#cyclic vomiting syndrome

[cannabiscomrade]

cyclic vomiting syndrome 🤝 gastroparesis solidarity

A comedian that writes for the Eric Andre show had BCBS deny her a treatment for her gastroparesis so she went to their corporate office during an episode of vomiting and proceeded to publicly puke while asking corporate employees about their restrictive ableist policies

She even vomited on a copy of her appeal letter. Big nuts

#emetophobia tw #cyclic vomiting syndrome #gastroparesis

[no-demons-in-wonderland]

I desperately need a vacation from my body and mind. Sleep just doesn't feel the same. I wake up more tired than when I fell asleep, more sore and nauseous. Chronic fatigue is gonna end me. I can't catch up, my brain feels like it's running nonstop. My body still can't tell me what it needs. My CRPS still hasn't ended with amputation. My hEDS is barely treatable. There's so much more too.

Nothing I have can be cured.

Being autistic is hard, being autistic with severely debilitating chronic illnesses makes it feel impossible.

I'm just so damn tired.

#chronic illness #chronic pain #im so tired #mentally exhausted #physically ill #cfs #pcos #heds #gerd #gastroparesis #autism #insomia #cyclic vomiting syndrome #adhd #fibromyalgia #vasovagal syncope #dysautomnia #wheelchair user #ambulatory wheelchair user #disabled #crps #alone with my thoughts #rant over

[theecrybaby]

IBS IS HOMOPHOBIC 🗣️🗣️🗣️

And not buying from my store during disability Pride month is ableist too to be tbh /hj

🖤hoodies are 5XL-XS and the SAME price for ALL sizes (for my thiccems)🖤

👻10% off all month too if you even care👻

polkadotphantom(.)com

#ibs #disability #disabled #disability Pride #cyclic vomiting syndrome #crohns #ulcerative colitis #gluten free #dairy free #cripplepunk

[okkennymay]

This time around I thought I would make a comic relaying the events after the last time I posted, because my gosh is it easier to explain with pretty pictures than upsetting words >vO I prefer to make jokes about my situation than anything, ‘cause honestly it’s a solid way of dealing with it and I take so many medications as it is, why not add laughter to it I say! ( •̀ ω •́ )✧

Despite my condition’s best efforts I still managed to organise and complete a commission with someone through emails! Thank you @waezi2 you were so patient as I arose from my grave every other day to get things done (❁´◡`❁) Fighting my body and winning to complete it was the victory I needed! The sheer satisfaction I get from a commission well received by someone is like pure nectar to me~ Sweet sustenance I just can’t get enough of! The money don’t hurt either, Disability Support Pensions do not go far in this economy 👀 This is as close as I can get to having a job and I wont let C.V.S (Cyclic vomiting Syndrome) or Chrohns take that from me! 

I’m raring to dive into more if anyone’s interested ♪(´▽｀) I’m just about to post a new “commissions sheet” to broadcast that very fact >vO I do love having something to draw between Ectober pages~

#OKKennyMay #chronically ill #chrohns disease #Comic #cyclic vomiting syndrome #If you're wondering about the fire #long story short my body has little to no control over it's temperature and sometimes it tries to overheat me to death during my episodes #it makes it such a hassle constantly changing out ice packs and devouring ice only to vomit it out trying to cool it myself down physically #In a room that's colder than ice but feels like a furnace to me #all the while in a desperate and delirious haze #needless to say it's a bit of a wild time but i've got a really awesome mum who keeps me alive during these moments #I'm determined to be more honest about what's going to in my life for my own sake #i'm tired of having nightmares about people knowing details about my illness so i'm just going to rip the damn bandaid off #no matter how embarrassing or horrifying it is to relay at times I gotta do it #because i'm tired of being ashamed for things I have no control over dang it! It's not my fault my body doesn't work right >:V #hey if you read all these tags thank you #I appreciate you

[classically-tragic]

woke up and my chronic illness wasn’t miraculously gone. this is a travesty

#cyclic vomiting syndrome #arthritis #let me out of this physical prison

[minecraft-steve]

so there's a community for cvs on here??? i would love to make some friends who get it lol

#cyclic vomiting syndrome #possible gastroparesis as well #got an appointment with a specialist coming up so stay tuned!

[bl0w-m3]

I DONT WANNA LIVE BRO

#bpd #mental health #actually bpd #mental illness #bpd shit #actually borderline #bpd shitposting #bpd problems #bpd mood #bpd meme #ocd #obsessive compulsive disorder #harm ocd #intrusive thoughts #cvs #cyclic vomiting syndrome

[clanoffelidae]

I’m always scared of jinxing myself by opening my mouth and saying I’m ‘not physically disabled anymore’ or that ‘my cyclic vomiting is gone’; because there’s no cure and we don’t know why it sometimes just… stops. There’s not even really any medication to manage it you just kind of… try to work through it and manage symptoms and side effects as best you can. Namely, the dehydration due to excessive vomiting being the main concern. (Have had abdominal spasms due to becoming dehydrated from it before. Took me 5-6 minutes to army crawl six feet to the shower, wiggle out of my clothes, and stretch up to turn on the hot water to try and soothe the muscles I was in so much pain. It was also like 4am and I was at a homestay in another country so fuck me I guess lol. Fortunately my homestay actually spoke English; which worked out because I speak Spanish decently well so I was making an active effort to converse with her and practice before I got sick, she was extremely helpful because I mainly needed help with specific vocabulary/phrases and she could help me translate them, and then when I got sick and was so exhausted I could barely communicate in English anymore I was able to drop the Spanish and still be understood and given help. That’s a tangent tho lol sorry)

And that’s true of a lot of physical disabilities, sadly, so I’m sure many of you can understand why I’m scared of it. Because I’m one of the lucky ones, even when my condition was at it’s worst I had more good days than bad. One of the defining characteristics of CVS is that in between episodes you would never know something is wrong with us.

And sometimes people just… ‘grow out of it’, so to speak. It most commonly affects children, even being thought of as a pediatric disease, and then just goes away when they get older. I was a weird case, I had two sporadic episodes in high school and then it hit me hard basically as soon as I got to college; it only ever happened when I was an adolescent/adult.

During the worst of it I would have episodes as little as 3 weeks apart; I’d be in severe agony and vomiting profusely for around 24 hours, take several days for the pain to go away (the episode was over but I was sore after the vomiting), and about a week for the brain fog and lethargy to clear up. I knew my stomach was empty, I knew I had nothing in it, but it felt so swollen and I was convinced it was about to tear open like an overfilled balloon. The condition is believed to be related to migraine headaches and I believe it - my severe migraines are the throbbing kind where it feels like my head is about to explode, and that is the exact same kind of pain I was feeling in my stomach. Those same, unique qualities that differentiate the pain of a migraine from another headache were exactly what I felt in my abdomen. I was also light and sound sensitive, seeking darkness and solitude; although it didn’t cause literal pain to be exposed to light and sound like with a migraine headache, it stressed me out for ‘seemingly no reason’, overwhelming me and increasing my pain as a result of the stress and desire for the stimulus to go away.

My last episode was in 2019. I only even had frequent episodes for a little over 2 years.

And I’m still deathly afraid of every new medication I try because I don’t know why it stopped. Nothing about my lifestyle changed, nothing about my habits. I was never able to identify any triggers like with my headaches, it just sort of ‘happened’ as far as I could tell.

I have no idea why it started and no idea why it stopped.

And I’m constantly fucking terrified that I’ll fuck something up and it’ll come back, that this time of peace and ‘health’ is temporary. I’m so fucking scared because it hurts so fucking much and I don’t want to be in pain again.

I don’t want to be in pain again.

And I don’t know why I’m bringing this up or what I’m trying to say really. I guess I just want to get my fears written down because they’re circling in my head again.

And I guess I also want to say that I’m sorry. I’m sorry to everyone who suffers with a ‘hidden’ condition that no one believes you about, I’m sorry for everyone who is barely dragging themselves through it day by day; in pain, exhausted, and with the people around them burnt out on offering help because ‘why can’t you just get better already’.

I’m lucky, I’m so very, very lucky that for whatever reason my episodes just… stopped. They just stopped. And even still I live aware of the sword dangling over my head, never believing that the dragon is actually dead and is only just sleeping, still there to be reawakened if I mess up (when I don’t have the slightest idea what or where that invisible line I must never cross is), and I never dare to say that I’m ‘cured’ because I don’t believe in miracles like that. It’s a miracle that they stopped, and I’m grateful for it, but I will never dare to believe that they couldn’t come roaring right back any day.

Disability can happen to anyone, and I’m vividly aware that my old pain could be stumbled into at any minute, along with any number of other things, and I’m so sorry to everyone who still lives with their pain that is a constant companion. Mine is sleeping, but I remember it well for how it burned like the sun, to the point that I was able to identify sporadic episodes years after the fact that I had thought only stomach bugs because they were so horrible.

Pain is good, but not like this.

Pain is meant to be a teacher, a protector. A warning system of ‘hey! Don’t do that! We could get hurt!’ Your body’s way of keeping you safe and alive; don’t touch the fire because it hurts, don’t touch the fire because it could kill you. Pain is life’s way of steering you away from death, of keeping you safe and alive; letting you know there’s damage so you know to keep that part safe while it heals and use it less. Because when you’re about to walk into the flames your body doesn’t have the time to sit down and explain it to you gently, it has to alert you ‘NOW. PULL BACK NOW!’

Pain is meant to be a good thing; it’s meant to keep you alive and to protect you, to teach you about danger so you know how to be safe, and go let you know when you’ve been damaged so that you can make sure to give the damage time to heal.

But it’s not meant to be there all the time; it’s not meant to be constantly flashing the alarms when there’s nothing to be done, your body trying to help and let you know that something’s wrong when there’s nothing you can do. It’s not meant to linger until it breaks you, to weigh on your shoulders until you struggle to see the good past it. But just like with any good thing, so often does it become ill.

Pain is a constant companion for too many of us, and I’m so, so sorry for that.

You shouldn’t have to be strong.

I’m sorry.

I just wanted to let you all know that.

#vomiting #cyclic vomiting syndrome #actually disabled #disability #chronic pain #recurrent pain #i hate how pain is such a beautiful thing #your body’s alert system and life’s way of making sure you stay alive #protecting you - teaching you - keeping you safe and helping you to heal #letting you know what you need to #and it just gets twisted into something horrible #becoming chronic and never leaving and breaking you down #being used intentionally by others for cruel devices #and i just. i don’t know. #it upsets me is all #i’m sorry to everyone who has to be strong #you shouldn’t have to be #i’m sorry #life’s hard and survival’s not easy #that’s not the way the world works #i get that and i accept that #but this is more than that #and it’s not fair #and i’m sorry for that #i get that life is a constant battle for survival #but you shouldn’t be having to fight with yourself

[an--artistic--autistic]

now to play the game of "did i throw up blood, or just eat a bunch of red food yesterday"

#haven't had a cyclic vomiting episode in almost a year and I got overconfident #fucking hate this #disability #chronic pain #cyclic vomiting syndrome #i was hoping that it finally stopped #since it's been 21 years of this shit #all my doctors said that it usually stops in early adulthood (so like early 20s) #i guess i jinxed it by being hopeful #and i guess im cancelling all my plans for the next 3 days because I feel like absolute shit now

[keebwee]

stupid mini comic abt donnie having cyclic vomiting syndrome that i made in like 20 minutes bc i feel oh so ill rn but cannot leave school

relating to this post ^^

#rottmnt #rottmnt comic #rottmnt leo #rottmnt raph #rottmnt mikey #rottmnt donnie #rottmnt fanart #cyclic vomiting syndrome #my art

[mcatmemoranda]

Droperidol works well for cyclic vomiting syndrome. Had a pt with it and gave droperidol 1.25 mg in the ED.

First comers should get Benadryl, reglan, and toradol.

Second comers should get droperidol, and if QTC ok, Benadryl.

#vomiting #nausea #cyclic vomiting syndrome

[dearestbunny]

overly specific, sure, but shoutout to regressors with cyclic vomiting syndrome

i know it’s really yucky and no fun and i’m sorry :( but don’t let it make you feel like you’re a bad regressor. agere is a great way to cope when you have an episode. if you start feeling unwell and you need baby time, that’s completely okay! me too, friend!

your stuffies and blankies don’t mind needing to be washed a little more often than most, and they don’t think you’re gross or weird. sometimes agere looks like crying and holding a stuffie because your headache and nausea are so bad, and that’s ok! nothing to be ashamed of! it’s not impure or wrong!

take care, cvs regressor friends! make sure you’re avoiding trigger foods, have some painkillers and an anti-nausea med if you have one close by, and keep on keeping on! we rock! i’m proud of you!

#sfw age regression #sfw agere #cyclic vomiting syndrome #tw emetophobia #tw emeto ment #sfw littlespace #sfw little blog #bunny babbling #tw sickness #tw vomit #tw medication #lmk if anything else should be tagged!

[cannabiscomrade]

Home sick again, I’ve lost 32lbs since the beginning of this flare now

#weight loss #chronic illness #cyclic vomiting syndrome #emetophobia tw

[meadowsystem]

💙 my heart is heavy with this one 💙

I have consistent nervous breakdowns over knowing this is my life. But yet I know many have no idea about the things I'm about to tell you.

Cyclic vomiting syndrome itself is not truely life-threatening but the complications that it creates can be.

I'M BEGGING FOR HELP!!

They do not provide enough accessible treatment. For complications I face from this rare disease.

I am unable to keep a job as I cannot work during vomiting episodes. Lasting anywhere between hours to days. Not including the recovery time needed after the episode is finished.

IT IS DEBILITATING.

Workplaces refuse to hire me when accomodations are asked due to this disability making me "unreliable". If you don't tell your employer and you miss too much work, your let go for being "unreliable". Finding a workplace who will accommodate you and provide consistent wages ... is unobtainable.

Accessing proper insurance coverage needed to make this rare disease manageable is unobtainable due to the plethora of needs we require to have met. Even when on welfare or disability.

Those who are not able to manage the triggers are pushed out of the workforce and forced to fight to get disability. Often unable to obtain federal disability as it isn't "as bad as cancer" as I was told... even with my other plethora of diagnoses that made my doctor feel it was my best course of action.

Not only dose this rare disease have complications of dehydration, damage to the esophagus and tooth decay. Most with this disease also suffer from other conditions (comorbidities), particularly other functional issues. Some of the common functional comorbidities to CVS include migraine headache, chronic fatigue, irritable bowel, gastroparesis, depression, anxiety, POTS and/or other forms of dysautonomia as well as neuromuscular disease include intellectual disabilities, autism, seizures, and/or hypotonia. As well as mitochondria dysfunctions

Incase you don't know mitochondria dysfunctions means your body cannot efficiently turn sugar and oxygen into energy, so the cells do not work correctly. This can affect different parts of the body: the brain, kidneys, muscles, heart, eyes, ears, and others. Organ dysfunction can be a very real possibility. Organ failure is organ dysfunction to such a degree that normal homeostasis cannot be maintained without external clinical intervention.

I have been diagnosed with 8 and counting of the comorbidities. These comorbidities have their own comorbidities that have also been added to my list.

Many doctors are under educated on CVS. Often those with CVS are not properly diagnosed, even with symptoms at a young age.

Many doctors tell us to figure out our CVS triggers to manage the disease. In my case I have so many triggers due to my plethora of diagnoses/comorbidities that my CVS is incredibly difficult, even unrealistic to manage even with proper medical support. (So many overlapping, environmental, situational, medical, life triggers... so many triggers not on this list and still more unknown triggers)

THIS IS MY LIFE! THERE IS NO CURE.

They're are only underfunded small individual research/studies. They have not found a cure. We don't have proper support and thus we suffer. Look at this link ... the lack of information

https://rarediseases.info.nih.gov/diseases/6230/cyclic-vomiting-syndrome

I SUFFER.

My disadvantages have been continually coming to light. My realization I likely won't be able to achieve basic life milestones has been heartbreaking.

Medically assisted suicide is easily achievable even in even minor cases of CVS. While there is little to no support and even less accessibility.

What options do those with this disease have?

Suffer or give up ...

I'd also like to finally note the journey to diagnosis is horrendous. Doctors diagnose cyclic vomiting syndrome based on family and medical history, a physical exam, pattern of symptoms, and medical tests. Your doctor should perform medical tests to rule out other diseases and conditions that may cause nausea and vomiting.

-add on the factors of age, ethnicity, gender, life style, fashion choices, preconceived assumptions ... the list goes on ... the journey to diagnosis often feels unbearable-

If you have read this please comment, I need some validation.

💙

#mental health advocate #mental illness #touch of the tism #equity #chronic illness #fibrowarrior #ptsdlife #no support #cyclic vomiting syndrome #arthritis #comorbidities #adhd brain #irritable bowel syndrome #chronic pain #asthma #allergies #living with borderline #this is depressing #anxitey #panic disorder #tmj syndrome #dyslalia #pots syndrome #scoliosis #sleep apnea #medication side effects #no proper testing #lack of social programs #eating disorders #lack of funding

[okkennymay]

[Looks at the calender and see’s three weeks has passed] awW maN whAT the fU-

I’m really glad I posted a heads up, ‘cause man like a brick to the back the head yah boi went down hard 💖 Even now I'm still not quite 100% but yah’ll know I'm nothing if not determined! 😤

Things were going so well initially! I was so happy that laying so low that I was practically a slug in the mud worked to get me through my usual round of rough days, so keen was I to get back to business- but then I was ambushed by a dreadful stomach bug and in my state, goodness it got me.

-bUT I ALWAYS COME BACK SWINGING ( •̀ ω •́ )✧

also there’s sound effects so unmute this bad boi

#OKKennymay #KennyMay_OvO #kenimation #animation #animated #Cyclic vomiting syndrome #CVS #Ill health #chronically ill #chronic illness #3 weeks though for real #maaaAAAAn #i shouldn't be surprised #I was so weak the first two days after recovering that my brother had to lift and carry me about #even holding my head up was really really hard #It was a little scary but my family are so good to me I love them so much #my brother is MVP

[no-demons-in-wonderland]

I've had not one but two abdominal surgeries.

Two separate times I had organs removed.

10 total weeks of recovery.

And my PCOS pain is worse than all that combined. I can't sit up straight. I'm curled up in a ball taking Toradol every 6 hours because going to the ER won't change anything. I want these monstrous and useless organs out of my body. I wanna lay down without extra cries because more than one part of my faulty body is experiencing uncontrollable pain.

Rip. Out. My. Uterus. Feel free to take the ovaries too I don't need them 💀

#disabled #intense #chronic pain #pcos #crps #cyclic vomiting syndrome #wheelchair user #i need to be medicated #i hate my uterus #get rid of it