#chronic fatigue sucks

[sylverena]

i fell asleep at my college campus in our genders and sexualities center but no one could tell bc I was piled in all the stuffies we have there

#chronic fatigue sucks #i woke myself up with snoring gosh thats so embarrassing but i dont think anyone could hear

[booksflowersmoonwings]

you ever get sick and tired of thinking about how sick and tired you are of being sick and tired?

anyone have cute art of asra (the arcana), shino (naruto), or john doe (uncanny valley game) they feel like sharing?

or gush about something cool they just finished creating?

I dunno could use some. goodness.

#chronic illness sucks #chronic pain sucks #chronic fatigue SUCKS #how am I supposed to take care of my spouse and my home and my critters if all i ever want to do is sleep? #how am i supposed to actually put in the requisite effort to my mfa #and writing in general? #how am i supposed to work out and get stronger or eat well #or work on other projects I've committed to? #head hurts every day #ibs acts up most days #never feel rested no matter how much i sleep #back pain joints muscles bones etc #and I've been so depressed and listless for so long #my partner works as a nurse full time and is also getting her masters degree because she is a badass #she has reason to be exhausted #technically i do too but it doesn't feel like it because i barely have done anything today and everything i have done came with struggle #but I'm still exhausted #perpetually #for as long as i can remember #and i don't know how to fix it #and I'm tired #and it's not fair #by which i mean #it's not fair to everyone else who works at hard as they do #that i DON'T anymore and still feel like shit and am allowed to not work a regular job anymore #it's not fair #I'm so tired

[galpalaven]

Y’all know what im tired of?? Being tired

#chronic fatigue SUCKS

[kakashihasibs]

I'm awake. I got out of bed on time and other than canceling going to the store bc of the ice storm im staying on track but like i am so fucking tired. I wanna be cozy in bed cuddling my dog not this

#chronic fatigue sucks #i just wanna have a life that isn't just sleeping all the time #blease #ben gets personal

[palelittleangel]

I hate that I'm so burnt out by October. I love Halloween and want to do fun and spooky shit like decorate and go out and buy stuff and arts and craft spooky stuff and do perfect eye-liner and Halloween themed makeup. But I barely have the energy for daily tasks. I'm barely keeping it together

#chronic fatigue sucks #chronic pain sucks #i love halloween #but hate this point of the year otherwise #im bordering on completely burning out #there is SO much I want to do but just cant #also the extra hours at work are killing me

[love-me-love-my-weirdness]

Doctor 1: They’re the clone! Shoot them!

Doctor 2: Don’t listen to them! They’re the clone!

Me: There’s only one way to settle this

Me: I have chronic pain and chronic fatigue. Why?

Doctor 1: It’s likely a chronic illness. Our tests probably won’t show it. We’ll look into rarer stuff and listen to all of your symptoms. Rest and look at mobility aids to help you function in day to day life. I can refer you to a rheumatologist and see where we can go from there.

Doctor 2: You need more exercise lol. It’ll go away in a few months.

Me: *shoots Doctor 2*

Doctor 1: You fool! I am the clone!

Me: I know. Please be my new doctor.

#chronic illness #chronically ill #chronic fatigue #chronic pain #chronic disability #health care #doctors suck

[sunnycanwrite]

the bizarre reality that you've been in pain since childhood. Doctors don't listen to kids. They say "oh, kids are dramatic, it'd just growing pains" or "you really want to get out of school don't you." I never had a doctor take me seriously until I made a list of every single symptom. Charted every moment of pain I felt for a week.

I was not taken seriously when I was collapsing on the daily. When I had to buy my own cane. When I started walking with a limp. I didn't realize that being in constant pain, was odd until I was 18. I'm not even 20, and I own more canes than my grandma. Being chronically ill is part of my life. Being chronically pissed at doctors shouldn't be part of it too.

#angry cripple #cripple punk #disabled people #disabilities #disabled #doctors suck #chronically ill #chronic pain #chronic fatigue #chronic illness #chronic disability #Chronically annyoned #cane user #ambulatory wheelchair user #cripple posting

[asharestupid]

I don't think people understand how bad cfs actually is. Like whenever I tell ppl a lot of them are like "oh haha yah me too" and just... No??? A few hours ago I was so tired I couldn't even move (not an exaggeration, I was literally stuck in bed, laying down without being able to even turn over) cfs is an actual thing and I hate that ppl do this with things they don't understand. Disabilities aren't adjectives.

#im still stuck in bed but now i can move a bit lol #i mean a win is a win #cfs #chronic fatigue #actually chronically ill #chronically ill #chronic pain #chronic illness #disability #actually disabled #disability awareness #physical disability #disabled #flare up #flare ups suck #i hate them #im so tired #chronic fatigue syndrome #writers on tumblr #ableism #fuck ableists #ableist bullshit

[ryegarden]

little PSA for anyone struggling with undiagnosed fatigue or long term fatigue without a visible cause - if you've found similarity with conditions like POTS, fibromyalgia, or chronic fatigue, or if you have chronic pain, heavy menstruation, difficulty focusing/brain fog, memory and concentration issues, intolerance to exercise and/or an abnormally fast heartrate/heart palpitations. Get your ferritin levels checked 👍 because it might be non-anaemic iron deficiency! It's only fairly recently that scientists/doctors have seen and taken note that low ferritin (carrier of iron in your blood), even if you have normal iron levels, can cause serious health issues often misdiagnosed. It's treatable with high level iron supplements!!!

Guidelines (at least in the UK) state that normal levels are 5-204ug/L but in reality, anything below 100ug/L can lead to really awful symptoms like those described above. It's more common in people who menstruate, especially if you have heavy periods (also other types of blood loss like blood donation or gastrointestinal issues), as well as people who are vegetarian, and consume a lot of products that inhibit iron absorption (such as tea, coffee, cow milk, and egg yolks) or have a condition that impairs iron absorption such as coeliac.

I normally don't make posts like this but I have had these issues for the past eight years and only just found that this might be the source. It's underdiagnosed and thus undertreated, and so maybe the knowledge will help someone else out too 👍

#rye.txt #chronic fatigue #fibromyalgia #pots #hypermobilty syndrome #shrimply using these tags bc these were all the things i was told it might be #this might still not be the cause for me i haven't started the treatment yet #but even if not #it might help someone else #and chronic pain and fatigue sucks 😵‍💫

[scribefindegil]

the balancing act between "I am still a whole person and I have value no matter how sick I get and I will find ways to be happy despite the curse because I am too stubborn not to" and "okay, but it really fucking sucks though. like it does just suck super hard."

#curseblogging #i find the chronic fatigue support/advocacy communities exhausting and unhelpful #bc of how much focus there seems to be on how this illness ruins people's lives and takes everything away from them #and living with it is nothing but misery #it's a bad and unhelpful framing for me. #but also #they make some points #it DOES suck

[so-called-failed-academic]

My chronic illness confuses me so much,

Some days I can walk loads and wake up, sure in pain, but I can still move with pain so then I think oh I’m not that bad I’m not bed ridden today so like you know..I must be faking it

Then other days I will have done the bare minimum the day before and the next morning I feel like I can’t move. Or I’ve done loads before and I can’t move. Then im like oh god wait I am sick maybe.

Then I remember, I have a fluctuating disorder. That’s literally it’s whole thing. I don’t have to “suffer” (by that I mean be in tears and unable to move) every day to be valid, and learning that is so difficult?

I’m sure so many people have felt this way, I know having people tell me for years that I’m faking really didn’t help but it’s like no, I will not be silent about this.

I need to get rid of this internalised ableism

#actually disabled #disabled #disabled community #chronic illness #chronically ill #chronic pain #fatigue #chronic fatigue #cripplepunk #ambulatory wheelchair user #walking stick user #I went to pride yesterday and now my body feels like death #did I over work myself? yes. #have I still got to study cause deadlines suck? yes

[jemineye]

a lot of people are ableist without knowing they are, and that's okay, we're here to learn and grow. but if i, or any other disabled person who experience ableism daily, tell you you're being ableist, you have absolutely no authority to say you aren't or that you can't be because a family member or friend is disabled. you don't know ableism until you've experienced it yourself. having someone in your life who does, doesn't exempt you from it.

#disabled #disability #physical disability #chronic illness #chronic disability #cripple punk #chronic pain #chronic fatigue #ableist bullshit #ableism #ableism sucks #ableist nonsense

[halogalopaghost]

#IM SO STRESSED IM SO STRESSED #I feel like I'm not handling ANYTHING well rn #so many people have symptoms that are WAAAAAAY fucking worse and they're like. working full time jobs and being a parent and shit and #I'm like waaah oh no I have body aches and chronic fatigue looks like I'll have to be unemployed and never do anything ever 💀 #how am I gonna live?? like. my parents are taking care of me and I'm so fucking glad but #SOMEDAY THEY WONT BE AROUND and that stresses me out so bad #I'm 25 years old and I NEED my mom every day if not physically then emotionally because I'm a little bitch baby that can't do anything for #herself. im having a hard time feeding myself I'm having a hard time keeping my living space clean #I'm not taking care of anything except the dogs sometimes and my lizard and she's not getting as much attention as she used to #I need a job and I need to be able to suck it up and DO THINGS but I feel like I'm not the person u was anymore #I was strong and I could push thru things and make myself do things and now I can't???? I just lay on the fucking couch!! and feel bad abtit #is it the tism. is it the ADHD. what about the chronic depression. how bout the fibromyalgia? #and the thing is that ALL OF THOSE THINGS ARE MILD #I don't have severe pain (yet). #I just can't handle it I don't WANT to handle it #so. shoutout to my mom I guess because if it wasn't for her I simply wouldn't be alive #I feel like I've never been happy!! why can't I just be content and be happy!!!! #I have no fucking reason to be unhappy!!!!!!

[orcelito]

Opening the local bubble tea store absolutely livid and shaking in rage and upset bc my bitch ass boss is too concerned about us sitting on the job to order the tea bags I requested Two Fucking Weeks Ago (it only takes like 4 or 5 days to ship) and so we're out and I had to hand wash the 1 reusable bag to make black tea and I have to strain the free floating tea leaves from the cold brew and I just KNOWWWW he's going to have something more to bitch about because he always does

Last straw on the camel's back, etc etc, I want to put in my two weeks notice by the end of this week. That's a goal for myself.

#speculation nation #i currently dont have a job lined up but im going to start applying Today #because i cant take this anymore. i cant fucking take this anymore. #i feel like im about to shatter from the strain of hos chokehold #8 years total under his thumb and for What? he doesnt appreciate me. he doesnt value me. #he's an asshole this place sucks and it makes me so sad because i really do care about the people here #but i cant. i cant fucking do it anymore. #im really glad im alone on shift rn bc ha ha ha. ill put up the mask for customers but i am #genuinely shaking rn. im so upset. #this being after he complained Again about people sitting on the job during the meeting last night like #shut UPPPP I DONT CAAAARE #YOU TRY WORKING WITH CHRONIC PAIN AND FATIGUE AND A JOB THAT DOESNT GIVE GENUINE BREAKS #'oh if you need to take a break then do it but just dont sit down on the job“ #WHEN DO YOU THINK I COULD TAKE MY BREAK? IM WORKING ALONE!!!!!!!!!!!!!+ #and when im.not working alone im working with trainees so i still cant leave the store unattended #im sick of him.im so sick of him and im THIIIIIIIIIS close to just breaking down here and now #i hate him i hate him i hate him i hate him i HATE HIM #negative/ #sorry for the vent i just feel like.im about to blow up and everyone's busy so ic cant. vent properly #im not even done opening bc im too busy freaking out and pacing and being angry #and hes gonna watch me sitting here thru the cameras and be like Ho Hum Look at you immediately doing what i said not to #like fucking STOP!!!! WATCHING US!!!!!!! YOU FUCKING CREEP!!!!!!!!!!!!!! #IM SO SICK OF HIM WATCHING US THROUGH THE CAMERAS. HE HAS NO TRUST IN ME DOING MY JOB #0 value for me as a person or employee 0 value for my to this day dedication to this company #i want to send my heel through those front windows. watch them shatter. wreck the whole place #because fuck this place and fuck him #i wontttt bc i dont wanna go to jail lol but the temptation is there. i fucking hate his guts. #im going to put in my 2 weeks by the end of this week. im going to start applying to places Today. just fucking watch me.

[ratinthevoid]

why do we have summer already? last time i checked it was february

#im so tired #while i'm already chronically fatigued any temperature above 15C is sucking the remaining energy out of me #don't get me wrong i'm happy to have one warmer day and go out on the sun for a while #but soon i won't be able to sleep again and i'm gonna be a ghost for few months #and everything gonna be sweaty and ughh the horror of wearing less clothes or dying in jeans on 30 degrees #it cam stay how it is now fine but we can't have summer yet boys i can't take it

[spookietrex]

Me filing for disability again: Hey guys, this time I can't leave my bed and my partner is literally doing everything for me. Like I can't walk more than 100 ft and that's with a mobility aid.

Disability: Prove it.

My therapist: Oh my God they're so miserable. They should NOT be working. Please let them focus on healing themselves because they had such a bad childhood.

My cardiologist: Yeah, that sounds smart. Let's work on managing stress first so we can manage your heart condition.

My neurologist(s): You should definitely not be working while you figure out what's causing these possible seizures.

My PCP: I don't know what they're talking about. They're making it all up. I know I diagnosed you with that heart condition, and that debilitating chronic illness (EDS) and fibromyalgia but NOW I'm going to edit your chart to make it look like you're making shit up. Hahaha you've never been diagnosed with PTSD! What are you talking about? I saw you walk once 8 months ago. You can totally walk without mobility aids now.

Disability: Clearly you just have anxiety and depression and are trying to get out of working.

#lol wut #my journey to find healthcare that doesn't hate me #what my doctors think i sound like #my doctors hate me #my pcp sucks ass #chronic health issues #chronic fatigue syndrome #chronic illness #chronic pain #fibromyalgia is a syndrome (set of signs/symptoms) and not a like. known disease process #and they can't explain why you actually feel that way because we don't know what fibromyalgia is mechanistically #fibro #fibro problems #fibromyalgia #hypermobile eds #fuck you eds #eds zebra #eds #hyper irony #ehlers danlos problems #ehlers danlos zebra #hypermobile ehlers danlos #ehlers danlos syndrome #living with pots #fuck you pots #potsie #pots #invisible disability #disability humor #cripplepunk