[image description in alt text]
24 notes · View notes
with great pain comes the great inability to form a coherent sentence
[ID: a 4-page comic in illuminated manuscript style of a person standing outside. /1: They look to the distance and say: "What is that dolorous cloud: that dreadful fright I see now on the dark horizon?" /2: They turn, upset, and say: "Alas! It is the brain fog approaching!" A purple cloud enters the panel. /3: They hold up their hands against the approaching cloud, saying: "A curse upon that fog that steals my eloquence. I...hate...it" /4: The cloud surrounds them and they say: "cloud"..."bad" /ID]
27K notes · View notes
I’ve lately been struggling with waking up and getting going in the morning, so I’m leaving these reminders here to go through next time I forget why this routine is so important. you might find it helpful too if you also struggle with ADHD, executive dysfunction, disordered sleep, time blindness etc.
• waking up in the morning does feel good, it’s just difficult at first. the dread you feel when you know you’re sleeping through your alarms is much less enjoyable, much less restful than actually waking and moving your body to a new location to let the morning settle in.
• vibrate-only alarms are much easier to ignore in your sleep. find a sound that is somewhere in between relaxing and startling. calm little melodies just become the soundtrack to my dreams, but I also don’t need to wake up thinking the sky is falling. something matter-of-fact that will actually get your brain to stir a little is perfect.
• set at least one other alarm only a few minutes after your first alarm. too long of a “snooze” just allows the brain to get comfy again, which isn’t great if it’s really time to get moving. some extra-challenging days I might set 3 or 4 just in case.
• use an app that makes you get creative if you want to disable your alarm. the one I use (the free version of Alarmy) lets you choose between taking a picture of something specific, playing memory games, answering math question, scanning a barcode somewhere in your room, or even shaking the phone violently a certain amount of times (not ideal if you share a bed with someone 😬). since I’m bad at math and have poor working memory, I actually chose memory games and math questions. I didn’t want to be able to disable the alarms in my sleep, plus you can set the difficulty level so you don’t screw yourself over.
• when you do wake up, remove yourself from the place where you’re sleeping. I always move to the nearest window and spend some time sitting and looking out it. this is usually when I realize that I have missed out on a lot of peace in the day by never really having been a “morning person”. it’s pretty nice if you can get through the waking. this morning I rediscovered a rock on the window sill that I found a few days ago. I took a moment to appreciate that before moving on.
• when you’re ready to venture to the next step, drink half a glass of water. I do this when I take my meds and vitamins. I also use the bathroom and, if I remember, brush my teeth.
• sit for at least 5-10 minutes, if there’s time. I return to my window, and if I can’t justify a proper journaling session I like to at least use my notes app to make a list of manageable tasks, including things I’ve already done (like wake up, use the bathroom, take meds, drink water). there is a willingness that comes over me when I’m able to check things off right away. already my unchecked tasks are fewer and I have a sense of satisfaction that helps move me forward.
• set alarms for every 15 minutes or so for time blindness. but remember...
• bullying does not motivate a dopamine-seeking brain. ADHD and other such neurodivergent minds depend on dopamine, not adrenaline (at least in my experience and observation) and certainly not abuse. stop making your alarms things like ‘get up, bitch, I mean it’ and ‘get your ass up or you’re going to get fired’, even if it’s a joke. I did that for a long time and it sucked. so,
• extend yourself some grace. these are my alarms now and I love them! they don’t give me a shot of stress when they go off on my watch. encouragements and affirmations like “let’s get going!” and “you’re doing fine” are helpful. some are questions, like “just about ready to xyz?” and some are statements made in good faith, such as “you’ve taken your medication and your vitamins.” and “I’m so glad we’re making time to feed our bodies.” when it gets closer to the time to leave, it’s “are we ready to head out?” and “it’s go time!”
• lastly, eat something! anything at all. just don’t leave without eating something. I especially recommend this if you take medication for ADHD, or any med that works better if you give your body a little food to work with (this obviously varies from med to med so discuss with your pharmacist!)
1K notes · View notes
Fig. 2. Energy and fatigue. On being tired. 1909.
3K notes · View notes
I'm so tired
787 notes · View notes
having multiple disorders with a lot of overlap is just like, trying to untangle a really big ball of string. you have no idea if it's only one string or multiple strings wrapped up, you don't know where any of them start or end, and after a while it all starts to look the same. it's a big jumbled mess and it's exhausting, but you try to sort them out anyway because they're no good to you tied up.
4K notes · View notes
anyone else with chronic illness (chronic fatigue in particular) feel like they've kind of lost some of their intelligence or cognitive function? I get so upset that I struggle to understand consepts that I used to. It's so difficult to understand things I read. I can't get my point across like I used to. I feel so fucking useless and frustrated. I used to write, read and constantly learn and now I can barely function.
please tell me I'm not alone. please tell me I'm not just lazy or losing intelligence???
527 notes · View notes
If you’re chronically ill, I genuinely want to hear what fatigue looks like for you!!
It’s so easily overlooked and so commonly the most debilitating symptom.
I hope this could also spread awareness, if enough people contribute. We’re not just tired.
541 notes · View notes
When you have a medical appointment, but you haven't walked through the door yet and you're already exhausted.
285 notes · View notes
haha, morning routines amiright
[ID: a 4-page comic in illuminated manuscript style of a medieval peasant. /1: Text: "6 o'clock: rise with the sun." Panel depicts them sitting up and stretching in bed. /2: Text: "7 o'clock: break the night's fast." They stand at a table, stirring a bowl of pottage. /3: Text: "8 o'clock: Acknowledge the pain." Close-up of their face, now crudely drawn with dizzy eyes, behind a wall of text repeating thoughts such as "shit ow ouch ow" "is this it am I dying" "fetch the physician" and "alas and alack." /4: Text: "9 o'clock: Begin the day's work." They've returned to normal and sit with a quill and inkpot at a desk. /ID]
2K notes · View notes
It's okay to rest, you are not lazy for taking a break.
2K notes · View notes
"Exhausted." From St. Nicholas, 1886.
Wondering about this post? Wait for the dissertation (TBA).
For now: Weblog ◆ Books ◆ Videos ◆ Music ◆ Etsy
332 notes · View notes
i'm too exhausted to talk.
2K notes · View notes
SPOONIE THINGS NO ONE TALKS ABOUT PART 17
Sleep is *awful*.
No matter your illness type, sleep is always an issue, whether that be excessive sleeping or none at all, and no matter which issue you have, you're always tired anyway.
People who over sleep feel like they lose so much of their lives because they're always falling asleep any chance they get. They have to stop for naps every spare moment and can't function on just 8 hours of sleep at night.
I've never experienced the former, I haven't been able to sleep well since I was a young child.
No matter if you had the most horrible exhausting day and all day all you can think about is curling up to go to sleep, you can't. You're either restless, half-awake, or just wide awake for hours, feeling the night slowly drag on. And good luck even trying to nap, that's a whole other nightmare.
398 notes · View notes
Ever have one of those days where you need to rest after taking a quick shower? I swear, I get palpitations, dizziness and nausea. I usually have to lay down with a fan on me for an hour or two before I even have the energy to get dressed.
196 notes · View notes
friendly reminder that’s it’s okay to halfass shit on those days, weeks and months when you can barely get out of bed and function. if a task seems too difficult to do fully, half ass that shit.
can’t brush teeth? rinse with mouthwash or water.
diffucult to shower? baby wipes.
difficult to wash hair? dry shampoo.
difficult to make meals? cereal and ramen is just fine, it is okay to not cook vegetables, eat the ones you can raw.
eating solids is too exhausting? smoothies, milkshakes, juices, anything.
schoolwork’s kicking your ass? 20%, 40% or 50% is better than nothing.
house chores suck? do the bare minimum, just sweep the really dusty spots, just clean the dirty spots on windows or mirrors.
changing sheets is hell? just put a sheet down on the matress, you don’t have to tuck it in, you can just put a sheet between yourself and the duvet too.
it is okay to halfass everything when even breathing is exhausting.
1K notes · View notes
Chronic fatigue vs depression
One somewhat worrying pattern I’m seeing in the reblogs of my post about POTS, is that when I briefly described chronic fatigue, a lot of people said things like “Isn’t that just depression?” or “I thought that was depression”.
For one, a lot of chronically ill people (not just those with POTS) are depressed. Think about it:
How likely is it to be in perpetual pain, have no physical energy to even think, much less to do things, and NOT become depressed?
Being chronically ill is depressing, especially when you have no effective palliative treatment, or when you don’t even realize that you’re physically sick and start to think that you’re just a lazy and useless piece of dumb shit.
A lot of us get disregarded by doctors and told that we’re just depressed or anxious, prescribed an anti-depressant or anxiolytic, and sent home.
If you’ve been diagnosed with (only) depression and your anti-depressants don’t seem to work, PLEASE consider if the tiredness comes from depression (only) or if it’s physical. Also consider it if the things most people do to fight exhaustion at best don’t help you or at worst make it worse.
This is a video about chronic fatigue. To be clear, she talks about being diagnosed with Chronic Fatigue Syndrome/ME, but she recently found out that she has hEDS instead.
If you want to jump straight to where she describes what chronic fatigue is like, the difference between it and depression, as well as just being tired, go to 3:10 - 10:32.
Here a doctor describes the similarities and differences between depression and fatigue, though his specific focus is on patients with cancer:
Here's another much shorter video showing basic differences between tiredness and chronic fatigue:
And here’s another video talking about fatigue in general and some possible causes:
Chronic fatigue, like other chronic illness symptoms, isn’t NECESSARILY present non-stop for the rest of your life.
Some patients go through phases in which they feel better (especially if they’re under relatively effective treatment), and then relapse for a period of time. That’s what we call “flares”, which can be pretty unpredictable.
What IS absolutely perpetual is that it WILL come back eventually, even if it’s after months or years of having been fine. All it needs to be considered “chronic” is to be longer lasting (more than a couple of days) at least many of the times you get it, and recurrent throughout your life.
1K notes · View notes
shoutout to other autistic people whose chronic pain and/or fatigue makes it difficult to stim. it’s really frustrating when we can’t self-soothe or express ourselves due to disability & i feel for you <3
268 notes · View notes