#cf ;; ms

[hunkahulkaaburningfudge]

Avengers (2023) #7

#avengers #carol danvers #ms marvel #thor odinson #tony stark #iron man #sam wilson #captain america #captain marvel #marvel comics #avengers comics #the avengers #avengers 2023 #616 carol danvers #616 tony stark #616 thor odinson #616 sam wilson #jed mackay #cf villa

[forystr]

update:I'm having to take multiple days off work unpaid for all these doctors appointments so I'm struggling for cash. I'm no longer fit to work so am seeing out the last month of my job, if you ever wanted a commission from me or have £3 to spare for my kofi, I'd really appreciate it :')

#I'm on my way to another back to back doctors appointment today #sick of not being able to cope with it tbh!! #at the moment no one knows what it us #worst case scenario my legs are literally wasting away and I have MS #best case scenario I have cfs or me #bad time. for a little guy with health anxiety today

[vocaloidgender]

ME/CFS Rei icons

#disability pride #disabled pride #disabled icons #icons #enstars #ensemble stars #me/cfs #myalgic encephalomyelitis #cfs/ms #chronic fatigue syndrome #canon #rei sakuma

[beldaroot]

honestly it's probably a good thing that i didn't get to go to the chihayfuru exhibition in izumo bc i would've tried to attend suetsugu's signing event and i would've brought a printed version of the arataichi sauce panels from chapter 239 with a "🏳️‍🌈?" on it so she would be forced to explain herself

#it's still crazy how she drew that scene and then never discussed it ever again like i'm sorry ms yuki but i'll call you a queerbaiter!! #I'M JOKING obviously i'm not one of Those fans but she created too much queer subtext she's never beating the allegations!! #cf #dl

[woahajimes]

you know I don't really think i told you that?? im usually very picky about what to say about myself on the Internet. i remember ranting to you about high school?

also NO I WILL NOT show myself!!!! it is much much funnier this way!! at least for me :) anyway news: my hair is pink again, i got a septum piercing, asia is no longer the loml 🥺 (we're still v close friends tho), i moved from my small town to an Actual City (rome) and uhhhh nothing?? yeah that should be all. have a good day 👍🏻

(it's maki btw)

i would love to visit ROME

#ms thing im not on tumblr at all like i log reblog a post answer your ask and leave #i check for YOUU #yk i was gonna complain that YOU get to be anon and im just outing myself here but then i realized. ive been doing that for years #BUT THERES STUFF I WANNA TELL YOU THAT MAYBE SHOULDNT BE FOR THE ENTIRE INTERNET #i am applying for unis rn and aughhhh uoft and waterloo looking SO good #i also kinda want to start like a tiktok like id be such a good influencer yk #also i cant work this year since school is beating me up so hard (im in the IB) and honestly its hell like #Christmas presents.... birthday presents.... my fav mascara is runnign out.... #also how the fuck do i apply for scholarships agh! #news news: i got THREE piercings in ecuador. and guess what. THE TOTAL WAS. $40 #LIKE IM SO SERIOUS #i got a third on one lobe #and a seocnd on the other #and a cartilage on the one with two lobes #i had such a girliypop summer it was actually awesome #lmaki cmon #like i need you on my insta CF

[wobblefloss]

STUFF I DIDN'T KNOW WHEN I WAS STILL ABLED...

Post-viral illnesses are a thing.

.

I mean, we all know about long covid now. When the covid virus does too much damage to organs, nerves, veins, arteries, and the immune system? Then it's 'hello, longterm disability.'

But think about before covid. People would say, "It's just a virus. It's not an infection. You don't need antibiotics or to go to the doctor. Just drink orange juice. Take some over the counter medicine. Sleep it off. It'll pass."

Which can be true! Yet, even in the before times, folks were catching and being disabled by 'just' viruses.

Long HIV = AIDS

Long polio = paralytic polio, post-polio syndrome

Long Chicken Pox = Shingles

Long HPV, hepatitis, & others = cancers

And 'Long' versions of lyme disease, mono, hepatitis, herpes, flu, epstein barr, and other viruses--they're all known to doctors.

They can lead to multiple sclerosis (MS), myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), fibromyalgia, dysautonomia, POTS, mast cell disorders, heightened allergies and food sensitivities, chronic migraine, organ damage...the list goes on.

It's not 'just a virus,' and it never has been. You must rest and recuperate and listen to your body.

No, longterm problems don't happen to everyone or every time. And no, nothing is helped by panicking.

But if you still have symptoms after you're 'cured,' you're not making things up. Your mind isn't tricking you. This isn't your fault. Post viral illnesses and syndromes are real. Go talk to your doctor.

.

Seems like something we should all know.

.

.

.

Disability happens to people without our control or consent. Every single disabled person has strong feelings about their own situation and I would not presume to talk about anyone’s thoughts but my own. But none of us chose to do life on hardmode, so if the world could listen this month, there’s a lot to say.

#disability pride month #invisible disability #tw covid mention #post viral illness #it happens actually #listen to your body #postural orthostatic tachycardia syndrome #pots #mast cell activation syndrome #mcas #dysautonomia #me/cfs #myalgic encephalomyelitis #chronic migraine #chronic illness #chronic fatigue #multiple sclerosis #ms #organ damage #viruses can permanently hurt your insides #please don't blame yourself #please believe yourself #please get help

[pangzi]

The cast for Jiezi Ghost City seems to be: Jing Yanjun, Chen Yesheng and Wang Bowen

#i assume jyj as wx cys as xg qnd wbw as pz #jiezi ghost city #介子鬼城 #dmbj #wu xie #xiaoge #zhang qiling #wang pangzi #oh just fyi #yanjun is the boy in jeans and black shirt #yesheng is pink shirt and jeans #and wang bowen is the guy in the yellow shirt #i like both wbw and jyj from cf and ms cupid #buT WHERE ARE MY OLD MEN?????

[pandemic-info]

Alarmingly, more and more [long COVID] patients are also meeting the criteria for myalgic encephalomyelitis (ME), which in its severe form has been compared to “late-stage AIDS, multiple sclerosis and kidney failure.”

Ryan Prior's 'The Long Haul' documents long COVID advocates - Los Angeles Times

... activist-patients have led the struggle toward acknowledgment and research in the hope of finding treatment and eventually a cure. From their beds, long haulers found each other over social media, organized and began doing the impossible. Support groups created a space to be seen, to share symptoms and stories that turned into “vital information about the long-term effects of Covid-19.” They met not merely to console but to mobilize, and they collected data as “regular citizen scientists rather than the political and medical establishment.” 

As their numbers grew, one of these groups, LongCovidSOS, organized a meeting to present its findings to the World Health Organization — whose director-general observed: “It appears that patients are writing the first textbook on long COVID.” Soon the CDC began reaching out to long haulers for notes on symptoms, compiling and publishing one-page briefings that even included, for the first time, the hallmark symptom of ME and now long COVID: post-exertional malaise. These collaborations led to the CDC’s guidelines for long COVID — signaling that the establishment had confirmed the existence of the disease. 

#covid #long covid #book #la times #me/cfs #ms #aids #the long haul

[smashpages]

X-Men: Before the Fall - Heralds of Apocalypse #1 (Marvel, June 2023) Stormbreakers variant cover by C.F. Villa

#x-men: before the fall-heralds of apocalypse #cf villa #c.f. villa #ms. marvel #avengers #captain marvel #iron man #beast #vision #absorbing man #comics #marvel #stormbreakers variant covers #stormbreakers #comic covers #variant covers

[brightorangerain]

Spina Bifida is more common than muscular dystrophy, cystic fibrosis, & multiple sclerosis...combined.

#spina bifida #muscular dystrophy #cystic fibrosis #multiple sclerosis #ms #sb #md #cf #disabled #disability #disabilities #birth defect #neural tube defect #pregnancy #pregnant #folic acid #folate

[friendly-space-speechie]

A List of Frequently Used Terms

So now you've decided you want to at least follow Girasol's adventures or even interact with her. Awesome! To make roleplay and/or reading simpler, here is a list of common technical terms that may be present in interactions.

SOAP note - clinical documentation that chronicles how a therapy session went, the performance of the client, any specific areas of note, and plans for future sessions. SOAP is an acronym for "Subjective, Objective, Assessment, Plan". They are used across the allied health professions, although not exclusively used.

Assessment, Diagnostic, or Evaluation - what it says on the tin; basically a diagnostic test run to diagnose a specific communication disorder (if possible).

PHI - Protected Health Information. Basically any of your private business relating to your health or personal information that you would generally not want strangers to have access to read. In our current times in the US, HIPAA is the law governing patients' rights and clinicians' responsibilities in the handling and management of PHI. I am currently establishing lore for the Federation and how that is all handled.

WNL - Within Normal Limits. This is an acronym designating that a patient or client's test results fall within the average expected test score range for people of their age, AGAB, and/or developmental level.

Assessment Report or Evaluation Report - a document presenting and interpreting the results of an evaluation. Will also include the case history/background/health history summary of the client.

Case History/Case History Form - A written document and/or form detailing the client's medical and developmental (if a child) history, in addition to a description of the presenting complaint or concern. This may include past test results such as audiograms, prior evaluation reports, and the like.

AAC - alternative augmentative communication. This is any method of communication that is not verbal and can be anything as low-tech as a printed grid at which the person points to communicate thoughts and desires, to as high-tech as a device that produces speech when the user simply looks at the desired icons and makes a sentence or phrase with them. There are all kinds of devices and modalities, and a wide variety of AAC users who use this form of communication for a myriad of reasons.

Audiogram - a visual representation of hearing test results. Depicts the level of hearing loss one has, if any.

This list may be updated as more terms pop up on this blog and require clarification.

#star trek rp #star trek oc #speech language pathology in space #friendly space speechie #slp terms #allied healthcare professions in fiction #girasol lang ms ccc slp #girasol lang ms cf slp #girasol lang

[rebirthgarments]

TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

#gaza genocide #gazaunderfire #stand with gaza #news on gaza #war on gaza #gaza strip #free gaza #gaza #gazaunderattack #save gaza #mutual aid #i personally vetted this fundraiser #disabled and cute #disabilityculture #disabilityarts #disabilityjustice #multiple sclerosis #cancer #pancreatic cancer

[vocaloidgender]

ME/CFS Ritsu icons

#disabled pride #disabled icons #disability pride #icons #me/cfs #cfs/ms #cannon #risu sakuma #enstars #ensemble stars #chronic fatigue syndrome #myalgic encephalomyelitis

[dduane]

Dear Ms D - as a former Scooby Doo writer, was Velma being gay a thing back in the year? I'm not suggesting that it's "less canon because it wasn't in episode 1" or that it's a bad decision (or that you, personally, might have any issue - I've read the Middle Kingdoms!) just super curious if the Writing Staff of Yore were thinking about it at all?

I... don't think they were. [ETA for clarity: The “Back in the year...” I’m discussing here is 1979: cf. IMDb.) Nor do I recall the concept ever coming up, even in casual conversation. (And it seems likely enough that it could have, as at least one of my story editors was gay.) ...So I think we have to mark this issue as "insufficient data." Sorry not to be able to cast more light on this.

(And per the ETA: personally, I’m delighted that post-2000 Velma’s out. I’ve fallen behind in my Scooby-viewing, and am glad @neil-gaiman’s had time to advise on this.) :)

#Velma

[rainbowpopeworld]

I love this queen 😍🥰 Michael Sheen is consistently my favorite when interacting with Scottish men 💖

Transcript:

Michael Sheen: I learned some very rude words from Amy

Craig Ferguson: you do know some very rude words, Amy.

Amy Ryan: I am from Queens.

CF: Yes. I know some queens.

MS: *in a high pitched, sing song voice* And I am a queen!!

CF: There you go! Ahhh, good times…

#michael sheen #michael fucking sheen #welsh seduction machine #queen of my heart #craig ferguson #amy ryan #the late late show #scottish #queens #i love him #video #good omens #good omens 2 #aziraphale #ineffable motherfuckers #ineffable husbands #aziracrow

[internetcatholicism]

Abortion is healthcare 🥰

Ah yes killing your patient is the best thing you can do.

That's why oncologists kill cancer patients

That's why endocrinologists murder the diabetics

That's why neurologists kill anyone with MS, Parkinsons, epilepsy

That's why cardiologists dispense of anyone with a heart murmur

That's why pulmonologists murder anyone with CF, asthma, COPD

Totally healthcare.