#disability issues

[0th3rw0rldl1n3ss]

So tired of lateral ableism coming from autistics and ADHDers who have symptoms that aren’t severely debilitating. Like just because you don’t need meds or accommodations to function or you can conform well/adapt to NT society to a certain point doesn’t mean other autistics or ADHDers will also be able to?

This post brought to you by a group of people getting frustrated at us for being unable to keep up with a game, us saying “sorry I didn’t take my meds today” and them ALL glaring at me and scoffing about how well they haven’t been on ADHD meds for years. Every single person in the room (there were more than 2 other people). Like ok, good for you, I NEED them to function?? (and even then, I still can’t “pass” as NT.)

We feel so out of place even around other people who are also autistic and/or ADHD. Because so often the other(s) will show just enough traits to seem a bit quirky/odd to NTs, but not get read as visibly ND (except maybe under unusual circumstances, but generally speaking, they can mask effectively enough that NTs wouldn’t perceive them as “having something wrong with them”) but we’re noticeably “slow/r-worded” in a way we’re frequently, under normal, non-extreme circumstances, unable to hide. We’ve heard so many things about how other autistics and ADHDers found other neurodivergent folks and finally felt safe and comfortable after a lifetime of being judged in NT-dominated social circles, and we wish we could relate to that, but honestly we don’t feel any safer with someone just because they’re also autistic/ADHD, because in our experience they’re just as likely to be ableist to us as NTs. Sometimes even worse, because at least NTs can’t say “well *I* can handle (insert task) and I’m autistic/ADHD too so what’s YOUR excuse?”

But yeah. Some of y’all hate to acknowledge that autistics and ADHDers with higher support needs than you exist and you’re quick to throw the rest of us under the bus just because you’re so desperate to make autism and/or ADHD seem more palatable to NTs. Moderate-higher support needs neurodivergents shouldn’t have to beg lower support needs neurodivergents to have solidarity with us.

#lateral ableism #autism #adhd #audhd #neurodivergent #moderate support needs #high support needs #low support needs #medium support needs #autistic #actually autistic #actually adhd #actually audhd #ableism #disabled #disability #developmentally disabled #developmental disabilities #disabled acceptance #disability issues #disabled community #neurodivergent community #audhd things #level 2 autism #disabled solidarity #learning disabled #rant #semi speaking autistic #semi verbal

[anastasiaoftheironwood]

US DISABILITY RIGHTS LAW EXPANSION

The US federal government has drafted a proposal to require health care providers to make real accommodations for disabled patients, "to ensure that MDE used by public entities to offer services, programs, and activities at places such as hospitals and other health care facilities is accessible to individuals with disabilities. MDE includes things like medical examination tables, weight scales, dental chairs, and radiological diagnostic equipment. Without accessible MDE, individuals with disabilities may not be afforded an equal opportunity to receive medical care, including routine examinations, which could have serious implications for their health. A lack of accessible MDE may also undermine the quality of care received by individuals with disabilities, “leading to delayed and incomplete care, missed diagnoses, exacerbation of the original disability, and increases in the likelihood of the development of secondary conditions.”

Comments are open through February 12, 2024. https://www.federalregister.gov/documents/2024/01/12/2024-00553/nondiscrimination-on-the-basis-of-disability-accessibility-of-medical-diagnostic-equipment-of-state

#disability issues #access #US law #comment period #call to action

[acti-veg]

Do you have any advice on staying vegan when disabled relying on parents as caregivers in a way or at home nurses who help with meals who often imply or often outright say vegan food isn’t healthy worsening my state of health. When I’m in a hospital how to stay vegan too ? Often have to ask for a patient advocate for help when hospitalized or talks with the dietitian. I find myself struggling so I’m just sos 

Hey anon, I did some research myself but felt this was really out of my experience so I got in touch with a friend of mine who is disabled and vegan, she has navigated a lot of these issues herself and she gave some tips I hope you’ll find helpful.

Hospitals/carers have to cater to veganism as much as they do for religious dietary requirements in most places, though she’s not sure if that stands where you are. Regarding parents and carers, she advises to seize more autonomy if you can and stand firm. Even if it was the case that veganism was somehow exacerbating your condition, that would still be your choice to make, you have that right. They gone get to decide that for you.

For general tips she recommends batch cooking, using canned/frozen veggies, so that there isn’t a daily worry about what you’ll eat and she always has at least one back up meal in the freezer but ideally a few. She also advises keeping go bag filled with snacks and electrolyte drinks for when you do have to go to hospital.

Finally, she has said that if for some reason you’re not able to eat fully plant-based in hospital or while being cared for, there would be nothing wrong with eating animal products when you don’t really have any other options. Likewise if you can’t meet your nutritional requirements while eating plant-based then there would be nothing wrong with introducing some animal products.

Remember to stand firm about your own interests and beliefs, but it’s about doing whatever is possible and practicable, so be gentle with yourself if you can’t always eat plant-based all the time. Take care of yourself anon, and feel free to reach out if you want to talk about any of it.

#ask #vegan #disabled vegans #disability issues #disability

[willtheweirdrat]

tiktok true crimers: This kid is clearly haunted and has spirits living in it and it will grow up to be a serial killer, it is very dangerous to be around people and it's parents should be extremely concerned.

the kid: autistic and trying to relax

#wills mumbles #true crime #tiktok #disability #autism #actually autistic #actually disabled #disability issues #disability rights #ableism #disability justice #disabled #disabilities

[disabledpeeps]

Early Diagnosed Autistic peeps and Loss of Autonomy

I honestly get depressed reading my reports when I got diagnosed with autism when I was 5. Development delay, underachiever in language skills, reasoning skills, fine motor impairment, lack of speech fluency and lack of self esteem (no really I was terribly anxious).

I had interventions to improve my skills I can't deny that. but at the cost of pathologizing me and making my mom dreadful of my prognosis. My childhood was me being aware of my pathological nature and that is traumatizing enough.

Bc I have this constant need to prove I'm able enough and I'm not too disabled that is costing too much of my mental health. I'm concerned about many today early diagnosed autistic kids. They come from a age where there is a lot of misinformation that their parents follow either to "treat their symptoms" or just to reinforce their ableist bias.

Besides that early diagnosed kids tend to have way less autonomy than their NT peers. We lose our position to speak so that our parents and institutions can speak over us in their own limited lenses. That is traumatizing. That is why you don't hear a lot of early diagnosed kids’ perspectives. Not because they tend to be the ones with more limitations to speak as people want us to believe and there is AAC for a reason. Not just because it's more difficult to have a ealy diagnosis. it's ableism.

A chronic loss of autonomy and infantilization. Always being spoke over because they just keep assume that you can't. You can't speak for yourself. Well here is a thing. WE CAN SPEAK FOR OURSELVES.

I can. I always could given the proper accommodations. I knew what I needed to say. But after spending too much time unable to speak for myself took me a toll and now I become angry when I feel like people know better about my needs than me. Therefore, I'm perpetually mad.

#actually autistic #invisible disability #disability issues #actually disabled #neurodivergent #neurodevelopmental conditions #neurodiversity #dysgraphia #aac #autistic kid #ableism #infantilization #loss of autonomy

[mayathescientist]

I've kind of talked about it before in a vent post but I'll try to say it again better:

if you use the image of bad personal hygiene to insult someone or a group of people, that's something most people can get behind, unlike insults regarding intellect or appearance, that some (not even most) "progressive" people have foregone, BUTTT I feel like it's actually ableist.

entire groups of people have been stereotyped as smelling bad, from nations (horrible stuff) to fandom-dwellers, and I see a lot of them going like noo I don't stink I shower 3 times a day I promise, which is fine, you need to defend yourself from stereotypes somehow. but if someone actually has these issues, does that make them a worse person?

I understand that I can't expect to be embraced and accepted for my bad hygiene, because it Is an issue that I need to work on, and I'm in the process of working on it currently, but I'd like my motivation for that not to have been outside ridicule and social disdain, and instead care and support and the benefits it would bring me? idk? but a lot of people approach this topic with almost vindication like if you don't do this and that you're fucking gross?

there are multiple reasons someone could struggle with personal hygiene, mental and physical disability being the first ones that come to mind, but also poverty? I used to be washed only on sundays when I was a child, like literally once a week, because our family didn't have access to hot water, they had to boil water themselves, and my working parents couldn't really afford (time and energy-wise, I assume) to do it more often. it was hard labor for them to just bathe their kids.

and after that, after we got access to hot running water, I couldn't learn to wash myself more often until very late in life, because I struggled with self-discipline a Lot due to mental illness and could just not notice my body or the state of it at all due to constant dissociation. I was dissociating not Because I wanted to avoid feeling my body because it was gross, but because of the physical and sexual abuse I was going through.

maybe think before you joke about how someone smells bad or has yellow teeth or bad breath or whatever?

#maya posts #ableism #disability #disability issues #mental health #abuse survivor

[magiclovingdragon]

I saw this post on facebook from an organisation that helps people with their PIP applications last night

I have my PIP reassessment tomorrow, they know I have anxiety and today I have received 3 phone calls, every 2 hours from a withheld number… I haven’t answered. I fully suspect its the DWP trying this tactic and even despite my thinking that, its still succeeding in triggering my anxiety

Update: Turns out it was PIP phoning, it was one of the first things they said to me on my phone assessment. Supposedly the 4 phone calls (another happened after I made this post) from a withheld number were to remind me for my appointment today but they sent me a text during the day inbetween 2 of the calls and you’d think they’d leave a voicemail so yeah its crafty and the worst part is it worked, today its not only triggered my anxiety but its also made my fibro & ME flare up today with increased pain and fatigue (not helped by me not getting any sleep last night), its flared my ibs and gave me a migraine after the call ended

#anxiety #dwp #pip #personal independence payment #department of work and pensions #uk disability benefits #disability benefits #uk government #uk govt #uk politics #disability issues #ableism #uk benefits #uk benefits system #disability benefits uk #anxiety problems #anxiety issues #mental health #disability #ibs #migraine #fibromyalgia #me/cfs #myalgic encephalomyelitis

[lifeonkylesfarm]

Hi y'all!

I'm organizing a fundraiser so that I can afford a wheelchair.

I'm disabled (I do talk a lot about that on this blog) and I've never had one, but have been in need of one for a while. I have chronic pain and chronic fatigue, among other symptoms, and my lack of energy prevents me from getting around and doing the things I need to do. I'm often in so much pain that I skip meals, avoid going to the bathroom, etc. because I'll have to walk. Getting a wheelchair would help me immensely.

Any amount of money is greatly appreciated and will bring me closer to being able to get around the world.

Even if you cannot donate, please reblog or share in some other way. Anything you do is so so helpful for me and my family!

If you want, you can also send me money through paypal.

#disabled #gofundmecampaign #disabled people #disabled rights #wheelchair user #mobility aid #mobility aids #disability issues #disabled and proud #chronic illness #chronic pain problems #chronic fatigue #chronic pain #actually chronically ill #actually disabled #disabled trans #disabled blogger #disabled community #disabled crowdfund #disabled life #disabled liberation #disabled isn't a bad word #disabled problems #disabled pride #disabled pride month #disabled and trans #disabled support #disability inclusion #disability #disability crowdfund

[disableism]

I dread the day Sis can no longer care for me at home. My insurance pays out roughly $800 a month for my home care, all of which she puts right back into supporting me. And she does tons of extra stuff she isn’t paid for. When I get worse (or Sis gets too old) I won’t be able to live at home anymore. The system actively works against disabled people staying in their own homes, after all. & I can guarantee I’ll be way too young for a nursing home when it happens to me. It definitely shouldn’t have to happen to Alice Wong yet. Listen, if I’ve ever taught you a single thing about disability rights, chances are I (directly or indirectly) learned it from Alice. She won’t be able to keep up the fight for disability justice if she is forced into a nursing home. Plus, most importantly, she *wants* to stay at home, of course she does. Please, let’s help her out! She needs some time to get back her strength. That’ll never happen in a home. She deserves better. For all she’s done for us. Keep fighting, Alice!

#my post #disability justice #disability rights #disability issues #alice wong #social issues #gofundme #charities #nursing homes #activists #institutionalization #disabilities #health issues #donate! #my life #sisters! #siblings #ableism #spoonies #life #thoughts #my thoughts

[workingflooff]

“I can’t kick out that dog”

Yes you can.

Let’s go over what a fake service dog is first. A fake service dog is any dog in a non-pet friendly area that is not following ADA guidelines for service dog behavior. This includes being disruptive (barking uncontrollably, unreasonably seeking attention from strangers, etc) not being task trained. (This one is impossible to tell just from a glance and you have to be an employee that is asking the two questions to find this out) is not potty trained or not being in control of their handler and handler not taking effective initiative to take control of the animal.  So, even if a dog is task trained if it is say pooping in the middle of the grocery store it’s not a service dog because it’s not covered under the ADA after that regardless of how they answer the two questions. It is also important to note in the situation that no animal regardless if it’s a Service dog or not are legally allowed to be in grocery carts, so it’s a pretty big red flag if it is in one.

Recently, there’s been an uptick of fake service dogs but nothing is being done about it. Businesses (especially big box grocery stores) are not taking initiative and kicking out dogs that do not follow the ADA guidelines for a service dog, and are therefore not covered. If you are a higher management at a grocery store and do not kick out a fake service dog you are violating the federal FDA food code. I have, will, and encourage other teams to report any store that refuses to kick out a fake service dog to their local health authorities to face hefty fines. Stores need to crack down on this because it is a safety and equity issue for literally everybody involved. 



#disability advocacy #dogs #pets #service dog #disability #disability issues #nerodiversity #nerodivergent #fake service dog

[transsexualsubstantiation]

i hate you pharmacies with an agenda i hate you Your Prescription Refill Is Delayed i hate you rationing medication i hate you reusing needles i hate you good quality mobility aids that cost more than a month’s rent i hate you “your insurance doesn’t cover this prescription” i hate you “your insurance does cover this prescription but because you ran out before they thought you would you have to pay full price” i hate you “your insurance does cover this prescription but we’re making you pay full price anyway for no reason” i hate you “this thing which is essential to your health is a controlled substance” i hate you “this thing which is essential to your health will have some effects which i deem unacceptable for your body and thus will deny you it without your input” i hate you “this thing which is essential to your health isn’t available for you because you’re under 18/21/25/26/30/55” i hate you protests outside abortion clinics i hate you protests outside gender care clinics i hate you “we’re not going to give you all of your prescription now and we won’t ever” i hate you being unable to access care because you can’t afford to be diagnosed i hate you being unable to access welfare/housing/employment because you Are diagnosed i hate you medical facilities that aren’t disabled friendly i hate you board-certified medical providers thinking you’re exaggerating about your pain i hate you refusing treatment because of mental handicap or gender identity or race or whatever they fucking want i hate you US medical system run by a government that would genuinely, unequivocally and without exaggeration or remorse would rather see physically disabled/mentally disabled/bipoc/trans/female/poor/disadvantaged/any people Dead than provide any sort of care and empathy for people who Need Help From The System That Is Supposed To Help Them I FUCKING HATE YOU

#my post #usa #trans issues #disability issues #healthcare #or rather. #lack thereof

[htmlerror]

I am 100% serious it needs to be illegal for department stores to not have seating

#personal log #disability #disability issues #actually disabled

[disabledpeeps]

“Job is an outlet to do the things we enjoy”

So today I encountered one of my worst nightmares: a neurodivergent able bodied person defending work, when i told them that work is exploitative. In their words: “a job is an outlet to do the things we enjoy, no matter our condition”. I cannot express how insensitive this is (but i will).

There is a lot to unpack here. 

1. You can’t choose to not work, you will not survive, therefore it’s compulsory. Even if you are literally *unable* (chronically ill, disabled or mentally ill) to work, you still have to sacrifice your health to do it. Calling it an “outlet” as shorthand for freedom is insensitive. 

2. Even if you work, no you can’t always do things you enjoy, if you can’t afford them. Not even enjoying them if work takes all your time and energy. Especially if it is a precarious job with abusive boss/coworkers. 

3. It is incredibly dishonest to say “no matter our condition”. As if the work system wasn’t racist, ableist, patriarchal, queerphobic, transphobic, specist by default. It is you condition that dictates your place in the ladder (from most valuable to least valuable, both positions are dehumanizing).

I hate seeing disabled people defending this exploitative system that only damages people’s health and lives for the sake of surviving. It also begs the question if we should only choose to prioritize material goods over relationships. It would be freeing if work was a choice and we were given that choice

#anti work #actually disabled #disabled community #disability issues #stop being ableist #disability #anarchism

[griseldagimpel]

All right, I found out that the program I'm using for my fan vids/animatics (Windows Photos Video Editor) has a built in subtitles capability. The downside is that my preferred subtitle style - white text on a solid black background - is not an option. Below are three subtitle styles possible in the program. Which is easiest to read?

Option A: White Text with Black Outline

Option B: Gray Text on a Beige Background

Option C: White Text on Blurred Background

Which subtitle style is easiest to read?

#fan vids #subtitles #accessibility #disability issues #animatics