It happened at 8:50 am yesterday morning on my way home from the grocery store.
Before going to the grocery store, I was at work and the store was on the way home. I live in Kansas, it was basically a blizzard and -5 degrees F outside.
I was raised in South Dakota, Minnesota, and Wyoming so just another Thursday for me.
A lot of accidents all over the city I live in because people in Kansas try to be “nice” by stopping all traffic to let people out into traffic or they legit want to do 60 on snow and ice.
Gotta love it when your Jeep is a furnace inside so your windshield cracks!
Whenever I talk about the medical neglect and ableism I've encountered as a victim of the healthcare system, there's always some cockwaffle who feels entitled to come into my inbox and make the argument of "not all doctors" while talking about how "people like them" (because it's always someone in a field of medicine who does this) are doing their best and it's really hard because so many people fake being ill to get on welfare (Yikes), but like, yeah, obviously #not all doctors, because if all doctors were negligent, bullying scum bags, I'd be dead.
But here's the thing: while I truly believe that the majority of doctors are doing their best in a system stacked against them and their patients, their presence does not negate the mass harm caused by the bad ones. And there are far more bad ones than you realize.
Fuck, John Oliver literally did a segment on this last week:
youtube
Yes, the truly bad, malicious doctors are in the minority. Most are just horrifically burned out and fighting a losing battle against a system, killing both them and their patients through a lack of funding and resources and profound overwork.
But the malicious ones do exist, and they will go out of their way to harm patients who don't kowtow to them.
I almost lost my life because when I was in my early twenties, I told a doctor I didn't think she was listening to me, and I disagreed with her assessment of my mental health (she was not a mental health doctor, and I was there for heart palpitations and chronic pain). She retaliated by putting "non-compliant" in my file.
There was also a fun little "doesn't show respect" note too that lives rent-free in my head because I know I wasn't rude. I was polite. I just didn't agree with her, and my refusal to accept her off-handed comment that "you probably have bipolar or BPD" (again, I was there for heart palpitations and chronic pain) meant I was "refusing care."
I wasn't. I just refused to be slapped with a mood/personality disorder when I was there because I kept fucking fainting when I stood up.
(Spoiler alert: it was dysautonomia)
That "non-compliant" marker followed me around for years. It followed me across an ocean and effectively ensured that any doctor I saw was going to treat me like absolute dogshit because no one wants to help Difficult Patients. It wasn't until I was so undeniably ill, literally on the brink of death, that anyone helped me.
I'm alive because of a good doctor. And all the good ones that came after him because of him.
So, I know they exist. You don't have to tell me that.
But I really fucking need you to acknowledge the bad ones and that you're part of a system with a long, long history of abusing minorities and vulnerable people. I need you to acknowledge that because it's the only way we're going to survive this godforsaken nightmare and make things better.
So yeah, #notalldoctors, but if you feel the need to say that because someone talking about being literally left to die by the medical system hurts your feelings, I'm going to have to ask you to take a step back and ask yourself if you're going into medicine for the right reasons.
Namely: do you want to help people, even the "difficult" ones?
Even the ones who might disagree with you?
Even if they're on welfare?
Even if they'll never get "better" in a way that means "cured"?
Just a thought. But hey, what do I know. I'm just someone who experienced hemolytic anemia because doctors kept telling me I was anxious and needed to exercise more 🤷♀️.
"We are prepared to do whatever it takes, even get arrested in an act of civil disobedience, to stand up for our patients," said one Kaiser Permanente worker.
Dozens of healthcare workers were arrested in Los Angeles on Monday after sitting in the street outside of a Kaiser Permanente facility to demand that providers address dangerously low staffing levels at hospitals in California and across the country.
The civil disobedience came as the workers prepared for what could be the largest healthcare strike in U.S. history. Late last month, 85,000 Kaiser Permanente employees represented by the Coalition of Kaiser Permanente Unions began voting on whether to authorize a strike over the nonprofit hospital system's alleged unfair labor practices during ongoing contract negotiations.
The current contract expires on September 30.
"We are burnt out, stretched thin, and fed up after years of the pandemic and chronic short staffing," Datosha Williams, a service representative at Kaiser Permanente South Bay, said Monday. "Healthcare providers are failing workers and patients, and we are at crisis levels in our hospitals and medical centers."
"Our employers take in billions of dollars in profits, yet they refuse to safely staff their facilities or pay many of their workers a living wage," Williams added. "We are prepared to do whatever it takes, even get arrested in an act of civil disobedience, to stand up for our patients."
Kaiser Permanente reported nearly $3.3 billion in net income during the first half of 2023. In 2021, Kaiser CEO Greg Adams brought in more than $16 million in total compensation.
According to the Coalition of Kaiser Permanente Unions, the hospital system "has investments of $113 billion in the U.S. and abroad, including in fossil fuels, casinos, for-profit prisons, alcohol companies, military weapons, and more."
Healthcare workers, meanwhile, say they're being overworked and underpaid, and many are struggling to make ends meet amid high costs of living.
"We have healthcare employees leaving left and right, and we have corporate greed that is trying to pretend that this staffing shortage is not real," Jessica Cruz, a nurse at Kaiser Permanente Los Angeles Medical Center, toldLAist.
"We are risking arrest, and the reason why we're doing it is that we need everyone to know that this crisis is real," said Cruz, who was among the 25 workers arrested during the Labor Day protest.
A recent survey of tens of thousands of healthcare workers across California found that 83% reported understaffing in their departments, and 65% said they have witnessed or heard of care being delayed or denied due to staff shortages.
Additionally, more than 40% of the workers surveyed said they feel pressured to neglect safety protocols and skip breaks or meals due to short staffing.
"It's heartbreaking to see our patients suffer from long wait times for the care they need, all because Kaiser won't put patient and worker safety first," Paula Coleman, a clinical laboratory assistant at Kaiser Permanente in Englewood, Colorado, said in a statement late last month. "We will have no choice but to vote to strike if Kaiser won't bargain in good faith and let us give patients the quality care they deserve."
A local NBC affiliate reported Monday that 99% of Colorado Kaiser employees represented by SEIU Local 105 have voted to authorize a strike.
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This is a more normal post. Just wanted to say how proud I am of myself for getting into shape. A year and a half ago I was 180lbs and 5ft tall. Now I am 112 and 5ft tall. Also I put this outfit together because my gf likes me to dress more dykish sometimes. Enjoy 😊
I saw a post about someones plans for after the revolution, and I’m begging leftist to get serious for 5 minutes.
Y’all talk about and predict a revolution with the same reliability and trustworthiness as evangelicals talk about armageddon.
US Leftist can’t keep their shit together enough to wear masks and to help poor people get masks because they are expensive. But sure a revolution is going to happen any day now.
In the US many disabled people like myself are now homebound because we can’t safely go outside. Abled leftist admittedly refuse to do anything to change that. They are to busy posting quotes from long dead white men, about ideas those dead white men stole from indigenous peoples.
If US leftist can’t cope with something like covid, how the fuck do you expect to pull off a revolution?
So I had to have a special swallow study done for my bariatric surgeon. It was no walk in the park.
I live 2 hours from the hospital it was going to be done at. So I made the appointment and was told to be at the hospital for an 8am appointment. I was supposed to be mailed paperwork but they didn’t do that.
I drive 2 hours 1 way to be told my appointment was at 11:30 so I had to wait. Not happy, but fine! I was going to at least get my info so I could look at my chart. So I got all the info to do that.
I look in my chart to find the labs I did 2 months ago were low. It was my iron. I have a medical history of a rare bleeding disorder that pairs with anemia. It’s called immune thrombocytopenia purpura aka ITP.
I had a hysterectomy and I’m 37. There is not explainable reason as to why I have low iron other than something is going on that we don’t know about causing this.
I had my swallow study done. Everything was normal.
The bariatric surgeon didn’t think it was a big deal and the surgeon’s nurse lied about what she communicated to me in my chart.
Every call or email is saying I had a call or email with the surgeon. I didn’t talk or email the surgeon. I called or talked to a receptionist or nurse. I have only talked to the surgeon once. The hospital did that to bill my insurance more.
So I told the “bariatric coordinator “ what happened. She disregarded me entirely and was acting like I was the problem so I hung up on her and emailed the bariatric nurse to tell her I was firing them.
Then I filed a grievance with the medical facility explaining everything that happened. They called me back and they want me to report it to the hospital campus, which I am going to do here in a moment.
The bariatric nurse emailed me back and tried to say she didn’t falsify anything even though she did. She also tried to say she didn’t call but emailed it to me, which I didn’t ever get an email over my iron levels.
And now I am upset with the bariatric surgeon because she wasn’t taking my health issues seriously.
If my iron gets any lower I will be in serious trouble, we’re talking being admitted, (I don’t get to be in med/surge, I am a direct admit to ICU), and transfusions. I currently can’t have surgery at all because I have a high risk of complications just from my low iron levels alone.
I got my “Dream Team” of doctors on it though. I have my PCP (internal medicine), Endocrinologist, Gastroenterologist, and my Immunologist looking into it.
My Immunologist will figure it out in like 2 minutes. He is crazy super smart and has worked at a transplant hospital before starting his own practice. My labs indicate low iron due to chronic illness (from my research) meaning my iron needs to be monitored closely for the rest of my life. I see all my “Dream Team” doctors in the next 2 weeks.
Why am I posting this;
CALL OUT THOSE WHO WRONG YOU, ESPECIALLY THOSE WHO HAVE YOUR LIFE IN THEIR HANDS.
As health care professionals, we are human. We are not gods. We are not above you. Every life is worth caring for and supporting. Every life matters. Patients are not pay checks and to treat them as such is beyond despicable and unforgivable.
I am a very aggressive health care professional because I treat my patients like family so if someone tries to give my patients or their families (I’m specialized in pediatric high acuity more specialized in rare illnesses) a hard time, I will have it out with them.
As a patient I am very aggressive to get on top of things and to be compliant because at the end of the day, how can my patients and their families trust me if I don’t practice what I preach?
Doctor Beverly Crusher
@SpaceDocMom
I believe your lived experience over what I read in a textbook at the Academy decades ago, and while I may use that textbook for reference in treating you, your information and consent are the most important factors. emojis: black heart, blue heart, masked
3:53 PM · Jan 17, 2024
Hey babes, sorry I've been dead, but I coulda been literally dead if I had not gone.
I didn't hurt myself and we're still figuring things out. I would love to share but I've already forgotten what I've learned. I hope I get more guidance and time for healing and learning on how to lead my life in a better direction than where I was. But that takes time and effort.
I hope to get some rest, get some support, and get it together. But right now, I don't think it's healthy for me to worry about art in the way I do now. I may not express it here, but trying to maintain my art endeavors/projects while there's so much bullshit going on backstage is not helping me. Especially since I'm not even obligated to do so. But trying to force myself to do something I am currently unable to do will just make me feel worse. I'll follow my dreams and passions one day, but I've been putting off the healing process for years.
So I guess it's better to get better now so I can get the ball rolling again. Why drive on a flat tire?
🔥 Dr. Peter McCullough Urges Immediate Removal of All COVID Vaccines and to Cut Ties With the WHO
"The COVID-19 vaccines and all of their progeny and future boosters are not safe for human use," attested Dr. McCullough.
"It's my belief that the European Union, the United States, and all major stakeholders should actually completely pull out of the WHO and leave the WHO to its own endeavors — not to have any jurisprudence, any dominion over what we do in healthcare."