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#autism speaks tw
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I feel like we talk a lot in the autistic community about getting rid of Autism Speaks (AS) and not enough about replacing Autism Speaks. The smaller autism organizations like ASAN are great and fill their own niches, but they don't compare to what AS has. AS has a huge number of projects like locators for clinics, resources for parents, resources for educators, grants for research, etc. Such databases exist for a lot of other conditions, and for good reason, having one large pool of resources like this is very valuable for people newly learning about a condition. The fact that AS is the resource for autism is a problem because they're also frequently a bad resource for autism. But having a resource that is the resource for learning about autism is one of the most effective ways to spread good information as well. I struggled for years trying to find a clinic that didn't practice active harm against autistic people and ended up going to one that did because I literally could not find one that didn't and was suffering because I was undiagnosed. We as autistic people need to work on creating an organized front to fight misinformation about autism instead of sending people to one of a number of smaller, less information organizations.
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genderqueerpositivity · 11 months
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I watched a clip of the podcast where Sia comes out as autistic earlier.
Firstly, that fucking movie she made was absolutely atrocious, and I personally feel that her attempts at apologizing to the autistic community in general--and the non-speaking community specifically--were extremely inadequate.
But...I am genuinely sympathetic. I can't sit here and act like coming to understand myself as autistic (and neurodivergent in general) wasn't one of the hardest and messiest periods of my life.
Because that shit is hard. It's an entire reconceptualization of self and identity, it's reprocessing all of your memories in a new light, and it's becoming newly hyper-aware of every little way in which you move, think, act, and feel differently from nearly everyone else around you.
It may not be true for everyone (or popular to admit), but during that time I experienced every single one of the five stages of grief at one point or another, and not linearly either. It was not a smooth road to acceptance. And I've been going through the same thing over the past few months, to a lesser degree, since my ADHD diagnosis.
I also know that when you're new to the neurodivergent communities, it can be very hard to discern good information and trustworthy voices from bad information and untrustworthy sources. Hell, I thought the Autism Speaks website was a good source until the first time I stumbled across a blog by an autistic activist.
And yet none of that is an excuse for continuing to be ableist after you've been told that your words and actions are ableism.
I've already seen folks saying that we don't claim her, and that is their right. But she will be associated with our community from now on, no less than Elon Musk (derogatory) is.
And so I hope that she will be better. Work on that internalized ableism. Learn to listen to multiply marginalized autistic people. Realize that there is power in telling her own story rather than co-opting stories that aren't your own to tell. Learn to apologize properly. Learn to interact with and be a part of the autistic community without defensiveness or resentment.
No small tasks there, because her reputation precedes her.
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tismtay · 7 months
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so
The librarian at my school is an active autism speaks supporter
how
do I educate them on why they really shouldn't support autism speaks
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novelist-becca · 8 months
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This should NOT be the first result, wth 😭
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(Yes I know autism IS genetic, I just wanted to see what would come up on Google.)
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magidragon12 · 2 years
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Autistic people don't want A*tism Speaks rallies, they want sentient roombas and separate cheques
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cherry-sunday · 9 months
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just remembered at my old school on either the 1st or 2nd of April (I can't remember) they had an autism awareness day and one time this one staff member with an autistic daughter (who went to that school) was putting up stickers for autism awareness organizations around campus and one of the stickers was Autism Speaks.
I'm actually so annoyed that I didn't know very much about Autism Speaks other than "it's bad" at the time bc I tried to mention it to that staff member but I couldn't actually make a point...
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my-apollo-gies · 2 years
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the only lighting up blue we accept in this household is the empire state building for percy jacksons bday
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c-o-z-m-o · 2 years
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*idol/hero is shown to support Autism Speaks, make fun of eating disorders and sometimes is rude to fans*
Me: aHA, my life is a lie!
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is there an organization that's like autism speaks but like, not full of neurotypicals who want to irradicate us? I want treatment, I need treatment in order to be happy, but I don't want to be treated next door to someone who's undergoing traumatic or dangerous therapy practices. I want an organization that can tell me what clinics in my area treat autistic adults for social deficits without the use of ABA or other abusive practices. Most of the stuff I've seen from ASAN and similar organizations is "just accept yourself" which is all well and good but I feel like some of my symptoms are keeping me from being myself. The extreme anxiety I feel whenever I interact with people because I don't fucking understand what to say or do to not upset them keeps me from making friends, and as someone who's naturally pretty social, that's really frustrating.
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trees-to-meet-you · 1 year
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My mom’s defending Autism Speaks on the idea that that’s what her friend uses as a resource for her son, and is dismissing me saying it sucks bc “she knows how i research things,” so if anyone has any good articles on why it’s fucking shit, could ya please send them my way?
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ninaeatswaffle · 1 year
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God I hate this kind of rhetoric
Me: "I do not support a cure for autism and neither should you. It's practically eugenics." My mom: "Think about all of the children suffering because of autism! And think about the parents as well!"
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novelist-becca · 2 years
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WHY WAS THERE AN AUTISM $PEAKS AD IN THE TOH MEGA LINK
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flyingpikachus · 1 year
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since twitch keeps deleting and closing all the threads about it, I’m gonna keep reposting the new ones until they actually do remove autism speaks. I know i dont have a big reach but i feel this is important, twitch is a big platform not known for its creators doing due diligence on what theyre supporting so please vote (make a twitch account/log in) and post abt it
https://twitch.uservoice.com/forums/945934-charity/suggestions/46075492-re-evaluate-the-decision-to-keep-autism-speaks-as
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dustin-but-gayer · 1 year
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Never felt more sheer immediate rage than hearing a commercial on the radio by AutismSpeaks yeah you know maybe it is a good thing to get your child diagnosed if you suspect it but MAYBE DON'T SAY SHIT LIKE THE LACK OF A JOYFUL SMILE IS A 'SIGN' MAYBE TALK ABOUT ACTUAL MILESTONES THAT CAN BE MISSED AND NOT 'Oh no my infant child won't smile for the FUCKING camera' Jesus Christ
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clownrecess · 1 year
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(Tw for ableism, meltdowns, elopement, etc.)
Hi, I am currently in an argument with someone in a comment section because they are saying that autism is not a disability. So I decided that I want to make a post about it, and thoroughly talk about it.
If you do not know me, hello. I am an autistic primarily nonspeaking teenager with mid-high support needs. I'm disabled.
I am honestly very tired of low support needs autistics saying that autism isnt disabling, because it very much is for me and a lot of other people. Just because your experience isnt the same as ours, doesn't cancel out our experience.
I will never live alone. I am a teenager who can not make food, or blow dry his own hair. My ability to use oral speech varies a lot, and when I can use it, I usually end up having severe meltdowns from it. I am in special ed. It hurts when I brush my hair. I have put myself in danger by running into the street. My emotions are extremely strong, so I often seem rude when I'm not, I just can't control the fact that when I feel something it's so incredibly strong that it hurts. I have little to no internal sensation. I could not bathe myself until I was 9 or ten, and even now I will not just go and take a shower myself; I need someone to tell me to, and I need a visual schedule to help me do so. And many more things.
The person's response was to then say that is not because I am autistic, that is because of the way mankind is. That my autism is not disabling, society is. And whilst I do agree that society is horrible to disabled people, and it would be much much easier to exist as a disabled person in this world if society was different, that doesn't change the fact that my autism is disabling. Me being nonspeaking is not because of society. Me being unable to care for myself is not because of society. Most of the things on that list are not because of society!
Just because low support needs people exist, does absolutely not give them the right to speak over us, and tell us what our experiences are or are not.
My autism is disabling. Listen to me. Listen to me. My life has been severely impacted because I am disabled. You can not sit there and tell me that me being unable to care for myself, and unable to live alone ever, isn't disabling, and that it's because of society.
I am disabled. Stop speaking over high support needs autistics.
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autism-affirmations · 17 days
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