Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
17K notes
·
View notes
crows use tools and like to slide down snowy hills. today we saw a goose with a hurt foot who was kept safe by his flock - before taking off, they waited for him to catch up. there are colors only butterflies see. reindeer are matriarchical. cows have best friends and 4 stomachs and like jazz music. i watched a video recently of an octopus making himself a door out of a coconut shell.
i am a little soft, okay. but sometimes i can't talk either. the world is like fractal light to me, and passes through my skin in tendrils. i feel certain small things like a catapult; i skirt around the big things and somehow arrive in crisis without ever realizing i'm in pain.
in 5th grade we read The Curious Incident of the Dog In The Night-time, which is about a young autistic boy. it is how they introduced us to empathy about neurotypes, which was well-timed: around 10 years old was when i started having my life fully ruined by symptoms. people started noticing.
i wonder if birds can tell if another bird is odd. like the phrase odd duck. i have to believe that all odd ducks are still very much loved by the other normal ducks. i have to believe that, or i will cry.
i remember my 5th grade teacher holding the curious incident up, dazzled by the language written by someone who is neurotypical. my teacher said: "sometimes i want to cut open their mind to know exactly how autistics are thinking. it's just so different! they must see the world so strangely!" later, at 22, in my education classes, we were taught to say a person with autism or a person on the spectrum or neurodivergent. i actually personally kind of like person-first language - it implies the other person is trying to protect me from myself. i know they had to teach themselves that pattern of speech, is all, and it shows they're at least trying. and i was a person first, even if i wasn't good at it.
plants learn information. they must encode data somehow, but where would they store it? when you cut open a sapling, you cannot find the how they think - if they "think" at all. they learn, but do not think. i want to paint that process - i think it would be mostly purple and blue.
the book was not about me, it was about a young boy. his life was patterned into a different set of categories. he did not cry about the tag on his shirt. i remember reading it and saying to myself: i am wrong, and broken, but it isn't in this way. something else is wrong with me instead. later, in that same person-first education class, my teacher would bring up the curious incident and mention that it is now widely panned as being inaccurate and stereotypical. she frowned and said we might not know how a person with autism thinks, but it is unlikely to be expressed in that way. this book was written with the best intentions by a special-ed teacher, but there's some debate as to if somebody who was on the spectrum would be even able to write something like this.
we might not understand it, but crows and ravens have developed their own language. this is also true of whales, dolphins, and many other species. i do not know how a crow thinks, but we do know they can problem solve. (is "thinking" equal to "problem solving"? or is "thinking" data processing? data management?) i do not know how my dog thinks, either, but we "talk" all the same - i know what he is asking for, even if he only asks once.
i am not a dolphin or reindeer or a dog in the nighttime, but i am an odd duck. in the ugly duckling, she grows up and comes home and is beautiful and finds her soulmate. all that ugliness she experienced lives in downy feathers inside of her, staining everything a muted grey. she is beautiful eventually, though, so she is loved. they do not want to cut her open to see how she thinks.
a while ago i got into an argument with a classmate about that weird sia music video about autism. my classmate said she thought it was good to raise awareness. i told her they should have just hired someone else to do it. she said it's not fair to an autistic person to expect them to be able to handle that kind of a thing.
today i saw a goose, and he was limping. i want to be loved like a flock loves a wounded creature: the phrase taken under a wing. which is to say i have always known i am not normal. desperate, mewling - i want to be loved beyond words.
loved beyond thinking.
2K notes
·
View notes
NO LONGER ACCEPTING REQUESTS as it is past the 28th!!
thank you to everyone who donated, and I’ll complete the requests that are currently pending but will not be taking any more.
hi! to help encourage donations, i’m offering drawings to anyone who donates or sends an e-sim to gaza. here is a tutorial on how on the gaza e-sims website and here is another one on tumblr. check the notes of this post for discount codes if you’re into that. i will be doing this until the 28th of february!
alternatively, you can donate to any one of these instead:
Pious Projects (twitter)
Help Gaza Children (proof of impact)
Care for Gaza (twitter)
Medical Aid for Palestinians (twitter)
Help Ahmed and his family evacuate (his account)
Help Mohamed and his family get medical help and evacuate (post)
Palestine Children's Relief Fund (twitter)
Anera (twitter)
Help a family of 13 evacuate
Urgent support for medical professionals
OR donate to any other legitimate fundraiser!
i am only accepting donations made from 10th feb onwards! send me a screenshot of your receipt with timestamps through DMs or email me at
[email protected] (but cover your personal details), along with the character you would like. sending one or two reference images is also highly encouraged!
there’s no lower limit to donations that i’ll draw for! a dollar or two is still money, and every little bit helps. that said, I won’t be spending over 5 hours on any one drawing so that i don’t burn out. im going to try and do as many of these as i can, but if i am uncomfortable with your request i will refuse it (but that almost certainly won’t happen tho)
731 notes
·
View notes
Thinking about better call saul if the action took place in france just because I wanted to see them in cunty robes lmao. More thoughts under the cut!
Obviously the action and the whole premise of bcs/brba wouldn't work in france (legal system aside, the whole cartel and walter white storyline would have to suffer major changes due to social security and the mexican cartel well. not existing here stricto sensu). But let's talk about the real Important Stuff : their names
I think Howard Hamlin would work well as Edouard Hamelin. He looses the cool HH initials yes, but it works really well as a genuine french name imo, and Howard/Edouard are pretty close phonetically
Chuck could still be called Charles without any realism issue, but he'd be nicknamed Charlie rather than Chuck because that's what a french person would go for... nicknames don't work the same, yeah
Kimberly Wexler and James McGill, I have no idea lmao. James when translated becomes Jacques, but it's such a boomerish uncool name that I cannot resolve myself to call my boy like that. It's also one generation too old. Jimmy being born in '60 could technically be called Jacques, but it'd be old-fashioned, as it's a name mostly given to the kids of the decade that came before him. McGill is an irish name, so something funny could be making Jimmy a breton with a funky last name like Gall/LeGall ? That's hilarious to me. But who knows.
Saul Goodman is a pun, so this is even harder for me to conceptualize. Saul's marketing would definitely not work in france at all, as no one would realistically hire a lawyer with a puny name and such chaotic displays (+ I think ads for legal démarchage are illegal mind you). However, let's have a crack at it. It would have to be a pun based off an expression similar to "it's all good man", or implying something positive and familiar... I need to think on that one.
823 notes
·
View notes