So excited by this. I made gluten free cauliflower & cheese pies. I’m really not much of a cook & a lot of things I make, turn out rubbish. But these worked really well 👏🏻. Before coeliac, there would be no reason for me to learn to make something like this. There is a bakery 5 minutes from my places that does delicious ones. But the closest place that does gluten free cauliflower & cheese pies to me, is an hour away. Let me know if you want the recipe, I’ll add it as a reblog if there’s any interest.
So little thing that I learned recently; under the FDA, drug manufacturers are not required to disclose presence of major allergens in their products. While most medications do not contain gluten-containing ingredients, if you have any food allergy you need to make sure it's on file with your pharmacy, and speak with your pharmacist to find out how they flag for allergens in their system. Sometimes you may need to contact the manufacturer--if so, have the drug NDC (National Drug Code)# on hand, as they often need that to look it up. You can get this information (as well as manufactuer name) from your pharmacy.
You don't need entirely separate cookware from the people in your house that eat food with gluten if you have celiac disease.
Wash the dishes thoroughly, just as you would to dispose of germs.
We need to talk about the issue of so many people developing contamination OCD due to misinformation about cross-contamination and how they often spread it to other people in the celiac community, especially those newly diagnosed.
Yes, there ARE real cross contamination risks such as fast food fryers and food manufactured in facilities thst also manufacture wheat containing products, especially as with the latter its really up to your own judgement whether you believe they clean them between batches as thoroughly as they say, but you DO NOT need to use an entirely separate metal pan to make gluten free food just because your roommate cooked non-gluten free pasta in it two nights ago.
Please, please, please, educate yourself and speak to professionals and read actual scientific studies. Contamination OCD is not fun and it's incredibly careless to generate an unnecessary amount of fear around an autoimmune illness that is already incredibly difficult to deal with the diagnosis of.
I'm fairly sure it's against the Geneva Conventions and/or the Australian Consumer Law for ANZAC biscuits to not contain oats, but let's see how they taste
One time my dad's then-girlfriend's best friend wrote one of those stupid "eating clean will cure your chronic intestinal illnesses!" cookbooks (to my knowledge my dad's then-girlfriend's best friend was perfectly healthy), and since the author's best friend's then-boyfriend's progeny has been diagnosed with Crohn's since age nine and celiac since age seventeen, I got a free copy.
Now my mom, years divorced from my dad at this point, had always foisted these cure-all cookbooks on me all throughout my childhood since age nine, and even at that age I knew it was all bullshit and ignored them, and the few times I tried a recipe from them it was godawful, so they went largely ignored.
Fast forward about a decade after receiving the book from the perfectly healthy best friend of my dad's then-girlfriend, I'm going thru the various cookbooks I do have, when I come across the One In Question, which purports to have gluten free recipes. So I figure why not, and idly browse thru it looking for an interesting recipe to try.
And then the first thing in the gluten free section is barley croquettes.
Which underneath in the little spiel, specifically states that barley is gluten free.
(Spoiler: it's not.)
So now I'm in possession of the world's most incompetent cookbook (which says something given all the cure-all diet books my chronically ill ass has been forced to be exposed to all my life), taking up valuable bookshelf space. I don't want to give it away and risk some newbie celiac reading it and getting sick, or worse a health nut know-nothing-know-it-all getting their grubby mitts on it and cooking it for someone with celiac, so I don't know what to do with it. But I am very resourceful, and Christmas was coming up and my broke ass couldn't afford wrapping paper so like. My gift to the world that year was making sure my fellows didn't get poisoned by bullshit
There has been a massive (literally millions of pounds) recall on Prosante (owned by Cargill) soy flour used in manufacturing gluten free foods due to the potential to contain more than 20ppm of gluten. This recall affects several countries, including the United States, United Kingdom, Canada, Mexico, Chile, Costa Rica, and Guatemela.
This recall is relatively new information, and the FDA hasn't listed a press release for this event yet (for now it only shows up on their weekly enforcement report, probably because it was a firm-initiated recall), but if the figures are accurate, this could have far-reaching effects across gluten free food products. A glance at Cargill's website shows this flour is mostly used in meat alternatives, but be wary of products with soy flour included until we know more.
As someone who has post-viral disabilities/conditions, it absolutely INFURIATES me that, despite a mass rise in post-viral disabilities/conditions (aka long-covid), IT’S STILL NOT BEING RESEARCHED.
I had a virus in May 2016 (end of 8th grade), the symptoms of which (plus more as time went on) never went away. I was diagnosed with celiac disease in 2017, followed by POTS, fibromyalgia, CFS/ME, chronic pain, and more - none of which have a cure. (There are also several conditions that I’ve researched and am almost certain I have as a result of that virus over half a decade ago, but I’m still waiting to get appointments with those specialists.) Since being diagnosed, I have done various treatments/medications, had many appointments with specialists & physical therapists, and have done basically all I can to get better.
Now it’s 2022. It’s been 6 years since the virus and 5 years since the first diagnosis. Can I do more than I could in 2017? Absolutely! I don’t want to say that it will never get better, because it does - just slowly (and at a different pace for everyone). But I’m still NOWHERE near where I was before 2016, certainly not even close to what I might have been able to do now if the virus hadn’t happened.
I had to switch to homeschool (away from my friends, though better for my physical and mental health) for 10th-12th grade. Last summer, I rode a bike for the first time since 2016, and I was still in pain afterwards. I’m finally at a place where I can start doing the things I used to be able to do or have missed out on (ex: making my own lunch, learning to drive, going to college), but it’s a very delicate balance. I’m at a place where some of these things are finally in sight (I won’t say in reach yet), and it’s frustrating to desperately want to do them and know I’m so close to being able to, but I still have to be really careful.
Because of my constellation of conditions, it has been incredibly difficult to improve my health. For example: one of the best ways to treat POTS is by exercising, but exercising also unfortunately triggers CFS/ME flare ups (due to post-exertional malaise), which in turn triggers chronic pain, etc. The worst part is that it’s nearly impossible to tell when you’ve overdone it in the moment, which means that after doing more rigorous exercise, I have to make sure I don’t schedule anything for the next 2-3 days in case of a flare up.
I know I’m not the only one with complicated, contradictory, incredibly difficult co-morbidities, which is one reason why it takes so long to even start healing post-virus.
I’m upset that there are SO MANY people with long-covid that are receiving the same treatment myself and others have received in terms of our post-viral illnesses. I was hopeful that, even though the last thing I wanted was more people having to go through what I’ve been going through for 6 years, this rise in post-viral cases would have pushed more research into why it happens and how to cure (or at least better treat) the most common disabilities/conditions that it results in.
Instead, like other post-viral illnesses, we’ve continued to see small, underfunded groups research the resulting individual conditions (CFS/ME, POTS, etc) without the funding to come together to research the co-morbidities as a whole, while the majority of the population (including medical professionals, news sources, the general population, etc) at best completely ignore and at worst utterly deny the existence of long-covid.
I'm in Italy again and I honestly can't get over what a paradise it is for gluten free folks. I've never felt more included in my entire life. Like what do you mean I don't have to pack half a suitcase of food so I don't starve? Like there is everything I haven't had in YEARS, I've bought too many things to bring home 😭