#autonomic dysfunction

[bluejayqueen]

Is anyone else out here flaring up really bad because it's getting warmer out?

I'm out here fighting.

#chronically ill #potsawareness #chronic illness #pots syndrome #dysautonomia #chronic fatigue #chronic pain #ehlers danlos syndrome #autonomic dysfunction #postural orthostatic tachycardia syndrome

[pots-plus-pans]

this is gonna be a bit tmi but i don’t see a lot of people talking about it so i will

cw // bladder talk , bathroom talk , im gonna talk abt affects my pots has on my bladder

when most people think of pots in regards to the bladder i hear a lot about bladder incontinence which is a big symptom for a lot of people !!

however it can also have almost an opposite effect

it can cause issues peeing like weak streams, needing to strain, starting and stopping, and straight up inability sometimes

i have the second kind of issues much more than the first

in my experience, i have a lot of trouble peeing unless i’m bursting to go and even then i usually can’t completely empty my bladder and am going every 15 minutes !!

i’m on a small road trip at the moment and we did the one stop before we get to our destination and i decided to try to use the bathroom so i don’t end up in an uncomfortable situation. and i couldn’t. i was in there for at least 5 minutes and eventually just gave up bc no matter how close i got, i couldn’t actually release.

just sharing this so my fellow people with dysautonomia who have this and are thinking “what is wrong with me?” can have some peace knowing they aren’t the only one. this is a confirmed potential symptom of dysautonomia and you are not alone in this feeling.

#actually disabled #disability #chronic illness #disabled #chronically ill #cripple punk #spoonie #cripplepunk #physically disabled #cpunk #pots #pots syndrome #dysautonomia #autonomic dysfunction #potsie

[autisticmuppeteer]

I’m talking to this girl and we were hanging out the other day and I wasn’t feeling ~great~ physically cause of my chronic illness and she checked in on how I was doing and we ended up talking about my health and she was asking questions about how she could support me if I fainted or was having a flare or something

And like oh my god there has never been something so attractive as someone being respectful and genuinely caring and still showing interest in me and wanting to support me through my disability

#chronic illness #disabled #dysautonomia #disabilty #autonomic dysfunction #orthostatic hypotension #pots #potsie #chronic pain #lesbian #happy pride 🌈 #my pronouns are they/them

[my-dying-heart-lives]

Something I found out last night:

Being woken up to rescue breaths is such a wonderful and terrifying feeling. It was surreal.

#cardiophile #cardiophilia #cpr #steth me #pounding heart #chest compressions #heartbeat kink #autonomic dysfunction

[chroniclesofchronicillness]

Say it loud

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #autonomic dysfunction #societal dysfunction

[crazycatsiren]

That POTS moment when you feel the weakness/shakiness in your lower legs and the uh oh alert in your head goes off.

#disabled #spoonie #cripple punk #pots #chronic illnesses #autonomic dysfunction #dysautonomia #chronically ill

[whoopsie-doodle]

What's wrong with you?

Well, I asked chat gpt to explain it like I'm a child. Feels like a glitch in the matrix. Glad I finally have a science based explanation.

In short. The code sometimes doesn't transfer all needed material so I glitch a little.

Come along while I gain the courage to share my journey.

#dysautonomia #wegotdys #pots #autonomic dysfunction #chronic illness #chronic pain #chronically ill #chronic fatigue #mcas #its complicated #prkg1 #genetics #genetic disorders

[jesusonafrickinboat]

October is Dysautonomia Awareness Month!

Dysautonomia refers to a group of medical conditions caused by autonomic nervous system dysfunction

Conditions under the dysautonomia umbrella include: Postural Orthostatic Tachycardia Syndrome (POTS), Neurocardiogenic Syncope (NCS), Multiple System Atrophy (MSA), and others

More than 70 million people worldwide are affected by various forms of dysautonomia

Dysautonomia International and Cleveland Clinic have more in-depth articles on dysautonomia for more information

#dysautonomia #dysautonomia awareness #dysautonomia awareness month #autonomic nervous system #autonomic dysfunction #pots #I made a new post so I could add info and an image description

[bluejayqueen]

Imagine having the symptoms of a heart attack minus the actual heart attack…

#chronically ill #potsawareness #chronic illness #pots syndrome #dysautonomia #chronic fatigue #chronic pain #ehlers danlos syndrome #autonomic dysfunction #postural orthostatic tachycardia syndrome

[tragically-torie]

Got too hot and had another flare of POTS symptoms. I just want a normal body and a normal vacation like why can’t I have that?

#pots #sick #sick af #hot #body malfunction #autonomic dysfunction #dysautonomia #spoonie #out of spoons #sick of puking #sick of fainting #chronically ill cutie #chronically ill #chronic illness #postural orthostatic tachycardia syndrome #me #mine #just let me vent

[dravenxivuk]

Anyone else feel like they’re going to faint after changing a fitted sheet? Just me? OK. Good talk.

I hate this. I hate feeling this fucking useless.

#pots #postural orthostatic tachycardia syndrome #dysautonomia #autonomic dysfunction #chronically ill

[squishmelo]

Hey y’all, does anyone have a recc for plus size compression socks, that’s US based?

Thank you so much ToT♥ Chunky goirl needs squishems (yay POTS).

#POTS #spoonie #chronic illness #disabled #compression #signal boost #this is a post #dysautonomia #autonomic dysfunction

[harlstark]

#POTS #= #autonomic dysfunction #but #having autonomic dysfunction #=/= #having POTS #disabled #doctors should not police what patients of something call their disorder/disability #especially after years of going by something #and then deciding to change it #yes names change all the time #but if the previous name is still accurate and not causing harm #then don’t tell me to stop using it #especially if the new name is so broad #and is more of an unspecific umbrella term #which will only lead to me having to FURTHER explain things #when people ask about what i have #i also use the word new loosely #jsyk #anyways #I HAVE POTS #and im gonna keep calling it POTS #or #dizzy disorder #for funsies

[fernnweh0]

Taking bp in the lecture hall hallway will never be something I get used to.

#pots #potsie #pots syndrome #autonomic dysfunction

[korya-elana]

Everyone always talks about how bad having chronic health problems are but no one ever talks about the weird shit.

I have dysautonomia (my ANS doesn't work) and gastroparesis (my GI system has areas of paralysis).

The GP means that I am nauseous. Every. Single. Morning. Sometimes it goes away on its own, sometimes I have to run for the toilet if it gets too bad.

BUT

If the GP pisses off my vagus nerve too much, it re-regulates and I have a massive sneeze and suddenly the nausea is magically gone 100% And at that point I'm like "What even was the reason for the nausea in the first fucking place?"

#autonomic dysfunction #gastroparesis #chronic nausea #bodies are weird #chronically ill #invisible disability

[crazycatsiren]

Me: *stands up*

*heart rate increases*

Me: *sits back down*

#the struggle is real #it's funny because it's true #pots #disabled #spoonie #cripple punk #chronically ill #autonomic dysfunction