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#disability awareness
sayruq · 2 days
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prideknights · 8 months
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In honour of disability pride month, we made a disability Pride Knight! Stay proud! ⚔️🌈
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millionmovieproject · 7 months
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It's a holiday. For children. Give them the candy, or fuck off.
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Heat Intolerance
This disability pride month I'd like to talk about heat intolerance. Because honestly although it's not the first health issue that presented symptoms in my life. It was the first time I was like "I don't think my body works right".
And honestly given disability pride month is during one of the hottest months in the year. It seems fitting. Especially because there's a lot of disabilities and medications that cause it.
What is heat intolerance?
Simply speaking it's the inability for the body to regulate it's temperatures especially in hot settings to cool itself down.
Why is awareness important?
Because gaslighting people or worse not providing them a place to cool down just because you "feel fine" is extremely fucking dangerous.
What are the medicines that can cause heat intolerance?
Antihistamines (Allergy medications) . Decongestants (Sudafed or any medication that has the D at the end of it). Stimulants (ADHD medications. Steroids. Caffeine.) Beta-blockers (blood pressure medications). Overactive bladder treatment. Psychiatric medications (including but not limited to medications for depression and anxiety). Pain relievers. Antibiotics.
What medical conditions can cause heat intolerance?
EDS (Elhers-Danlos syndrome). Autism. ADHD. Migraines. Brain/spinal-cord injury. Sensory processing disorder. Chronic fatigue syndrome. Endocrin problems. POTS. Menopause. Hypothyroidism. Diabetes. Heart Disease. Multiple sclerosis. Mental health disorders.
What should I do if I suspect I have heat intolerance?
Reduce time outside during hot months. Keep your electrolytes up. Drink plenty of water. Stay out of the sun whenever possible if outside. Be aware of the symptoms of heat exhaustion and heat stroke.
Clothes that are best worn for heat intolerance. Loose lightweight breathable fabrics. Natural fibers. Long sleeves that protect from sunburn as sunburns will increase your risk. Light clothes that reflect light. Wide brimmed hats that shade the face and neck.
Cool. So what are those symptoms I'm supposed you be looking for?
Headaches. Excessive fatigue. Mood changes. Muscle cramping or weakness. Nausea/ vomiting. Rapid heartbeat. Excessive sweating or not sweating at all.
When should I do to the doctor?
If you suspect you have heat intolerance you can go to your PCP to discuss what medications you may be on and what you can do about it. Otherwise, please go to the emergency room if you have symptoms of heat stroke.
This is good information and all but why are you making this post?
To raise awareness. Not just for the people that have it but weren't aware of what it was called. But for all of the idiots that tried to gaslight me when I was in school because I was like "I don't think this is normal. Every time we do our mile run outside I vomit all over the place but other kids aren't doing that."
Also because people always blame me for over heating if I wear long sleeves or pants. I always like to take notes from what people in the middle east wear because they literally live in the excessive heat and spend long hours in the excessive heat. Often in clothing that covers most of their body. They've gotta know what they're doing, right?
I have some type of xenophobic comment about why people from the middle east cover up
Shut the fuck up 😊
-fae
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alex2xander · 2 months
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Be nice and don't mock tumblr users that communicate differently.
Examples:
1.) Typing quirks
2.) No punctuation
3.) Random Capitalisation
4.) Long run on sentences
5.) Frequently misspelled words
6.) Missing spaces between words
7.) Repeating words and sentences
8.) Posts audios and videos instead of typing
9.) Express themselves through custom emojis
10.) Use an AAC (Augmentative and alternative communication) device
Some users have intellectual disabilities, use speech to text, struggle with grammar, have hand tremmers, have high support needs, etc.
Regardless of how they communicate and their reason why, they still deserve respect. They are trying their best.
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renthony · 24 days
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[Image description: A photograph of a page from a spiral-bound sketchbook. The page has an illustration of the covid-19 virus and overlaid text that reads, "If I die of Covid-19 - forget burial - just drop my body on the steps of the C.D.C." A caption on the bottom of the page reads, "Ren Basel 2024. In memory of David Wojnarowicz and everyone killed by AIDS, COVID-19, and the government's negligence. Fight back!" End description.]
In 1988, AIDS activist David Wojnarowicz was photographed in a now-famous image, wearing a jacket that read, "If I die of AIDS - forget burial - just drop my body on the steps of the F.D.A.." I am far from the only person to adapt Wojnarowicz's words to COVID-19, but today I am feeling especially angry at the world. Holding the rage in my chest hurts--it hurts so fucking much--so instead, I've put it on paper.
Living through government negligence and community indifference during COVID-19 in 2024 fills me with rage and grief in equal measure, and as a queer person who studies queer history, I can see the echoes of AIDS in the way marginalized communities are being left to die.
As a disabled person who lives in a household that is very high-risk for COVID-19, the C.D.C.'s recent decision to shorten the COVID-19 isolation period feels like a slap in the face.
COVID-19 is not over, and it is vital to take steps to protect yourself and others. Please, follow the work of the People's CDC, an organization dedicated to COVID-19 safety, activism, and education.
Our government has failed us. Our communities have failed us. For those of us who are immunocompromosed or otherwise high-risk, we only have each other.
Remember us. Fight with us. Mask up, get vaccinated, get boosted.
Please.
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With the holidays coming up this is everyone’s reminder to
Ask little kids if they’d like a hug first
If they say no, verbally affirm the reasonable shit you just heard. “You said you wouldn’t like a hug. We won’t hug.”
You don’t even have to redirect with a high five, even though that’s fine. Touching isn’t for everyone.
Do not say upsetting things like “where is my hug?” Clown, you don’t own hugs.
It is fine to model consent by placing boundaries on touch. “Let’s wash your hands before we cuddle.” “I’m leaving this couch if you continue to yeet your foot into my pregnant belly.” “that was fun but I’m going to take a break now.”
Touchy children are not inherently sweeter. Love languages exist at any age.
Some kids like touch but not eye contact. A hug from behind is a good one or “let’s close our eyes and squeeze really tight. Ready?”
I’m dead f*ing serious there are people who want your physical affection so badly but need you to modify your approach. Just like there are people who want to get into buildings but need ramps.
Don’t comment if a kid shows affection to another adult but not you. They’re weird like that but you don’t have to make it weirder.
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froggiethelesbian · 1 year
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I found a guide for a no tape, easy to unwrap wrapping tutorial to make Christmas a little more accessible, wish I just found it sooner
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frankiensteinsmonster · 3 months
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❗CRIPPLE TIPS❗
✨ Able bodied friends edition ✨
If you are in a group that includes anybody who is using a mobility aid, if you are out and about and a Stairs Situation arises, either ask them which they'd prefer, or opt for the elevator (given your group is small enough. If not, have a couple friends use the elevator with your disabled friend, after asking if this is what they prefer (they may enjoy a moment alone, everybody is an individual with their own preferences). This means they don't lose the emotional "high" of being part of a group, conversation can continue so they won't suddenly feel lonely and excluded on the solo elevator ride, which can creep in and ruin their mood especially if they're new to their disability, and there's less of a chance of confusion once you're at your destination. Nobody likes being lost, but the inherent exhaustion and physical exertion that comes with using and mobility aid is incredibly... Unfun. And distressing! This can be easily avoided and you have the chance to be an Excellent friend! We notice these things!
This post is about being Physically Disabled, Able bodied people are encouraged to reblog, but Do Not Derail-- make your own post if you need to say something not related to being physically disabled.
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chestcrush · 5 months
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already made this post on my old account but i’m going to say it again.
“smooth brained” as an insult is ableist. full stop. there is no way for it to not be. lissencephaly is a legitimate brain malformation that is always fatal- the oldest person with it made it to 30. most die before they reach 10.
there is no cure. it is incredibly painful and debilitating. it is not funny to use a disability as an insult, especially when you’re using it to avoid using the R slur, and to tell someone that the reason why they act “strange” is because they must have a brain condition.
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chaos-in-one · 3 months
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Friendly (or unfriendly if you're against this) reminder that this blog is supportive of ALL disorders. This blog does not think ANY disorder inherently makes someone a bad person, and is against any disorder being demonized. This blog wholeheartedly believes that a bad person having a disorder, yes, even if things that are also symptoms of their disorder are part of what caused harm, does not make the disorder a "bad" or "evil" disorder or excuse ableism and demonization directed towards the disorder.
Yes this includes personality disorders
Including npd and aspd
Yes this includes all psychotic disorders & disorders that cause psychotic symptoms
Yes this includes paraphilic disorders. All of them.
Yes this includes disorders that cause, or are even characterized by, attention seeking
Yes this includes disorders that directly have lying as a common symptom
Yes this includes dissociative disorders
Yes this includes any disorder with "gross" symptoms
Yes this includes physical disorders too
Yes this includes disorders that can cause loss of control of any kind- control of speech, control of body movement, etc.
Yes tis includes disorders that make someone "look scary"
This goes for literally any fucking disorder. There are not exceptions.
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sayruq · 4 months
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Gaza has a large disabled population. Wissam is just one of tens of thousands, who need medication and care, facing the devastating choice of being slaughtered at home or out on the streets. All districts in Gaza but one have been declared combat zones.
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kolaepup · 20 days
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cutie skunk 💕
comm for Kuddlegamer 💕
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kunaigirl · 9 months
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Happy Disability Pride and awareness month! Let's talk about Epilepsy!
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Hi there! I got tired of seeing my condition (that impacts my literal every day life) being left out or forgotten about during discussions about disabilities, so I made my own post about it! Let's go!
First Off! What the heck is epilepsy? Epilepsy is the fourth most common neurological disorder in the world, and it's a chronic medical condition. Epilepsy is a brain disorder that causes recurring, frequent, triggered, and unprovoked seizures to occur.
The official Epilepsy Foundation describes seizures as follows: "Seizures are sudden surges of abnormal and excessive electrical activity in your brain, and can affect how you appear or act. Where and how the seizure presents itself can have profound effects...Seizures involve sudden, temporary, bursts of electrical activity in the brain that change or disrupt the way messages are sent between brain cells. These electrical bursts can cause involuntary changes in body movement or function, sensation, behavior or awareness." (Source link)
Sounds like a lot of fun right? This is our life. Even with medication, we can be VERY limited to what can be safe for us. Seizure medications are NOT a cure, they only exist (at least as of now) as a tool to help have your seizures less often, or be triggered less intensely. Even on medication, seizures can still happen.
If you have epilepsy as a child like I did, it impacts your entire growing and developing experience. I spent MANY times as a child in and out of hospitals, neurologist and specialist offices, an getting so many EEG tests done. The pain of scrubbing the glue out of your hair for DAYS is horrible.
At a young age my seizures were so frequent and serious, it impacted my brain's ability to retain information. I had to re-learn the names of things at age 8 and 9. I had to re-learn HOW TO READ at age 10. I had to be home schooled because the public school system of my state at the time refused to work with me. I have VERY distinct and vivid memories of crying over my little baby ABC's book that I needed as a 4th and 5th grader. I knew I should've known this by this age. I knew that at one point I already did, and it was TAKEN FROM ME.
As an adult, I'M NOT ALLOWED TO DRIVE A CAR. And I can NEVER go to see a movie in theaters or go to see concerts or live music. There are entire TV shows I don't get to see. I can't go to clubs, arcades, dances, or raves. I miss out on A LOT of fun things. I always do, and I'm WELL AWARE of the fun I'm missing out on. The social, casual, and fun life experiences I'll never get to have. That WE'LL never get to have. And oh yeah! Seizures can KILL SOME OF US. Yep.
And the list goes on, and every person with epilepsy experiences it differently. There are multiple different types of seizures you can have, they're NOT always convulsing on the floor. For example, I have complex-partial-myoclonic-seizures. Meaning my muscles DO twitch when I have seizures, but I'm not always completely unconscious and sometimes I'm even able to stay sitting up. However, I'm still very "off" and can't focus or remember much for a good while after the fact. I can't talk or communicate during one, even with my slight bit of consciousness.
My experiences are not universal, I just wanted to talk about it and bring it up. It helps to talk about it even a little bit. Here's more about different kinds of seizures. Here's more about common seizure triggers. Here's more about CORRECT seizure first aid. And here's more general information/resources.
Please stop leaving us out of disability awareness. Please stop ignoring us or saying we're "not really disabled" or anything else like that. Please. Why does it always feel like the only people who care about epilepsy, are people WITH epilepsy? We're so tired of being ignored by others who don't have our condition.
If you're an epileptic person reading this, I see you. I love you. You're so strong, we all are. I believe in you, I believe in us. We're so much stronger than we get credit for, and it's going to be ok. Your anger and frustration are valid. Your emotions and struggles are real. You're valid, and I see you. Hang in there, we got this.
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martabak-man · 1 year
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https://www.hoosieraction.org/scotus
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If you use phrases like "narcissist", "psychopath", "sociopath", "narcissistic abuse", "crazy", "insane" or any similar language to describe asshole behavior, manipulative behavior, or otherwise undesirable behavior.
I'm kicking you out if disability pride month.
We don't support lateral abelism during disability pride month. We're not demonizing real disabled people with real mental health conditions to support your narrative.
It's really easy to say "The dude is an asshole that doesn't give a shit about anyone but himself" without forcing abelist language that hurts real disabled people onto him.
(Especially because the disorders that these conditions attack are often cluster b personality disorders which are often caused by trauma)
-fae
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