#fnd

[wxrmeaterz]

dont make people with tremors or tics or muscle spams feel uncomfortable

i shouldnt feel awkward sitting next to u on a sofa or being in the same room as u

i dont choose tics or when my tremors, etc flareup

dont look at me like im an alien.

#fnd #fnd awareness #tic disorder #tics and tourettes #disabled #disability #disabilties #crip punk #cripple punk

[love-me-love-my-weirdness]

Something that really sucks about being disabled is places say that they’re accessible but they aren’t.

I’ve been to places that claim to be accessible where

the ramp’s too steep

there are steps they didn’t mention because “it’s only two or three”

the doorways are too small

there aren’t any elevators to the top floor

the floor is too rough to easily push on

exhibits are displayed in ways that are impossible to see from a wheelchair

the doors don’t have a push button

tables/exhibits are put way too close together

the surrounding paths have no curbs

Without those things, it isn’t accessible. You can’t put a sloped piece of metal on your doorway and call that wheelchair friendly.

#actually disabled #fnd #cripplepunk #chronic fatigue #ableism #wheelchair user #ambulatory wheelchair user #accessibility

[justsomerandomgay]

EVERYBODY STOP WHAT YOURE DOING I HAVE THE BEST NEWS! I GOT A WHEELCHAIR!!!!!!!! I CAN LEAVE THE HOUSE ALONE AGAIN, I CAN BE SAFE AND INDEPENDENT AND HAPPY AND SEE MY FRIENDS AND HAVE A LIFE AGAIN!!!!!!

#wheelchair #wheelchairs #zoommmm #♿️ #🦽 #cpunk #cripple punk #queer cripple #cripple posting #disabled #diability #functional neurological disorder #fnd #joy #disabled joy #chronic illness #chronically ill #chronic pain #fibromyalgia #postural orthostatic tachycardia syndrome #potsawareness #potsie #pots #spoonie #spoons #physically disabled #physical disability #cripplepunk #crip punk #actually disabled

[dailydivergent]

Neurodivergent reminder: Overstimulation feels a lot like anxiety, and understimulation feels a lot like depression.

More importantly, you don't need to know which it is to practice self-care.

Self-caring anxiety and overstimulation looks the same:

Recognize you're feeling big feelings

Take as many deep breaths as your need to slow your mind

Identify what’s causing the feeling, whether sensory, environmental, or situational

Minimize that cause as much as possible immediately

Self-caring depression and understimulation looks the same:

Recognize you’re in need of stimulation

Turn on an interesting long-form video of some kind

Do some quick exercise like a walk or jumping jacks

Call a friend that'll let you infodump

If you're neurodivergent and easily get stuck on labelling things — I see you.

I'm here to remind you that you don't need to know what it is to take care of it in the meantime.

You can — will — figure it out later.

#neurodivergence tips #neurodiversity tips #neurodivergencies #neurodivergence #actually adhd #actually audhd #audhd #actually autistic #autism #neurodivergent #neurodiversity #neurodiverse stuff #actually neurodiverse #its the neurodivergency #dailydivergent #bipolar #cluster b #cluster c #avpd #ppd #avoidant personality disorder #cluster b pds #actually aspd #tourettes #tic disorder #actually tourettic #tics #fnd #nuerodivergent #bipolar disorder

[daddyducks]

Shoutout to people with Functional Neurological Disorder

Shoutout to people with functional tics

Shoutout to people who have dystonia

Shoutout to people with Psychogenic non-epileptic seizures

Shoutout to people with paralysis and or weakness

Shoutout to people with tremors

Shoutout to people who shut down/unresponsive episodes

Shoutout to people who have walking difficulties

Shoutout to people who have numbness

Shoutout to people who have speech problems

Shoutout to people with vision problems

Shoutout to people with hearing problems

Shoutout to people with memory loss

Shoutout to everyone with FND

#fnd #functional neurological disorder #fnd awareness #functional tics #pnes #psychogenic non epileptic seizures #tics mention #tics #paralysis

[this-smile-is-real]

11 months ago I was diagnosed with Functional Neurological Disorder and with Fibromyalgia earlier this year.I have also dealt with cPTSD and an eating disorder for the last 20 years.

I have been mostly bed bound for 12 months and have spent 6 months of this year in hospital. I cannot currently walk more than 20 metres without needing a wheelchair to mobilise. I have been unable to drive for the last 12 months due to continued non-epileptic seizures.

I am needing continued help to manage all of my medical bills, specialist appointments, medication, transport etc.

I am attaching a PayPal link if you feel at all inclined to donate to help me manage week to week as the pension I’m on doesn’t even cover basic expenses for each fortnight after rent and each of my medical team appointments.

I would be so grateful for any donations, reblog etc. Thank you in advance x

#fundraising #donations #donate #chronic illness #FND #functional neurological disorder #fibromyalgia #disability #disabled #actually disabled #mobility aid #spoonie #prayer request #prayer #Christian #faith #PayPal #raising money #reblog #help #help needed #medical expenses #medical bills #ed recovery #mental health #mental illness #recovery

[emberwitch7]

Trying to stay awake all day feels like medieval torture

#spoonie #cfs #chronic illness #chronic fatigue #ehlers danlos syndrome #cripple punk #dysautonomia #fnd #tic disorder #postural orthostatic tachycardia syndrome

[punisheddonjuan]

This has got to be one of the worst fucking papers I've read and I've read some fucking bad ones. It's just absolutely fucking criminal. There is zero fucking science here. The inclusion of Gulf War Syndrome here is especially egregious as we actually have definitive evidence proving that it was caused by Sarin gas exposure. Evidence which was published a full year before this pile of shit was excreted out of Alberta. Oh and the mitochondrial evidence is inconsistent across studies? That's because you psychiatrist fucks diluted the diagnostic criteria into meaninglessness, the evidence is actually remarkably consistent when more stringent diagnostic criteria are used.

It's truly breathtaking how none of these fucking FND/Functional Somatic Syndrome cranks actually have any fucking evidence and are unable to offer an explanation for the mechanism of action which would result in their claims. No, it's just an elaborate dance, it's paper after paper, each citing the last, constructing the appearance of scientific legitimacy, but there's nothing fucking there. When you drill down to the bottom, there is nothing but flawed presuppositions, openly misogynistic reasoning, Freud tainted logic and utter contempt for the sick. Oh and a great deal of institutional backing from neoliberal austerity regimes.

#disability #FND #ME/CFS #long covid

[thefundisorderdiary]

Please like this.

Not for any reason, I just want the serotonin.

#ask #spoonie #functional neurological disorder #putting the fun in functional neurological disorder #chronic illness #disability #disabled #fnd #chronically ill #funny

[valcaira]

I am... still not over the fact that one day I woke up with my right side suddenly paralyzed. Without any warning. It's been several weeks now without any improvement. I want to cry. I want to yell and scream. I'm scared. This is fucking terrifying! Who knows what'll happen next? The doctors didn't find an organic cause thus dismissed me so fuck me I guess!

Just like that! One half of my body! Gone! I still can't fucking cope with this. And everyone around me acts like it's not a big deal. Fucking hell.

#vent #cripplepunk #cripple punk #cpunk #paralysis #hemiplegia #paralyzed #actually paralyzed #fnd #functional neurological disorder #neurological disorder #neurological illness #neurological disability #actually disabled #physical disability #physically disabled

[tic-loud-tic-proud]

10 Tips for people with klazomania (screaming tics)

1, and this is one that has changed my life: if you have very frequent shouting/screaming tics, DO VOCAL WARMUPS! I used to consistently lose my voice at the end of every day before I started doing this. There are plenty of short and simple warmup tutorials online- find one that works for you!

2, if you live in an apartment building, make sure to tell your neighbors. You don't need to explicitly tell them you have TS, but make sure they know you make loud sounds frequently so they're not concerned. Putting a sign on your door also works. Remember: in the USA it is illegal for landlords to evict someone solely because of a disability.

3, if you're heading off to college and plan on living in a dormitory you might want to request not having a roommate. If you are already diagnosed with a tic disorder, it should be easy to do this through your college's disability services office. If you would like to have a roommate make sure they understand your tics.

4, if you are planning on going out (to a restaurant, theme park, museum, etc.) you might want to call the staff of the location to inform them you have tics a few days before. I usually call ahead to restaurants to let them know about my klazomania and coprolalia tics and I've found that doing so makes it easier for both parties.

5, going off of 4, if you're going to a theme park or large museum and plan to suppress at least part of the time, get a map and mark off secluded places where you can safely let your tics out.

6, if you'd like you can bring a stuffed animal out in public with you: both for emotional support and to muffle the sound of loud tics.

7, if you're a middle or high school student, email your teachers to let them know about your tics. If you have moderate/severe tics it was very important to me that I gave a presentation to each of my classes at the beginning of each semester to teach them about my TS. Another accommodation that I got in high school was being allowed to zoom into my classes instead of attending in person: So on bad tic days I would stay home, and my teachers would broadcast the class over zoom for me.

8, drink lots of water and purchase a humidifier if possible. At the end of a long day drinking fluid and being in a more humid environment will help to soothe your voice. Herbal tea with honey or mild broths can also help soothe your voice!

9, have a good network of friends who understand and support you. This is no easy feat and can take years but it will have a huge impact on your quality of life. Join a support group (IRL or online) to talk to other people with tics who understand what you're going through, and find people who share your hobbies and interests!

10, remember that your tics don't define who you are! It is not your fault that you have tics, and you are not doing them on purpose. Don't feel guilty for something you have no control over. You deserve to live a happy and fulfilling life just like anyone else!

#as usual if you have more tips please add them #tourettes #tourette syndrome #actuallytourettes #tourettic #tic disorder #tics #neurodivergent #tic tips #tourettes support #klazomania #screaming tics #disability #functional neurological disorder #fnd #pans/pandas #pans/pandas/bge

[love-me-love-my-weirdness]

Sometimes I don’t think people get that chronic means chronic. It means forever. I’m going to be stuck with this for the rest of my life and I’ve had to learn to make peace with that myself. Telling me ‘hope you get better soon’ and ‘it won’t always be like this’ is pointless because you’ve completely ignored the definition of chronic illness.

#fnd #chronically ill #chronic illness #chronic fatigue #functional neurological disorder #actually disabled #cripplepunk #physically disabled

[justsomerandomgay]

can we talk about how dehumanising it is when a doctor tells a patient to crawl through their house when they ask to get a wheelchair.

#crip punk #cripplepunk #crippunk #cripple life #cripple problems #queer cripple #cripple shit #angry cripple #cripple punk #cripple posting #chronic illness #chronically ill #chronic pain #functional neurological disorder #fnd #fibro problems #fibromyalgia #pots #postural orthostatic tachycardia syndrome #medical gaslighting #physically disabled #physical disability #disabled #disability #disabilties #wheelchair #wheelchairs #♿️ #🦽

[chronicallyillandcoping]

This may be a bad take, I dont know but, I wholeheartedly believe any doctor or medical professional that openly admit to not believing in certain invisible disabilities (cough* the rise in doctors on Twitter claiming FND is made up cough*) and especially those that openly mock patients exhibiting symptoms of said disorders should not be allowed to practice medicine.

#chronic fatigue #chronic pain #chronically ill #disabled #disability #actually disabled #chronic disability #spoonie problems #disabled community #invisableillness #fnd #medical gaslighting #medication

[crippledcryptidd]

My cane

#cpunk #cripple punk #disabled #physically disabled #neurological disorder #queer cripple #disability #neurological disability #tourettes #tourette syndrome #tics #migraine #fnd #epilepsy #asthma #cane user #mobility aid #mobility aids #disability aids

[koko-from-the-future]

The death of me isn't the death of us/AKA what not to say to your disabled friend

TDLR - Me being disabled doesn't disable you, and if you think it does THAT is what will be the death of us, not my body.

I'm so tired of telling my friends that I've dislocated a joint after they ask if I'm okay only for them to complain

OMG that's so gross

Does that mean we can't hang out?

I'm so tired of telling my friends that I'm vomiting acid only for them to complain

That sounds disgusting! Remind me never to ask around lunch time if you're okay

OMG I can practically feel it myself

I'm so tired of them asking over and over if it'll shorten my life span or be the thing that kills me.

I'm so tired of them asking if I've found a cure, or if yoga or meditation had helped.

I'm so tired of them acting like me being disabled is death.

I'm so tired of them acting like by association they have one foot in the grave.

#chronically ill #cripplepunk #disabled #disability #fnd #functional neurological disorder #elhers danlos syndrome #cpunk #acid reflux #G.I issues #ibs #spoonie