#chronic illnes

[neuroticboyfriend]

i think cripples and the insane should be allowed to do whatever we want with our bodyminds forever. it is no one's place but ours to decide what we do with our own lives and being.

#softspoonie #crippunk #cripple punk #crip punk #cripplepunk #madpunk #mad punk #neuropunk #neuro punk #neurodivergent #mentally ill #mental illness #chronically ill #chronic illnes #disabled #disability #disabled rights #disability rights

[autistic-disabled-poet]

The Doctor Shopper

Doctor after doctor, Day after day, I still beg for help, yet each time they say:

Here are some probiotics! I really think you should try them. You have migraines, so here's some magnesium oxide! I couldn't be caught "refusing treatment" so my hands are tied.

Take a multivitamin, The cure to all that ails you. More fiber, maybe Benefiber, But you may have fructose intolerance so not fruit smoothie fiber.

Your ankles aren't weak. Your ankles don't roll. You're autistic, You're dyspraxic. I wonder if that's really all.

I would like a new doctor, but randos on the internet claim, Stop switching around! You should stop "doctor shopping."

"I don't think that they're hallucinations!" Nope, just auras to migraines. Also, I'm autistic. Everything is interpreted as scary when you're autistic.

He's a nutjob, I'd like a new doc! I want to switch but I don't out of fear of claims of doctor shopping.

The yellow dots are chasing me! No, visual auras which autism made scary. Clawing and cutting out the spiders in my blood my skin my brain. No, tingling auras made scary by the autism.

Should a doctor really be this stupid? The psychologist in the room, she didn't say anything! Would getting a new doctor really be doctor shopping?

I couldn't possibly have EDS. Nope, my doctor has a connective tissue disorder. I'm not more hypermobile than thee, so an Ehlers Danlos diagnosis must not be for me.

"You have AMPS!" "You have IBS!" "You are fat!" "Drink water and get more exercise!"

I won't be a doctor shopper. I can't help but wonder, is wanting to be believed really shopping for a doctor?

A fat female teen, symptoms of nausea, pain, dizziness, and more. The most obvious option is mental illness. The best prescription is weight loss.

My attempts at exercise are extinguished by my pain. I can't keep on, but there's no help until I'm the one to fix it all.

I fantasize every day of growing up, losing some weight. Building a ton of muscle, drinking gallons of water a day. Taking my vitamins and supplements like some kind of health freak.

Walking into their office, "I'm not cured!" I'm falling, I'm swelling, I'm hurting, I'm crying. Help me, please.

Are these thoughts normal? They don't feel normal. I should be fixed. I could be fixed. Drugs, therapy again, more drugs (What mood stabilizer is it now?)

Maybe one day my pain will be taken seriously. Maybe one day my quality of life will be taken seriously. Maybe one day I will be taken seriously. That day's not today, I wish I was okay, but I can't handle it.

If I question it... Question their years of medical knowledge... Question their schooling... Question their authority... I'm the bad guy who's looking to shop for a doctor.

#medical gaslighting #not believed #chronic pain #chronic illnes #i want to be happy #i want to be pain free #autistic #autistic disabled #physically disabled #hypermobility spectrum disorder #hypermobility syndrome #hypermobile #migraine #joint pain #cane user #amps #amplified pain #amplified musculoskeletal pain syndrome #spoonie #a poem #poetry #poet #a poem by me #i wrote this poem #this is my poetry

[thedenofravenpuff]

Current Status

I haven’t updated much here, so here’s some news. 

After months of struggling and frustrations, recovery is finally starting to show in tangible ways. 

I haven’t needed my cane for a while now, and managed long walks without starting to limp. Haven’t felt my limps in several days now! The usual daily pain and fatigue is mostly gone too, and I feel so grateful to finally actually FEEL improvement again. 

Chronic illness SUCKS, I would not recommend.

Of course I know I still need to be careful and not overdo anything, don’t want to go back to zero again so soon. Recovery is such a slow and frustrating process. 

I did get hit by a fit of fear yesterday, by being reminded how easily I lost recovery last time and fell back to zero, all it took was my baby niece coughing a bit at me and I ended up having to give up my job because my health proved too unstable to be considered functional enough for the job market. 

But now I can draw again, and even consume other hobbies as I’ve rediscovered my love for cross stitching. I’m keeping up my exercises and now reached a stage of functionality I can focus on building up stamina again. 

Still ways to go, but is nice to finally be able to relax with some good results showing. Just gotta be careful to not lose it all again too soon, so fingers crossed.

Thanks for reading!

#PuffBlog #Status #Update #Journal #Current Status #Chronic Illnes #Chronic Pain #Chronic Fatigue #Fibromyalgia #Recovery

[groverarms]

Down to 182lbs at 6ft tall. Dr. ordered tests because unexplained rapid weight loss is dangerous. She's more worried than I am, and never ONCE implied illness is better than being fat. I fucking love her. If we can get more natives into healthcare, the world will be a better place.

On the other hand... I'm kinda enjoying it. I swear im not falling back into the eating disorder. I do eat; but I'm incredibly poor and sick.

I'm just kinda chubby now and I'm cool with that. I have chronic pain and chronic illness. I'm gonna be sick no matter what. At least I can be sick in prettier clothes dammit.

#chronic illnes #tw eating disorder #doctors #fat

[lelibug]

(via EXHAUSTED)

It’s the Same Thing, Every Day, now. Sheer Exhaustion, Hyper-Anxiety, BlackOuts & ZoneOuts, one of my parents – or both – creating Immense Panic Attacks that sometimes, often, rise towards Meltdowns from the levels of Distress they cause and how I am [not] helped out of them.

TOO MANY BLACKOUTS/SEIZURE THINGIES…. THEN NIGHTMARES ALL NIGHT AGAIN…   THERE IS NO REST TO BE HAD – – BECAUSE “SLEEP” ISN’T “SLEEP”…

I can’t even Eat Properly… I’m just living on basic “finger food” type dinner and that’s it. I honestly do not get to have anything else… Anything else has me Zoning Out or in Full BlackOut — Very Very Quickly…

READ ON…

#fibromyalgia #blackouts #chronic illnes #chronic pain #absolutely exhausted #adrenal fatigue #cptds #aitis

[daanfaan]

Hi I am here to ask for help since I am very concerned about what's wrong with me, this has happened for years. (Maybe 4?)

Info below the cut

Always:

Headaches

Aching

Exhaustion

Tinnitus

Tremors (you don't usually see it but at school and stuff I twitch, like full body tensing up, neck forcefully twitches sometimes which can Crack my neck)

Getting up/Standing:

Dizziness

Slight shaking (not that bad it's just if I stand for like 5 minutes I start shaking a bit and it's hard to stand)

Walking:

Leg aching

Shortness of breath

Sometimes for too long I might also get chest pain

Running:

Cramps

Bad bad leg pain

Really big exhaustion

And I need to sit down for a bit afterwards

I have fainted maybe two or three before because of these, I did a blood test and it is not an infection or anemia.

#medical help #medicine #medical #chronic illnes #chronic pain #looking for help #diagnosis help #diagnosis

[bipedalseal]

oh no not the bloody asthma -.-"

#mine #chronic illnes #skin asthma

[nil-the-glitch]

love situational pronouns. she/her does not fit the vibe when i'm exhausted but it/its sure does. being silly? oh hes just a little guy then.

#my gender is 4d transdimensional chess and only i know the rules so you're honestly just better off not perceiving me #actually thats a lie i don't know the rules either. my gender is an affliction that has flareups sometimes like some kind of chronic illnes

[wild-moss-art]

doin a lot of research on my issues to distract(not really working) from the pain and was pleased to find that the cleveland clinic uses a lot of gender neutral terminology!

#thought it was worth sharing <3 #chronic illnes w #it's a very genedered coniditon. so its nice #moss is sick as in cool but also as in sick #<- if u dont like hearin abt it #or alternatively if u are curious and want details they are in the tag

[bidisasterevankinard]

Guess what i have today? Yes, another appointment with my doctor

#diana.txt #have chronic illnes sucks #especially when you have rounds of bad days

[disabilityandthearts]

[Text Description]

Background: Galaxy with blue purple and pink ombre with tons of stars in the universe

Disability and the Arts

Quick Facts as Described by the NEA

Fact 1: While Disabled Adults make up less than 12% of the population, they make up less than 7% of arts participants.

Fact 2: Although 45% of the Disabled population is made up of older adult (Age 65+), age is not a factor when it comes to arts participation.

Fact 3: Disabled adults are just as likely to make visual art and are more likely to create fiber art than the general population. 

Source: https://www.arts.gov/news/press-releases/2015/new-nea-research-arts-participation-among-people-disabilities#:~:text=Adults%20with%20disabilities%20are%20underrepresented,visiting%20art%20museums%20or%20galleries.

#disability #disabled artist #disabled musician #Arts #visual arts #performing arts #disability and the arts #chronic illne #art #arts administration #national endowment for the arts #nea #chronic illness

[proudfreakmetarusonniku]

whoops venting through my boy c!tommy again lol

tw: self harm, disturbing imagery, body horror imagery, blood, self hatred, chronic illness, references to vomiting, implied suicidal ideation.

there’s monsters in tommy's skin.

he can feel them crawling around his scalp- tick tick tick as their legs dig into his skin again and again and again and again. they’re moving and they won’t stop, and when he touches where they once were they’re gone, but it doesn’t stop him digging and digging and digging until blood stains his fingers to try and stop it. the pain with that is different, less unbearable. he wants to tear away it all.

a thousand phantom hands touch at his body, some soft like velvet, gentle touches from pale claws. some rough, heavy pressure from hands stained with ash and sweat and smelling like cigarettes. each is enough to make him want to curl up into a ball and weep, but the amount of them tugging at his arms and his hands and his legs and his head face ears eyes everything pushes past that into total endless numbness, the shut-down of a body with too many bruises and not enough blood that he felt more familiar with than he should.

it’s impossible to will his hands still. he wants to scratch claw bite at his skin and let what’s inside get out out out of his body and stop hurting but he can’t do that it’s not real it’s not real. yet even as he tells himself to stay still he feels skin breaking underneath him, red liquid and skin covering his nails. stupid stupid stupid he couldn’t stop himself no matter how hard he tried he was so fucking pathetic wasn't he?

prime, he looks like shit. hair patchy and weak, scabs and scars everywhere. deep bags under his eyes, skin paler than ever. something sickening welling up inside his stomach making him feel weak, like he can barely stand with the dizzying nausea. he drifts in and out of consciousness, and his dreams are worse than being awake.

is he going to be sick? he doesn’t know anymore. he's been feeling so nauseous recently, and sometimes that leaves him curling in on himself as he gags out void-black something onto the floor, and other times it merely leaves him dizzy and locked in bed for days on end. he can feel himself weakening and there’s nothing he can do about it.

he thinks often of sharp objects.

#vent #my writing #dream smp #tw self harm #tw disturbing imagery #tw body horror imagery #tw Blood #tw self hatred #tw chronic illnes #tw vomiting mention #tw implied suicidal thoughts

[alullinchaos]

also I think we need to entirely reframe how we view mental health and "psychopathology" and I am not fucking kidding

#alic lore #my body and my mind are inseparable and they both make each other sick. i have not been suicidal since i started treating my chronic illnes #and this is not me saying that a reduction in symptoms made me happier-- my suicidal ideations and frankly compulsions WERE symptoms #of a hormonal imbalance inside my body #but nobody cared to find that out. I just happened to notice that when I miss my medication I can tell because I want to commit endlife.exe #atp to me people who benefit from psychiatry are almost like rich people- it's a privilege and the system still needs to be fixed #im not gonna congratulate you for managing to do what everyone should be able to do. in their OWN way how THEY want to #not this fucking “go see a shrink they'll fix everything and if they don't it's because you're doing something wrong” bullshit

[kripovno]

I'm having a rough time but also a bunch of art to post I haven't put up here yet! Well!

#ilya rambles #been very dysphoric and sad the last. while #and chronic illnes crash stuff

[eggwhiteswithspinach]

👏 HMO vs PPO: What You Should Know If You Have A Chronic Illness or Disability

#Medium #Favourites #Reads #Recommends #HMO vs PPO: What You Should Know If You Have A Chronic Illnes

[pleastrop]

I know this may sound horrible but I miss when I only had mental health problems because I actually had hope, like I knew I could get better or at least I could control my symptoms, but with an incurable chronic illnes I don't have the privilege of the "it will get better" and it makes me feel so lost, like I'm just gonna have to live with this for the rest of my life, doesn't matter how hard I try or how many doctors I see

#chronic fatigue #chronic illness #chronic pain #chronically ill #disabled #dysautonomia #postural orthostatic tachycardia syndrome #pots #pots syndrome #actually disabled