#epilepsywarrior

[jahtarlifestyles]

I have been on so many yo-yo and strange diets in my time. But finally, eating a pescatarian whole food plan has really been working for me. The idea is to completely change my style of eating and work on my portion control. Cooking from scratch is time consuming but, overall it is healthier for me. I'm tired of starting over and hoping that this "new" diet will help me lose weight and decrease my pain 😢. Now, I'm just in it to decrease pain and live a healthier lifestyle. 💔 the spoonie in me wants to cry because I can remember those few hours years ago when I was pain and headache free, which seemed so long ago. GOALS, I have no other social media, so I will be using this as my journal to follow along with my progress. We shall see how this goes.

#jahtarurbanhomestead #organic #growyourown #growthmindset #eclecticwitch #spoonielife #selflove #selfcare #jahtarlifestyles #seizure disorder #disability #epilepsywarrior #hemicrania continua #weightlosssupport #weightlosschallenge #weightlossjourney #painfreeliving #wholefoodnutrition

[epilepsy-and-me]

#epilepsysucks #purpleribbon #epilepsywarrior #epilepsylife #epilepsyproblems #seizure disorder #epilepsy awareness #actually epileptic #convulsions

[nopressurenostress]

Epilepsy Word Vomit

It’s been over a year since I last had a seizure and this morning I woke up with a purple inside of my mouth and a vague recollection of “shit goin down” aka having a seizure. It’d been a very glitchy day - in and out of consciousness a few times and trying to carry on as normal. So I start the grief process again. Every time. Over the years the process got speedier. Instead of hitting me 2 days later like a tonne of bricks it became a slowly creeping entity that came to rest beside me after a few hours. We are slightly more comfortable with each other now. Now that the general shape of my life and dreams has morphed considerably. I call her over with a guided mediation and we sit in the quiet together and sigh. It is so confusing. Invisible illness screams to be seen to “feel validated” at times - and yet when it is here, rearing it’s terrifying head, there is a sickly concoction of grief and validation that sits uncomfortably on my chest and crushes me. Are you meant to feel guilt for sympathy you receive for something out of your control? This morning my Dad says “oh, you were doing so well”.

#temporal lobe epilepsy #epilepsywarrior #epilepsy #actually epileptic #chronic illness #self help #mine #depression #anxiety #self care #mental health #therapy #self awareness #breakthrough seizure

[ojasnpc]

What is Epilepsy ?

Epilepsy is a brain disorder that causes people to have recurring seizures. A seizure is a sudden burst of electrical activity in the brain. Seizures can cause a variety of symptoms, including loss of consciousness, muscle spasms, and strange sensations or behaviors.

#epilepsyday #mentalclinic #mentalhealth #Epilepsy #epilepsywarrior

[karmaastro]

Join us in celebrating #PurpleDay and spreading awareness about #Epilepsy. Together, we can show our strength and support those affected by this condition.

Get your consultation now at 9999113366

#purpleday #purpleday2024 #purpledaycelebration #purpledayawareness #endepilepsy #epilepsywarrior #epilepsyawareness #epilepsysupport #drvinaybajrangi #vedicastrologer #astrologicalconsultation #astrology #astrologysolutions

[brainboxschool]

Purple Day is an annual event dedicated to raising awareness about epilepsy. It was founded in 2008 by Cassidy Megan, a young Canadian girl who has epilepsy herself, with the aim of encouraging people to learn more about the condition and to support those living with it.

On Purple Day, which falls on March 26th each year, people worldwide wear purple clothing and accessories as a sign of solidarity with those affected by epilepsy. Buildings and landmarks may also be lit up in purple to raise awareness.

The color purple was chosen because it represents both the sadness often associated with epilepsy, as well as the hope for a brighter future through increased awareness, understanding, and support for individuals with epilepsy.

During Purple Day, various events and activities take place globally, including educational seminars, fundraising events, social media campaigns, and community outreach efforts.

#PurpleDay #EpilepsyAwareness #EpilepsyAwarenessDay #SeizureAwareness #PurpleForEpilepsy #EndEpilepsy #EpilepsyWarrior #PurplePower #SupportEpilepsy #EpilepsyCommunity #EpilepsyResearch #RaiseAwareness #PurpleRibbon #EpilepsyEducation

[jukeboxgirl]

#epilepsywarrior #epilepsy awareness #purple #unstoppable #Spotify

[svasthvida]

Transforming Lives Through Ayurveda: Svasthvida Epilepsy Treatment. Find Seizure Relief Naturally with Expert Ayurvedic Care. Start Your Journey to Wellness Today for a Brighter Tomorrow!

Contact Us to Begin Your Ayurvedic Healing! ➡️Call/WhatsApp: [phone] ➡️E-mail: [email protected]

#epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyawarenessmonth #endepilepsy #epilepsyfighter #ayurveda #yoga #ayurvedalifestyle #health #ayurvedic #healthylifestyle #ayurvedalife #wellness #ayurvedaeveryday #ayurvedicmedicine #natural #india

[beckysblog2]

In 1986 I had my first gran mal seizure. It lead to many tests to figure out why. In my right frontal lobe, an AVM was found. It had bled causing the seizure. I had brain surgery in January of 1987. The AVM was resected. I have a walnut sized piece of brain missing. After many years of not seeing a neurologist, I started having major migraines, again. This led to my primary sending me to a new neurologist. He found 4 more AVMs in my right frontal lobe. It was decided to leave them alone. I have to keep my blood pressure in check, I cannot lift heavy objects, as any kind of strain can cause 1 or all to rupture and cause me to stroke out.

#ihadbrainsurgerywhatsyourexcuse #avmsurvivor #avmwarrior #epilepsywarrior #burgundy&purple

[drugcarts]

A disorder in which nerve cell activity in the brain is disturbed, causing seizures.

#epilepsy #epilepsyawareness #epilepsywarrior #seizures #autism #mentalhealth #epilepsyfighter #seizure #Drugcarts #onlinepharmacy #pharmacy #medicine #healthcare #doctors

[dnorthernlight]

Epilepsy-Does your road end here? How do you see where you’re at? Are you discouraged with what life has handed you? Or, have you been able to cope with your circumstance? You might say, “Ya but…” I get it. That’s what I, too, said for decades. It's time to see everything with different perspective. It’s time to shed some light in the whole situation and not just your own. I'm not saying that you should just put everything you've gone through aside. What I am saying is that you have the ability to see greatness despite your demise. Don't allow your darkness to overshadow your light. All you need is a shift in the way you think. What if you had family and friends who surrounded you? What if you had the ability to go for a walk and admire Mother Nature’s beauty? Look beyond your situation and you will find abundance. P.S. Want to learn more about seizure control? ***Join me for a free Masterclass.*** You will learn of holistic practices that allow me and many to be in control of their seizures. On Thursday March 9th. If you live with epilepsy, it will touch you directly. Email me to attend at [email protected] The Masterclass will be on Thursday March 9th at 3pm Pacific Standard Time (6pm EST). Send me an email and I will respond to you with a personal invitation to the Masterclass. That’s 3:00pm PST! See you there, Daniel Your Holistic Epilepsy Health Coach #epilepsy #epilepsyawareness #epilepsyawarenessmonth #epilepsywarrior #epilepsysucks #epilepsypositivity #epilepsysupport #epilepsylife https://www.instagram.com/p/CNGoBx0j4BR/?igshid=NGJjMDIxMWI=

#epilepsy #epilepsyawareness #epilepsyawarenessmonth #epilepsywarrior #epilepsysucks #epilepsypositivity #epilepsysupport #epilepsylife

[epilepsy-and-me]

#epilepsy awareness day #epilepsy awareness #epilepsysucks #epilepsywarrior #purpleribbon #seizure disorder #epilepsylife

[emmaenvy-92]

Throwback pics from last week! #throwback #saturday #feelingmyself #trending #youtube #youtuber #influencer #mom #epilepsy #mentalhealth #mentalhealthawareness #epilepsyawareness #epilepsywarrior https://www.instagram.com/p/CpX3dn9u9zh/?igshid=NGJjMDIxMWI=

#throwback #saturday #feelingmyself #trending #youtube #youtuber #influencer #mom #epilepsy #mentalhealth #mentalhealthawareness #epilepsyawareness #epilepsywarrior

[prathimahospitals]

50% of adults with #Epilepsy experience #socailstigma as a result of their Epilepsy. #internationalepilepsyday

For more details 📞:: 733 733 6600 | 040 4345 4345 🌐:: www.prathimahospitals.com

#endstigma #Epilepsyawarness #Epilepsywarrior #Epilepsyday #socialstigmaawarness #13thfebruary2023 #13thfebruaryv #prathimahospitals #kachiguda #kphb #prathimahospitalkachiguda #prathimahospitalkphb

[preetisingh71]

😊💜 Delighted to have a US national, an #epilepsywarrior Amanda Pedrick, for the first time on our channel EmbracEpilepsy ...sharing her #epilepsy journey where she's telling us about a bracelet she wears which warns her just in time when a #seizure is about to occur and she saves herself in time. And how good is that for us people with epilepsy 😊( PWE ) for creating further #epilepsyawareness !! Link in bio 💜💜 https://www.instagram.com/p/Cl83tEQPnAP/?igshid=NGJjMDIxMWI=

#epilepsywarrior #epilepsy #seizure #epilepsyawareness

[leokostas]

Epilepsia - os 500 dias de KEPPRA

Em 2019 comecei a ter uma série de convulsões noturnas, todas as noites, que resultavam em automatismos e momentos de ausência, oscilações drásticas de humor que não tinham explicações e momentos de depressão sem razão aparente.

Comidas, bebidas (alcoólicas), infecções, nada disso indicava ser um estopim.

Primeira consulta com um neurologista:

Exames eletroencefalográficos não acusavam qualquer dissonância; só mesmo a sinusite que é de família.

Medicamento 1: Ácido valpróico.* Começou a equilibrar as coisas e as convulsões pararam.

*Indicado para um amplo espectro de convulsões e epilepsias; surtiu efeito no começo, porém, as convulsões, automatismos e ausências voltaram.

"Aumente a dose"., disse o neurologista.

Este aumento começou a criar outro problema: retenção de líquidos, aumento do LDL (colesterol ruim) e aumento de peso. De 96kg para 112kg.

Buscamos uma segunda opinião: "Ao invés de aumentar, complementaremos com pregabalina." disse a doutora.

Medicamento 2 (combo): Medicamento 1: Ácido Valpróico + Pregabalina.

A combinação começou a equilibrar as coisas e as convulsões pararam temporariamente, mas essa combinação sobrecarregaria meu fígado causando outros problemas como hepatite e afins.

"Faça uma tomografia para descartar alguma lesão ou traumatismo."

TOMOGRAFIA FEITA. Resultado: NADA além de um lindo cérebro e da indicação da sinusite, que é hereditária.

"Você vai precisar fazer uma punção lombar para descartar qualquer infecção bacteriana, viral, fúngica, protozoários, parasitas, encefalopatia espongiforme ou um possível tumor cerebral."

Gelei com esta última parte. Me senti no lugar de Renato Villar (Roda de Fogo - 1986).

PUNÇÃO LOMBAR (cara) feita. NADA nos resultados que afetassem direta ou indiretamente o cérebro.

"Você vai precisar fazer uma RM (ressonância magnética) para descartar alguma anomalia no órgão que a tomografia não tenha acusado." Resultado: NADA além de um lindo cérebro.

TOMOGRAFIA, RESSONÂNCIA, PUNÇÃO LOMBAR. Exames (muito) caros que exigiram a quebra do porquinho e o ajuntamento de várias moedas e a venda de algumas moedas raras.

Por que você não fez pelo SUS? Seria muito mais demorado e ainda faltam alguns anos pra idade de prioridade. Era uma corrida contra o tempo.

Automatismos e ausências são perdas de consciência e poderiam ocorrer em algum momento em que eu estivesse na rua ou em qualquer outro lugar.

Longe da realidade, sem ter acesso a um raciocínio claro, poderia me acidentar. Já houve um momento em que eu fui à porta de casa para sair. Pra onde? Vá saber. Mas mô não deixou.

Foi então que buscamos uma terceira opinião e fomos a ele. Ele ouviu calmamente toda a saga até chegarmos a ele.

Fez alguns exames de reflexos ("martelada no joelho"), peso, altura, etc. >_<

Ao examinar os valores dos exames, (quase) tudo estava dentro dos padrões, só a glicose "à beira do penhasco" (é difícil resistir ao pedido de um chocolate para ser devorado).

Então, mostrei as imagens da RM que já tinha feito, no celular mesmo, não as tinha levado impressas por pensar que poderia apenas enviar por e-mail, mas não havia computador em sua sala, apenas estantes, livros e pastas com prontuários escritos à mão.

Passando as imagens, ele dizia: "Tudo normal. Normal. Normal. Normal." Até que, ele deu zoom numa das imagens...

"Aaahhh, eis aqui o probleminha. Teu hipocampo esquerdo tem uma má rotação e isso é algo muito comum. Nada do que se preocupar. Não posso receitar CBD, mas este medicamento aqui vai resolver."

Pois bem, este experiente médico acertou na mosca na mosca (não, não repeti, só pense numa mosca pousada na mosca do alvo).

Logo comecei a tomar os medicamentos nos horários e, obviamente, suspender qualquer bebida alcoolica, ad eternum talvez. Tudo voltou à nitidez, eu voltei à nitidez. Tudo ficou muito claro e perdi aquele receio de falar algo impróprio, que deve ter acontecido em algum momento.

Porque estou contando esta experiência?

Ainda não descobri, mas acho que muitos irão identificar-se com os acontecimentos. Há várias pessoas por aí que tem epilepsia por N razões; desde uma má rotação à uma infecção, um edema, um tumor, enfim, a lista é grande.

Por outro lado, sei que nada disso é desculpa para o que eu tenha dito ou feito neste meio-tempo. Não posso nem vou responsabilizar este estado por qualquer grosseira aos olhos dos outros. Talvez tudo o que emergiu veio do subconsciente, mas não vou terceirizar a culpa do estrago feito. Não tenho como voltar no tempo.

"Ah, ele é epilético, por isso fez o que fez e falou o que falou." você vai pensar. Na verdade, dizer que alguém é epilético, diabético, paralítico, leproso, etc são maneiras de associar a pessoa à "doença" e assim, transformar a pessoa na própria "doença". "Ah, mas todo mundo fala diabético, epilético e paralítico." Por mais engraçado que pareça, não é: Seria engraçado se fosse alguém da tua família? Pense bem.

Enfim, com o KEPPRA lá se foram os 500 dias sem convulsões e a paz voltou a habitar nosso lar.

P.S. retornarei ao post para edita-lo mais.

#epilepsia #cbd #epilepsy #neurologia #parkinson #cbdoil #insomnio #cannabismedicinal #epilepsi #epilepsyawareness #epilepsywarrior #salud #epilepsiainfantil #convulsao #estres #cefaleia #epilepsie #seizures #epilepsysucks #endepilepsy #epilepsyfighter #dolor #laboratorio #UCBBiopharma #UCB #Biopharma