#disabled awareness

[sanguinebutch]

happy disability pride month! i hope everyone who doesn’t put flash warnings on posts fucking dies.

#IT IS NOT THAT HARD TO TAG YOUR POSTS CORRECTLY #YOU ARE LITERALLY PUTTING LIVES AT RISK IF YOU DON’T. #🪦my posts #🪦disability #disabled #disability #cripplepunk #cpunk #disabled awareness #disability vent #chronic illness #chronically ill #epilepsy #photosensitivity #FND

[sayruq]

#yemen #jerusalem #tel aviv #current events #palestine #free palestine #gaza #free gaza #news on gaza #palestine news #news update #war news #war on gaza #fuck the idf #war crimes #disability rights #disability justice #deaf awareness #children of gaza

[prideknights]

In honour of disability pride month, we made a disability Pride Knight! Stay proud! ⚔️🌈

#disability pride month #disability #disability awareness

[ducksoup17]

hey now that it’s disability pride month can you please remember to include people with Down syndrome and other chromosomal defects into your activism. they’re so often left behind. I literally never see anyone spreading Down syndrome awareness that isn’t close family of someone with Down syndrome. They exist and they’re living breathing humans who deserve just as much activism as every other disabled person

#down syndrome #disability pride #disabled pride #disability #disabled #Down syndrome awareness #louie.txt

[millionmovieproject]

It's a holiday. For children. Give them the candy, or fuck off.

#halloween #trick or treat #autism #developmental delay #sensory disorders #disability #disability awareness #nonverbal #fuck capitalism #capitalism kills #we live in hell #socialism now #abolish capitalism #peoples union

[riddledem0n]

Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

#fibromyalgia #fibromyalgia awareness #chronic illness #chronic pain #disabled #disability #disabled artist #chronic fatigue #chronic fatigue syndrome #hidden disability #invisible disability #spoonie #chronic migraine #migraines #artist

[cherry-cove]

When a chronically ill or disabled person gets their lab tests back as “normal” or all clear, we aren’t sad because we WANT to be sick.

We’re sad because we *know* there’s something wrong with us, yet the scans still stay clear.

Before you kill the monster you gotta know its name.

#chronic illness #chronic pain #chronically ill #chronic fatigue #actually disabled #disability #disabled #awareness

[andthebeanstalk]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

#hlep #original #mental health #my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need. #the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it #i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support #and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist. #the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28! #a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents. #they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of #huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the #longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong. #and those people are NOT great allies to the chronically sick folks in their lives. #you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead? #or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of. #no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow. #i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel #i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong. #just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop

[metalheadsforblacklivesmatter]

Heat Intolerance

This disability pride month I'd like to talk about heat intolerance. Because honestly although it's not the first health issue that presented symptoms in my life. It was the first time I was like "I don't think my body works right".

And honestly given disability pride month is during one of the hottest months in the year. It seems fitting. Especially because there's a lot of disabilities and medications that cause it.

What is heat intolerance?

Simply speaking it's the inability for the body to regulate it's temperatures especially in hot settings to cool itself down.

Why is awareness important?

Because gaslighting people or worse not providing them a place to cool down just because you "feel fine" is extremely fucking dangerous.

What are the medicines that can cause heat intolerance?

Antihistamines (Allergy medications) . Decongestants (Sudafed or any medication that has the D at the end of it). Stimulants (ADHD medications. Steroids. Caffeine.) Beta-blockers (blood pressure medications). Overactive bladder treatment. Psychiatric medications (including but not limited to medications for depression and anxiety). Pain relievers. Antibiotics.

What medical conditions can cause heat intolerance?

EDS (Elhers-Danlos syndrome). Autism. ADHD. Migraines. Brain/spinal-cord injury. Sensory processing disorder. Chronic fatigue syndrome. Endocrin problems. POTS. Menopause. Hypothyroidism. Diabetes. Heart Disease. Multiple sclerosis. Mental health disorders.

What should I do if I suspect I have heat intolerance?

Reduce time outside during hot months. Keep your electrolytes up. Drink plenty of water. Stay out of the sun whenever possible if outside. Be aware of the symptoms of heat exhaustion and heat stroke.

Clothes that are best worn for heat intolerance. Loose lightweight breathable fabrics. Natural fibers. Long sleeves that protect from sunburn as sunburns will increase your risk. Light clothes that reflect light. Wide brimmed hats that shade the face and neck.

Cool. So what are those symptoms I'm supposed you be looking for?

Headaches. Excessive fatigue. Mood changes. Muscle cramping or weakness. Nausea/ vomiting. Rapid heartbeat. Excessive sweating or not sweating at all.

When should I do to the doctor?

If you suspect you have heat intolerance you can go to your PCP to discuss what medications you may be on and what you can do about it. Otherwise, please go to the emergency room if you have symptoms of heat stroke.

This is good information and all but why are you making this post?

To raise awareness. Not just for the people that have it but weren't aware of what it was called. But for all of the idiots that tried to gaslight me when I was in school because I was like "I don't think this is normal. Every time we do our mile run outside I vomit all over the place but other kids aren't doing that."

Also because people always blame me for over heating if I wear long sleeves or pants. I always like to take notes from what people in the middle east wear because they literally live in the excessive heat and spend long hours in the excessive heat. Often in clothing that covers most of their body. They've gotta know what they're doing, right?

I have some type of xenophobic comment about why people from the middle east cover up

Shut the fuck up 😊

-fae

#disability pride #disability pride month #disability awareness #heat intolerance

[radiostatic166]

Please stop infantlizing autistic people

Stop being weirded out when we cuss. Stop being weirded out when we talk about nsfw topics. Stop being weirded out when we are semiverbal or nonverbal.

We can smoke too, we can drink, vape, and cuss and do anything normal people can do. We can have (concented) sexual relationships. We can kiss people. We can have kinks. We can like BDSM or have fetishes. We are not innocent little kids.

Just because we have a disability doesn't mean we aren't people.

Just because we sometimes need to live with someone else doesn't mean we aren't people.

Just because we don't pick up on social clues doesn't mean we aren't people.

STOP INFANTILIZING US. STOP CALLING US INNOCENT. STOP THINKING YOU NEED TO PROTECT US. WE ARE REGULAR PEOPLE TOO.

#actually autistic #autism #autism awareness #disabled #nerodivergent #autistic things #autistic adult #autistic community #autistic #actually disabled #actually neurodivergent #high support needs #mid support needs #low support needs #autism thoughts #level 2 autism #level 2 autistic #autism level 2

[sanguinebutch]

hi everyone! i’m currently doing a reddit AMA on my rare chromosomal disorder - feel free to drop by :)

https://www.reddit.com/r/AMA/comments/v1axu5/i_have_an_extremely_rare_chromosomal_disorder_ama/?utm_source=share&utm_medium=ios_app&utm_name=iossmf

#🪦my posts #disabled #disabled positivity #disability awareness #disabled awareness #chromosomal abnormalities #genetic disorders #genetics #cripplepunk #cpunk

[sayruq]

Gaza has a large disabled population. Wissam is just one of tens of thousands, who need medication and care, facing the devastating choice of being slaughtered at home or out on the streets. All districts in Gaza but one have been declared combat zones.

#yemen #jerusalem #tel aviv #current events #palestine #free palestine #gaza #free gaza #news on gaza #palestine news #news update #war news #war on gaza #disability awareness #disability rights #disability justice #disability tag #genocide

[alex2xander]

Be nice and don't mock tumblr users that communicate differently.

Examples:

1.) Typing quirks

2.) No punctuation

3.) Random Capitalisation

4.) Long run on sentences

5.) Frequently misspelled words

6.) Missing spaces between words

7.) Repeating words and sentences

8.) Posts audios and videos instead of typing

9.) Express themselves through custom emojis

10.) Use an AAC (Augmentative and alternative communication) device

Some users have intellectual disabilities, use speech to text, struggle with grammar, have hand tremmers, have high support needs, etc.

Regardless of how they communicate and their reason why, they still deserve respect. They are trying their best.

#intellectual disability #disability #communication styles #disabled community #communication #aac user #aac device #autism awareness #disability awareness #typing quirk #disability advocacy #poor grammar #grammar nerd #actually neurodivergent #actually neurodiverse #its the neurodivergency #neurodivergent #neurodiversity #autistic #autism #disability community #neurodivergent community #judgment free zone #no judgement #adhd #adhd brain

[renthony]

[Image description: A photograph of a page from a spiral-bound sketchbook. The page has an illustration of the covid-19 virus and overlaid text that reads, "If I die of Covid-19 - forget burial - just drop my body on the steps of the C.D.C." A caption on the bottom of the page reads, "Ren Basel 2024. In memory of David Wojnarowicz and everyone killed by AIDS, COVID-19, and the government's negligence. Fight back!" End description.]

In 1988, AIDS activist David Wojnarowicz was photographed in a now-famous image, wearing a jacket that read, "If I die of AIDS - forget burial - just drop my body on the steps of the F.D.A.." I am far from the only person to adapt Wojnarowicz's words to COVID-19, but today I am feeling especially angry at the world. Holding the rage in my chest hurts--it hurts so fucking much--so instead, I've put it on paper.

Living through government negligence and community indifference during COVID-19 in 2024 fills me with rage and grief in equal measure, and as a queer person who studies queer history, I can see the echoes of AIDS in the way marginalized communities are being left to die.

As a disabled person who lives in a household that is very high-risk for COVID-19, the C.D.C.'s recent decision to shorten the COVID-19 isolation period feels like a slap in the face.

COVID-19 is not over, and it is vital to take steps to protect yourself and others. Please, follow the work of the People's CDC, an organization dedicated to COVID-19 safety, activism, and education.

Our government has failed us. Our communities have failed us. For those of us who are immunocompromosed or otherwise high-risk, we only have each other.

Remember us. Fight with us. Mask up, get vaccinated, get boosted.

Please.

#original post #my art #covid-19 #covid #coronavirus #disability justice #disability rights #disability awareness

[isabellascarlett1]

There’s nothing inherently “scary” about someone talking to themself in public.

There’s nothing “scary” about someone rocking back and forth in public.

There’s nothing “scary” about someone pacing back and forth in public.

Some of y’all are just ableist.

#Disability #Disabled #Multiply Disabled #Disabilities #Disability Rights #Disability Justice #Schizophrenia #Actually Schizophrenic #Autistic #Autism #Actually Autistic #Psychosis #Psychotic #Psychosis Awareness #Schizophrenia Awareness #Neurodivergent #Neurodiversity #Neurodiverse #Autism Awareness #Mad Liberation #Mental Illness #Mental Illnesses #Mentally Ill #Disability Awareness #Mental Health #Mental Health Awareness #Anti Ableism #Anti Ableist

[peggy-sue-reads-a-book]

With the holidays coming up this is everyone’s reminder to

Ask little kids if they’d like a hug first

If they say no, verbally affirm the reasonable shit you just heard. “You said you wouldn’t like a hug. We won’t hug.”

You don’t even have to redirect with a high five, even though that’s fine. Touching isn’t for everyone.

Do not say upsetting things like “where is my hug?” Clown, you don’t own hugs.

It is fine to model consent by placing boundaries on touch. “Let’s wash your hands before we cuddle.” “I’m leaving this couch if you continue to yeet your foot into my pregnant belly.” “that was fun but I’m going to take a break now.”

Touchy children are not inherently sweeter. Love languages exist at any age.

Some kids like touch but not eye contact. A hug from behind is a good one or “let’s close our eyes and squeeze really tight. Ready?”

I’m dead f*ing serious there are people who want your physical affection so badly but need you to modify your approach. Just like there are people who want to get into buildings but need ramps.

Don’t comment if a kid shows affection to another adult but not you. They’re weird like that but you don’t have to make it weirder.

#holiday psa #consent #you gotta do it #hugs are cool but not mandatory #disability awareness #mom posting #kindness