#fibro pain

[spookietrex]

I got new compression gloves and ankle sleeves and I actually slept through the night for the first time in months.

My mobility aids now include:

- a purple foldable cane

-a blue walker with a glow in the dark dinosaur basket I made (2 wheels in front)

- a blue rollator (4 wheels)

- a blue wheelchair

Hell yeah! I can leave my house. I got a disability lawyer. My PCP confirmed she understands I can't work and is willing to help me get disability.

#things are looking up #mobility aid #actually spoonie #low spoons #spoonie #spoon theory #spoons #🥄 #disability humor #disability #disability advocacy #invisible disability #disabilities #disabled #actually disabled #physically disabled #physical disability #eds zebra #hypermobile ehlers danlos #pots syndrome #living with pots #fuck you pots #potsie #pots #fibromyalgia is a syndrome (set of signs/symptoms) and not a like. known disease process #and they can't explain why you actually feel that way because we don't know what fibromyalgia is mechanistically #fibro #fibro problems #fibro pain #fibromyalgia

[patchyourbrokenwings]

i know i'm safe but my body still refuses to believe it so i have to repeat it to myself non stop every single day to keep my sanity and also to keep my pain under control. it is sooo exhausting. i just wanna erase all the trauma and reboot my brain.

#trauma #fibro pain #chronic pain #abuse survivor #trauma brain

[raindropssys]

chronic pain vent sketch.

#chronic pain #fibromyalgia #fibro flare #fibro pain #fibromyalgia pain #joint pain #back pain #chronic pain vent #vent art #vent doodle #vent drawing #physical disability #physically disabled #disabled #disability vent

[stars-and-branches]

Fibromyalgia girlies how do yall cope with jaw/face pain

#i need advice because owwwww #jaw joint hurts and is radiating down to my teeth #up my cheekbone and into my eye #fibromyalgia #fibro #fibro pain #fibro flare #fibropain #spoonie #chronic pain #hypermobility syndrome #hypermobile #hypermobility #hms

[spookysalem13]

Right now I'm mad, I'm frustrated & I'm hurt. I was told by everyone I saw that Primary Care was where I would be able to get temporary help while I wait to get into the pain clinic. Legally my rheumatologist cannot help me with my pain in the manner in her professional opinion I be treated.

I was seen in the Emergency Room, they were able to help me for a six hour period but legally they aren't allowed to send me home with anything. Primary Care legally has the ability to provide me with the temporary treatment I need during the waiting process so idk I can literally get out of bed without crying!

My rheumatologist was kind enough to send my Primary Care my whole file, to send her the notes from our last recent visit and to give her professional recommendation that I be put on something for my pain.

I was seen in the ER, the doctor there also referred me to my Primary Care for temporary treatment during the wait. The doctor there said she'd be able to help me while I wait. I needed to contact her immediately to be put on proper treatment so I'd no longer have to suffer.

Only an hour before my appointment with my Primary Care I get a call from her office, saying due to personal beliefs and personal discomfort she has she won't be providing me the medical treatment I've been directed to her for by multiple professionals. And that she found my doctors efforts to help me by referring me to her as inappropriate!

So easy to say I got my hopes up my suffering would end today. Only to be called an hour prior to be told that my doctor is denying me the care that she was directed to provide for me.

This may happen a lot with doctors and patients in this country when it comes to pain medication. But here's the honest truth, it isn't legal! It's also unethical, inhumane and incredibly harmful to allow a patient to continue to suffer when you have the ability to provide the care they need legally with all the documentation, recommendations and necessary information needed to provide the care required. There are ZERO laws tying her hands to help me. And it's 100% patient neglect.

This may happen but I won't tolerate it. Sometimes doctors need to be reminded of the laws in the field in which they work. If a doctor is going to refuse care based off of personal beliefs and discomfort than they shouldn't be a doctor in the first place. As a doctor you do not get to pick and choose who walks through your door needing your help and get to decide if you want to treat them or not. That's not how it works. So either do your job or find a new career field because you're obviously an unfit care provider.

I of course filed a complaint with the Washington Medical Commission immediately, because I'm sick and tired of doctors not doing their jobs! What she did was illegal and I am taking necessary action that she be evaluated for what she's done. And necessary actions be taken. Because once again her actions were illegal.

#health update #life update #life upd8 #chronic pain #chronically ill #autoimmune diseases #rheumatoid arthritis #arthritis #fibromyalgia #fibro pain #sjogrens #hypermobile ehlers danlos #eds zebra #chronically suffering #i hate doctors #doctors are dumb #medical update #chronic fatigue #insomia #pain insomia #im in pain #chronic illness #chronically sick #connective tissue disorder #rare disease #autoimmune disease warrior #autoimmune conditions #im done with this bullshit #doctors suck #im mad rn

[fibro-memes]

#fibromyalgia #chronic pain #chronic fatigue #chronic illness #spoonie #fibro #chronically ill #invisible illness

[anxious-and-in-pain]

it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)

every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat

sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive

this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions

#chronically ill #chronic illness #chronic pain #fibromyalgia #spoonie #fibro #ibd #central sensitization #disabled #myposts #chronic fatigue #cat #disability #chronic fatigue syndrome #actually chronically ill #cfs #cfs/me #food mention

[kelliaellis]

My Name is Fibromyalgia

From Chronic Pain Life Facebook group MY NAME IS FIBROMYALGIA Hi. My Name is Fibromyalgia, and I’m an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I’m in a good mood, I can just cause you to ache all over. Remember when you and…

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#Anti-anxiety pills #Anxiety #Being exhausted #Chronic Pain #Community #Debilitating Fatigue #Depression #Doctor #Energy #Energy Pills #Exhaustion #Fatigue #Fibro #Fibro Pain #Fibromyalgia #Fibromyalgia Pain #Insomnia #Medication #Medications #ongoing crushing fatigue #Pain medication #pain pills #Persistent Fatigue #sleep #Sleep Disturbances #Sleep Issues #sleeping pills #Support #Understanding

[crippledpunks]

cane users don't have to use their cane for every single step in order to be valid in their need for a cane. cane users can suddenly stop using their cane while moving around and not invalidate their need for it next time they use it. some cane users may only use their canes during flare ups. some only need their cane every few steps for short bursts. everyone's needs are different.

every cane user deserves respect.

#chronic pain #cripple punk #cane user #disability culture #physically disabled #physical disability #disability activism #disability rights #disability #disability advocacy #cripple #crippled #fibroymalgia #fibro #actually hypermobile #hypermobile eds #hypermobilty syndrome #hypermobile joints #hypermobile #back pain #crip punk #cripplepunk #disabled #bad back #arthritis #our writing

[patchyourbrokenwings]

what i need most is for the pain to end but that won't happen so we just keep staring at the ceiling and dissociate 🫠

#it's pretty bad today #but that doesn't mean it's a bad day! #fibromyalgia #chronic pain #suffering #fibro pain

[raindropssys]

oof..

#osddid #did osdd #fibromyalgia #fibro pain #did system #osdd system #did community #osdd community #dissociative alters #dissociative system #raindrops.sys

[dizzy1ife]

Medical condition: gets worse without sleep

Medical condition: makes it harder to sleep

#fibro #fibromyalgia #im looking at you #chronic pain #chronic illness #chronically ill #spoonie #disability #disabled #physical disability #physically disabled

[accessories-not-included]

#disability advocacy #disabled people #wheelchair #ableism #disabilities #disability #cpunk #medical ableism #physically disabled #fibro #chronic illness #chronic disability #chronically ill #chronic pain

[hellyeahsickaf]

#chronic pain #chronic illness #disability #cfs #actually disabled #chronic fаtiguе ѕуndrоmе #fibromyalgia #spoonie #me/cfs #cfs/me #cpunk #cripplepunk #cripple punk #long covid #made this out of curiosity really. get curious about the community #i know it can be gray it is for me but whatever age you would consider yourself disabled? #like i developed fibro around age 13-14 but before that I had health problems #just idk if I'd say i had a disability before that?

[fibro-memes]

#fibromyalgia #chronic illness #chronic pain #chronic fatigue #spoonie #fibro #chronically ill #invisible illness #brain fog

[m0thmancore]

the thing that drives me crazy about fibromyalgia is trying to explain it to people. yes i am in pain all the time. no i didn't do anything to get hurt. no it will almost definitely never go away entirely. no i don't know what caused it.

"so you're just going to be on pills your whole life" if the pills keep working, yeah, probably! i don't like being in pain!

#disability #fibromyalgia #actually disabled #fibro problems #disabled #physical disability #fibro things #chronically ill #chronic pain #chronic illness #chronic fatigue