#functional movement disorder

[oriborealis250]

Going back to school caused an FND flare-up, and now I can't even use crutches because I'm so unsteady.

It's evidently made worse by school, but I can't just not go because I need the geography A level, so im now back to using an office chair to get around my house and my tourettes keeps making my throw myself out of it and its hard to get myself back onto it.

So now I have to go through the whole process of getting a prescription from my doctor for an active/custom wheelchair from the NHS because I'm in need of one anyway but its tge only way I'll be able to use it around the house

And because I have a year and a half left of school, that's going to mean the FND will likely stay the same level as it is now for a long time so my mum is talking about having to adapt the house so its accessible for me and- *screams into pillow* fucking hell why can't I just have stuff not go wrong all the time

#tourettes #actually tourettic #tics #fnd #functional dystonia #functional movement disorder #functional neurological disorder #fnd awareness #physical disability #actually disabled #disability #disabled #wheelchair user #ambulatory wheelchair user #wheelchair #wheelchairs #life gave me lemons #wtf do i do now

[fndandme]

Introduction to FND

Introduction: What is FND?

FND or functional neurological disorder, previously known as conversion disorder and sometimes called functional neurological symptom disorder (FNsD) is a type of somatic symptom disorder is a disorder in which there's a problem with the way the nervous system and how the brain sends and receives signals. There are many risk factors that can cause FND like physical/psychological causes that lead to a wide range of physical, sensory, and cognitive symptoms that have yet to be explained by a recognized neurological disease. FND is multifactorial, therefore has many factors that can contribute to the development of these symptoms. FND was a very misunderstood disorder but the symptoms are very real and have caused many impairments to many peoples lives. 

FND symptoms

  On the DSM-5, the symptoms of FND are:

Weakness or paralysis

Loss of balance or difficulty walking

Tremors or seizures

Vision problems, such as double vision or blindness

Hearing problems or deafness

Difficulty speaking or inability to speak

Difficulty swallowing

And to be diagnosed, one or more of these symptoms need to be present and have an effect on your body. If you experience any of these symptoms, I recommend you contact a neurologist.

Treatment

There is no medication that can treat FND and neither can it be cured, but cognitive and behavioral therapies can help manage FND. For children, symptoms can be resolved after months and may never return.

Anticonvulsants can help manage symptoms like myoclonus and tonic-clonic seizures.

Misdiagnosis

FND has been commonly mistaken for Epilepsy, Parkinson's disease, MS, and other diseases/disorders

#FND #fnd awareness #functional tics #tics #non epileptic seizures #FNDandMe #epilepsy #functional movement disorder #somatic symptom disorder #functional neurological disorder

[anxiously-avoiding]

Reminding my body that since my arms hurt, the problem can be solved by stimming with my feet. My brain has accepted this, but unfortunately it still doesn’t know how to communicate with my body so my hands are still flappy and everything hurts and all of this is because someone had to be so thorough when they made sure I understood effective communication that they forgot to make sure my brain could communicate effectively with my muscles and nerves.

#I still don’t know how to communicate with people effectively #but it’s funnier this way #fnd #fmd #functional neurological disorder #functional movement disorder #stimming #neurodivergent #everything hurts

[chronically-jinx]

every time I go into the doctor and they tell me about the 1 in 1 million chance reaction to a medication:

no, you don't understand dude. I am spiders georg. it will be happening specifically to me or my body will find a New and Fucked Up way to react to this medication that shouldn't even happen.

#chronically ill moment #mcas #fmd #functional movement disorder #invisible disability #mast cell activation syndrome #got that good good #(anxiety) #invisableillness #chronically ill memes

[joysofbraindamage]

Sad Perfect: Novel

NOTE: I do not have ARFID. 

I found this book at a library after reading about ARFID for a class. My take on this book just as basic disability representation. This book is not about the disabled character. This is a mother venting her own ableist ideas. The mother cannot face that she has a disabled child. The mother writes off physical problems and natural reactions as a mental health disorder. I felt Pea had a physical disability i.e unable to taste and feel her mouth and is physically hyper sensitive to texture, similar to sensory integration disorder, that became severe depression because she was conditioned by those around her to see her eating as a huge social barrier, when it appeared to me as a reader it is a physical disability that can be accommodated through work arounds and supplements for nutrition. It felt like when I hear actual physical disabilities like Lyme, lupus and CFS written off as “functional movement disorder”. The other characters are perfect or boring. Real people have ARFID and FND and both are disabilities but this writer needs therapy herself and to let her daughter breathe and exist as a disabled person in the world. The mother’s character in the book seems ableist, and addicted to drinking.  

#ARFID #Functional movement disorder #chronic fatigue #Lyme Disease

[simpingandprocrastinating]

Honestly, it's not like me to write and post something so personal, but I'm lost and incredibly tired.

Five years ago I suddenly got arm and leg weaknesses, followed by sudden, brief involuntary twitching or jerking and tremors. Let's say, it was- and still is pretty traumatising...

A year ago I was diagnosed with FND, also known as Functional Movement Disorder. I've had multiple treatments (Psychologist, Physiotherapy, Hospital), but nothing seems to work. I suppress most attacks with medicine. But, that doesn't change the fact that it affects me, my work and personal life. It's depressing honestly.

Maybe, there's someone out here with the same experiences, willing to help and share how they cope with FND. Please, if someone knows something, let me know.

#FND #functional movement disorder #Coping #Bini asks

[crippleprophet]

do you have any thoughts on functional neurological disorder?

it’s one of the cruelest inventions of modern medicine.

for a bit of context on my positionality i don’t currently have an fnd diagnosis but i am at huge risk of one (my rheumatologist already thinks i have a conversion disorder) & it’s one of the many reasons i’m terrified to pursue a second neurologist after my first one dumped me. fnd is, like, maybe not the pinnacle but definitely a major player in the field of doctors gaslighting us as hard as possible & being furious every time it doesn’t work.

i’m not gonna find these articles bc it gets to a point of self harm for me to (re)read some of this shit but literally doctors are like “the more convinced patients are there’s something wrong the more they’re lying,” “the more symptoms patients have the more likely it is to be fnd and not something really wrong,” etc. again just unfathomably cruel. also the fact that mainstream medicine can unironically write that people with hypermobility are “more likely to have fnd” rather than going huh maybe there’s a neurological component here is just. what the fuck are y’all doing.

a really fun (fucked up) “i told you so” moment with the social construction of the ‘real vs fake’ tics false binary was when doctors literally can’t tell the difference based on their own bullshit criteria.

i highly recommend checking out @fndportal for incredibly insightful thoughts on a lot of these issues. sociological research on post-hysteria diagnoses & the genealogy of hysteria has also been super helpful for me although it’s obviously a very difficult history.

on a peer support level i think disability community is especially vital in the face of these kinds of psychological warfare from doctors. & to anybody who’s been diagnosed with fnd or similar conditions: i believe you. something is really wrong, it is not your fault (& it would be okay, & you’d still deserve effective compassionate care, if it was), you’re not making it up.

obviously i personally want to destroy the whole thing from the ground up, but if i could change one thing about the medical field, it’d be that it needs, desperately & urgently, to create space for not knowing. to say “something is happening here but science hasn’t caught up with it yet.” …unfortunately, to do so would be to destroy medicine from the ground up, because the whole project is predicated on the manufactured authority of knowing our bodies wholly & irrevocably, of rendering our own knowledge irrelevant at best & lies at worst.

also imo cbt, especially for a physical symptom, is evil & in situations where people can ghost their doctors rather than go i wholeheartedly support that.

#fnd #functional neurological disorder #movements of the uncontrollable body #asks #doctor hate blog ✌️🖤 #medical gaslighting #post hysteria diagnoses

[beaniebeby]

tiktok is just....so good at priming people for cults...pls see this

#like...i was a little bit in one #notice i said PRIMING #its just how the app actually works...endless scrolling of videos based on micro movements of your fingers #and cults are not the only thing people are primed for....obvi!!!! #disorders....addictions....the actual function of the app is like perfect for planting the seeds of Insert Bad Thing Here #shopping addiction and eating disorders are probably most prevalent #Im Saying this as a person who is prone to all of these things !!!!!!!!!!!! #you are not immune to propaganda!!!!!!'!!!!!!!!!!!!! #yes i just watched shanespears new vid

[dissociacrip]

anyway um. shoutout to disabled people who move their bodies in ways that are considered "wrong" or "abnormal" regardless of the cause or how it's classified. and this isn't limited to just ambulation.

paralysis. dystonia. gait abnormalities. people with muscle weakness and/or atrophy. people with brain damage. rotational differences. clubfoot. knocked knees. other limb and bodily differences. functional deformities that affect movement. tissue contracture. muscular dystrophies. spasticity. impaired proprioception, balance, and/or coordination. chronic pain. spinal disorders. dyspraxia/DCD. apraxia. ataxia. dystaxia. tourette's syndrome and other tic disorders. conversion symptoms. tremors. neurodegenerative disease. degenerative bone diseases. joint instability. myoclonus. parkinsonism. tardive dyskenisia. various other neurological problems.

...and the list goes on.

personally i feel a bit surreal when my body not doesn't always move in the ways i want it to because that straightforward connection that's there for abled people has been disrupted in a myriad of ways. but no one is gross, ugly, or scary for being unable to move their body in ways that society considers "normal" and "healthy." no one deserves to be gawked/stared at or treated like they're subhuman because of the way their body moves.

it's okay for us to exist.

#cripple punk #cripplepunk #cpunk #neurodivergence #disabled positivity #j #idk a better term for 'functional deformity' bc afaik deformity is a term w/ negative associations #affirmations

[oriborealis250]

So it's been about 2 weeks since I got out of the hospital, heres an update in case anyone was wondering what happened.

So it turns out that it was not the tourettes causing the falling (though it was part of the reason). My brain basically rewired itself because of the stress that both the exam, the tourettes flare up, and background stress. I've been diagnosed with functional neurological disorder (FND).

I can only walk using crutches, and even that is difficult sometimes, I use a wheelchair when I'm not at home as long distances on crutches are painful on my wrists.

The FND causes drop attacks and functional dystonia where my limbs seize and lock in place.

My school is overall dismissive of what they did to cause this, but have at least agreed to let me drop criminology as a subject as it has three more 8 hour exams left.

So overall my life is going to shit and all because of one fucking exam. This is why accommodations are important because now that I have this disorder, there is a chance that it will stay with me for years.

#tourettes #actually tourettic #tics #fnd #functional neurological disorder #fnd awareness #functional movement disorder #functional dystonia #ableism #disability #physical disability #ambulatory wheelchair user #wheelchair user #wheelchair #crutches #mobility aid #mobility aid user

[bathask]

すりガラスに映る車の往来の影いつも凝視の幼い頃を思い出す。大人の発達障害アスペルガー/自閉スペクトラム症での就労継続支援B型事業所の型板ガラスに映る国道の自動車往来は時折,太陽光反射で光る。ASD自閉症スペクトラム障害DSM-5診断基準B項目のRRB,光または動きを見ることに熱中。感覚刺激で過興奮性過覚醒しタイムスリップ。

#toyeye #autism spectrum disorder #high functioning autism #dsm 5 #restricted and repetitive behavior #obsessed with lights #fascination with lights #watch the movement #car traffic #figured glass #social welfare workshop #continuous employment support

[anxiously-avoiding]

Photographer’s-kid-with-a-movement-disorder culture is “Wait a second, why am I the one holding the expensive stuff??”

#answer: #It’s insured #fmd #fnd #functional movement disorder #functional neurological disorder #fnd culture is #fmd culture is #Wait are those blogs still a thing? #🤷

[kunaigirl]

Happy Disability Pride and awareness month! Let's talk about Epilepsy!

Hi there! I got tired of seeing my condition (that impacts my literal every day life) being left out or forgotten about during discussions about disabilities, so I made my own post about it! Let's go!

First Off! What the heck is epilepsy? Epilepsy is the fourth most common neurological disorder in the world, and it's a chronic medical condition. Epilepsy is a brain disorder that causes recurring, frequent, triggered, and unprovoked seizures to occur.

The official Epilepsy Foundation describes seizures as follows: "Seizures are sudden surges of abnormal and excessive electrical activity in your brain, and can affect how you appear or act. Where and how the seizure presents itself can have profound effects...Seizures involve sudden, temporary, bursts of electrical activity in the brain that change or disrupt the way messages are sent between brain cells. These electrical bursts can cause involuntary changes in body movement or function, sensation, behavior or awareness." (Source link)

Sounds like a lot of fun right? This is our life. Even with medication, we can be VERY limited to what can be safe for us. Seizure medications are NOT a cure, they only exist (at least as of now) as a tool to help have your seizures less often, or be triggered less intensely. Even on medication, seizures can still happen.

If you have epilepsy as a child like I did, it impacts your entire growing and developing experience. I spent MANY times as a child in and out of hospitals, neurologist and specialist offices, an getting so many EEG tests done. The pain of scrubbing the glue out of your hair for DAYS is horrible.

At a young age my seizures were so frequent and serious, it impacted my brain's ability to retain information. I had to re-learn the names of things at age 8 and 9. I had to re-learn HOW TO READ at age 10. I had to be home schooled because the public school system of my state at the time refused to work with me. I have VERY distinct and vivid memories of crying over my little baby ABC's book that I needed as a 4th and 5th grader. I knew I should've known this by this age. I knew that at one point I already did, and it was TAKEN FROM ME.

As an adult, I'M NOT ALLOWED TO DRIVE A CAR. And I can NEVER go to see a movie in theaters or go to see concerts or live music. There are entire TV shows I don't get to see. I can't go to clubs, arcades, dances, or raves. I miss out on A LOT of fun things. I always do, and I'm WELL AWARE of the fun I'm missing out on. The social, casual, and fun life experiences I'll never get to have. That WE'LL never get to have. And oh yeah! Seizures can KILL SOME OF US. Yep.

And the list goes on, and every person with epilepsy experiences it differently. There are multiple different types of seizures you can have, they're NOT always convulsing on the floor. For example, I have complex-partial-myoclonic-seizures. Meaning my muscles DO twitch when I have seizures, but I'm not always completely unconscious and sometimes I'm even able to stay sitting up. However, I'm still very "off" and can't focus or remember much for a good while after the fact. I can't talk or communicate during one, even with my slight bit of consciousness.

My experiences are not universal, I just wanted to talk about it and bring it up. It helps to talk about it even a little bit. Here's more about different kinds of seizures. Here's more about common seizure triggers. Here's more about CORRECT seizure first aid. And here's more general information/resources.

Please stop leaving us out of disability awareness. Please stop ignoring us or saying we're "not really disabled" or anything else like that. Please. Why does it always feel like the only people who care about epilepsy, are people WITH epilepsy? We're so tired of being ignored by others who don't have our condition.

If you're an epileptic person reading this, I see you. I love you. You're so strong, we all are. I believe in you, I believe in us. We're so much stronger than we get credit for, and it's going to be ok. Your anger and frustration are valid. Your emotions and struggles are real. You're valid, and I see you. Hang in there, we got this.

#epilepsy #epilepsy awareness #actually epileptic #disability pride month #disability awareness month #disability awareness #ok to reblog #disability pride

[joysofbraindamage]

Some people have FND and many are misdiagnosed with FND.

#lyme disease #disability #neurological #neurology #functional neurologic disorder #functional movement disorder

[4theitgirls]

benefits of exercise that are not weight loss

* there are so many reasons to implement movement into your daily life that have nothing to do with changing your appearance, and it’s good to have non-aesthetic reasons to stay active, so here are some 🫶🏼

the physical

reduces the risk of cardiovascular complications and improves circulation

increases lung functioning

reduces the risk of many chronic diseases

improves strength and flexibility in muscles

prevents the loss of bone density that comes with age

improves bodily coordination

can reduce the risk of certain cancers

improves sleep quality

boosts the immune system

improves posture

aids digestion

increases the body’s resilience and decreases the risk of injury

prevents the joint and mobility problems that come with age/ultimately improves quality of life

increases production of many helpful hormones (e.g., collagen and growth hormone) and reduces stress hormones

* strengthening the muscles and joints can also reduce body pain

the mental

reduces general stress levels and anxiety

helps boost mood

improves memory and reduces the effect of the cognitive impairment that comes with age

grounds and quiets the mind

allows you to connect more with your body

boosts focus and supports the brain for productivity

decreases the risk of cognitive disorders such as alzheimer’s

#girlblog #girlblogger #girlblogging #that girl #dream girl #it girl #self care #self love #glow up #becoming that girl #self development #self improvement #self help #workout #working out #workouts #exercise #movement #wellness #health #health and lifestyle #health blog #girly blog #pink blog #pink pilates princess #pink pilates princess aesthetic #pink pilates girl #pilates aesthetic #green juice girl #healing

[e-november]

Hypervigilance is a common symptom of many mental health disorders and social conditions. It is a physiological response of constant alertness to the threats around you and from yourself. I've had a hard time coping with this symptom in general, as it would warp all my relationships, all my perceptions of myself, others and the world. On top of all of this, I felt it was providing me safety from the actual threats I've experienced and feared experiencing; I couldn't be further from the truth. Here are a few ways you can experience hypervigilance:

You might have phobic reflexes. Every unexpected or unpredictable sensory information is perceived as a threat (a sigh, loud walking, cars or people behind you, quick movements from others, etc.). You may jump, or be extremely started and irritable. Other times, you may have extreme emotional reactions or intense dissociation. Phobic reflexes are generally responses to sensory triggers.

Your body may rarely feel relaxed. A lot of stiffness, pain and discomfort can come from keeping your body at a high stress level. At long-term, you may end up developing chronic illnesses as your body is overwhelmed with the constant arousal of fight/flight/freeze/fawn responses.

You struggle doing any task that requires your full attention or a lack of alertness to your surroundings (paperwork, sleeping, reading, etc.). Your ability to function cognitively may be affected by hypervigilance as a whole, which means you'll experience cognitive rigidity, processing disinhibition and other executive dysfunctions. (Note: these are generally partially reversible when recovering from PTSD, GAD, OCD or other disorders with hypervigilant patterns or when you are no longer in a social context which requires this level of conscience of your surroundings).

You may overanalyze what people say or what you think in order to avoid any threat. The latter is particularly common in people with OCD or with trauma around philosophical concepts. You may perceive yourself as one step away from losing control, and may expect others to lose control as well. Generally, the feeling of loss of control resides in hypervigilance itself than actually acting against your values.

You may use escapism a lot, and develop addictions, behavioral or not. This reduces the sense of being constantly threatened temporarily, but increases the hypervigilance on the long-term and worsens the issue. These are a few of the signs you experience hypervigilance as a core coping mechanism ruling your reactions to your current social context as well as the disorders you might deal with. Trauma is the common denominator of this mechanism, although PTSD and C-PTSD isn't implied by default. Since hypervigilance is your body being in constant alertness, in order to reduce it, you must reduce the physiological stress then work on the mental components of hypervigilance at the same time. I will update this blog later with a few ways you could reduce hypervigilance.

#actuallydid #did osdd #did system #ptsd #complex ptsd #actually ocd #ocd #schizophrenia #mental health #psychology