#chronic migraines | Explore Tumblr Posts and Blogs

invisibleoctopus · 6 months

Text

chronic pain culture is not being able to relate to the "lets take ibuprofen together" meme because ibuprofen hasnt worked for your pain since you were like 10

#le p2iigh #chronic pain #chronic migraines #the way i thought they were 'just headaches' for 20 years of my life #while getting an average of like. 2 a week #of course its way more now

1K notes · View notes

melodymorningdew · 1 month

Text

Imposter syndrome is a bench

Image description: drawing of a nondescript person with a tired/unimpressed expression on their face right next to a drawing of someone vibrating with excitement

Caption:

Me: "I must be faking my illness. I went on a walk yesterday."

Also me: "MY WALKER AND SHOWER CHAIR ARE ON THEIR WAY"

428 notes · View notes

thebibliosphere · 8 months

Text

I'm trying to remain positive and remind myself that having a migraine every 11 days is really good, considering I used to get them daily. (This time last year, I'd had just under 200 migraines. For a frame of reference, August 30th is the 242nd day of the year 😓.)

But it still sucks. Every 11-12 days, my body takes me out of action for 18+ hours. And while they are better than what they used to be, it's still debilitating.

Maybe I'm just losing my tolerance. But I have no idea how I survived last year.

#chronic health tag #chronic migraines #do not recommend meds plz #if I could take them I'd be on them 😭

720 notes · View notes

dravenxivuk · 10 months

Text

I remember studying Flowers for Algernon at school, and what a huge impact it had on me. How dreadful, I thought, to know your intelligence is slipping away and being unable to prevent it. The horror you must feel.

And now, as I sit here with my multiple chronic illnesses that cause various types of cognitive impairment, watching my ability to think, plan, create, follow instructions, find the write words and form complete sentences slip away like grains of sand through my fingers, I know what that horror feels like.

So I looked up Flowers for Algernon, to see if I could find any quotes, find out if I was misremembering it, inflating it in my mind into something grander than it was.

I was not.

The quotes are still emotionally devastating.

"I'm not going to give up my intelligence without a struggle. I can't go back down into that cave. There's no place for me to go now"

“It was as if I had been looking at the whole thing clearly on the blackboard of my mind, but when I turned to read it, part of it had been erased and the rest didn’t make sense.”

"The only question now is: How much can I hang on to?."

"But writing is harder. I have to look up even simple words in the dictionary now and it makes me angry with myself.”

Excuse me while I weep for a while for what I've lost.

#flowers for algernon #chronic illness #chronically ill #chronic migraines #chronic fatigue #chronic pain #hEDS #PoTS #postural orthostatic tachycardia syndrome #dysautonomia #hypermobile eds

562 notes · View notes

thisaliennerd · 11 months

Text

people when I tell them I'm disabled: omg take your time, lmk if there's anything I can do to help 🥺

people when I actually take it at my own pace and communicate my needs: 😡

#im not sorry im an inconvenience #but I would like to not feel like it all the time #even the best intentioned people give me this vibe a lot #disability #chronic pain #chronic migraines

1K notes · View notes

not-your-pussikat · 2 years

Text

When you have a chronic illness, after a few years you reach The State Of Meh.

That's when your body exhibits A Formerly Unknown Thing that is non-healthy and might be a symptom of something new (or not) and you're just like: "Whatever, man. I just work here."

#chronic illness #chronic disease #fibromyalgia #chronic migraines #spoonie life

2K notes · View notes

spookysalem13 · 4 months

Text

Just a fellow spoonie 🥄 here to share a relatable hilarious 😄 video.

Being chronically ill, you have to learn to find the humor in your diseases. For me, it's a major way I get by day to day.

This made me smile, I hope it can make you smile as well.

150 notes · View notes

headpainmigraine · 6 months

Text

Interesting notes from the latest Migraine World Summit email re: 'Is Migraine a Progressive Disease?'

I asked my neuro about brain damage caused by migraine once, and was told it doesn't damage the brain.

I don't know. I certainly FEEL like it's been damaged - I feel like my powers of cognition and everything else, for that matter, have degraded since my migraines became chronic, and it's coming up on 9 years constantly now, so there's been plenty of time for damage to occur, if any.

That said, how much of that is actual damage to the physical mass of the brain, and how much is just the effect of constant persistent pain causing oversensitive nerves?

So, things I found out:

Just 1% of the population (I'm assuming in the US) have chronic migraine

there's a subset of episodic migraine called 'high frequency episodic migraine' which involves 8-14 migraine days per month; this'd be a stage in between episodic migraine and chronic migraine

research shows disability caused by migraine has increased, but that could just be because they've changed the way the studies are done - does that information really mean anything then? Disappointing

functional changes in the brain can be seen, more prominently in people in chronic migraine than episodic migraine

these changes include affected areas of pain processing (which we knew) but also more iron accumulation??? I don't know what that means, but what?

they also suspect there's more happening in our metabolisms because of all the nerve firing off, which, yeah, makes sense.

and another thing we knew already, it's best to get treatment sooner rather than later; the longer migraine goes untreated, the more sensitization in the pain pathways increases

Maybe some interesting new stuff in there for people who have chronic migraines.

For everyone else who comes by this and DOESN'T have chronic migraine, I hope I can leave you with this:

Migraine Isn't A Headache.

#migraine isn't a headache #neurological cascade disorder #chronic migraines #migraines #headache #spoonies #chronic pain

184 notes · View notes

dyspunktional-revan · 11 months

Text

I still see the lightning bolt disability pride flag (the one with the zigzag-shaped non-bg part) being used occassionally.

Your reminder that it can *kill* people with epilepsy, as well as hurt those with other kinds of photosensitivity (I'm autistic and have chronic migraines, I can't look at it)

The creator was alerted of that and has long since made a photosensitivity-friendly redesign. It is also open to further edits. Her tumblr is capricorn-0mnikorn, she has the flag in her pinned, but just in case, perhaps also will draw attention more, I'll add it here too:

[Image description, copied from the creator's original post:

A “Straight Diagonal” version of the Disability Pride Flag: A charcoal grey flag with a diagonal band from the top left to bottom right corner, made up of five parallel stripes in red, gold, pale grey, blue, and green

/End image description]

#psa #disability #neurological disability #neurologically disabled #neurological disorder #epilepsy #autism #migraines #photosensitivity #accessibility #leviathan.txt #described #disability pride flag #disability pride #pride flags #important #chronic migraines

517 notes · View notes

cyare-fi · 10 months

Text

People with invisible and mental disabilities are, and have always been, valid 🩷 I see you and I know you, and I love you. We're still disabled and we will always be here. An especially happy Disability Pride Month to us, and we will be seen.

#sweet talks #disabled #disability pride month #disability #invisible disability #chronic pain #chronic migraines #adhd #actually adhd #actuallyadhd

195 notes · View notes

melodymorningdew · 20 days

Text

I love being told that the help I'm given means I owe something to the person who helped me 🙃 Like don't help me, then.

56 notes · View notes

thebibliosphere · 1 year

Note

How did you get rid of yr migraines?? #ineedthistoo

They're not totally gone, but I found out they were being hugely exacerbated by atypical binocular vision disorder. (Meaning I don't have the usual expected double vision, which was why my regular eye doctor missed it.)

I got tested by a neuro-ophthalmologist who did a 3, almost 4-hour eye exam to find that my eyes were not working in harmony and were likely causing a lot of fatigue and pain.

If you want to read more about how I got diagnosed and what it was like, I documented the whole thing on my blog. Just look for 'binocular vision disorder.'

If you want the tl;dr version: I am now wearing micro prism lenses to correct my eyes, along with a red tint to the glass to help with my severe photophobia.

My eye doctor prescribes migraine patients red-tinted lenses, as the red tint blocks more blue light than either yellow or green-- which are the typical color of lenses designed for screen use.

Even if you don't have any form of BVD, I'm going to highly suggest looking into red-tinted glasses, as even when I was waiting on my new prescription coming in, I was wearing a pair of non-rx red glasses, and my migraine pain severity went down drastically.

I didn't realize how much I was squinting and clenching my facial muscles from pain caused by blue light (natural and tech generated). All the screens in my house are now set to the night-light setting, which makes them orange/red, and I'm getting uv films for my windows so we can still see out but not have as much sun/snow glare in our south-facing home.

I'm also replacing the green acetate cover for my screen with a red one, just for an added layer of protection.

It makes my world very rosy, but it's helping*.

I also take magnesium and b2 as directed by my regular neurologist, which seems to help--though obviously, it couldn't help correct the issue my eyes were creating, so I'm interested to see if I get more benefit from them now.

The rest of my migraines now seem to be hormonal, which I am still pursuing, though sadly, with little help from my current ob/gyn. Need to work on that.

Anyway, that's how I went from 15-20 migraines a month down to 3. My eyes were fucked. They are still fucked, and I'm doing vision therapy along with the prisms to try and help, but so far, it's working!

---

*For anyone wondering, I still do green light therapy, which is also recommended for migraines. I'm just also trying to block as much blue light as possible, as that seems to be a major source of pain for me, not to mention the disruption to my sleep schedule. I've suffered my whole life from delayed sleep phase syndrome as part of my ADHD, but my chronic insomnia and problems sleeping have improved a lot since I started wearing red lenses and filtering all the tech in my house. (Ignore that I'm posting this at 2am, I'm awake by choice.)

#binocular vision disorder #atypical binocular vision disorder #chronic health tag #chronic migraines #long post

441 notes · View notes

cistematicchaos · 7 months

Text

Writing this with fucked vision and a fucked head so forgive me for not putting it through grammerly (/s) but fr, people struggling with migraines without proper accommodations or medicine or general medical care, y'all have my heart. I've been struggling Sith this since I was little. They told me it was my eyes (which were admittedly fucksd), kept changing my glasses prescription and denying my need to see a headache specialist for years.

When I finally saw one, she couldn't get me out fast enough, telling me off for "self-disgnosing" myself with migraines and saying I was probably causing them by taking headache medicine too frequently (the only means of stable pain relief I had besides ice packs) but gave me an extremely low dose headache med and lied to me about the side effects, despite knowing my pain was 24/7 and severe and that I was very sensitive to medicine side effects.

To say that was only the beginning of me being fucked over and an example of what was to come is an understatement to the point of seeming like a joke. I've been back and forth so many times with quite a few people, most of whom seemed to view me with something varying from clear disinterest to mild irritation and I've been on too many headache meds over the last year alone, I'll tell you that. It makes me so fucking tired.

People with chronic migraines like me are chronically neglected and chronically mistreated by doctors and the like and my heart goes out to all the people like me. Especially those who haven't found meds that work properly, or don't have great doctors or have other medical issues too that are exacerbated by your migraines or vise versa. We're fighting thankless battles all the time but this is my thank you for fighting it because knowing its not just me out there helps. Just a little bit.

#Chronic pain #chronic migraines #headaches #disability #ableism #medical neglect #chaos is speaking

147 notes · View notes

daffythefox · 8 months

Text

I was supposed to be exceptional and I can't even hold down a job.

#actually npd #actuallynpd #actually disabled #migraines #chronic migraines #chronic pain #physically disabled #disabled #me when i #migraine #AAAAAAAAAAAAAAAAAAAAAAAAAAAA #vent #a bit of a vent

119 notes · View notes

neerisntsure · 6 months

Text

my body does not know how to have one day of no pain

fellow chronically ill peoples you get me

#chronically ill #chronic pain #chronic migraines #pots syndrome