#fibrostrong | Explore Tumblr Posts and Blogs

justseveralowls · 2 years

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Reminder to my fellow spoonie/ disabled humans

-your mobility aids are not ruining you aesthetic

-your conditions do not make you a burden

-you are allowed to be angry

- you are allowed to grieve

- you are alllowed to seek joy

-you are allowed to make your life easier

-Your assistive devices are not weird or ugly they help you live and experience the world

-You are lovable

-you are valued

-Struggling or having flare ups is not a failure

- You dont need to explain yourself to anyone

- Your succeses are amazing even if they dont happen in the typical form or on a certain timeline

- You are allowed to take up space

- You dont have to be productive or inspiring

- You aren’t alone

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chronicsickness · 2 years

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I don’t think people understand the grieving you go through when you become chronically ill. The realization that you’ll never feel healthy again. That you’ll have this struggle and this pain for the rest of your life. That your body won’t ever be or feel the same that it used to. Sometimes I just sit and I cry and I grieve because I miss healthy me. I miss her so much.

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stars-and-branches · 1 year

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stargazerssociety · 7 months

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I’m scared. I’m scared that this is what life is going to be for me. Is this all there is? I’m happy, but.. I’m still in so much pain.

it’s a fight to get out of bed every morning. But not because I don’t want to. No, I want to. I’d give anything to feel the way a “normal” person does.

this knife carving into my chest, ripping sobs from my throat. These crippling cramps from head to toe. These are the components of my life.

I make my way through the week and slowly feel better, just to trash it all over again on Friday. Hours upon hours of standing, doing everything myself.

sometimes I wonder… is this all there is? Is this my life?

#chronic pain #chronic illness #anti endos #anti endo #endos dni #lgbtqia #disabled #fibrostrong #fibromyalgia #ehlers danlos syndrome #heds #hypermobile eds

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driftcity · 2 years

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Hello!

I'm long overdue for writing an intro post for this blog, so I figured I'd write one now!

As it says I'm my header, I'm Shane! A disabled trans man and member of a DID system. I have BPD, autism, fibromyalgia, detmatillomania, and have an autoimmune disorder.

I started this blog in 2022 to try and start focusing more on my mental health, enjoying life, and consuming more generally positive content.

My posts mainly consist of things I find uplifting or funny and poetry I've written to sort through my own thoughts (I always tag them with #poetry, feel free to take a look!). Occasionally I'll post or reblog something with a bit of venting, if you just want the positive stuff I try and make sure to always tag the darker stuff with #vent. My reblogs are mainly run on a mile long queue, but I always post my original writing directly after I finish it.

If you're here because of my poetry, then genuinely, thank you so much. I only ever started writing these poems to help myself find more constructive outlets, and the fact that my words have managed to resonate with anyone else means the world to me.

One final note to end this ramble- I am a horribly shy introvert but I love making new friends! If you want to talk or be friends or mutuals, feel free to send me an ask or DM! I enjoy meeting new people, I'm just a ball of anxiety sometimes, haha.

#DID #did positivity #plural community #inclusive plurality #BPD #actually borderline #bpd positivity #trans #ftm #trans positivity #fibromyalgia #fibrostrong #dermatillomania #bfrb #positivity #hopepunk #sorry for the mountain of tags hah #poet

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olawolasstuff · 1 year

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Be patient with us! 🤯🤯

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shesmorethanfibro · 2 years

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May 12th, National Fibromyalgia Awareness Day. 🦋⠀

I was 13 when my journey with fibromyalgia began. This year it will make it 8 years since. I remember hearing from doctors, “you’re young, you shouldn’t be in pain” well, that didn’t stop it from happening anyway right? Fibromyalgia affects more than 3 million people in the US alone per year. I was cheerleading with fibromyalgia. I was going to dances with fibromyalgia. I was going to school with fibromyalgia, going to the mall, laughing, smiling, all in pain and feeling so much every single day. And there are days where I can’t even get out of bed. Or I cry when i walk a little too much. Or i get a sharp pain that has me hunching over in the middle of a store. Or when my insomnia and my chronic fatigue are both bad at the same time and i hallucinate. Just because people with fibromyalgia smile, doesn’t mean that we are not in pain. That doesn’t mean that we don’t deserve to have a cure. ⠀

I had different ideas for this post. A little positive. But I don’t have that in me. Because I am just so mad at the world. I’ve been having a really hard time with this recently. Even after 8 years for me, acceptance is hard to find. Because we do not deserve this. I don’t want to be in pain anymore. I don’t want to feel exhausted all the time. I don’t want to also have insomnia. I don’t want to deal with the symptoms my body likes to randomly throw at me like fibro fog or sensitivity to weather, whatever weird shoulder arm thing my body has decided to hit me with, numbness, skin sensitivity, light, noise sensitivity, flares, and so much more. I want to be able to one day say that I used to have fibromyalgia. I know we all do.

From a monologue I wrote for one of my acting classes, “And I feel like I’m never gonna be truly okay, because I am going to always be waiting to wake up from that nightmare. And I never will. I don’t deserve you. You do not deserve me. You don’t deserve to take my dreams, and my hope, my days, my laughter, my happiness, my life. But if you want to there’s not much I can really do about it to either succumb and let you…or try to survive through you and in spite of you. But that doesn’t mean it doesn’t hurt. But with that being said, I just want you to know… I am here. I am here fighting to have and keep those things everyday in spite of you. Good days and bad. You may win the battles, but I will win the war, I promise you that. And I will never give you the satisfaction to say otherwise. You may beat me down, but you will not break me. Because that is what I deserve.”

I find it so hard to even see myself dealing with one more day with fibromyalgia. But I’ve made 8 years. And no matter how hard it gets, I can say that I’m surviving it. And that’s something fibro will never take from us. That we are survivors, we are WARRIORS. And by raising awareness, we can get actual helping medication, we can get a cure. Because we deserve that. So I’m asking you guys to stand up, and wear purple, share, like, comment, whatever because we with fibromyalgia and chronic illnesses do not deserve this. And maybe if we all raise awareness for it that we won’t have to deal with this forever. Cause I know for a fact us warriors are SO strong. But that doesn’t mean that strong people don’t get tired. So let’s all please raise awareness so that we can come up from this nightmare one day. Thank you. 💜

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artistevt · 7 months

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🌟 Sharing My Journey: Living with Fibromyalgia 🌟

👋 Hey there, lovely people!

Today, I want to share a part of my life that I haven't talked much about until now. It's a journey that began unexpectedly, one that I've been navigating with resilience and positivity.

Several years ago, I was involved in a car accident that left me with serious injuries. These injuries, while they've healed to some extent, have also left me with a condition known as fibromyalgia. It's something that has become a significant part of my daily life.

Fibromyalgia is a chronic pain disorder characterized by widespread pain, fatigue, and a variety of other symptoms. While it's been a challenging road, it's also been a path of growth and self-discovery. I've learned so much about strength, resilience, and the importance of self-care.

I want to reassure you all that I will continue to share the creative content I'm passionate about, from print on demand, graphic design, photography and art. Fibromyalgia is just one facet of my life, and it won't overshadow my love for creativity.

Thank you for being a part of my journey, and for your continued support, plus for allowing me to be vulnerable in sharing this with you.

If you have any questions or if you've had experiences with fibromyalgia, I'd love to hear from you in the comments. Let's continue to learn from each other and grow together.

#fibromyalgia #fibrolife #fibromyalgia awareness #chronic pain #life journey #positivity #fibrowarrior #invisible illness #fibrostrong #nevergiveup #self care #mental health #mental health matters #mental health awareness #painawareness

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studying-roxas · 2 years

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I'm not trying to be purposely obtuse when I say I don't understand how the split applies in disability communities between certain disabilities. Does my coordination disorder count as neurodivergent or physical? Both? My fainting disorder is a neurological disorder, so is it a physical disability or neurodivergence? Same for the tremors caused by my migraines.

And at what stage are you considered disabled? I have asthma that I'm on daily medication and have two emergency inhalers for, but that med regulates it well. I have a mild scoliosis that caused issues for my legs and hips that will lead to surgery in the future, but currently only causes very mild pain in my hips and knees that I don't find disabling - I throw voltarin on it and I'm good to go. I have a dairy allergy that causes joint pain and full body rashes. Dairy is also very difficult to avoid fully because things are often cross contaminated, so is the joint pain caused by that included? Is my Endo included since it requires surgery to remove?

The issue with having a bunch of disorders that are either rooted in neurological development or are so mild that you don't even care is that you end up not really knowing if you should be allowed to include yourself in certain communities or not.

#disabled problems #actually disabled #disability #disabilties #orthostatic intolerance #physical disability #neurological disability #neurodivergent #coordination disorder #dyspraxia #asthma #long covid #cfs/me #fibromyalgia #fibro problems #fibrostrong #dysautomnia #endometriosis

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another-suffering-artist · 3 years

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Do wanna know why us spoonie have trouble telling people we're sick?

Because we were raised by parents who were angry and who doubted us when we wanted to stay home from school cuz we were sick. We were surrounded by nurses and doctors who told us we were overdramatic or crying too much. We had elderly people tell us how happy we should be that we aren't in pain and should treasure our youth. We had family and teachers look down on us for spending any extended time in bed or on the couch. We had TV shows shame people who weren't healthy.

We live in a society where being ill is seen as being about how the person who is sick just isn't doing enough. Unless you have cancer, it's your fault somehow. You could eat better, exercise, or see better doctors. It is impossible for them to see illness as inevitable.

And it sucks that no one understands or sees what we go through. But society is broken and flawed and has no compassion for us poor spoonies.

#Spoonie life #invisible illness #chronic fatigue #spoonie life #chronic illness #chronically ill #cfs #Cancer #Pain #chronic pain #painmanagement #chronic illness awareness #spread awareness #fibromyalgia #fibrofighter #fibrostrong #fibro tag #fibroadenoma

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exovapor · 2 years

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Sharing because it's making me laugh 😂 because I have thought these same descriptors from time to time. It's just funny, weird to see them so blatantly listed out in a list this this.

Kudos to the author 👏 fight on fibro warriors

#fibrostrong #fibropain #fibromyalgia

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chronicsickness · 1 year

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the amount of medical gaslighting that happens to people with chronic illness is so disappointing. Every single chronically ill person that I know have experienced some form of it. I feel like there should be guidelines in place before people in the medical field are able to throw someone’s mental health, age, or appearance in their face. So many people get sicker or go undiagnosed and without treatment for so long because of this. It breaks my heart looking back at the way I used to have to beg for help and leave every appoint disappointed and in tears because no one would take me seriously. My heart goes out to anyone in the midst of that. Please don’t be afraid to let them know if you think they’re wrong, please don’t be afraid to advocate for yourself. I wish I did sooner. I waited 5 years to find a good team of doctors and a diagnosis. It takes most people 6-10. It shouldn’t be like this.

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purple-butterfly-and-sunflowers · 3 years

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Me: I'm feeling good today! :D I think I'll be productive and get shit done today!

My chronic illness:

Aw, that's cute sweetie 💕

#chronic health conditions #chronic pain #disability #chronic disease #chronic fatigue #chronic illness #spoonie memes #spoonie #spoonie life #spoonie problems #endometriosis #endo #endo warrior #endostrong #endowarrior #fibromyalgia #fibrostrong #fibrofighter #fibrowarrior

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stargazerssociety · 2 years

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Everything hurts

Flare ups suck

I hate my stupid body

This sucks

I can barely move-

#fibromyalgia #fibro flare #fibrostrong #ehlers danlos awareness #ehlers danlos type 3 #zebra strong #flare up #chronic pain #chronic illness

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fibrowarriorgirl · 3 years

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Had to share! Found this in 'Fibromyalgia memes' on facebook

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olawolasstuff · 2 years

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YOUNG PPL WITH FIBRO!!!! WE WOULD LOVE IT IF YOU JOINED THE CLUB!! The ages accepted are 13-21!!! Even if you are undiagnosed but suspect that what you have is Fibro, you are still welcome!!!

#fibromyalgia #fibro tag #fibrostrong #fibrosucks #fibrofighter #chronic pain #fibroawareness #undiagnosed chronic pain #disabled #invisible disability #invisible disease #invisible illness #chronic fatigue #insomnia #pain management #pain support #fibro flare #fibro fog #nerve pain

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