently do pilates and hiit 5-6 days a week and do my weights daily #i work out like 1.5 hours my wfh days cuz i keep my smart watch notifications on #so if i get a thing i have to immediately respond to i pause the workout and do work #(EYE AM THE TERRIBLE WFH EMPLOYEE (actually my boss says i have rlly good reaction times to teams tasks #i just......manage to clean the bathroom weekly...cook once weekly and exercise both days within my work hours)) #....i currently keep a bunch of pics of marina on my phone as inspo lol #like 2022 marina from adiml tour