#fibro tag

[thesecretlifeofmecfs]

#chronic illness #spoonie #but you dont look sick #spoonie life #chronic illness life #fibromyalgia #fibro tag #fibrowarrior #mecfs #cfsme #myalgic encephalomyelitis #chronic fatigue syndrome #ehlers danlos awareness #ehlers danlos syndrome

[chamomile-coated-cat]

Attention anyone who uses forearm crutches

Do you hate sticking to your crutches during summer? Do you dislike the hospital gray?

I've been trying for MONTHS to find a pattern or someone who sells crutch covers, but I never found anything for forearm crutches (probably because I'm in the US) so I’ve decided to make my own pattern! And anyone can use it!

I'm sorry if it doesn't make any sense, this is my first time creating a sewing design.

These are the prototype that I've made so far.

Please let me know if you use this (and send pictures!) and if there's anything you think will make the design better.

Next up I'm working on padded covers for the part for your hands!

#actually disabled #pots syndrome #fibromyalgia #invisible disability #pots #fibro tag #forearm crutches #crutches #physically disabled #physical disability #sewing #sewing project #sewing patterns #crutch covers #cripple punk #cpunk #disabled #disabled community #chronically ill #chronic illness #disabilities #disabled life #spoonie #spoonie life #mobility aid #mobility aids #dysautomnia

[lesbianboyfriend]

common misconception about chronic headaches is that you get a lot of headaches when in reality i simply got one headache in the seventh grade and it never went away

#jules.txt #fibro tag

[memoir-of-stars]

Playing video games will do weird things to you.

Like, I am chronically ill and since I started playing God of War every time my symptoms flare up I hear Atreus voice inside my head going: 'You need to find a healthstone!'

#I am trying my son #I am trying 😔 #god of war #atreus #fibromyalgia #fibro tag #sabrina rambles

[tcmmykinard]

there's been like a massive temperature change with the weather where i'm at and my body hurts SO freaking bad and i've got like physical reactions with my skin too where it hurts SO bad to touch this is such hellll

#and i got home from work not that long ago where i had to walk a lot #so my body HURTS and i'm getting cranky bc of it #the idea of thinking i want to call out of work tomorrow bc of the weather changing hurting me is fucking ridiculous too #like @ my body get it together here i wanna be functional !!! #fibro tag #personal

[digitaldollsworld]

Another day where my whole body hurts 😔

#esp my neck and shoulders I feel like it’s trying to lock up again #rjb.net #fibro tag

[celestia-rambles]

*beats an ableist with my cane*

#:D #celestia rambles #chronically ill #fibromyalgia #cane user #ramblings #joint issues #chronic fatigue #fibro tag #chronic issues #chronic illness #fibrowarrior

[mikehawk111]

Question for other chronic illness blogs, do y’all get super weird asks? Like no I’m not giving you any sex tips thank u for assuming I’d be an authority on that tho.

#chronically ill #fibro flare #fibro fog #fibromyalgia #fibro tag #fibro things #fibrofighter #fibrosucks #fibrowarrior #chronic illness

[bebsi-cola]

being chronically ill is like going around with the minecraft ough. ough. ough. ough. pain sounds but never ending in daily life. i'm on fire but i am frantically eating uncooked beef to make up for it

#bebsi posting #disability #physically disabled #cripple punk #fibro tag

[librarianbabs]

having a flare up after a few weeks of being okay but then having it be really bad and also at work and so bad you want to cry but you have work to do but your body feels on fire and the brain fog is so real and the anxiety is high and yeah fun

#does anybody have tips on dealing with pain and shit at work?? pls advise nothing is working #it’s days like this I really wish I had a remote job #or lived in a country where disabilities were at least a little bit respected #anyways fuck my life #fibromyalgia #fibro tag #bee talks

[thesecretlifeofmecfs]

Welcome to my blog!

I've been living with ME/CFS for almost 11 years now. I have learned a lot from my journey, and I also have made it my mission to become a patient advocate so I can share my experiences and research to help other patients, their families & friends, and their medical professionals.

I've been wanting to start this blog for several years now, and after coming down with another very severe bout and becoming bedridden- I realized that now was as good of a time as ever.

ME/CFS stands for Myalgic Encephalomyelitis, previously known as Chronic Fatigue Syndrome. This illness is characterized by its trademark symptom of Post Exertional Malaise, or PEM, which is an inappropriate amount of fatigue following minimal activity. In as many as 25% of cases, this leaves patients bed or housebound (source: Mayo Clinic Proceedings). ME/CFS is considered a severe disability, with very few people living with this illness that are able to work.

Despite being such a disabling illness, ME/CFS is severely underresearched and most medical professionals are vastly undertrained, frequently leading to inappropriate or even harmful care for patients.

This is why it's so incredibly important to spread awareness, and become our own advocates.

I will be sharing research that I've done from a combination of credible, peer reviewed sources (such as medical journals, publishings from major hospitals, etc), patient stories, and my own experience. I will also be sharing journal entries into glimpses of my life with very severe ME/CFS as well as tips for others going through the same thing.

I believe that the information I share can also greatly help those with similar illnesses, such as fibromyalgia, POTS, EDS, and Long Covid.

Art by Sylvina Day, "Unmade Bed"

#mecfs #cfsme #cfs #myalgic encephalomyelitis #chronic fatigue #pots syndrome #fibromyalgia #fibrowarrior #fibro tag #fibrolife #ehlers danlos awareness #disability tag #spoonie life #journal #spoonie #chronic illness

[chamomile-coated-cat]

So to anyone with chronic pain just go mute or physically can't talk when they're in pain...

Like, legit, being able to talk one minute and then suddenly the chronic fatigue sets in and shuts you up, or being in so much pain that you can't stand and it takes everything to breathe so you can't even make sound, or pain just shooting through you and your brain can't process what words are?

We got a word for that?

I keep googling it and all I get is selective mutism (which it's not that), how pain changes personalities, and drugs... None of which answers my question.

Also... How y'all communicate when that happens? I've been thinking about getting communication cards but they don't exactly say what I need them to...

#actually disabled #disabled community #disability problems #disabled problems #pots syndrome #fibromyalgia #invisible disability #physical disability #pots #disabled #disabilties #fibro tag #disability pride #chronic fatigue syndrome #chronic pain #chronic illness #cfs

[lesbianboyfriend]

“always start your heating pad on the lowest setting” “don’t use your heating pad for more than 30 minutes” some of us have real problemsssss

#like please. 30 minutes on the lowest setting is nothing for me #jules.txt #fibro tag

[jelotinousblog]

Me all day: Oh no am I having a fibromyalgia flare come on again already, why do I feel awful today

7pm, brain zaps start: Ohhhhh I forgot to take my meds yesterday night huh

(Cymbalta has done wonders for my baseline pain and fatigue, but I get withdrawal symptoms within like 10 hours and brain zaps at like 22 hours past one missed dose 😭 this is why I don't expect to survive if the supply chain collapses, LOL)

#j tag #fibro vent #cymbalta #brain zaps 😡 #fibromyalgia #fibro tag #fibromyalgia life

[digitaldollsworld]

Ok ouch ow owie I don’t feel good at all my whole entire body hurts

#and I’m tired all the time!!!!!! #rjb.net #fibro tag

[tcmmykinard]

love how i'm used to sitting in this certain position all the time on my bed and it is actually super comfy and generally leaves no room for pain or anything but specifically today it's like super freaking painful and i can't move my arm very well bc now my whole upper body is stiff and very sore also!! like okay. why.

#personal #fibro tag #i know WHY but guh #i can feel the air pressure dropping i'm tired & on my period etc etc #and earlier i forgot to put my knee brace on and promptly bent my knee back #and ever since my body is trying to kill me i guess lksjf #tldr; i'm falling apart lmao