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#epilepsy

I have epilepsy. This details my seizures, I can’t speak for everyone, everyone’s seizures/ experiences are different. This is graphic. Seizures are messy. They aren’t fun and it felt wrong to make it out to be cute when they really aren’t.   Pretty much all the things that happen in the plot have happened to me. Well, I’m not married to a king or live in a palace so…there’s that but everything else is accurate.  There may be some jokes about it here because I do joke about it sometimes. It makes me more comfortable and I find it helps relax everyone around me. I’m also writing about it because there really aren’t that many fics written about it and I think it’s important to shine light on it.

Any feedback is really appreciated! :)

Tags: @kacie-0156 @texaskitten30, @cordonianroyalty, @kingliam2019 , @cordonia-gothqueen,   @bobasheebaby @losingbraincellseveryday  @marshmallowsaremyfavorite @jared2612 @flutistbyday2020 @debramcg1106 @anotherbeingsworld @leaharhys @cordoniaqueensworld @bascmve01

This is also part of wacky drabbles hosted by @wackydrabbles. The prompt this week is: #45: I don’t hate you. 

Paring: Liam and Riley

Warnings: Suicide attempt. 

Word count: 1,822 

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So I’ve been on Levetiracetam for around 6 years (prior to it I took different medications), and I’ve never really had any side effects. But, is it possible for side-effects to just start up years after taking a medication? For example, I’ve had lots of dry mouth (no biggie), but I also noticed that emergence of depression is listed as a side-effect, and I have been feeling something akin to depression since back in November.

So can depression just sort of be a side-effect of my Levetiracetam even though I’ve been taking it for 6 years with little to no side-effects prior to this? 

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TW


So today I was officially diagnosed with binge eating disorder. I have been panicking for weeks about the possible diagnosis and how it would effect me. I have had some amazing support from my younger brother though (I didn’t know they were capable??) the eldest of the two is going to buy me the $650 Harry Pooter Hogwarts Castle if my recovery goes well.

I did learn though that mine is starting to branch into severe (it has been 5 years so I kind of expected that?) so basically my plan is in 3 months if I am still going down the same path with no changes I will be medicated, and then in 6 months if I haven’t changed or if little change has happened I will be hospitalised. This is very scary for me but I have an amazing support system in my family, friends, GP, Psych and Dietician who I know can help me through this journey.

If you are suffering with any mental illness seek help, I know it can be scary but one conversation can lead to a recovery that will change your life!

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How to represent epilepsy in media: A few facts about epileptics that could help artists create more accurate representation of those with the disorder.


The incorrect image of public seizures and seizure triggers: That one seizure and its triggers.

  • The seizure shown in the media where someone just drops and starts to shake is one of many different types of seizures classified by the part of the brain affected. The symptoms are seriously diverse. My seizure, as described by my husband, consists of me freezing then slowly rocking back and forth and twitching my fingers. I can hear what is going on around me but I can’t speak. I once knew a guy whose seizure was basically a sudden blackout while he is still standing followed by what looks like sleepwalking that almost got him run over by a bus because he keeps moving without seeing the world around him. The shaking on the ground thing, or tonic-clonic seizures, are not the majority. 
  • All the different triggers you hear about do not pertain to everyone. Strobe lighting, flickering lights, bright lights, and certain television or video game colors are all valid triggers but everyone has different triggers. None of those actually bother me and I’ve known people who are triggered by some of those and not others. Again, this is all incredibly more diverse than people think.


The mythically small presence of epileptics in society

  • Epilepsy is an invisible disability that can develop in any person at any age. People don’t just get bashed in the head and get epilepsy. It’s usually just a natural part of someone’s life.
  • 1 out of 26 people will develop epilepsy. It is not some rare disorder.
  • You can be an epileptic and not have seizures. Some people have completely normal although medicated lives. 


Important First Aid Tips:

  • Do not immediately call an ambulance. Most seizures for epileptics last a few minutes then, after a bit of dizziness, they move on with their day. If someone wakes up from a seizure and finds out you called an ambulance, they will be extremely upset because guess what, at least in the U.S., they will have to pay for that ambulance which can cost hundreds of dollars. Crazy, right? Please just wait and make sure it’s not serious before freaking out and calling 911. I know watching a seizure is scary but please keep calm because panic only makes things worse. We appreciate you caring but the panic and jumping to conclusions makes things so much worse for us.
  • Do not, I repeat, DO NOT PUT SOMETHING IN THEIR MOUTH. No one swallows their tongue. It’s a myth and whoever came up with the wallet thing needs a slap. When I see someone stuff a wallet in an epileptic’s mouth in a show, I want to reach out and choke them.
  • Seizure First Aid:



Educating the community about this is very important to me. I actually used to travel around with a representative from my local Epilepsy Foundation and give speeches on living with epilepsy. I would love to see better representation in media.

image

Thank you for your submission, @mrs-raven-writes​!! I was starting to think no one would ever submit anything in response to that post!

If anyone else wants to post something, this is the post she’s responding to!

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Like I said yesterday, making you or anyone else feel uncomfortable has absolutely  never been my intention. It really upsets me to know that I’m making anyone feel that way. 

I’m just trying to find a way to express how I’m feeling. So many things have happened since I was diagnosed and writing about those experiences, especially the harder ones are really helping me to move past them. I never thought that my writing would ever make anyone feel this way though. 

 It’s just hard when you’re feeling so many different emotions and you feel like you can’t speak to anyone about it in fear that they won’t understand or feel like you’re a burden.  As for still posting, I wrote chapter thirteen nearly two weeks ago and since then a lot has happened and I hadn’t been able to post it so I did early this morning. 

You and everybody else are absolutely entitled to your own opinions. I’d never say otherwise but if you have something to say just say it to my face without hiding behind anon or simply don’t read it. There seems to be an unspoken rule that If you don’t like something, don’t read it. I always use the same tags in my post (#my story, #tw: seizure, #epilepsy) one or sometimes all three are always used and you are able to filter them so you won’t see my posts. 

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Thank you! ❤ it’s hard to think that seizures could be disturbing to some people because they’ve been part of my life for basically as long as I can remember and so they’re normal for me but I can see how it could be for someone who hasn’t ever experienced them or seen them before. I’m so happy that you’ve enjoyed my story so far! :) 

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I have epilepsy. This details my seizures, I can’t speak for everyone, everyone’s seizures/ experiences are different. This is graphic. Seizures are messy. They aren’t fun and it felt wrong to make it out to be cute when they really aren’t.   Pretty much all the things that happen in the plot have happened to me. Well, I’m not married to a king or live in a palace so…there’s that but everything else is accurate.  There may be some jokes about it here because I do joke about it sometimes. It makes me more comfortable and I find it helps relax everyone around me. I’m also writing about it because there really aren’t that many fics written about it and I think it’s important to shine light on it.

Any feedback is really appreciated! :)

Tags: @kacie-0156 @texaskitten30, @cordonianroyalty, @kingliam2019 , @cordonia-gothqueen,   @bobasheebaby @losingbraincellseveryday  @marshmallowsaremyfavorite @jared2612 @flutistbyday2020 @debramcg1106 @anotherbeingsworld @leaharhys @cordoniaqueensworl@bascmve01

Paring: Liam and Riley

Warnings: SUICIDE ATTEMPT, mention of miscarriage. 

Word count: 5,316 

Catch up here

Keep reading

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I had my PT Evaluation today, basically just to see if I needed any physical therapy at all (I do)

She made me do some exercises, took my vitals, gave me some stretches for my knotted up muscles (thank you father god) and pulled on my legs so hard my hips popped back into place

I didn’t even know they were out of place

Felt good tho friends I’m not gonna lie

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I just let myself have the biggest bowl of ice cream plus a klonopin bc I was getting worked up thinking about my current situation

I just had three seizures and was hospitalized in the ICU and I’m fine, thank god, but now I can’t drive anywhere so I’m stuck at home and I’m like 99% sure my parents resent me for it, it’s gotten to the point where I’m so bored I’m actually looking forward to my doctors appts, I feel like some kind of animal pacing my cage.

I have MRIs, a neuropsych eval, and an EMU scheduled all to see if surgery might be an option bc it looks like my epilepsy might be intractable, and I’m really….I just don’t know what to do. Part of me really wants to do it and get it over with and get the info but a bigger part of me is scared shitless! Surgery on my brain! That’s terrifying!

In addition to all this I’m losing chunks of my memory and it’s pissing me off. I get tired easier and more often (probably from spending a week in ICU) so most of my days are spent sitting.

What i really need is some kind of specialized therapy for people with chronic illnesses/disabilities but I don’t know if such a thing exists or if I could even find anything close to me? I do have a therapy appt lined up soon so that’s better than nothing.

Sorry, I just needed to rant.

Also TMI my fucking ass hurts bc the nurses didn’t move me around enough on the bed while I was in the hospital so now I’m sore in one spot (I don’t HAVE a sore, I just AM sore)

Submitted by @honeyjagi

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I’ll admit, I don’t remember the date of my last seizure, but today’s the anniversary of the last possible date it could’ve been, so I’m choosing to view today as the 6 year anniversary of me being seizure free! I just wanted to share this somewhere so I figured here was as good a place as any

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I’d like to make a little joke about my memory loss but, now that I’m finally able to retain memories, I realize just how saddening it truly is. Seizures literally took away an entire year of my life. there are so many things that I’ve done and places I’ve been to in the past that I have no recollection of.

yyh-lover
yyh-lover
yyh-lover
yyh-lover
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Beep….beep…beep, thats the first think i remember. The cold air of the operating room graced my body as I lay nearly nude on the table.

“Sir….sir, can you hear? Drew, are you there…Andrew?” An unknown voice filled my ears, bringing my mind fully back up to Reality, up from the depths of my subscious. I could feel my body ache and burn hot with pain.

“Do you know where you are? The voice asked again, another person injecting something into my arm.

I rolled my head left and right, my eyes barely opening as blurry light and moving shadows surrounded me.

"Hos….hospital? What happened?” I slurred my words, barely able to remain conscious.

“Whats the last thing, you can recall?” He asked again as they continued to inspect my body.

“Work, bout to leave…” i answered, nearly falling back to sleep.

Suddenly the familar warmth of my wife’s hand brushed my cheek, comforting me.

“Baby, you had some seizures.” She told me, lightly kissing my cheek.

“I had some SEIZURES!?” i turned my head slowly toward her voice, my eyes still closed

“You had more than some, you had 35 grand mauls, less than 2 mins between each one and the longest lasting over 8 minutes.” The doctor corrected

“Youre very lucky to be alive, Drew, thats the hardest I’ve ever seen anyone fight to stay alive”

“Stay alive? What?” I rested my head again, my body exhausted.

“Baby, you died on the table four times. Youve been in a coma for two days…” she kissed my forehead, holding me close.


-my, technically, 2nd epileptic episode. I had my 1st when i was 3 in 1994

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Just trying to make some friends. Lets not talk politics, we wont agree. Lets talk anime and cannabis. Any epilepsy patients out there? Whats your epileptic aura like? Also sorry if i talk about my wife alot, i just love her.

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