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#eds things
x4arsn · 9 months
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please rb this or comment if you're an active ed blog (july 2023)!
i will be following everyone back!! 🫶🏻
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invierno-92 · 5 months
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Me explaining my grandma and mom that all the health problems since childhood were not “early-onset arthritis,” “carpel tunnel,” “just recurrent hernias,” “diverticulitis” or “crooked teeth” but instead all part of a genetically inherited disease like:
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too-relatable-ouch · 2 years
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anxiety? bitch i can’t walk 😀
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melanieisstarving · 10 months
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I love oatmeal <3
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dracosollicitus · 5 months
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it's been several weeks since I read Fourth Wing for the first time and I still randomly have giggle-thoughts about Violet being told that first-year cadets die at alarming rates and no one is going to be rooting for her to survive and she's going to be in pain during all the months of grueling training -
and Violet - who grew up as the only disabled/chronically ill child in a set of healthy, able-bodied siblings, who lives in a world that's already dismissive of her/not designed for her to live comfortably/actively rooting for her to fail - is just like
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theadhdgoblin · 11 months
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delusional-delirium · 2 years
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When Luffy hyperextends his joints and stretches his skin hes a “hero” and “gonna be king of the pirates”
But WHEN I do it i “need to go to the hospital “ and “need physical therapy.”
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weepingwill · 3 days
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Tw: Ed Sheeran
I'm in this weird place where everyone thinks I'm recovered but I'm smoking all day and just got down to my lw again
Am I 1000% consumed by what I look like?
Yes
But am I in danger
No
So it doesn't matter to anyone
I'm just gonna keep starving until I get hospitalized fr
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ollie-wants-a-cracker · 9 months
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I think I will always be angry, in some way, about my disabilities. There’s so much I can’t do. So much I keep myself from doing, for fear of triggering a flare-up. My life is so small now, and I am afraid that I will come to resent my body.
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lovethisfat37 · 2 months
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It's been like 2 weeks or something since I dislocated my shoulder and it still fucking hurts. I don't think I've ever had a joint hurt this long after relocation.
I'm sure emotional stress is making it worse. I'm gonna do dabs about it until I pass out.
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peachesnabsinthe · 2 months
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I haven't been sleeping very well because of how restless my legs have been at night and my hips have been KILLING ME I keep fantasizing about grabbing a screwdriver or something and wedging it between my hip and thigh joints and popping those suckers so the inflammation will go away
I'm not a doctor so that's probably not how it works but I bet it'd feel real good 🥲
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x4arsn · 1 month
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does anyone still look up to eugenia cooney? as an ed person?
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intersex-support · 2 years
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Hi, um this is kind of a long shot but I'm currently trying to look into connections between NCAH and certain chronic illnesses and I'm just wondering if you might have any resources for that? I'm having a really hard time finding anything online because I'm not really that good at searching for things effectively.
I'm specifically trying to find out if there's any connections between NCAH and POTS, IBS, MCAS, EDS, and/or fibromyalgia.
If not that's fine, I'm not getting my hopes up. Either way I hope you're doing well 🙏
Hey anon!
This website says that adrenal gland disorders (which NCAH is) can affect and cause POTS! Basically, adrenal insufficiency can cause POTS, and Here's a post by someone with CAH and POTS. So literally, CAH can cause POTS. There's less info about NCAH and POTS, but I'm assuming it's similar. Also, anecdotally, I have NCAH and POTS, and half the intersex people with NCAH I know also have POTS.
This article is an article all about the connection between EDS and CAH. I will admit I don't quite understand the scientific discussion with EDS because I am not familiar with EDS, but it looks like there is a specific genetic connection. This scientific article says 10% of people with CAH have EDS. Unsure of how NCAH affects this and whether or not people with NCAH are being counted in those numbers, because a lot of resources will use CAH as the umbrella term and include NCAH in it. I don't have any resources beyond scientific articles, but if you search Tenascin X, CAH, and EDS, there's a lot of articles.
This article says that people with CAH have GI problems that manifest in a way that looks like IBS. Anecdotally, I know a few people with (N)CAH with digestive issues, and this website seems like there's a few people with CAH and IBS.
I can't really find anything with MCAS and NCAH, but it's possible that MCAS is more associated with some of the other chronic illnesses you've listed.
I also couldn't find anything for fibromyalgia, but again, that might be a comorbidity for some of the other chronic illnesses you've listed.
Hope that helps!
-Mod E
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neversleepuntilfive · 4 months
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Is there even a way to train your 'finger muscles'? I don't think I've ever saw a human with muscular fingers. I just want less pain, and I don't know if the 'finger muscles' can ever stabilize a joint enough to function properly.
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melanieisstarving · 10 months
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having ana and being a writer I simply don't eat till I reach my word count
Honestly works in keeping my cals low and my word count where it needs to be
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allmpoems · 7 months
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going and gone [9/15/23]
I must be very sick
all I can do is shiver and cry
the pain that keeps me hostage
is what breaks me from the inside
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