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#auto immune disorder
skullingwaydraws · 1 year
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A recent illustration I made to submit to a show about disability
I wanted to depict pain and work. It wasn't selected, but I still wanted to share for any who relate 💕
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Like this post if you are allergic to anything
-🐍
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thelastpuppyboygirl · 22 days
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had an appointment today
CW// vent post lols and honestly as much as i want to be hopeful and look forwards having a doctor turn to you, you desperately needing help and them going "well, what do you want to do about this?" I DUNNO??? IMPROVE MY QUALITY OF LIFE??? A LITTLE??? what else am i gonna say?? "oh yeah i actually plan on not getting better i want to get so bad i die thanks!" like....yeah please make me do all the decision making here. i am turning to *you* for help. please help me?? give me mobility aids??? a physical therapist?? pain management???? something??? you looked at my list of symptoms and went "well that's not good" and then ask *me*??? what i wanna do?? please. just help me. just fucking help me that's what i want.
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geezerwench · 2 years
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Mortellus said they live in North Carolina near the state line, where abortion is still legal. Her doctor is in South Carolina, where abortion is now illegal. Healthcare providers there can deny service because they *feel* like it. She said she will be looking for a new doctor.
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If you are female and have an immunodeficiency disease, you can be denied drugs that help you live a more normal life and help you function because you MiGhT get pregnant.
One of my children has an immunodeficiency disease and takes some powerful medicines. I thank all the deities she had a hysterectomy.
My husband has Rheumatoid, and takes some wicked shit, too, but he doesn't have to worry about it. But he's an old man.
Those drugs help him, and help thousands of other people, men and women, of all ages, live a better quality of life than they would have without them. Before he saw the Rheumatologist, he barely even moved because of the pain he was in. He couldn't lie down in bed because it hurt so bad. Since he's been on all these drugs, methotrexate being one of them, things are not back to the way they used to be before RA, but they are better. He can sleep in bed. He can function. He can drive the car. He can do some puttering around the house.
I cannot imagine what's gong to happen to the women with RA who have their medicine taken away from them because they are women.
And that's just Rheumatoid Arthritis. How many other immunodeficiency diseases / auto immune disorders are there? How many people have them?
It is my sincere wish and hope that ALL the women RA patients who applauded the striking down of Roe v Wade are also denied the drugs that help them function and lead any sort of "normal" life. May they feel the pain these drugs used to control for them. May they suffer.
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gypsy-that-i-was · 1 year
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It's not just pain.
It's the death to the way things were.
It's anger and frustration.
It's anxiety, depression, and emotional upheaval.
It's financial challenges.
It's doctors and skeptics.
It's endless reminders for medicine, appointments, exercise, therapy, eating regiments, and that's not including "normal" day to day.
It's fear of things never changing or changing more.
It's finding out who cannot handle illness and the heart ache deep loss brings.
It's becoming a fighter in something that you never asked to fight.
It's finding new dreams and new paths forward.
Its pushing past stereotypes and prejudices.
It's tears and screams into the deep night.
It's joy and happiness found in the smallest places that you never knew existed inside yourself.
It's courage and bravery moving through paralyzing fear.
It's sleepless nights and tired days.
It's realizing how much you never knew yourself and finding layers only suffering can reveal.
It's not just pain. It's everything.
- Kelly
"Pain-fully human"
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clairaworlds · 5 months
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Two days ago I rode over a mile and a half on my scooter.
Tonight I did 10 (admittedly pathetic) push-ups, heald a wall sit for a minute and a half, heald a plank for almost 20 seconds and did 10 step ups!
Maybe that sounds pathetic, to me it sounds like victory, last Last December I couldn't walk up more than a flight of stairs without nearly passing out up. Last winter I was wracked with low grade fevers every night for weeks. The fall of 2022, I was sick so often I failed two classes, the summer off 2022 I never thought I'd get better. Winter 2021 I walked with a cane. Brusing my knees on the pavement when I tried to go without it, my joints to weak to hold me up.
Tonight I did 10 push-ups, two days ago I rode a mile and a half, a month agao I walked across campus in the rain (for the first time in two years I was outside in the rain without feeling sick).
Who knows what tomarow will bring
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sonyakiii · 2 years
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life is hell
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Reminder:
Eczema is an autoimmune disorder! More than likely it will keep coming back no matter what you do.
This is not your fault. You are trying your best.
Your immune system just sucks a bit.
All the love 🖤🖤🖤
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adamslilith · 1 year
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Pretty much 6 months ago I had my first clinic flare up and got diagnosed with MS.
And here I am now.. again with a flare up. Again my immune system is destroying my central nervous system. This is way too early. This is not good at all.
So once again I can post "Gloria" who is my visualisation of Multiple Sclerosis.. from my art project A Thousand Faces created to raise awareness of this invisible illness by visualising every aspect of it.
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sakuraandcigarettes · 5 months
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Went to the gyn for a check up today. I even warned her before taking my clothes off that I have Hidradenitis Suppurativa.
When she saw me she just went
" Oh ... "
Isn't that reassuring?? 😭 Literally want to die
I won't ever have sex again or show my body to anyone.
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ivebeenmade · 3 months
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The exhaustion! I got up after probably 6½ hours (considering how often I wake at night), fed the animals, and went back for a 45 min nap.
I left the house. Went to where my gf is dog/house sitting, took a 45min nap.
Now I'm late for work (they know, I called) and still feel like I'm gonna fall asleep standing up.
I'm trying to just "suck it up" but this is brutal.
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comicabrasions · 6 months
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Constantly making a list of my symptoms for when I go to my doctor, only to never bring it up because that day I feel fine and I’m definitely just being a drama queen 🤦‍♀️
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Stupid list, it’s not real lol
Maybe I’m being a hypochondriac.
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awetistic-things · 1 year
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I MIGHT HAVE LUPUS????
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Reposting a powerpoint about this condition that I made a while ago
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goblinbugs · 7 months
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my 4 week long upper respiratory infection finally went away & i was able to take my biologic injection again! wooohoooo
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l00ney-m00ny · 1 year
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Status update:
How does one live in a state in which they don’t suffer from the second they wake up to the moment they go to sleep?
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