#cluster headaches

[fred-the-dinosaur]

The medical studies: this illness affects men slightly more than women

The doctors: got it. Only affects men

The immutable laws of numbers: no, it's like a 3 in 4 situation. A quarter of sufferers are women.

The medical studies: oh by the way we corrected biases and studies now show ratios nearer 50:50

The doctors: ok. Right. Only men get it. If a woman has symptoms they must be actually having something else. A womanly disease.

The studies: ok so that disease IS more common in women but...

The doctors: so only women get it...

The studies: no, we've been over this-

The doctors: men don't get it and half the women who say they have it are faking it for attention

Everyone: >:(

EDIT: for those who failed the reading comprehension on this post it is about men (including trans men) AND women (including trans women) AND everyone inbetween AND how medical malpractice screws ALL OF US in different ways.

#This is even before you get into gender race and fatness #Rant #Chronic illness #This post inspired by cluster headaches #And every single chronically ill persons experience I ever heard about #spent too much time in forums lately #specificallynform #cluster headaches #and #pots #but also genuinely could apply to literally 80 percent of diagnostic experiences no? #free terf blocklist i guess #yay #last time i make post that caters to the masses

[chronicsymptomsyndrome]

Canceling plans with the same person twice in three days because of pain and honestly, I’m just so tired. I’m tired of pain running my life. Tired and angry

#chronic pain #chronic illness #neurological disability #physical disability #invisible disability #invisible illness #craniocervical instability #migraine #cluster headaches #head pain #neck pain #headache #headaches #chronic pain problems #chronic illness problems

[flashbackonyourbehalf]

“Cluster Headaches”, original art by yours truly.

I get them regularly, and they don’t always feel like this. Sometimes they’re worse.

#chronic pain #chronic disability #no more chronic pain #chronically ill #chronic fatigue #cluster headaches #headaches #owwww #make it stop #my original art #original art

[envieluvvicixe]

My easily overstimulated ass sitting here looking through the PowerPoint my native language course teacher has made for us for the college paper I have been vaguely talking about. Just looking at the decorated dias with gradiented texts, magenta, yellow, cyan highlighted texts and otherwise mutli-colored text on the verge of tears bc brain doesn't understand how to read it without giving me mad cluster & nasal headaches.

BTW/ADHD creature on fire sticker by magentaSnail

#. brain directory #like thanks a bunch ig ill die now #neurodivergent #actually neurodivergent #light sensitivity #eyestrain #adhd #undiagnosed adhd #reading comprehension issues #reading comprehension #chronic headaches #headaches #sinus headache #cluster headaches #sinus headaches #dyslexia #dyslexic

[spacejax]

wow i just love suffering from an incurable unexplained illness. I especially love experiencing daily excruciating pain that is completely resistant to tylenol

#don’t worry sometimes it goes away in your 50s #the affliction #migraine #chronic pain #tmj #tmj disorder #light sensitivity #chronic migraine #headache #cluster headaches #disability #bitching

[brennacedria]

Okay, so anyone who gets migraines and cluster headaches can and does tell them this, and I assume that's why they did the studies to begin with. Hopefully they figure out more ways to treat both, but they also need to figure out if the cortisol and stuff is a cause of result. I figure they're working on that, too.

I just want something that works, you know?

#migraines #migraine #cluster headaches

[that-dutch-dude]

#relateable #headache #migraine #chronic migraine #chronic headache #chronic migraines #chronic headaches #cluster headache #cluster headaches #headaches #head injury #tbi

[corpsec18]

headcanon on cluster headaches at obito

#naruto #naruto shippuden #anime art #art #obito uchiha #naruto obito #obito supremacy #obito fanart #uchiha obito #uchiha clan #obito headcanons #cluster headaches #naruto art #obito art

[awbrainno]

I'm so fucking tired of hurting.

Trigeminal neuralgia is known to be agonizing, is known to be unbearable, is known to be unbelievably difficult to survive, and yet...

And yet.

My neurologist quit without warning. I was told I'd get a new provider, but never heard back. I was assigned an appointment with a neurologist who has never listened to me, never respected me, who has told me repeatedly that she wants me to stop taking all my pain management medication because I'm trying to get pregnant and there is limited research regarding whether my medications may or may not be safe for the theoretical fetus, who does not exist yet and already matters more than I do. I requested a new neurologist and was told that the office would need to check with management to decide whether I'm allowed to transfer to someone else, maybe, someday.

There is a medication that stops my migraines in their tracks, just works, no rebound headaches and no brain fog and no side effects. My insurance won't pay for it because I haven't tried enough of the cheaper, less effective medications, despite having tried and failed more medications than I can count over the past nearly twenty years. The current medication I'm on, which I've been on for years, was prescribed by my old neurologist - the one who quit. I can't fill that prescription currently, because the office needs to check with management about whether they're allowed to have someone else sign the prescription for me. Just wait, they keep saying, just sit in your agony and wait for our bureaucracy to decide whether you deserve relief.

I finally want to live - I love my life and I'm excited for the future and I'm not suicidal anymore... Except, that is, for the 1-2 weeks per month when the pain is unyielding and nothing helps and I begin to think, again, just like in my darkest moments: I can't do this. I can't live like this. I don't want to endure this anymore. I don't want to endure.

I'm so fucking tired of hurting.

#trigeminal neuralgia #chronic migraine #chronic pain #cluster headaches #suicide headaches #suicide for ts #medical neglect #pain management

[voidbirds]

I designed this sticker since I've been dealing with my chronic Cluster headaches for a bit now, what should I do next? Tummy hurts?

#Art #Stickers #Redbubble #chronic pains suck my dude #chronic pains #cluster headaches #Brain #Tummy pains but its just my stomach glaring at any food ever

[chronicsymptomsyndrome]

So asinine to me that neighborhood noise ordinances only apply to night time

There are endless reasons a person might need to sleep during the day, on any given day or regularly. Sleep disorders and chronic fatigue are not uncommon and are a byproduct of countless other conditions, also people work nights.

There are endless reasons other than sleep that a person might need a reasonably quiet environment. People work from home. People have different neurotypes. People have sensory and auditory issues. People have migraines and endless other noise-sensitive conditions. People have children and pets with these issues.

People deserve to not hear ridiculous volumes from inside their homes against their will, regardless of their schedule, health conditions, or anything else.

Emergency responders definitely work nights and definitely definitely should be so so well rested please if I need emergency surgery or a house fire put out at 2am in the future I would love if the people I call about that were on top of their game idk

I don’t think a man’s right to vroom-vroom his old car in his yard for hours at a time and blast bass-heavy music from his driveway and light off firecrackers all day is more important that any of that but okay

#audhd problems #adhd autistic #sensory issues #disability advocacy #auditory processing disorder #sleep disorder #cptsd #actually autistic #neurodiversity #first responders #emergency response #delayed sleep phase disorder #insomia #migraine #cluster headaches #neurotypicals be like #anxiety depression #autistic stuff #audhd things #nap time #accessibility #chronic illness #chronic fatigue #chronic fatigue syndrome #spoonie #allistics #trauma recovery #did osdd #sleep disorders

[sysmedsaresexist]

ngl your cluster headache analogy is kinda confusing since I wouldn’t describe them as excruciating pain

- written by someone who’s been diagnosed with cluster headaches by my Ophthalmologist

What are you on about

You would be the first person to ever say this

Many commit suicide, they're so painful

They're literally known as suicide headaches

You've also completely missed the point-- that it's not the same as a normal headaches, not everyone experiences them, and people with normal headaches and migraines shouldn't lump cluster headaches into their over-the-top positivity and push misinformation about them being totally normal headaches, assuming they're the same thing, and getting pissed when people with cluster headaches say they want their own spaces for their unique experiences because they're NOT the same

Why even send this ask

What was the point

"it's not debilitating for me"

Okay?? Pulling a full-on endo move, there, aren't you

And DID isn't debilitating for me, currently, but I still understand that it can be and that it's different from normal experiences and expressions of the self, I certainly wouldn't go in anyone's inbox and be like, "okay, but not everyone"

Do you feel better having pointed out how special you are for

-squints at smudged hand-

Not being in as much pain as the vast majority of people with cluster headaches, and actually PROVING my point about the behaviour of endogenics and the pro endo community?

#miserablyDID/OSDD

Thank you for your addition

#suicide tw #tw #syscourse #anti endo #cluster headaches #i don't have them #my mom does #I've watched her go through hell #get out of my inbox

[thebookishwallflower]

I can feel my headaches layering like digital art

#bogo #cluster headaches #and #tension headache #buy one headache get the other free #just like mental illnesses #on the free space I have stomach aches #chronic headaches #hrngh

[minimezteck]

Confession time. This happened years ago but never said it out loud to anyone.

My then-fiance was laying on the floor, sobbing in pain. Cluster Headaches. There was nothing we could do to stop it or make it better. So, I draped myself over him and held him in his panicked pain.

I could feel him gasp and tense and sob, as the pain and suffering became all there was for him. We were both so helpless. This wasn't the first attack. He's had it for years. But this was the most aggressive and sticky they have been... I stopped believing in a potential for a benevolent Christian God. That night, laying on the floor of my living room with him.

I'll probably delete this later. Had another night like that with him. I need to go to bed before his next attack.

#cluster headaches

[thefundisorderdiary]

Cluster headache contorting so hard I might as well just go the full way and snap my neck.

#make it stop #pain management #it’s chronic #spoonie #disabled #chronic illness #actually disabled #cluster headaches

[kittenzeke]

At Walgreen's, it's $12 for a package of 6 sticks of Liquid IV. That's too expensive.

Is there an electrolyte supplement that doesn't cost as much? Something I can buy in bulk? Something with lots of sodium and minimal sugar?

My vraylar causes low sodium and I have dysautonomia-like issues caused by past traumas. (I used to struggle with eating enough, alcoholism, etc.)

#journal #personal #low sodium #electrolytes #dysautonomia #fibromyalgia #chronic fatigue #dizziness #brain fog #we do recover #cluster headaches #cripplepunk