#chronic pain disease

[not-your-pussikat]

PSA

Just popped some migraine meds and shit is about to get trippy, people!

#abt me #migraines #chronic migraines #chronic pain disease #triptans got me like #whoooa #I see colors #damn this stuff is good #I believe I can fly #is that a hamster in my tea?

[take-a-dip-in-the-deadpool]

THIS!!

THIS IS AN AMAZING WAY TO THINK OF CHRONIC PAIN

#chronic pain #disease #multiple sclerosis #tiktok #share #rb

[spooniestrong]

#spooniestrong #spoonie #disability #chronic illness #chronic pain #ableism #disabled #autoimmine disease #autoimmune

[tumble-tv]

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

#wheelchair #ambulatory wheelchair user #ambulatory mobility aid user #chronic illness #chronicpain #chronic disability #other chronic illness bs #chronic disease #chronically ill #disabled #fibromyalgia #undiagnosed chronic illness #disablity #chronic disorder #chronic pain #chronic fatigue #invisible illness #invisible disability #disability #physically disabled #disabilties #cpunk #cripple life #cripple problems #cripple punk #queer cripple #crip punk #undiagnosed chronic pain #joint pain #screenreader unfriendly

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

#signal boost #please reblog #chronic pain #chronic illness #disability #fibromyalgia #cfs #chronic fаtiguе ѕуndrоmе #actually disabled #spoonie #me/cfs #cfs/me #long covid #important #invisible disability #ehlers danlos syndrome #lyme disease #chronically ill #cpunk #cripplepunk

[tiredsn0w]

This can't just be me, right?

#personal post #disability memes #fibromyalgia #myalgic encephalomyelitis #autoimmune disease #chronic pain #chronic fatigue #chronic illness

[twisted-rat-king]

if you "offer disability accommodations" but mandate the person have an impossible amount of paperwork to "prove" that they're disabled before even speaking to them, you don't fucking offer accommodations.

#ableism #tw ableism #physical disability #mental disability #actually disabled #cripplepunk #cripple punk #actually mentally ill #chronic disease #chronic pain #chronic illness #chronically ill #neurodivergent #neurodiverse #mentally ill

[thedisablednaturalist]

I think some of us ambulatory wheelchair users are getting pretty close to (or already are) throwing full time users and higher support needs disableds under the bus. And that shit needs to be shut down NOW.

It's the problem of: "how dare they treat us like those people!"

The problem with ableists isn't that they assume we can't walk The problem is they assume we don't need our wheelchairs if we can. That we don't need our handicapped placards or transport vehicles. That we are taking advantage of other "actually" disabled people, that the ableists also don't give a shit about unless they're using them as an excuse to be ableist.

The problem with ableists isn't that they assume we are intellectually and/or developmentally disabled. The problem is they assume that every intellectually/developmentally disabled person needs to be treated with baby talk, dismissal, and ignorance. That they don't see them as people and refuse to listen to intellectually and developmentally disabled voices without making fun of them.

Stop throwing people with higher support needs under the bus. Stop doing what the abled neurodivergent community did to all physically disabled people. Us cripples gotta stick together and fight for one another, not push one down to make ourselves somehow look better to ableist fucks.

#wrenfea.exe #i wont call the people out but seriously you guys need to think about how you phrase things #and how you talk about full time users #they arent lucky or privileged #and i see the way some of yall get more offended about being seen as developmentally/intellectually disabled #instead of how these ableists think it's okay to treat people like that #chronic disability #chronic pain #spoonie #fibromyalgia #disability #wheelchair #ambulatory wheelchair user #cripplepunk #developmental disabilities #intellectual disability #cpunk #degenerative disc disease

[chronicallyillandcoping]

Anyone else find it difficult to remember that abled bodied loved ones are gonna worry when we talk about new/concerning symptoms? Like in my mind its just another day,just a bit more pain, just a flare etc. but for them its different and sometimes i find it hard to be mindful of that.

#disabled #chronically ill #chronic fatigue #chronic pain #disability #actually disabled #chronic disability #disabled community #spoonie problems #disablity #chronic illness #chronic disease

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

#mental health #chronically ill #chronic illness #physically disabled #physical disability #autoimmune disease #autoimmune diseases #surviving not thriving #rheumatoid arthritis #osteoarthritis #ehlers danlos syndrome #hypermobile ehlers danlos #sjogrens #celiac disease #multiple sclerosis #chronic migraine #chronic fatigue #fibromyalgia #fibropain #chronic pain #mobility aid

[4spooniesupport]

A real, unbutchered pain scale.

Based on this, my base level of pain is a 7. Sounds pretty accurate

#chronic pain #spoonie #chronically ill #chronic illness #disability #disabled life #mental illness #invisible disability #disabled community #mental heath support #chronic disease #spoonie support #no spoons #spoon theory

[emmuffins]

I don’t WANT to lie around all day. It’s not “relaxing” or “peaceful” or “restorative”; I’m Miserable.

I WANT to be at my job.

I WANT to hang out with my friends.

I WANT to clean the apartment.

I WANT to FEEL BETTER.

#chronic pain #chronic illness #chronic fatigue #hashimotos disease #I could tag so much but my thumbs are tired

[melodymorningdew]

I cannot fight for my health and fight the world at the same f**king time.

#melody morningdew art #disabled #degenerative disease #undiagnosed chronic illness #undiagnosed disability #tic disorder #neurodivergencies #diagnosis #disability #undiagnosed chronic pain #chronically fatigued #chronic migraine #chronic disability #chronically ill #chronic illness #so fucking tired #fibromyalgia #hypermobile eds #multiple sclerosis #ms #dysautomnia #pots #no spoons #spoonie #medical gaslighting #medical trauma #angry disableds #low spoons #part time wheelchair user #autism

[neuroticboyfriend]

you can trust the signals your body is sending you. whatever physical symptom you're experiencing is real. your pain, fatigue, weakness, numbness, unsteadiness, malaise, dizziness, nausea - all of it is real. i believe you. even if you, doctors, friends, or family dont. i believe you.

you should have never had the idea that you cannot be the authority on your own body put in your head. you are the only person on this planet who can convey what you are going through. no one has the right to take that from you. please believe in and advocate for yourself. and know you deserve to have someone advocating for you, too.

#softspoonie #disabled #disability #chronic illness #chronically ill #positivity #mental health #physical disability #chronic pain #chronic fatigue #chronically sick #chronic disease #chronicillness #chronicpain #actually disabled #spoonie #spoonie positivity #disabled positivity #disability positivity #postivity #mental health support

[gabbagepatch]

Having subjective symptoms is very isolating because there is no way for others to witness what you're going through. They just have to trust you and you have to trust them to believe you. I know everyone in my life believes it, but they don't get it. I expressed to my therapist that I feel that all of these symptoms begin rattling around in my head and it creates a barrier between me and others.

My world: hurting, trying not to show it, coping with pain, fearful, etc

Their world: normal, uneventful, happy evening

It's very difficult to have something happening to you that nobody else can see.

#disability #disabled #hearing impaired #chronic illness #meniere's disease #hard of hearing #chronically ill #invisible illness #chronic migraine #chronic disability #chronic pain #illness tw #illness mention #spoonie

[yamimichi]

Ya know, I can understand that some people who are disabled want to keep working. They don't want to apply for SSI or SSDI. And that's fine. More power to them.

What bothers me though is when they say things like "I don't want to live off the system" in a very derogatory manner.

Some of us can't work. And SSI and SSDI don't really give us enough to live on. So we need food stamps. Some of us rely on subsidized housing. We struggle to get through each month. And we don't need people being derogatory to us because of our disabilities. We don't need people acting like we're "less than" because of our disabilities. And we especially don't need this coming from other disabled people.

#disabled #disabilty #ssi #ssdi #food stamps #housing #wheelchair #chronic illness #chronic pain #fibromyalgia #heart disease #chronic degenerative disc disease #mental health