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riddledem0n · 11 months

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Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

#fibromyalgia #fibromyalgia awareness #chronic illness #chronic pain #disabled #disability #disabled artist #chronic fatigue #chronic fatigue syndrome #hidden disability #invisible disability #spoonie #chronic migraine #migraines #artist

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myalgicencephalomyelitiscfstom · 1 year

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#invisible disabilities #invisible disability #hiddendisability #hidden disability #hidden disabilities

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turns-out-its-adhd · 7 months

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Holding eggs

One of the things I encounter a lot while trying to communicate my struggles with ADHD to those who don't experience it is the ever present "Oh, everyone is a bit like that" and yes, everyone can be late, messy, forgetful, disorganised etc. and struggle with the same things. But the extent to which it impacts my life is many degrees greater.

I can't express succinctly how tiring and frustrating these often well-meaning but misguided comments can be. So please bear with me for an incoming overly complicated analogy.

How many eggs do you think most people could comfortably carry in one hand? One or two at least? They conventionally come packages of six, so as a society we've probably accepted that six is too many.

How many do you think you could probably carry but it might be tricky? For the sake of this analogy let's go with four eggs.

For most people, carrying four eggs in one hand would probably be at least a bit stressful. Just a bit too much of a handful of breakable and potentially messy items. But you might manage, most of the time, to carry four eggs in one hand. Sometimes you might drop one and end up with three eggs.

‘Oft, there goes an egg! I've made such a mess, carrying these four eggs is so tricky!’, you might think (wondering why the hell you have to carry four eggs in one hand, not knowing you are just part of an overly complicated analogy in this universe)

Now imagine you are a person who has no thumbs. Or maybe just three fingers. Or maybe very small and greasy hands.

Carrying those four eggs would be quite a bit more tricky. You very often drop two or three eggs, some days you drop all the eggs. Sometimes, with a lot of practice, careful balancing and intense concentration, you manage to carry all the eggs. Hurrah.

When you drop the eggs, other people (in this analogy created universe of egg holders) will commiserate and say:

"Oh dear, don't worry I drop an egg all the time! Everyone struggles with the eggs!"

And they do, you see them dropping one or two of their eggs now and then and sighing and shaking their heads and you think - we all drop our eggs sometimes, I should just clean up this mess and make do with the eggs I have left.

You really start to believe you should be able to carry the eggs, and that you probably drop about the same amount of eggs every now and then as everyone else.

But you don't have any thumbs, or just three fingers, or very small and greasy hands.

You are dropping a lot of eggs.

You are spending a lot more time cleaning up sticky egg mess.

You are getting very upset with how small your omelette is.

You go to your fully fingered friend and sigh and say :

"Oh, carrying these eggs is so hard, and I am always dropping so many, and spending so long cleaning up sticky egg mess"

And they pat your shoulder and sigh with you and to comfort you say:

"Yes, we all drop the eggs sometimes. Don't worry about it so much though, that's normal!"

And you look down at your thumbless, or three fingered, or very small and greasy hands and think :

‘No, I think it might just be harder for me - somehow’

And you're so tired of carrying eggs, and you're angry that no one sees how hard you are trying to carry the eggs, and that they won't acknowledge that you are dropping more eggs even though you are trying harder not to.

And that's a bit what it feels like to me trying to tell people who don't experience what I experience, just how hard it is for me sometimes. A lot of the time. Most of the time.

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pinkheartfleece · 1 year

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I passive aggressively emailed my professor to make him stop ignoring my adjustment plan and then used the phrase "as a disabled student" to make him shit himself into doing it

round here we call that a

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autisticdreamdrop · 7 months

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it's a "visible" disability for a lot of mid to high support needs autistics but same for the autistics who have it as in "invisble" disability. we are all autistic. we are all valid.

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thechronicsloth · 2 months

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The sunflower is the official symbol of hidden/invisible disabilities.

Three more flags on sunflowers! These are for asexual, aromantic and aroace people who also have invisible disabilities.

Feel free to use it and share it. I just ask that you credit me.

If you'd like to have it on pins, stickers, tote bags, clothes and other merch, these pride sunflowers are all available in my shop.

Let me know if you'd like a particular flag on a sunflower.

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fablesys · 1 year

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#did memes #osdd memes #did system #osdd system #actually disabled #pots syndrome #hypermobile ehlers danlos #ehlers danlos syndrome #i’m disabled #chronically ill #pots memes #ehlers danlos problems #hidden disability

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underneaththatblackblanket · 6 months

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"The 200+ Symptoms of Fibromyalgia"

(Note: Some symptoms may overlap)

GENERAL

1. Activity level decreased to less than 50% of pre-illness activity level

2. Cold hands and feet (extremities)

3. Cough

4. Craving carbohydrates

5. Delayed reaction to physical activity or stressful events

6. Dryness of eyes and/or mouth

7. Edema (Oedema)

8. Family member(s) with Fibromyalgia

9. Fatigue, made worse by physical exertion or stress

10. Feeling cold often

11. Feeling hot often

12. Frequent sighing

13. Heart palpitations

14. Hoarseness

15. Hypoglycemia (blood sugar falls or low)

16. Increased thirst

17. Low blood pressure (below 110/70)

18. Low body temperature (below 97.6)

19. Low-grade fevers

20. Night sweats

21. Noisy joints – with or without pain

22. Poor circulation in hands/feet

23. Profuse sweating

24. Recurrent flu-like illness

25. Shortness of breath with little or no exertion

26. Severe nasal allergies (new or worsening allergies)

27. Sore throat

28. Subjective swelling of extremities – (feels swollen Bu can’t find anything)

29. Sweats

30. Symptoms worsened by air travel

31. Symptoms worsened by stress

32. Symptoms worsened by temperature changes

33. Tender or swollen lymph nodes, especially in neck and underarms

34. Tremor or trembling

35. Unexplained weight gain or loss

PAIN

36. Abdominal wall pain

37. Bad hip pain

38. Burning Nerve Pain

39. Chest pain

40. Collarbone pain

41. Diffuse swelling

42. Elbow pain

43. Exacerbated Plantar arch or heel pain

44. “Growing” pains that don’t go away once you are done growing

45. Headache – tension or migraine

46. Inflamed Rib Cartilage

47. Joint pain

48. Lumpy, tender breasts

49. Morning stiffness

50. Muscle pain - widespread

51. Muscle spasms

52. Muscle twitching

53. Muscle weakness

54. Pain that ranges from moderate to severe

55. Pain that moves around the body

56. Paralysis or severe weakness of an arm or leg

57. Restless Leg Syndrome

58. Rib Pain

59. Scalp Pain (like hair being pulled out)

60. Sciatica-like pain

61. Tender points or trigger points

62. TMJ syndrome

63. “Voodoo Doll” Poking Sensation in random places

NEUROLOGICAL

64. Blackouts

65. Brain fog

66. Carpal Tunnel

67. Feeling spaced out

68. Hallucinating smells

69. Inability to think clearly

70. Lightheadedness

71. Noise intolerance

72. Numbness or tingling sensations

73. Photophobia (sensitivity to light)

74. Seizures

75. Seizure-like episodes

76. Sensation that you might faint

77. Syncope (fainting)

78. Tinnitus (ringing in one or both ears)

79. Vertigo or dizziness

EQUILIBRIUM/PERCEPTION

80. Bumping into things

81. Clumsy Walking

82. Difficulty balancing

83. Difficulty judging distances (when driving, etc.)

84. Directional disorientation

85. Dropping things frequently

86. Feeling spatially disoriented

87. Frequent tripping or stumbling

88. Not seeing what you’re looking at

89. Poor balance and coordination

90. Staggering gait

SLEEP

91. Alertness/energy best late at night

92. Altered sleep/wake schedule

93. Awakening frequently

94. Difficulty falling asleep

95. Difficulty staying asleep

96. Excessive sleeping

97. Extreme alertness or energy levels late at night

98. Falling asleep at random and sometimes dangerous moments

99. Fatigue

100. Light or broken sleep pattern

101. Muscle spasms/twitches at night

102. Narcolepsy

103. Sleep disturbances

104. Sleep starts or falling sensations

105. Teeth grinding - "Bruxism"

106. Tossing and turning

107. Un-refreshing or non-restorative sleep

108. Vivid or disturbing dreams/nightmares

EYES/VISION

109. Blind spots in vision

110. Eye pain

111. Difficulty switching focus from one thing to another

112. Frequent changes in ability to see well

113. Night driving difficulty

114. Occasional Blurry vision

115. Poor night vision

116. Rapidly worsening vision

117. Vision changes

COGNITIVE

118. Becoming lost in familiar locations when driving

119. Confusion

120. Difficulty expressing ideas in words

121. Difficulty following conversation (especially if background noise present)

122. Difficulty following directions while driving

123. Difficulty following oral instructions

124. Difficulty following written instructions

125. Difficulty making decisions

126. Difficulty moving your mouth to speak

127. Difficulty paying attention

128. Difficulty putting ideas together to form a complete picture

129. Difficulty putting tasks or things in proper sequence

130. Difficulty recognizing faces

131. Difficulty speaking known words

132. Difficulty remembering names of objects

133. Difficulty remembering names of people

134. Difficulty understanding what you read

135. Difficulty with long-term memory

136. Difficulty with simple calculations

137. Difficulty with short-term memory

138. Easily distracted during a task

139. Dyslexia-type symptoms occasionally

140. Feeling too disoriented to drive

141. Forgetting how to do routine things

142. Impaired ability to concentrate

143. Inability to recognize familiar surroundings

144. Losing track in the middle of a task (remembering what to do next)

145. Losing your train of thought in the middle of a sentence

146. Loss of ability to distinguish some colors

147. Poor judgment

148. Short term memory impairment

149. Slowed speech

150. Staring into space trying to think

151. Stuttering; stammering

152. Switching left and right

153. Transposition (reversal) of numbers, words and/or letters when you speak

154. Transposition (reversal) of numbers, words and/or letters when you write

155. Trouble concentrating

156. Using the wrong word

157. Word-finding difficulty

EMOTIONAL

158. Abrupt and/or unpredictable mood swings

159. Anger outbursts

160. Anxiety or fear when there is no obvious cause

161. Attacks of uncontrollable rage

162. Decreased appetite

163. Depressed mood

164. Feeling helpless and/or hopeless

165. Fear of someone knocking on the door

166. Fear of telephone ringing

167. Feeling worthless

168. Frequent crying

169. Heightened awareness – of symptoms

170. Inability to enjoy previously enjoyed activities

171. Irrational fears

172. Irritability

173. Overreaction

174. Panic attacks

175. Personality changes –usually a worsening of pervious condition

176. Phobias

177. Suicide attempts

178. Suicidal thoughts

179. Tendency to cry easily

GASTROINTESTINAL

180. Abdominal cramps

181. Bloating

182. Decreased appetite

183. Food cravings

184. Frequent constipation

185. Frequent diarrhea

186. Gerd-like Symptoms

187. Heartburn

188. Increased appetite

189. Intestinal gas

190. Irritable bladder - "Angry Bladder Syndrome"

191. Irritable bowel syndrome - IBS-C, IBS-D

192. Nausea

193. Regurgitation

194. Stomachache

195. Vomiting

196. Weight gain - unexplained

197. Weight loss - unexplained

UROGENITAL

198. Decreased libido (sex drive)

199. Endometriosis

200. Frequent urination

201. Impotence

202. Menstrual problems

203. Painful urination or bladder pain - "Interstitial Cystitis"

204. Pelvic pain

205. Prostate pain

206. Worsening of (or severe) premenstrual syndrome (PMS or PMDD)

SENSITIVITIES

207. Alcohol intolerance

208. Allodynia (hypersensitive to touch)

209. Alteration of taste, smell, and/or hearing

210. Sensitivity to chemicals in cleaning products, perfumes, etc.

211. Sensitivities to foods

212. Sensitivity to light

213. Sensitivity to mold

214. Sensitivity to noise

215. Sensitivity to odors

216. Sensitivity to yeast (getting yeast infections frequently on skin, etc.)

217. Sensory overload

218. Sensitivity to pressure & humidity changes

219. Sensitivity to extreme temperature changes

220. Vulvodynia

SKIN

221. Able to “write” on skin with finger

222. Bruising easily

223. Bumps and lumps

224. Eczema or psoriasis

225. Hot/dry skin

226. Ingrown hairs

227. Itchy/Irritable skin

228. Mottled skin

229. Rashes or sores

230. Scarring easily

231. Sensitivity to the sun

232. Skin suddenly turns bright red

CARDIOVASCULAR (Heart)

233. “Click-murmur” sounds through stethoscope

234. Fluttery heartbeat

235. Heart palpitations

236. Irregular heartbeat

237. Loud pulse in ear

238. Pain that mimics heart attack - "Costochondritis"

239. Rapid heartbeat

HAIR/NAILS

240. Dull, listless hair

241. Heavy and splitting cuticles

242. Irritated nail beds

243. Nails that curve under

244. Pronounced nail ridges

245. Temporary hair loss

OTHER

246. Canker sores

247. Dental problems

248. Disk Degeneration

249. Hemorrhoids

250. Nose bleeds

251. Periodontal (gum) disease

252. Need for early hysterectomy

#fibromyalgia #chronic pain #chronic illness #chronically ill #invisible illness #spoonie #pwd #disability #hidden disability #sharing is caring #disorder #neurological disorder #central nervous system #nervous system disorder #mental health #health #awareness

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yoteblog · 6 months

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Pain relief methods:

context: I have joint pain due to h-ehlers danlos and arthritis, along with muscular pain due to hEDS as well. I also have an unknown autoimmune, which often coinsides with my pain. These methods are what work for me for my needs. I will be excluding prescription medication, and drugs that are still illegal in parts of the US (yknow the one) please talk to a doctor if you consider getting prescription medication, many prescription pain medications can be addictive which is why they are a controlled substance

Ibuprofen for muscular pain

Tylenol for joint pain (arthritis Tylenol is a different kind, and makes my joints much more stiff than regular Tylenol)

heating pad

warm bath (a rarity, as if my joints hurt enough, I don't want to struggle to get in and out of the bath)

rest

Voltaren (CAN be prescription, but also OTC, expensive but works decently after a few uses. Relief doesn't last long imo)

Icy hot or anything similar

Back/Knee brace to prevent further pain

good, long stretches for upper back pain (side to side stretch)

mobility aids (I haven't used any myself persay, ive used walking sticks ive created when out in the forest, and at work when im cleaning up for the night I push around some carts and put some weight of mine in them which makes it easier for me to move)

compression socks/gloves (gloves for when my hand joints are acting up and are stiff, socks for when the bloodflow in my legs arent cycling correctly AND helps with muscle pain caused by heds)

#chronic illness #heds #hypermobile ehlers danlos #ehlers danlos syndrome #autoimmine disease #arthiritis #chronically ill #disabled #hidden disability #disability #pain management

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locketdream · 25 days

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ALL. DISABILITIES. ARE. NOT. ALWAYS. VISIBLE.

#Destiny #disability #disabled #hidden disability #hidden disabilities #chronically ill #chronic illness #chronic pain #chronic fatigue

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why-arent-you-whumped · 1 year

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Alright whump writers. Here’s a little something based on personal experience.

Whumpee with a hidden medical condition/disability

This is based on myself as someone with a heart condition and symptoms that I often don’t recognize until too late. Imagine a whumpee:

Forgetting to bring medicine on a trip and trying to hide symptoms

Stopping more often than others on missions to steady themself

Not telling the group about the condition to avoid concern

Disappearing for a few days without a word because they had to spend a few days in the hospital after a scare

Experiencing the beginnings of a cardiac episode but not saying anything

Getting worked up in an argument and having to leave so they don’t hurt themself

Confiding in one member of the group and having them promise to keep it secret

Passing out during an important mission

Fatigued from being put on new medication

Keeping a hidden medical journal with resting heart rate (RHR) and peaks for the week

Worrying about something unexpected causing an episode

Being kidnapped and going without medicine days/weeks

Being given placebos by an enemy and having a heart attack because of them

And imagine their caretaker:

Analyzing every model of defibrillator in case of an episode

Getting CPR certified

Watching them sleep after a medical scare

Constantly checking that they took their medicine/have their prescriptions filled

Panicking the first time they go into cardiac arrest

Losing sleep trying to find them, knowing they’re kidnapped without medicine

Booking/taking them to doctor’s appointments

Becoming their emergency contact

Getting them a medical ID/dog tag with their condition listed

Studying all warning signs connected to their condition and similar conditions

Traveling hours away to bring them their medicine

Treating them like their made of glass after they’ve had an episode

I love medical whump and I should write something with loads of it!!!

#whump #fainting #passing out #medical whump #hospital whump #hidden condition #hidden disability #heart condition #caretaker #disabled whumpee #hidden medical condition #medical condition #cpr #kidnapping #fatigue

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positivelyqueer · 10 months

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Happy Disability Pride Month to people with hidden disabilities, chronic illnesses and mental illnesses.

#disability pride month #chronic illness #hidden disability #mental illness

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mrblazeflappybird · 9 months

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Happy disability pride month to people with who don't feel 'disabled enough' to use the term disabled to describe themselves

Happy disability pride month to people who get compared to other people who have disabilities alike and unalike to theirs in an attempt to guilt-trip them do something they can't/don't want to do

Happy disability pride month to people who feel like the only way they can prove themselves is through academic achievement because they can't do sports like the other kids

Happy disability pride month to people who feel like the only way they can prove themselves is through sports because they don't do well in lessons like the other kids

Happy disability pride month to people who don't know anyone else with anything remotely like what they have, and feel alone because of it

And Happy disability pride month to the people who just don't feel like they're enough. Because you are. Its okay to struggle and ask for help, you aren't any less a person or you because of it, and I love all of you (platonically) <33

#disability pride month #disability #actually disabled #neurodivergent #actually neurodivergent #disabled #neurodiversity #hidden disability

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productoftheink · 2 months

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Some disability blinkies !!! :3

:3

#:3 #blinkies #spacehey #webcore #web graphics #fast gif #hidden disability #neurodivergent #neurodiversity #autism #audhd #adhd #bpd #tics #tourettes #ocd #schizophrenia #selective mutism

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autisticdreamdrop · 5 months

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12/4/23 casual fit with our cane + hidden disability lanyard

#our photos #us #cane #cane user #disabled #babe with a mobility aid #hidden disability #autistic #actually autism #actually autistic #autie #autism #sunflower lanyard #hidden disability lanyard #hidden disabilities

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neurosky · 10 months

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Hearing people talk so openly and proudly about disabilities this month has made me feel so much less alone. It's only 8 days in, yet I already feel more seen and comfortable. Thank you to everyone posting during disability pride month, because it genuinely helps so many people <3

#tourettes #tics #tourette syndrome #tic disorder #chronic illness #mental illness #neurodivergent #actually chronically ill #chronically ill #actually disabled #disabled #hidden disability #disability pride month

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