setbacks do not mean you have lost all of your progress. it is part of the healing process to go through ups and downs. as hard as it is, it will never be straight sailing—but the wonderful thing is that’s why we have other people to walk through it all with. it is okay (preferred, even) to lean on someone you trust when you are hurting or when you feel like you’ve failed yourself.
healing does not mean you will never experience that hurt again. healing means learning to cope and strengthen yourself for the hurt you know will come. healing means finding the courage to endure it. healing means asking for help when you need it and learning to even know when you need that help. healing does not mean just surviving—it means learning to live, too.
you haven’t failed. you are growing. it is okay to start again with the knowledge that you’ve acquired in your setbacks, so that each time you do start again, you make it further and further until eventually, those setbacks are so few and far in between that they are no longer your default state.
your hurting won’t always be your default state.
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Going outside, going to see the world, then coming back to my cozy bed. I have not lived very long but that is when my life is best I think
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
plz let me grind on you while we make out :3
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Danny: *just chilling on the couch while being very still™️ at the Wayne Manor*
Clark: *comes to visit*
Clark: hey Bruce?
Bruce: yes?
Clark: why is there a dead child in your living room?
Bruce: what 0-0
Danny: oh shit
Danny: *starts up heartbeat* better?
Clark: *even more freaked out*
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