Is anyone else out here flaring up really bad because it's getting warmer out?
I'm out here fighting.
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this is gonna be a bit tmi but i don’t see a lot of people talking about it so i will
cw // bladder talk , bathroom talk , im gonna talk abt affects my pots has on my bladder
when most people think of pots in regards to the bladder i hear a lot about bladder incontinence which is a big symptom for a lot of people !!
however it can also have almost an opposite effect
it can cause issues peeing like weak streams, needing to strain, starting and stopping, and straight up inability sometimes
i have the second kind of issues much more than the first
in my experience, i have a lot of trouble peeing unless i’m bursting to go and even then i usually can’t completely empty my bladder and am going every 15 minutes !!
i’m on a small road trip at the moment and we did the one stop before we get to our destination and i decided to try to use the bathroom so i don’t end up in an uncomfortable situation. and i couldn’t. i was in there for at least 5 minutes and eventually just gave up bc no matter how close i got, i couldn’t actually release.
just sharing this so my fellow people with dysautonomia who have this and are thinking “what is wrong with me?” can have some peace knowing they aren’t the only one. this is a confirmed potential symptom of dysautonomia and you are not alone in this feeling.
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I’m talking to this girl and we were hanging out the other day and I wasn’t feeling ~great~ physically cause of my chronic illness and she checked in on how I was doing and we ended up talking about my health and she was asking questions about how she could support me if I fainted or was having a flare or something
And like oh my god there has never been something so attractive as someone being respectful and genuinely caring and still showing interest in me and wanting to support me through my disability
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Something I found out last night:
Being woken up to rescue breaths is such a wonderful and terrifying feeling. It was surreal.
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That POTS moment when you feel the weakness/shakiness in your lower legs and the uh oh alert in your head goes off.
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October is Dysautonomia Awareness Month!
Dysautonomia refers to a group of medical conditions caused by autonomic nervous system dysfunction
Conditions under the dysautonomia umbrella include: Postural Orthostatic Tachycardia Syndrome (POTS), Neurocardiogenic Syncope (NCS), Multiple System Atrophy (MSA), and others
More than 70 million people worldwide are affected by various forms of dysautonomia
Dysautonomia International and Cleveland Clinic have more in-depth articles on dysautonomia for more information
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Imagine having the symptoms of a heart attack minus the actual heart attack…
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Got too hot and had another flare of POTS symptoms. I just want a normal body and a normal vacation like why can’t I have that?
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Anyone else feel like they’re going to faint after changing a fitted sheet? Just me? OK. Good talk.
I hate this. I hate feeling this fucking useless.
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Hey y’all, does anyone have a recc for plus size compression socks, that’s US based?
Thank you so much ToT♥ Chunky goirl needs squishems (yay POTS).
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Taking bp in the lecture hall hallway will never be something I get used to.
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Everyone always talks about how bad having chronic health problems are but no one ever talks about the weird shit.
I have dysautonomia (my ANS doesn't work) and gastroparesis (my GI system has areas of paralysis).
The GP means that I am nauseous. Every. Single. Morning. Sometimes it goes away on its own, sometimes I have to run for the toilet if it gets too bad.
BUT
If the GP pisses off my vagus nerve too much, it re-regulates and I have a massive sneeze and suddenly the nausea is magically gone 100% And at that point I'm like "What even was the reason for the nausea in the first fucking place?"
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